Live from Stage 4: MBC News for Us, by Us

Victoria Goldberg
  • 4.9 (11)
  • MEDICINE

Could a cure for breast cancer be closer than you think? Welcome to "Live from Stage 4" — a bold, hopeful podcast where people living with metastatic breast cancer, clinicians, and researchers take center stage. We share real stories, decode the science, and spotlight the ideas and breakthroughs that matter — for patients, caregivers, and anyone who believes progress is possible. This podcast is for us, by us, and all about us.

  1. Live Chat: The Courage to Choose Life on Your Terms with Dar Finkelstein

    5D AGO

    Live Chat: The Courage to Choose Life on Your Terms with Dar Finkelstein

    In one of the most powerful conversations we've ever recorded, Dar Finkelstein—known throughout the metastatic breast cancer community as "The Queen of Joy"—shares her decision to stop treatment and transition to hospice care. After nearly seven years with metastatic breast cancer and 20 years total since her original diagnosis, Dar opens up about the impossible choice many in the MBC community eventually face: quality of life versus quantity of time. With remarkable candor and grace, she discusses how she made this heartbreaking decision, how she told her oncologist and family, and what brought her peace. In this episode, Dar talks about: • The moment she knew it was time to stop treatment • Navigating the "honeymoon period" after ending chemo • How her faith and joy mission sustain her through this transition • Practical advice for planning end-of-life care • The importance of open conversations about death within the MBC community • Finding peace, setting priorities, and still choosing joy Trigger warning: This episode discusses end-of-life issues, hospice care, and death. It's intended for mature audiences living with or affected by terminal illness. Dar's vulnerability and wisdom offer a roadmap for others facing similar decisions. Her message is clear: death is a natural part of life, and we can face it with dignity, purpose, and yes—even joy. Hosted and produced by Abigail Johnston and Melanie Sisk. Thanks for listening. If you enjoyed the episode, subscribe and leave a review — it really helps. Follow us on social media @livefromstage4 and visit our website at www.livefromstage4.org for show notes and links. Your support helps us continue to share important stories and advocate for those living with metastatic breast cancer. Until next time, take care and keep pushing for progress.

    44 min
  2. Podcasters Roundtable: Change Your One Thing with Gary Thompson

    MAR 10

    Podcasters Roundtable: Change Your One Thing with Gary Thompson

    Join us for a moving conversation with Gary Thompson, creator of the Team Powdered Donut™️ podcast and advocate for the metastatic breast cancer community. After losing his wife Maureen to stage IV breast cancer in 2014, Gary has dedicated over a decade to cancer advocacy, keeping her memory alive through a simple yet profound tradition—powdered donuts. In this episode, Gary shares the origin of his podcast name, the challenges of raising three children as a widower, and why he's embarking on an ambitious cross-country road trip to 73 NCI-designated cancer centers. He'll capture stories from patients, caregivers, researchers, and healthcare professionals—creating what he calls "StoryCorp for cancer centers." We discuss the value of storytelling in the cancer community, sustainability in podcasting, finding your "one thing" that can create meaningful change, and how Gary is discovering himself again in the empty nest years. From his unexpected podcast guests met while Uber driving to his vision for a future retreat center, Gary reminds us that love isn't just big or small—it's always enough. Memorable quotes: "We don't have to change everything. We just have to change our one thing.""Worst club ever. Most beautiful members.""You are loved very deeply by people that you may never meet."Episode Highlights: • The powdered donut tradition and how it became a podcast • Planning a multi-year road trip to cancer centers across America • The lasting impact of cancer on caregivers and families • Why there's no such thing as too many patient stories • Advice for aspiring podcasters: start with purpose, not platform Thanks for listening. If you enjoyed the episode, subscribe and leave a review — it really helps. Follow us on social media @livefromstage4 and visit our website at www.livefromstage4.org for show notes and links. Your support helps us continue to share important stories and advocate for those living with metastatic breast cancer. Until next time, take care and keep pushing for progress.

