Amplify: A Podcast Powered by Patient Voice Partners

Ursula Mann, Brent Korte, Anne Marie Hayes, Christine Pisapia, Barry Liden
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Amplify brings you real stories and bold conversations — from patients and caregivers to clinicians, advocates, innovators, and system leaders. Together, we explore the human side of healthcare and the bold ideas that make it better. Powered by Patient Voice Partners, this podcast elevates lived experience to shape better care, access, and policy. Tune in to hear what healthcare looks like — when people are finally heard.

  1. 4D AGO

    Beyond the Clinic: How Communities Shape Health

    Episode Summary In this episode of Amplify: Elevating Patient Voices, hosts Ursula Mann and Brent Korte speak with Reg Joseph, CEO of Health Cities, about how community-based care, patient empowerment, and system design shape real healthcare outcomes. Reg shares insights from his background in biotechnology, finance, and healthcare innovation, explaining why technology alone cannot fix healthcare challenges. The conversation highlights the importance of redesigning care models, supporting patient self-management, and integrating healthcare into communities—especially in rural and underserved settings. Drawing from real-world examples and personal experience as a patient, this episode explores prevention, data use, access to care, and why the future of healthcare must extend beyond hospitals and clinics. Why You Should Listen Learn why community-based healthcare is critical to better outcomesUnderstand how innovation should be driven by patient and system needs, not technologyHear practical examples of remote monitoring and self-management in actionGain insights into rural healthcare access and decentralized care modelsDiscover how patients can self-advocate and partner with cliniciansExplore how responsible health data use can improve community wellnessEpisode Highlights (with Timestamps) [00:00–01:36] Introduction to Reg Joseph and the focus on community-driven healthcare[02:06–04:21] Reg’s transition from biotech and finance into healthcare systems[04:21–05:14] Why healthcare innovation often fails due to system complexity[05:47–07:18] Designing care models before introducing technology[07:18–08:21] Meeting patients where they are to improve outcomes[08:36–11:22] Remote monitoring, rural care challenges, and patient self-management[11:22–12:32] Prevention, education, and long-term wellness[12:46–14:17] A personal patient experience inside the healthcare system[14:40–17:35] How patients can self-advocate and engage clinicians effectively[17:35–19:46] What healthcare can learn from banking and consultative models[20:01–22:31] Simplifying complex systems through community collaboration[22:31–24:37] Rural Alberta as a model for integrated community care[25:32–29:10] Decentralized care, technology, and access beyond urban centers[29:55–31:03] Looking ahead: leadership, recovery, and personal goals[31:03–32:01] Final reflections on patient-centered, community-based healthcareWant to Share Your Voice? If you’re a patient or caregiver, you can join Patient Voice Connect to share your experiences and help shape healthcare here. Join our email list to get new episode updates here. Together, we can bring more voices to the table and shape the future of healthcare. Share this episode, leave a review, and follow Patient Voice Partners on LinkedIn to help amplify more voices. Medical Disclaimer: The content shared on Amplify is for informational and educational purposes only. Nothing discussed on this podcast—including stories, experiences, perspectives, or commentary from hosts, guests, or contributors—should be interpreted as medical a

    33 min

  2. JAN 23

    Living Beyond Diagnosis: Colorectal Cancer, Screening, and Patient Advocacy

    In this episode of Amplify: Elevating Patient Voices, hosts Ursula Mann and Barry Liden are joined by Barry Stein, President and CEO of Colorectal Cancer Canada, for a powerful and deeply personal conversation about colorectal cancer, early screening, and why patient voices matter in shaping healthcare systems. Barry Stein shares his remarkable journey—from a late-stage colorectal cancer diagnosis in the mid-1990s, through multiple surgeries and innovative treatments, to becoming one of Canada’s most influential patient advocates. His story highlights how determination, shared decision-making, and advocacy can drive meaningful change at both the individual and system level. Together, the hosts explore why colorectal cancer screening is so critical, how screening programs have evolved across Canada, and the real-world barriers patients face when it comes to testing and access to care. The conversation also dives into the importance of patient engagement in research, clinical trials, and health technology decision-making—reminding us that data alone is never enough without lived experience. This episode is a compelling reminder that patients are not just stakeholders in healthcare—they are essential partners. In This Episode, You’ll Hear About: Barry Stein’s personal experience with stage IV colorectal cancer and what it taught him about advocacyWhy early detection and screening save livesThe role of FIT testing and colonoscopy in colorectal cancer screeningHow patient voices influence policy, access, and innovation in healthcareWhy patient preference and lived experience matter in research and decision-makingThe long-term impact of advocacy—for individuals, families, and health systems

