Rayana’s Voice: A Rett Syndrome Journey”

Tashana and Pierre Dees
  • 5.0 (1)
  • ARTS

Rayana’s Voice: A Rett Syndrome Journey Where Care Meets Science & Stories

Episodes

  1. 11/12/2025

    Different Country, Same Courage: Living with Rett syndrome in Norway- Part 2

    Send us a text From Phoenix to Norway, love and resilience speak the same language. Tashana Dees talks with the parents of a 10-year-old girl living with Rett Syndrome about diagnosis, daily life, faith, and global advocacy-reminding us that courage knows no borders  Join us on skool: skool.com/rayanas-voice-pod Support the show I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger! Thank you all for listening

    1h 12m

  2. 11/06/2025

    Different Country, Same Courage: Living with Rett syndrome in Norway- Part 1

    Send us a text From Phoenix to Norway, love and resilience speak the same language. Tashana Dees talks with the parents of a 10-year-old girl living with Rett Syndrome about diagnosis, daily life, faith, and global advocacy-reminding us that courage knows no borders  Join us on skool: skool.com/rayanas-voice-pod Support the show I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger! Thank you all for listening

    49 min

  3. 10/25/2025

    "Through My Sister's Eyes" : A Sibling's Perspective on Disability and Strength

    Send us a text In this special episode of Rayana’s Voice, I sit down with my younger sister — the youngest in our family — to explore what it’s really like growing up with an older sister who has a disability. We’ll talk about early memories, everyday life, how our perspectives were shaped, and what siblinghood means in this context. We’ll also weave in timely news and policy updates around disability, caregiving, health coverage, and inclusion worldwide. Support the show I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger! Thank you all for listening

    28 min

  4. 10/15/2025

    Breaking Barriers-Accessible Healthcare for Special Needs

    Send us a text 🎙️ Episode 3 – Breaking Barriers: Accessible Healthcare for Special Needs In this episode, host Tashana Dees, founder of Rayana’s Voice Podcast and New Birth Diagnostics Laboratory, explores the systemic barriers that families of individuals with Rett syndrome and other developmental disabilities face in accessing healthcare. Drawing on her experiences raising her daughter Rayana, Tashana sheds light on what “accessible care” truly means — from obtaining timely diagnostic testing to navigating Medicaid programs, transportation challenges, and the shortage of providers who understand complex neurological disorders. 💜 Key Highlights: Why accessibility goes beyond physical ramps and parking spacesThe need for inclusive healthcare education for providersHow mobile laboratory and diagnostic services can close gaps in careThe role of advocacy, awareness, and policy reform in improving healthcare equity This episode encourages caregivers, clinicians, and advocates to rethink how we define accessibility — and to work collectively toward a healthcare system that honors the unique needs of every individual. ✨ Connect & Support: Join our community: skool.com/RAYANA’S-voice-podPartner or sponsor: 📧 rayanasvoice@gmail.comLearn more about our mission at New Birth Diagnostics Laboratory 🩺 Rayana’s Voice Podcast © 2025 | Empowering Every Voice from Day One Support the show I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger! Thank you all for listening

    23 min

  5. 10/08/2025

    Rett 101: What Families Should Know

    Send us a text In this heartfelt and empowering episode of Rayana's Voice: A Rett Syndrome Journey, host Tashana Dees opens up about what families need to know after receiving a Rett Syndrome diagnosis. Through her personal experience as Rayana's mom, Tashana breaks down the basics of Rett in simple, compassionate language- what it means, how it impacts everyday life, and what hope looks like for the future. This episode blends real-life insight, encouragement, and education, reminding families that Rett Syndrome may change routines, but it can't silence love, joy, or connection. Support the show I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger! Thank you all for listening

    25 min

  6. 10/01/2025

    Episode 1: Living with Rett Syndrome – A Mother’s Journey

    Send us a text In our first official episode, we share the story of living with Rett syndrome through the eyes of a mother and advocate. We dive into what Rett syndrome is, how it connects to the MECP2 gene, and why this gene plays such a crucial role in the challenges families face. From understanding the science to experiencing the day-to-day realities, this episode blends education with personal reflection—building awareness, compassion, and a sense of community for everyone impacted. Support the show I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger! Thank you all for listening

    24 min

  7. 09/15/2025

    Rayana's Voice: Rett Syndrome Journey Trailer

    Send us a text 🎙️ Rayana’s Voice: A Rett Syndrome Journey This powerful podcast shares the inspiring story of Rayana, a young girl living with Rett Syndrome, and the family who refuses to let her voice go unheard. Through heartfelt conversations, personal reflections, and expert insights, Rayana’s Voice sheds light on the daily challenges, small victories, and unwavering hope that define life with Rett Syndrome. Each episode takes listeners inside a journey of resilience, love, and advocacy—raising awareness for a rare neurological disorder while celebrating the strength and spirit of those affected. Whether you’re a parent, caregiver, medical professional, or simply someone who believes in the power of perseverance, this podcast offers a voice of truth, courage, and inspiration. ✨ Join us as we amplify Rayana’s voice—and the voices of countless others—on a mission to bring awareness, understanding, and hope to the Rett Syndrome community. Support the show I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger! Thank you all for listening

    1 min
  • 7 Episodes

About

Rayana’s Voice: A Rett Syndrome Journey Where Care Meets Science & Stories

Information