Let's Talk SADS Live

Canadian SADS Foundation
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  • Updated Monthly

The Let’s Talk SADS Live Podcast intends to be a highly accessible and collaborative educational platform for patients and families navigating SADS conditions. Topics cover the spectrum of SADS conditions, fostering a well-informed and proactive patient community. Launched in January 2023, the Let’s Talk SADS Live Podcast features monthly live-streamed sessions led by prominent Canadian pediatric clinician/researcher, Dr. Shubhayan Sanatani, alongside globally recognized experts. To help us continue in changing SADS patients' lives, please consider donating to us at www.sads.ca/donate/.

  1. 4d ago

    Ep. 52 Women, Inherited Heart Conditions, and the Care They Deserve with Dr. Danna Spears

    Somewhere right now, a young woman is being told her heart palpitations are just anxiety. She is being sent home without an ECG. She is being told she is too young and too low risk for anything to be wrong. She might believe them. She also might go years without knowing she has an inherited heart condition. Dr. Danna Spears, an electrophysiologist at the Peter Munk Cardiac Centre, sees these women every day. In this episode, she talks about the fear of never growing old, the worry about having children, the struggle of living with a visible defibrillator and the confusion around menopause and hormone therapy. But mostly she talks about hope. Because the answers are better than most women have been told. And because no one has to do this alone. This episode is for every woman who has ever been told to stop worrying. Your heart matters. And so do you. Watch the full episode and follow us on our socials. Facebook - https://tinyurl.com/CanadianSADSFacebookYouTube - https://tinyurl.com/CanadianSADSYouTubeInstagram - https://tinyurl.com/CanadianSADSInstagramSpotify - https://tinyurl.com/CanadianSADSSpotifyApple - https://tinyurl.com/CanadianSADSAppleAmazon - https://tinyurl.com/CanadianSADSAmazon #LetsTalkSADSLive #SADS #WomensHeartHealth #InheritedHeartConditions #Cardiomyopathy #Channelopathy #ARVC #LongQT #ICD #Defibrillator #HeartDiseaseInWomen #NotJustAnxiety #WomensHealth #PatientVoice #HeartCommunity #YouAreNotAlone #PregnancyAndHeartDisease #MenopauseAndHeartHealth

    35 min

  2. May 27

    Ep. 51 When Patients Help Design Research, Healthcare Improves

    When Patients Help Design Research, Outcomes Improve. No lab coat required. Just lived experience and a seat at the table. Anne Simard shares how patient partners have rewritten study protocols, redesigned unusable wearables, and told engineers their "sexy" new tech was a disaster. She also tackles the awkward question: should patients get paid for their expertise? Because when patients help design research, outcomes improve for everyone. Watch the full episode and follow us on our socials!Facebook - https://tinyurl.com/CanadianSADSFacebookYouTube - https://tinyurl.com/CanadianSADSYouTubeInstagram - https://tinyurl.com/CanadianSADSInstagramSpotify - https://tinyurl.com/CanadianSADSSpotifyApple - https://tinyurl.com/CanadianSADSAppleAmazon - https://tinyurl.com/CanadianSADSAmazon #LetsTalkSADSLive #SADS #PatientPartners #PatientEngagement #ClinicalResearch #LivedExperience #PatientVoice #NothingAboutUsWithoutUs #FutureOfHealthcare

    36 min

  3. May 12

    Ep. 50 A Conversation Between Two Sisters About ARVC

    We have a very special episode this week of Let's Talk SADS Live. Our host Heather is talking with someone she's known her whole life: her older sister, Meredith. They share a lot. Memories, jokes, the occasional family fight. And now an inherited heart condition called ARVC. Meredith watched Heather get her diagnosis first. Years went by, then she got the same news herself. So they sat down to talk about what that's actually like. The hard conversations with family, the things people get wrong, and what it means to go through something like this with your sister in your corner. Just two sisters, one conversation, no script. Watch the full episode and follow us on our socials! Facebook - https://tinyurl.com/CanadianSADSFacebook YouTube - https://tinyurl.com/CanadianSADSYouTube Instagram - https://tinyurl.com/CanadianSADSInstagram Spotify - https://tinyurl.com/CanadianSADSSpotify Apple - https://tinyurl.com/CanadianSADSApple Amazon - https://tinyurl.com/CanadianSADSAmazon #LetsTalkSADSLive #SADS #ARVC #GeneticHeartCondition #FamilyHistory #Sisters #GeneticTesting #WomensHeartHealth #Cardiology #FamilyMatters #DutyToInform #HeartCondition #RareDisease #InheritedCondition #HeartHealth #Sisterhood #Resilience #PatientAdvocacy #KnowYourFamilyHistory #SuddenCardiacArrest #ICD #Defibrillator #AthleteHeart #RealConversations

