Lipedema Stories Podcast

lippylymphladies
  • 5.0 (8)
  • MEDICINE

What do you get when you have an OT, RN, and COTA? A Lipedema and Lymphedema podcast, of course! Join the three lippy lymph ladies as we are joined by guests who will be telling their Lipedema or lymphedema stories. Laugh with us, cry with us, and find a community with us.

  1. 2D AGO

    Julie’s story: Menopause, Estrogen Imbalance, and Lipoedema: One Patient’s Discovery

    Hosts Lisa and Janae discuss new research linking menopause and estrogen receptor imbalance to lipedema, then welcome guest Julie to share her diagnosis, three liposuction procedures, and the dramatic improvements in mobility and pain she experienced afterward. They cover the emotional vulnerability of getting diagnostic photos, differing international views on lipedema, conservative care, and Julie’s ongoing insurance appeal process—offering practical advice about appeals and clinician education. This episode mixes medical context, patient stories, and actionable tips for others navigating diagnosis, treatment, and insurance for lipedema.

    48 min

  2. FEB 11

    Update Episode: Is Lipedema Progressive? Research, Surgery Order & Surprising Findings

    Hosts review recent research on whether lipoedema progresses, discuss surgical approaches (including the importance of treating the trunk) and practical tips like nighttime compression and vibration plates. They also share updates from past guests about recovery, GLP‑1 use, aqua therapy benefits, and conservative measures that help manage symptoms, and invite listeners to reach out and share their stories.

    50 min

  3. FEB 4

    Unmasking Intimacy: Lipedema's Hidden Impact

    In this episode of Lipoedema Stories, hosts Lisa and Janae discuss a qualitative study about how lipedema affects sexual intimacy, body image, and daily life, then welcome guest Sam to share their personal diagnosis, treatment decisions, and recovery from lipedema surgery. Sam describes the emotional isolation, the challenges with pain and heaviness, the surgical recovery, and the improved mobility and confidence afterward. The episode highlights the need for better awareness, compassionate care, and open communication about living with lipedema.

    45 min

  4. JAN 28

    When Lipedema Hits the Abdomen: Hidden Pain and Misunderstanding

    This episode explores new research showing abdominal involvement increases with lipedema severity, highlights the U.S.–Europe debate on abdominal manifestations, and stresses the need for clearer diagnostic criteria. Guest Alyssa shares her personal story—years of confusing symptoms, family patterns, dietary and lifestyle changes to reduce inflammation, the challenges of insurance and surgery, and the physical and emotional benefits of treatment, including improved mobility and body acceptance.

    55 min

  5. JAN 21

    Sisters United: Facing Lipedema Together

    Three friends discuss new research showing rising Google searches for lipedema and share a heartfelt conversation with sisters Teresa and Carrie about diagnosis, surgeries, and conservative care. The episode covers weight loss, manual lymphatic drainage (MLD), compression therapy, insurance hurdles, surgeon selection, and the importance of family support and advocacy while navigating treatment options in Utah.

    57 min

  6. JAN 14

    Lipedema Stories: When Men Have It Too — Research & Real Talk

    Hosts Lisa, Janine and Janaye discuss new research suggesting lipedema may be underdiagnosed in men, share clinic stories, and introduce guest Jessica Johnson. Jessica recounts discovering her diagnosis, deciding on surgery, the recovery process, and how treatment improved her pain, mobility, and mental outlook. The episode covers family experiences, body image struggles, working with trainers, and the everyday benefits of reduced leg heaviness — helping listeners understand both medical and emotional aspects of living with lipedema.

    45 min

  7. JAN 7

    One Teen, One Swollen Leg: Charlotte’s Lymphedema Journey

    Hosts Lisa and Janee open with recent research highlights — including early studies on GLP‑1 drugs and how to distinguish lipoedema from lymphedema — then welcome Charlotte and her mom to share a personal journey. Charlotte describes her diagnosis, lymphoscintigraphy and ICG imaging, daily bandaging and compression routines, insurance challenges, and surgical options such as liposuction and lymphovenous procedures, while emphasizing resilience and staying active as a teen dancer.

    50 min

  8. 12/31/2025

    Patty’s Pycnogenol Journey

    Hosts Lisa and Janae discuss a viral double‑blind study on Pycnogenol (maritime pine bark) that reported improved quality of life, less pain, reduced bruising and leg heaviness, and small changes in body composition for people with lipoedema after 60 days. Guest Patty explains why she’ll start a documented self‑trial beginning January 2, tracking dosage, compression, diet and symptoms daily and sharing results on TikTok to help others separate real benefits from social‑media hype. The episode also covers concerns about fake endorsements, product scams, and practical self‑care tools like vibration plates, compression garments and realistic goal‑setting for managing lipoedema.

    49 min
See All (22)

Ratings & Reviews

5
out of 5
8 Ratings

About

What do you get when you have an OT, RN, and COTA? A Lipedema and Lymphedema podcast, of course! Join the three lippy lymph ladies as we are joined by guests who will be telling their Lipedema or lymphedema stories. Laugh with us, cry with us, and find a community with us.

Information

  • Creator
    lippylymphladies
  • Years Active
    2025 - 2026
  • Episodes
    22
  • Rating
    Clean
  • Copyright
    © Copyright 2025 All rights reserved.
  • Show Website
    Lipedema Stories Podcast

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