    49 min
  3. Symptoms Spotlight: Insomnia with Abigail Johnston and Melanie Sisk

    MAR 3

    Symptoms Spotlight: Insomnia with Abigail Johnston and Melanie Sisk

    In this  short episode, hosts Abigail Johnston and Melanie Sisk dive deep into one of the most challenging symptoms cancer patients face: insomnia. Both hosts share their personal struggles with sleep disruption following their cancer diagnoses and explore how the cancer experience—combined with treatment side effects and life changes like menopause—can profoundly impact rest. Abigail and Melanie discuss practical strategies they've discovered for better sleep, from creating the ideal bedroom environment to establishing consistent bedtime routines. They emphasize that sleep isn't just something to push through—it's an essential part of treatment and stress management. The conversation covers a range of solutions including medication options, natural remedies like melatonin and lavender, the role of medical cannabis and hemp products, and how to work with healthcare providers to find what works best for you. They also discuss the importance of adjusting medication timing and consulting specialists beyond oncology, such as palliative care doctors and cannabis nurses. Most importantly, Abigail and Melanie remind listeners that finding the right sleep solution is highly individual, requires patience and experimentation, and is an ongoing conversation as treatment plans evolve. If you're struggling with insomnia during cancer treatment, this episode offers both validation and practical guidance. Resources mentioned:  Melatonin: https://www.mayoclinic.org/drugs-supplements-melatonin/art-20363071 Medical Cannabis: https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/medical-marijuana/art-20137855 Cannabis Nurse Association: https://cannabisnurses.org/ Hemp: https://pmc.ncbi.nlm.nih.gov/articles/PMC7891210/ Thanks for listening. If you enjoyed the episode, subscribe and leave a review — it really helps. Follow us on social media @livefromstage4 and visit our website at www.livefromstage4.org for show notes and links.  Your support helps us continue to share important stories and advocate for those living with metastatic breast cancer. Until next time, take care and keep pushing for progress.

    14 min
  4. Live Chat: From Devastating Diagnosis to Distinction with Lesley Stephen MBE

    FEB 24

    Live Chat: From Devastating Diagnosis to Distinction with Lesley Stephen MBE

    In this powerful episode, Victoria Goldberg sits down with Lesley Stephen MBE, a patient advocate from Edinburgh, Scotland, who has defied all odds living 12 years with stage 4 HER2+ metastatic breast cancer—far beyond her initial prognosis of "a year or two." Lesley shares her remarkable story: from being a busy communication consultant and mother of four who thought she had a simple chest infection, to receiving the devastating news of extensive metastatic disease in her lungs, liver, and bones. When standard treatments failed and she was told to "get her affairs in order," a last-chance clinical trial became her lifeline—keeping her stable for seven years. This episode explores the stark realities of the UK's "postcode lottery" healthcare system, where treatment access varies dramatically between England and Scotland. Lesley candidly discusses navigating brain metastases, losing her short-term memory to whole brain radiotherapy, self-funding expensive treatments, and ultimately finding hope through clinical trials and newer therapies like Tucatinib. Lesley has transformed her experience into extraordinary advocacy work as a trustee of Make 2nds Count, the UK's only charity focused exclusively on metastatic breast cancer. She discusses pioneering initiatives including the annual Patient Summit (the only one of its kind in Europe), the groundbreaking trial matching service, and her contributions to the Lancet Breast Cancer Commission examining global cancer disparities. The conversation also celebrates Lesley's recent recognition: receiving an MBE (Member of the British Empire) from Princess Anne at Windsor Castle for her tireless work supporting the metastatic breast cancer community. Throughout this 50-minute conversation, Lesley's determination, humor, and commitment to making "second count" for every metastatic patient shines through—proving that even in the face of incurable disease, one person can create extraordinary change. Topics covered: Stage 4 breast cancer survival, clinical trials, UK healthcare system, patient advocacy, Make Second Count charity, brain metastases, HER2+ treatments, MBE honors Thanks for listening. If you enjoyed the episode, subscribe and leave a review — it really helps. Follow us on social media @livefromstage4 and visit our website at www.livefromstage4.org for show notes and links.  Your support helps us continue to share important stories and advocate for those living with metastatic breast cancer. Until next time, take care and keep pushing for progress.