    32 min

  3. JAN 16

    Closing the Gap: Patient Voices and Pharma Transformation in the Middle East

    How is patient engagement evolving in one of the world’s fastest-changing healthcare regions?  In this episode, Ursula Mann and Christine Pisapia sit down with Mostafa Najib, a pharmaceutical leader with more than 20 years of experience across the Middle East. Together, they explore how patient expectations are shifting, how technology and policy are reshaping access to innovation, and why meaningful patient insight is still one of healthcare’s biggest challenges—globally. Why You Should Listen To gain a global perspective on how patient voices are being integrated into healthcare decision-makingTo understand what’s changing in the Middle East—and what remains surprisingly similar worldwideTo hear real-world reflections from inside the pharmaceutical industryTo explore how patient insight can shape better strategy, access, and outcomesTo consider what the future of patient-centered healthcare could look like across systemsEpisode Highlights 00:03:32 — Entering the pharmaceutical world How Mostafa found his path into pharma and why the commercial side captured his interest. 00:05:03 — The rise of patient engagement in the Middle East A look at how patient expectations and behaviors have shifted over the last two decades. 00:06:00 — The limits of traditional patient programs Why awareness and access initiatives still fall short of capturing what patients truly value. 00:07:26 — When assumptions miss the mark How physician perceptions sometimes diverge from what patients actually want or fear. 00:08:42 — Shared global patterns Christine reflects on similar trends in North America—from “Dr. Google” to increasing patient advocacy. 00:09:05 — The evolving role of patient groups Why patient associations are more established in Europe and North America than in the Middle East. 00:11:04 — Faster access to innovation How regulatory modernization is closing the gap between U.S. approvals and local availability. 00:12:23 — Digital transformation (and no more faxing) A lighthearted look at how digital health infrastructure has rapidly advanced in the region. 00:14:35 — What’s missing from patient insight The everyday realities, symptoms, and priorities that often never reach the healthcare system. 00:17:09 — Shrinking visit time How shorter appointments impact patient–physician communication and understanding. 00:20:20 — Designing a connected ecosystem Mostafa imagines a future where patients, providers, payers, and pharma collaborate more seamlessly. 00:21:43 — When patient feedback redirects strategy A real-world example of how one insight changed the course of a major investment. 00:25:30 — Surfing, seasons, and perspective A glimpse into Mostafa’s life outside of work—and the waves he’s chasing next. Want to Share Your Voice? If you’re a patient or caregiver, you can join Patient Voice Connect to share your experiences and help shape healthcare here. Join our email list to get new episode updates here. Together, we can bring more voices to the table and shape the future of healthcare. Share this episode, leave a review, and follow Patient Voice Partners on LinkedIn to help amplify more voices.

    27 min

  4. SEASON 1, EPISODE 1 TRAILER

    Welcome to Amplify: Elevating Patient Voices Through Listening and Action

    Welcome to the launch episode of Amplify, the podcast powered by Patient Voice Partners, where real stories spark bold conversations. In this episode, host Ursula Mann is joined by her co-hosts Brent Korte, Barry Liden, Anne Marie Hayes, and Christine Pisapia as they explore what patient engagement really means - and why it’s personal, not just professional.  Together, they share stories of caregiving, lived experiences, and the ways patient voices can influence decisions across healthcare - from policy and regulation to research and clinical care. Learn why listening to patients, caregivers, and healthcare changemakers matters, how insights from lived experiences translate into action, and the impact of truly inclusive patient engagement.  This episode also introduces Amplify’s mission: to provide a platform that elevates patient voices, fosters understanding, and inspires listeners to think differently, listen differently, and take action in their own healthcare ecosystems.  What You’ll Learn:  Why patient engagement is personal for every member of the healthcare ecosystem How patient perspectives can influence business, regulatory, and clinical decisions The challenges and opportunities in translating patient experiences into meaningful outcomes Ways listeners—patients, caregivers, clinicians, and innovators—can contribute to change Want to Share Your Voice?  If you’re a patient or caregiver, you can join Patient Voice Connect to share your experiences and help shape healthcare here.  Join our email list to get new episode updates here.  Together, we can bring more voices to the table and shape the future of healthcare.  Share this episode, leave a review, and follow Patient Voice Partners on LinkedIn to help amplify more voices.

