We almost didn't film this one. A conversation online about disability gave us a reason to say something out loud again.In light of a public conversation about disability, down syndrome, and grief, We sit down to talk about something we live every single day: the worth of a disabled life. No names, no debate. They talk honestly about parenting our daughter Mila, who has severe disabilities from a birth injury, and about the hard truth that disability can be frightening, costly, and exhausting, while disabled people are still beautiful, valuable, and fully human. This one is about dignity, fear, grief, and joy all living in the same room, and about why a hard life is not a life worth less. As always, it starts with laughter before it goes where it needs to go. (00:00) Cold open(01:20) The game: we laugh first(14:41) Why we're talking about this(15:49) What gives a person value(27:43) The hardest part of disability(31:29) Can you grieve and love at once?(36:47) Worth isn't about what you can do(40:12) Hard on paper, beautiful in person(43:55) Fear and love can coexist(46:36) To the parent who's scared(47:59) The one thing we want you to take away Resurface is a marriage and family podcast hosted by Rachel and Stephen Scroggins about surviving medical trauma, special needs parenting, raising a medically complex child with intractable epilepsy and profound hearing loss, navigating life after stroke at 37, and finding humor in the middle of it all. New episodes weekly. If you're a parent of a medically complex child, an aunt or uncle to a child with special needs, a stroke family, an epilepsy family, or anyone trying to keep your marriage and your sense of humor intact while life keeps throwing emergencies at you, you're in the right place. It’s funny, honest, a little chaotic, and very much a sister episode. Because on Resurface, we laugh first. It’s a means of survival. If you are parenting through stress, disability, medical uncertainty, or just trying to hold your family together while life keeps coming at you, this episode is for you. New episodes weekly on Apple Podcasts and Spotify. If you listen on Apple Podcasts, leaving a review helps more families navigating trauma, special needs parenting, or hard seasons find this podcast — and the community around it. Download your free Get Helped and Be Helped Checklist here: https://www.resurfacepodcast.com/downloads Find us on TikTok: @resurfacepod Find us on Instagram: @theresurfacepodcast Find us on Facebook: ResurfacePodcast Email us: contact@resurfacepodcast.com Visit our website: www.resurfacepodcast.com Find us on Threads: https://www.threads.com/@theresurfacepodcast Resurface is the only podcast where two medical trauma survivors, each of us carrying invisible after effects, parent a medically complex child and special needs child together, disagree about many things, almost fall apart, and still choose to love each other through the storm. And try to make you laugh while we do it. We are not a recovery story. We are a survival story. The wave hasn't passed. We're still in it.