    52 min
  5. Symptoms Spotlight: Constipation with Abigail Johnston and Melanie Sisk

    FEB 17

    Symptoms Spotlight: Constipation with Abigail Johnston and Melanie Sisk

    In this episode of our Symptoms Spotlight series, hosts Melanie Sisk and Abigail Johnston tackle a topic many cancer patients experience but few feel comfortable discussing—constipation. From understanding what constipation really looks like (hint: it's not always what you think) to practical remedies you can try at home, this episode breaks down the stigma around bowel health. Melanie, a nurse and cancer patient on CDK4/6 inhibitors, shares her go-to over-the-counter solutions like MiraLax and Colace, plus an often-overlooked remedy: movement. Abigail introduces the "prune juice slider"—a surprisingly effective trick shared by her chemo nurse—and opens up about the challenge of swinging between constipation and diarrhea. Whether you're dealing with medication side effects, reduced mobility, or just trying to understand your symptoms better, this episode offers honest, practical advice. Learn when to troubleshoot on your own, when to reach out to your care team, and why talking to a GI specialist might be the missing piece of your symptom management puzzle. Key Topics: Recognizing the signs of constipation beyond strainingOver-the-counter remedies and natural solutionsThe role of movement in digestive healthAvoiding the pendulum swing between constipation and diarrheaWhen to seek help from your medical team Thanks for listening. If you enjoyed the episode, subscribe and leave a review — it really helps. Follow us on social media @livefromstage4 and visit our website at www.livefromstage4.org for show notes and links.  Your support helps us continue to share important stories and advocate for those living with metastatic breast cancer. Until next time, take care and keep pushing for progress.

    10 min
  6. Our Happy Place: Heated Rivalry Rx

    FEB 10

    Our Happy Place: Heated Rivalry Rx

    Join hosts Victoria Goldberg and Dr. Jill Tirabassi for a special episode where they take a break from their usual metastatic breast cancer discussions to dive deep into their latest obsession: the HBO Max series "Heated Rivalry." In this fun and heartfelt conversation, Victoria and Jill explore why this hockey romance has captured their hearts and become the perfect escape during difficult times. They discuss their favorite episodes (especially that emotional tunnel scene in episode 5), the powerful representation of LGBTQ+ athletes in professional sports, and the cultural complexities of the story. Victoria brings a unique perspective as a native Russian speaker, sharing personal reflections on language, cultural differences, and what it means to hear certain words for the first time. The hosts also draw parallels between the tight-knit bonds of sports teams and the MBC community, finding unexpected connections between elite athletes and their own experiences with metastatic breast cancer. Whether you're already obsessed with the show or curious about what all the buzz is about, this episode offers a refreshing reminder that we all need joy, distraction, and a little romance in our lives—especially during the hardest times. Content Note: This episode contains spoilers for the HBO Max series "Heated Rivalry." Thanks for listening. If you enjoyed the episode, subscribe and leave a review — it really helps. Follow us on social media @livefromstage4 and visit our website at www.livefromstage4.org for show notes and links.  Your support helps us continue to share important stories and advocate for those living with metastatic breast cancer. Until next time, take care and keep pushing for progress.

