AdvoSci Health

AdvoSci Health
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Learning about people with rare diseases, health issues, and current events

  1. Jul 26

    Episode 22: The Caregiver as the Core Data Keeper

    When a child has a rare genetic disorder, families track micro-fluctuations in symptoms, medication shifts, and environmental triggers daily. So why does this invaluable data struggle to find a home in structured health systems? In this episode of the AdvoSci Health Podcast, we are joined by Kasey Walsh, Founder of Winsights and a parent-driven researcher. We examine: How families become the primary data keepers in rare disease care. The tension between "anecdotal" observations and clinical data standards. Whether the healthcare data gap is a technical limitation of EHRs or a cultural bias. How Winsights is building HIPAA-compliant, low-friction tools to turn real-world patient stories into FDA-grade research data. --- Follow & Subscribe to AdvoSci Health (ASH) on Spotify, Apple Podcasts, and YouTube for conversations at the intersection of advocacy, science, and health technology. #RareDisease #CaregiverAdvocacy #HealthTech #ASHPodcast #PatientData #RealWorldEvidence #Winsights

    Episode 22: The Caregiver as the Core Data Keeper

  2. Mar 12

    A Free Healthcare System at Scale: The Indus Hospital Network with Dr. Zafar Zaidi

    In this episode of the ASH Podcast, Dr. Syed Zafar Zaidi, CEO of the Indus Hospital and Health Network, takes us inside one of the world’s most ambitious healthcare models - a hospital system that provides completely free care at scale. Serving millions across Pakistan, the network is redefining what equitable healthcare can look like. How do you build and sustain a healthcare system where no patient ever receives a bill? Dr. Zaidi shares the vision, challenges, and innovations behind this groundbreaking model - and what the rest of the world can learn from it Check out Dr. Zaidi's TED Talk to learn more about his journey! https://www.youtube.com/watch?v=Q2G6H5_YzlI

  3. Feb 19

    Episode 19: When Cities Go Global - New York, WHO, And The Future Of Public Health

    What happens when a U.S. state joins the World Health Organization — after the United States officially withdraws? In this episode, we unpack New York State’s decision to join the Global Outbreak Alert and Response Network (GOARN), a WHO-coordinated system designed to detect and respond to disease outbreaks around the world. With the U.S. federal government stepping away from WHO membership, New York — along with a few other states — has chosen to stay connected to global public health infrastructure. Article: "First look: New York joins WHO network after Trump pulls U.S. from UN agency" #GlobalHealth #PublicHealth #WHO #GOARN #HealthPolicy #PandemicPreparedness #OutbreakResponse #HealthSecurity #InfectiousDisease #GlobalGovernance #PublicHealthNews #AdvoSciHealth #ASHPodcast

    Episode 19: When Cities Go Global - New York, WHO, And The Future Of Public Health

  4. Jan 29

    Episode 18: The Water We Drink - Kashechewan And The Path To Health Equity

    In this episode of ASH, we unpack the evacuation of Kashechewan First Nation following a failure of its water and sewage systems and confirmed cases of cryptosporidium, a waterborne parasite. Hundreds of residents were forced to leave their community and relocate to southern Ontario — once again highlighting how water insecurity in Indigenous communities is treated as an emergency instead of a preventable policy failure. Article 1: "Niagara Falls helps hundreds of Kashechewan water crisis evacuees settle into the Ontario city" Article 2: "19 members of Kashechewan First Nation in northern Ontario test positive for cryptosporidium" #kashechwan #indigenoushealth #WaterIsARight #publichealth #healthequity #indigenousrights #canadahealth #environmentaljustice #reconciliation #advoscihealth #ashpodcast

    Episode 18: The Water We Drink - Kashechewan And The Path To Health Equity

  5. Jan 15

    Episode 17: "Beyond the White Coat: Shaping the Future Physician"

    What does it really take to build a new medical school – and reimagine the kind of physicians our communities truly need? In this powerful new episode of the ASH Podcast, we sit down with Dr. Teresa Chan, the Founding Dean of the TMU School of Medicine. From insights into the inaugural class and honest reflections on leadership lessons to a deep dive into healthcare inequities, this conversation goes beyond titles, beyond tradition, and beyond the white coat. Watch now on our Spotify and YouTube channels, and join us as we explore how the future of medicine is being shaped today!

  6. 12/28/2025

    Episode 16: Ontario’s Doctor Billing System - Oversight, Accountability, and What This Means for Patients

    In this episode of the ASH Podcast, we break down a troubling finding from the Auditor General of Ontario: the province may not be properly overseeing how doctors bill the healthcare system. What does weak oversight actually mean for public trust, healthcare spending, and patient care? Tune in as we unpack the report, explain why it matters to everyday Ontarians, and explore the ripple effects this could have on the future of publicly funded care in Ontario. If you care about where healthcare dollars go — and who’s responsible for watching them — this is an episode you won’t want to miss.

  7. 12/11/2025

    Dual Practice In Alberta: Fixing Healthcare OR Breaking It?

    Alberta is testing a bold shift: allowing physicians to work in both the public and private systems. But is “dual practice” the answer to long wait times - or a threat to universal care? In this week's episode, we unpack the evidence, hear from experts on both sides, and explore what this policy could mean for patients, providers, and the future of Canadian healthcare. Article 1: What Alberta's public-private doctor plan could mean for insurance, physician burnout, nurses and more Article 2: Experts warn the devil is in the details with Alberta's 'experiment' to expand private health care

    Dual Practice In Alberta: Fixing Healthcare OR Breaking It?

  8. 11/27/2025

    Episode 14: Polio in Pakistan - Progress, Resistance, and the Politics of Health

    Pakistan is one of only two countries where wild poliovirus still circulates. But the story of polio isn’t just medical — it’s shaped by mistrust, misinformation, community experiences, state policies, and the complex politics of public health. In this episode, we speak with Hadeed Hassan, a researcher at the SickKids Centre for Global Child Health, about vaccine hesitancy, recent attacks on polio workers, the tension between individual rights and state responsibility, and why some communities continue to resist vaccination. A powerful conversation on trust, health systems, and what it will take to finally end polio in Pakistan.

    Episode 14: Polio in Pakistan - Progress, Resistance, and the Politics of Health
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About

Learning about people with rare diseases, health issues, and current events

Information

  • Creator
    AdvoSci Health
  • Years Active
    2025 - 2026
  • Episodes
    24
  • Rating
    Explicit
  • Copyright
    © AdvoSci Health
  • Show Website
    AdvoSci Health