ALS -To the moon and back

6D AGO

ALS to the Moon and Back — Episode 8

Send a text An eye sty, a half-built microphone, and Lisa recording from an actual zero-G “hospital bed” setup… and then we get into the big one: dead-end moments with ALS. Lisa shares what hit hardest after a visit from MND NSW, why the system can make you feel boxed in, and how perspective can mess with your head (especially when you’re convinced you’re declining and your physio’s like, “Mate… you’re doing great.”) They cover the tools that help: swimming, meditation, singing, sorting the mould, lowering the toxic load, and a surprisingly brilliant visual trick for not storing every emotion in your body. Come for the banter, stay for the truth bombs. Support the show Thank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.

44 min

FEB 16

ALS to the Moon and Back — Episode 7

Send a text ALS to the Moon and Back — Episode 7 This one is a classic wandering chat. We start with biblical rain, leaking dams, and a surprisingly detailed conversation about vetiver (yes… the grass 😅), before moving into what’s really been on my mind lately. We touch on the equipment block — that frustrating space where funding might exist on paper, but actually accessing the right consumables and support is a whole different story. It’s one of the realities of living with ALS that doesn’t get talked about enough. But this episode goes much wider than that. Portia and I talk about falls (including my very undignified leech-related incident), the ripple effect on carers, and the constant recalibration between independence and safety. We also dive into nervous system load, toxins, emotional stress, and why sometimes the work of letting things go — properly letting them go — matters just as much as anything physical. Along the way there are greyhound stories, apartment dog advocacy, a few blunt truths, and plenty of laughs — because that’s just how we roll. It’s honest, a bit messy, occasionally sweary, and very real. 🎧 Listen now Support the show Thank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.

57 min

JAN 27

ALS - To The Moon And Back Episode 6

Send a text New episode of ALS to the Moon and Back 🎧 This one starts exactly how most of our chats do — with absolutely no plan — and then somehow lands in some pretty honest territory. Portia and I talk about easing back into movement, why water feels so good right now, the weird emotional hangover that can come with New Year, and what happens when you stop brushing things off and actually let yourself feel them. There’s laughter, swearing, a bit of reflection, and the discovery that smashing a few plates can be surprisingly good for the soul. If you like real conversations that wander, wobble, and still manage to say something useful — this one’s for you. 🎧 Listen now (NSFW language, as always) Support the show Thank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.

57 min

JAN 14

ALS - To The Moon And Back Episode 5

Send a text In this episode of ALS to the Moon and Back, Lisa and Portia ease into the post-Christmas slowdown with warmth, humour, and the kind of conversation that only happens between people who truly care for each other. The discussion then turns to the “provider wall” Lisa encountered while trying to access Edaravone treatment close to home. Lisa shares what happened, why she was blocked, and how navigating treatment can become unexpectedly complex — especially outside major cities. She talks through the steps that helped her move forward, the relief of finally having Community Health support in place, and what it means to feel properly cared for. Along the way, there’s laughter, reflection, and a reminder that love and support are not finite resources. Honest, human, and hopeful — with a final thought that leads neatly into next week’s episode. Support the show Thank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.

57 min

12/28/2025

ALS - To The Moon and Back - Episode 4

Send a text ALS to the Moon and Back — Podcast Intro Recording’s in progress… and before we get into anything remotely sensible, Portia Turbo is over here singing “We wish you a Merry Christmas” and casually wishing everyone a “happy new gonorrhea”, which feels… on brand. I’m Lisa Wright — I live out at Mount Murray Farm in the Southern Highlands, I’ve got dogs that refuse to let anyone have a serious conversation uninterrupted, and I’ve recently found myself living in a world I never planned to be in: ALS. This podcast is us — me and Portia — having the conversations you don’t always get to hear. The ones that bounce from art and travel stories (Starry Night, Kandinsky, the Guggenheim, snow falling over Central Park… honestly, goosebumps) to the big stuff: grief, rage, bodies, systems, and what it’s like to suddenly have your life shaped by timelines you didn’t ask for. In this episode, we eventually stop waffling (no promises) and get into edavarone — or “a daravone”, depending on who’s reading the label — the infusion treatment I’m doing now. It’s a high-dose antioxidant, and the timing matters: 10 infusions in a 14-day window, then time off, then you do it again. It’s a bit of a logistical circus — early mornings, energy management, and the reality that ALS doesn’t make you “tired” in the normal way… it just makes resting feel very seductive. We also go wandering into the “juju” side of things — what trauma does to a body, what happens when you swallow your anger for decades, and how the nervous system flips into “rest and digest” when you finally learn how to properly drop into stillness. There’s a bit of dark humour (because otherwise… how?) and a bit of tenderness, and the occasional dog cameo. So if you’re here for real talk, big laughs in inappropriate places, and the honest mess of figuring out how to live well inside something hard — welcome. This is ALS to the Moon and Back. And if you’re enjoying it (and you’re not a one-star mongrel), please chuck us a five-star review. 💛 Support the show Thank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.