    21 min

  5. 12/05/2025

    Living With Huntington’s: Inheriting Risk, Finding Purpose

    Episode Summary  In this powerful episode of Amplify, hosts Ursula Mann and Christina Pisapia speak with Erin Paterson, a writer, caregiver, and advocate whose life was transformed by Huntington’s Disease (HD).  Just as Erin and her husband were preparing to start a family, she learned a long-kept family secret: her grandmother may have died from Huntington’s. This revelation pushed Erin into rapid genetic testing, where she tested gene-positive. What followed was a decade-long struggle with depression, infertility, caregiving responsibilities, and fear of the future.  But Erin rebuilt her life through writing, community, caregiving, and storytelling. Today, she advocates globally for people living with rare diseases and cares for her father, who is now in his 80s with late-onset HD. Her story is one of courage, connection, and the quiet beauty of finding purpose—even when living with uncertainty.    Why You Should Listen  This episode is for you if you:  Work in healthcare and want to understand how to deliver compassionate, human-centered care for people with neurological and rare diseases. Support a loved one with chronic illness and want to hear how another caregiver navigates emotional, logistical, and generational challenges. Are navigating inherited risk, fear of the unknown, or the emotional weight of a diagnosis—personally or within your family. Believe in the power of storytelling, community, and advocacy to transform pain into purpose. Want to hear how small acts of joy and presence can sustain connection—especially when speech and movement change. You’ll walk away with a deeper understanding of Huntington’s disease, the importance of slowing down in care settings, and how love and community can reshape even the hardest realities.    Episode Highlights  00:00 — Understanding Huntington’s Disease  A clear, human explanation of what HD is and why lived experience is essential.  02:35 — A family secret revealed  Erin shares the unexpected moment that changed the course of her life.  03:57 — Facing a life-altering diagnosis  How Erin processed the news and what the early emotional impact looked like.  08:28 — Becoming a caregiver  What it meant to step into supporting her father as HD progressed.  09:46 — Advocacy in the healthcare system  Erin reflects on what patients and families often need—but don’t always receive.  13:24 — Rebuilding after a difficult season  The small, intentional practices that helped her slowly find her way forward.  15:49 — Transforming pain into purpose  How writing, publishing, and community shifted Erin’s path.  28:34 — Connection beyond words  A beautiful insight into staying close to a loved one when communication changes.