    40 min

  4. Apr 28

    Ep. 49 How a Teenager Turned Her CHD Into Her Superpower

    You wouldn't expect a 16 year old with Congenital Heart Defect (CHD) to say a roller coaster is one of her favorite stories, but here we are! Amelia was born with Double Outlet Right Ventricle and has had three open heart surgeries, but ask her if she'd trade her CHD for a "normal" life, and her answer might surprise you. In this uplifting conversation, Amelia opens up about finding her people at Campfire Circle, advocating for other cardiology patients through the Chameleon app, and why she actually sees her heart condition as something that made her life better, not worse. Amelia's story is proof that resilience looks a lot like joy. Watch the full episode and follow us on our socials! Facebook - https://tinyurl.com/CanadianSADSFacebook YouTube - https://tinyurl.com/CanadianSADSYouTube Instagram - https://tinyurl.com/CanadianSADSInstagram Spotify - https://tinyurl.com/CanadianSADSSpotify Apple - https://tinyurl.com/CanadianSADSApple Amazon - https://tinyurl.com/CanadianSADSAmazon #LetsTalkSADSLive #SADS #CHD #CongenitalHeartDefect #DoubleOutletRightVentricle #Fontan #HeartWarrior #CampfireCircle #PatientPartner #YouthAdvocacy #RareDisease #HeartCondition #TeenWithCHD #Cardiology #TransitionToAdultCare #SelfAdvocacy #LivingWithCHD #HeartPalpitations #RollerCoaster #AmazingPeople

    29 min

  5. Apr 14

    Ep 48. One Shot at a New Life with Gene Therapy Patient Brian O'Mahoney

    Gene therapy. One injection. No going back. Brian O'Mahoney, the first person in Ireland to receive any gene therapy, has lived with severe hemophilia B his entire life. In this deeply personal conversation, Brian shares what it really means to make an irreversible medical decision, and how basing his choice on data from just three patients became the leap of faith that changed everything. Now, 44 years into leading patient advocacy across Ireland, Europe, and globally, Brian is helping others navigate the same impossible question: When do you take the one shot you'll ever get? This episode offers a rare look inside the mind of someone who chose to rewrite their own biology, and the resilience required to help an entire community do the same. Watch the full episode and follow us on our socials! Facebook - https://tinyurl.com/CanadianSADSFacebook YouTube - https://tinyurl.com/CanadianSADSYouTube Instagram - https://tinyurl.com/CanadianSADSInstagram Spotify - https://tinyurl.com/CanadianSADSSpotify Apple - https://tinyurl.com/CanadianSADSApple Amazon - https://tinyurl.com/CanadianSADSAmazon #LetsTalkSADSLive #SADS #GeneTherapy #Hemophilia #HemophiliaB #PatientAdvocacy #RareDisease #GeneticCondition #MedicalInnovation #PatientStory #ChronicIllness #LivingWithHemophilia #BleedingDisorders #GeneTherapyTrial #IrreversibleDecision #SharedDecisionMaking #PatientEmpowerment #MedicalBreakthrough #ClinicalTrial #HealthcareInnovation #PatientAdvocate #RareDiseaseCommunity #Resilience #MedicalDecisions

    36 min

  6. Mar 24

    Ep. 47 A New Era of Remote Heart Monitoring and What It Means for Patients with Dr. Heather Ross