    39 min
  7. Symptoms Spotlight: Diarrhea with Abigail Johnston and Melanie Sisk

    FEB 3

    Symptoms Spotlight: Diarrhea with Abigail Johnston and Melanie Sisk

    In this candid episode of Symptoms Spotlight, hosts Melanie Sisk and Abigail Johnston tackle one of the most disruptive yet often under-discussed side effects of cancer treatment: diarrhea caused by cancer medications. Melanie and Abigail share their personal experiences managing different grades of diarrhea, from mild disruptions to severe grade three episodes that can mean seven to 10 extra bathroom trips per day. They discuss the real impact on quality of life, including the embarrassment and isolation that can come with this challenging symptom. In this episode, you'll learn: Understanding diarrhea grades and what they mean for your daily lifePractical management strategies including diet modifications, over-the-counter medications, and prescription optionsThe importance of staying hydrated and managing skin breakdownWhen to seek help from specialists like gastroenterologists and pharmacistsHow to advocate for yourself with your medical teamThe role of probiotics and prophylactic treatment approachesResources available through symptom management clinicsWhether you're dealing with CDK 4/6 inhibitors, Herceptin, Enhertu, or other cancer medications, this episode offers honest, practical advice from two women who understand the challenges firsthand. Melanie brings her nursing perspective while Abigail shares insights from working with specialists at Mayo Clinic and beyond. Remember: you don't have to suffer in silence. Your quality of life matters, and there are solutions available when you know where to look and how to ask for help. Thanks for listening. If you enjoyed the episode, subscribe and leave a review — it really helps. Follow us on social media @livefromstage4 and visit our website at www.livefromstage4.org for show notes and links.  Your support helps us continue to share important stories and advocate for those living with metastatic breast cancer. Until next time, take care and keep pushing for progress.

    13 min
  8. Podcasters Roundtable: Melissa Berry on Fashion Meets Cancer Advocacy

    JAN 27

    Podcasters Roundtable: Melissa Berry on Fashion Meets Cancer Advocacy

    In this episode of our Podcasters Roundtable series, we sit down with Melissa Berry, the voice behind "Dear Cancer, I'm Beautiful" and founder of Cancer Fashionista. Before her Stage 1 triple negative breast cancer diagnosis at 42, Melissa was a fashion and beauty publicist working with Vogue editors and celebrities like Sarah Jessica Parker. When she couldn't find beauty and fashion resources for cancer patients all in one place, she created them herself—starting with a simple list that has grown into a thriving blog, social media presence, and podcast. In this conversation, we explore: Why Melissa chose the name Cancer Fashionista and how her podcast got a different nameThe transition from blogging to podcasting and why evergreen content mattersHer most memorable episodes, including the emotional interview with her fatherHow she selects topics and manages a publishing schedule of 2-4 episodes per monthThe importance of inclusive language when addressing both early-stage and metastatic breast cancer communitiesFinancial toxicity and the challenges of maintaining identity during ongoing treatmentWhat keeps her connected to advocacy years after her own diagnosisWorking with sponsors and promoting podcasts through social mediaWe also discuss step therapy (fail first policies), the emotional toll of losing your sense of self during treatment, and why resources around intimacy and sexual health are so critically needed in the cancer community. Special segment: Learn about Ana Ono Intimates, the chest-inclusive lingerie brand founded by breast cancer survivor Dana Donofree, now available at Victoria's Secret after a decade in business. Fun fact: they have a bra named after Melissa! Whether you're a podcaster, advocate, patient, or supporter, this conversation offers valuable insights into building community, creating lasting resources, and helping people feel like themselves again. Connect with Melissa Berry: Podcast: "Dear Cancer, I'm Beautiful" (available on all platforms)Follow Cancer Fashionista on Instagram and social mediaHosted and produced by Victoria Goldberg and Abigail Johnston Note: We do not accept payment for product placements. Resources are shared because they matter to our community. Thanks for listening. If you enjoyed the episode, subscribe and leave a review — it really helps. Follow us on social media @livefromstage4 and visit our website at www.livefromstage4.org for show notes and links.  Your support helps us continue to share important stories and advocate for those living with metastatic breast cancer. Until next time, take care and keep pushing for progress.

    45 min
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Ratings & Reviews

4.9
out of 5
11 Ratings

About

Could a cure for breast cancer be closer than you think? Welcome to "Live from Stage 4" — a bold, hopeful podcast where people living with metastatic breast cancer, clinicians, and researchers take center stage. We share real stories, decode the science, and spotlight the ideas and breakthroughs that matter — for patients, caregivers, and anyone who believes progress is possible. This podcast is for us, by us, and all about us.

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