    32 min

  6. 11/21/2025

    Beyond the Dome: Humanizing Healthcare with Mark Stolow

    In this conversation, Ursula and Anne Marie sit down with Mark Stolow, Founding Director of People Before Patients, to explore what it truly means to humanize healthcare.   Drawing from early caregiving experiences and over two decades in public health, Mark challenges the industrial logic shaping today’s system and offers new metaphors—like forests, ecologies, and “the dome”—to help us reimagine care in a more relational, alive, and humane way.  He also introduces the practice of asking “more beautiful questions,” examines the difference between cold and warm data, and shares how slowing down might be the most urgent step toward redesigning healthcare for the future.    Why You Should Listen  You’ll rethink the phrase “humanizing healthcare”—and why it reveals how far we’ve drifted from care’s original purpose. Mark offers powerful metaphors (forest ecology, The Truman Show dome, bonsai) that reframe how we understand illness, suffering, and systems. You’ll learn why data alone can’t capture a person’s lived experience, and why healthcare must balance cold metrics with warm context. This episode gives clinicians, patients, caregivers, and leaders a new lens for imagining what healthcare could become if we widen the frame. It invites us to ask better, more beautiful questions—the kind that open new pathways instead of repeating old answers.   Episode Highlights (Timestamps)  00:00 – Welcome to Amplify  Ursula, Brent, and Anne Marie introduce the episode and its focus on perspectives that can reshape healthcare’s future.  00:34 – Meet Mark Stolow Mark is introduced as a thought explorer and founding director of People Before Patients, with more than 20 years in the human development and health space.  01:04 – Mark’s origin story  How caring for his mother during severe bipolar episodes shaped his lifelong interest in human suffering, psychology, and healing.  02:28 – Eastern philosophies and “the wisdom of anxiety”  Mark shares how Buddhist and Indian schools of thought influenced his academic and personal exploration of the mind.  04:00 – What does “humanizing healthcare” really mean?  Why the phrase surprises Mark, and what it reveals about how far we’ve drifted from a human-centered understanding of care.  05:45 – A family carrying the weight  Mark reflects on growing up in a household affected by mental illness and what he wishes the family had understood earlier.  07:54 – Healthcare professionals are longing for humanness too  The increasing dissatisfaction and yearning for meaning among clinicians.  08:56 – The forest metaphor: Healthcare as a living ecology  How interconnected systems like forests can teach us more about care than industrial models.  11:00 – What’s getting in the way? The limits of industrial thinking  Why healthcare’s “input-output” mindset fails to capture the complexity of human lives and chronic illness.  12:52 – Expanding the edges of illness  Cancer isn’t only what shows up on scans—Mark describes its ripple effects across relationships, identity, and daily life.  13:45 – Discreet solutions to complex problems  Why industrial solutions are often partial—and what’s missing.  14:38 – A better metaphor: ecological thinking  Shifting from centers and hierarchies to interdependence and mutuality.  16:00 – Ask a more beautiful question  What makes a question “beautiful,” why it requires patience, and how it helps us understand pro

    33 min

  7. 11/12/2025

    Stage Zero, Full Strength: Share’s Story of Early Detection, Self-Advocacy, and Choosing Light

    A routine nudge from a family doctor changed everything. After being sent for a mammogram she had delayed, Share was diagnosed with stage 0, triple-negative breast cancer—caught extraordinarily early. In this candid conversation, she walks us through that phone call, the whirlwind of next steps, and the mindset and micro-supports that helped her stay grounded: humor, weekly friend check-ins, complementary therapies, and clear self-advocacy. We also talk about what truly helpful support sounds like, why routine screening matters (even without symptoms), and how this experience is shaping her life, work, and a new legacy-preserving project for families.  Why listen  A real-world case of early detection saving options—and likely outcomes Practical scripts for self-advocacy when guidelines and funding create friction Compassionate guidance for friends & family: what to say, how to show up, and when to just listen An uplifting reminder that attitude and humor are legitimate forms of support  Key moments  00:01:02 — The curveball: A proactive GP flags an overdue mammogram; results move quickly to ultrasound and biopsy. 00:05:00 — “Triple-negative” at stage 0: Why speed mattered; a second tiny tumor was found by surgery day. 00:06:07 — The GP everyone deserves: Thorough history, time to listen, and even a hug. 00:11:00 — Two diagnoses in one day: Processing the news and choosing a forward plan. 00:12:00 — Building a circle of support fast: Reiki, self-hypnosis audio, nutrition plan, acupuncture & herbs. 00:13:05 — “Don’t should me”: Responding to others’ expectations about how to feel. 00:17:32 — Feeling seen: The power of two close friends and brave, non-invasive check-ins. 00:20:08 — Daily gratitude practice: Coffee, quiet, noticing small joys. 00:25:30 — Screening: No symptoms, no pain—still cancer. Don’t delay routine tests. 00:27:14 — Mindset matters: “Cancer loves despair.” Choose light, and ask for help if you can’t find it. 00:28:03 — Work & legacy: Launching Film & Life to preserve family memories. 00:30:14 — What she’s reading: Murder mysteries and JD Robb’s In Death series. 00:29:13 — Raiders fan for life: Loyalty, teamwork, and showing up to the end.  Resources & mentions Routine screening: talk to your GP about what’s recommended for your age & history and what’s available beyond funded programs.Books: JD Robb — In Death series (futuristic detective fiction).Share’s company: Film & Life — helping families preserve their stories through legacy videos and media digitization.Want to Share Your Voice?  If you’re a patient or caregiver, you can join Patient Voice Connect to share your experiences and help shape healthcare here.  Join our email list to get new episode updates here.  Together, we can bring more voices to the table and shape the future of healthcare.   Share this episode, leave a review, and follow Patient Voice Partners on LinkedIn to help amplify more voices.