57 min

12/20/2025

ALS - To The Moon and Back - Episode 3 Timelines

Send a text In this episode of ALS to the Moon and Back, Portia and I finally get to the thing we were always going to get to… timelines. You know the ones. The point scores. The predictions. The question people ask — sometimes quietly, sometimes not — “How long have you got?” I talk about the timelines I’ve been given since being diagnosed with ALS, why I don’t see them as a fixed truth, and how I actually live alongside that information without letting it run the show. We talk about what those numbers don’t capture — individuality, access to care, emerging treatments, mindset, hope, stubbornness… all the human stuff. We also wander (as we do) into voice banking, legacy, leaving an audio record for the people you love, finding your voice, speaking up, even if it makes you shakey. This episode is for anyone living with ALS or MND, anyone walking alongside someone they love, and anyone who’s ever been handed a story about their future that didn’t quite sit right. The timeline is information. It’s not the whole story. Support the show Thank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.

44 min

12/07/2025

ALS - To The Moon and Back - Episode 2 Access Denied

Send a text Access Denied In this episode of ALS to the Moon and Back, Portia and I get stuck into something pretty raw and, honestly, a bit outrageous — what actually happened when I was prescribed Edaravone and then couldn’t get it, even though it was on the PBS and everyone was telling me how “great” it was going to be. We talk about the quiet side of ALS/MND that doesn’t get spoken about much: the people who haven’t even told their families yet, the pressure to stay small and “not make a fuss”, and why I eventually decided I was not going to just quietly disappear while my treatment fell over around me. I walk through how I went from hopeful and optimistic with a new prescription… to being told I didn’t “fit the financial model”, to Mark spending weeks on the phone trying to find anyone who could actually deliver a federally funded drug to someone who lives two hours from Sydney. Spoiler: it took writing to the NSW Health Minister and ABC Illawarra before anything really shifted. We also rewind a bit: the early twitching and weakness,being treated like a hysterical woman while I knew something was really wrong,and then being told I had 24–36 months… just three weeks after my friend Mick died of the same disease.From there, we touch on what I’m doing to support myself now — things like the Wahls Protocol, supplements, integrative care, and working through long-held trauma in the body. None of it is presented as a cure or advice; it’s simply my way of trying to live well with this diagnosis and give my brain and body the best shot I can. We finish on something important: fasciculations (all that twitching) don’t neatly map to progression, timelines aren’t guarantees, and there is still room for quiet, stubborn optimism — even with a diagnosis like ALS. If you’re in Australia and having trouble accessing Edaravone or getting care close to home, ABC Illawarra want to hear from you. Their details are below. Jen Courtney - ABC Illawarra E: Courtney.Jennifer@abc.net.au Ph: 02-4224-5011 or 0407-593967 Support the show Thank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.

44 min

11/29/2025

ALS - To The Moon and Back - Episode 1

Send a text To the Moon and Back is a new podcast hosted by Lisa Wright and iconic Sydney drag queen Portia Turbo — two longtime friends exploring life, love, art, perfume, dogs, grief, humour, and the unexpected twists that shape us. In Episode One, Lisa shares her recent diagnosis of ALS and the two talk openly (and often hilariously - we thinks so anyway) about how life changes when everything changes — and how friendship becomes the anchor that gets you through. Raw, real, thoughtful, warm, and sometimes wonderfully chaotic — this podcast feels like sitting with two friends who say the things everyone else tiptoes around. Perfect for listeners who love honesty, heart, and an unfiltered look at what it means to be human. Support the show Thank you for listening to ALS - To the Moon and Back. If this episode resonated, please share it with someone who might need it. You can follow, subscribe, and stay connected as we continue exploring life, friendship, ALS, treatments, hope, and all the messy, meaningful bits in between. Take care of yourselves — and each other — and we’ll see you next episode.

43 min

ALS -To the moon and back

Episodes

ALS to the Moon and Back — Episode 8

ALS to the Moon and Back — Episode 7

ALS - To The Moon And Back Episode 6

ALS - To The Moon And Back Episode 5

ALS - To The Moon and Back - Episode 4

ALS - To The Moon and Back - Episode 3 Timelines

ALS - To The Moon and Back - Episode 2 Access Denied

ALS - To The Moon and Back - Episode 1

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