    Wearable technology that can predict heart failure hospitalizations days in advance is just one of the groundbreaking innovations Dr. Heather Ross, a world-renowned cardiologist and heart failure specialist, is bringing to patients. In this powerful conversation, Dr. Ross shares how a near-death experience on a remote Antarctic mountain transformed her approach to care, the revolutionary digital tools that are changing how we monitor heart health, and her mission to bring equitable heart care to rural and Indigenous communities across Canada, all from a Pelican case.This episode offers a rare glimpse into the mind of a physician who has dedicated her life to meeting patients where they are, both physically and emotionally, and the digital tools making that possible. Watch the full episode and follow us on our socials! Facebook - https://tinyurl.com/CanadianSADSFacebook YouTube - https://tinyurl.com/CanadianSADSYouTube Instagram - https://tinyurl.com/CanadianSADSInstagram Spotify - https://tinyurl.com/CanadianSADSSpotify Apple - https://tinyurl.com/CanadianSADSApple Amazon - https://tinyurl.com/CanadianSADSAmazon #LetsTalkSADSLive #SADSCanada #HeartFailure #WearableTech #RemoteMonitoring #DigitalHealth #HealthEquity #Cardiology #HeartHealth #PatientCare #HeartDisease #HeartHealthMatters #Cardiologist #HeartFailureAwareness #MedTech #HealthTech #AIinHealthcare #Wearables #PreventiveCare #RuralHealth #IndigenousHealth #DigitalTransformation #TrueHF #AppleWatch #HeartMonitoring #CardiacCare #HealthcareInnovation #PatientEmpowerment #HeartBrainConnection #NearDeathExperience #TestYourLimits

    32 min

  7. Mar 10

    Ep. 46 Finding Your Story After a Life Changing Diagnosis with Dr. Sharon Bray

    Your story matters. And telling it might just help you heal.After surviving sudden cardiac arrest and a heart failure diagnosis herself, Dr. Sharon Bray discovered that writing wasn't just a creative outlet. It was a lifeline.In this week's Let's Talk SADS Live, Dr. Bray shares how expressive writing can help process trauma, build community, and remind us that we are not alone. Whether you write for five minutes or fifty years, putting words to your experience can change everything.Hear her full story. Links below.YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠#ExpressiveWriting #TherapeuticWriting #HealingThroughWriting #WriteYourStory #StorytellingHeals #CreativeWriting #MentalHealthMatters #TraumaHealing #EmotionalWellness #CopingWithIllness #GriefAndLoss #HealingJourney #YouAreNotAlone #PatientSupport #HeartHealth #HeartFailure #SuddenCardiacArrest #SADS #SADSAwareness #CardiacArrest #LivingWithHeartFailure #HeartDiseaseAwareness #PatientAdvocacy

    33 min

  8. Feb 24

    Ep. 45 Gene Therapy Is Rewriting the Future for Heart Patients with Dr. Farah Sheikh

    What if a single treatment could change the future of your heart? This #HeartMonth, we are bringing you a conversation filled with hope, science, and the power of persistence. We sit down with Dr. Sheikh, a Canadian-born scientist, who walks us through her groundbreaking gene therapy research targeting ARVC PKP2 mutations, what "potential reversibility" could mean for patients living with heart failure, and why she is now working toward mutation agnostic treatments that could help even more families. If you have ever wondered how close we really are to treatments that address the root cause of genetic heart disease, this episode is for you. Listen now to learn how science, determination, and a personal connection are driving real progress: YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube ⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram ⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify ⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠ Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠ #SADS #HeartMonth #ARVC #GeneTherapy #GeneticHeartCondition #PKP2 #CardiacResearch #SuddenCardiacArrest #SCAPrevention #HeartHealth #MedicalBreakthrough #PatientHope #CanadianResearch #WomenInScience

    32 min
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About

The Let’s Talk SADS Live Podcast intends to be a highly accessible and collaborative educational platform for patients and families navigating SADS conditions. Topics cover the spectrum of SADS conditions, fostering a well-informed and proactive patient community. Launched in January 2023, the Let’s Talk SADS Live Podcast features monthly live-streamed sessions led by prominent Canadian pediatric clinician/researcher, Dr. Shubhayan Sanatani, alongside globally recognized experts. To help us continue in changing SADS patients' lives, please consider donating to us at www.sads.ca/donate/.

Information

  • Creator
    Canadian SADS Foundation
  • Years Active
    2025 - 2026
  • Episodes
    52
  • Rating
    Clean
  • Copyright
    © Canadian SADS Foundation
  • Show Website
    Let's Talk SADS Live