    32 min

  8. 11/05/2025

    From Physician to Patient to Pioneer: Dr. Shazhan Amed on Surviving TEN and Building Haibu Health

    Episode Summary  What happens when a physician becomes the patient—and then an entrepreneur? Pediatric endocrinologist Dr. Shazhan Amed shares her harrowing, transformational journey through toxic epidermal necrolysis (TEN), a rare, life-threatening reaction often triggered by medications. Shazhan opens up about pain, fear, advocacy, and the moments of kindness that sustained her. She then connects those lessons to why she founded Haibu Health: to pair empathy with data and improve how teams communicate, coordinate, and care—especially in pediatric diabetes.  Why You Should Listen  Rare, lifesaving insight: Understand toxic epidermal necrolysis from the inside—how it presents, why minutes matter, and what compassionate care looks like in crisis. Practical advocacy tips: Concrete ways families can protect sleep, manage pain, and coordinate care—the small changes that change outcomes. Clinician perspective, transformed: Hear how becoming a patient reshaped a physician’s views on communication, documentation, and empathy. Innovation with heart: See how Haibu Health blends data + humanity to improve team-based care in pediatric diabetes (and beyond). Leader playbook: Mentorship, defining purpose, and making uncomfortable leaps—how to build mission-driven work that lasts. Caregiver validation: If you’ve stood bedside, you’ll feel seen—and leave with language and ideas to be heard in the system. Actionable takeaways: Simple practices any clinic can adopt tomorrow: batch vitals, explain the plan, involve caregivers, and treat kindness as care. Timestamps  00:00 – Welcome & setup: why this story matters 01:16 – Who is Dr. Shazhan Amed: clinician, researcher, founder 02:50 – What is toxic epidermal necrolysis (TEN) and how it presents (connection to SJS/TEN spectrum) 06:39 – Mentors who changed everything—from lab to fellowship to leadership 10:06 – Pediatrics is relational: caring for the child and the family 13:11 – The day life flipped: fever, blisters, rapid decline 15:39 – ICU & burn unit: pain, vision loss, and the sound of urgency 18:58 – Advocacy in action: batching vitals, protecting sleep, controlling pain 21:00 – Music therapy & humanity at the bedside 23:56 – Caregiver trauma and the physician who empowered her husband 29:14 – Coming home: support networks and the non-linear path to discharge 30:01 – Lessons for clinicians: time is gold; communicate with empathy 31:36 – From insight to impact: the origin of Haibu Health 36:28 – Leading with purpose: defining a personal “why” 39:00 – Joy & recovery: sabbatical, family time, tennis, and a travel gem (Matera, Italy) 41:26 – Closing, calls to action, and where to connect Want to Share Your Voice?  If you’re a patient or caregiver, you can join Patient Voice Connect to share your experiences and help shape healthcare here.    Join our email list to get new episode updates here.    Together, we can bring more voices to the table and shape the future of healthcare.  Share this episode, leave a review, and follow

    42 min
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Amplify brings you real stories and bold conversations — from patients and caregivers to clinicians, advocates, innovators, and system leaders. Together, we explore the human side of healthcare and the bold ideas that make it better. Powered by Patient Voice Partners, this podcast elevates lived experience to shape better care, access, and policy. Tune in to hear what healthcare looks like — when people are finally heard.

Information

  • Creator
    Ursula Mann, Brent Korte, Anne Marie Hayes, Christine Pisapia, Barry Liden
  • Years Active
    2025 - 2026
  • Episodes
    15
  • Rating
    Clean
  • Copyright
    © 2026 Amplify: A Podcast Powered by Patient Voice Partners
  • Show Website
    Amplify: A Podcast Powered by Patient Voice Partners