Arachnoiditis Unfiltered Podcast

Steve
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Arachnoiditis Unfiltered, founded by Steve Lovelace, xray tech & sports pioneer in triathlon & paratriathlon, and Sara Lewis, RN paralegal and patient advocate. Two medically retired/disabled professionals who have become powerful patient advocates with a shared mission to transform awareness, education, & care for those living with chronic pain and chronic disease. Sara Lewis, RN, Paralegal, brings a rare perspective at the intersection of medicine, law, and patient advocacy. A graduate of Kent State University, using her clinical knowledge & lived experience to educate, challenge & drive meaningful change within the healthcare system. Steve Lovelace is a pioneer in triathlon & paratriathlon who, after surviving a catastrophic accident that left him temporarily paralyzed, refused to let his injuries define his future, pushing the boundaries of endurance sport for athletes with disabilities & a grad of The Oklahoma University as a BSRT Radiological Technologist.  Together, they bridge clinical expertise, legal insight, & lived experiences to amplify patient voices & fight for meaningful change. This isn’t just a podcast, it’s a movement!

  1. 4d ago

    S2E18 AI: The Game Changer in Medicine & Chronic Disease

    Most spinal pain treatments focus only on mechanical fixes, but what if you could treat the nerve damage and correct the spine simultaneously? Dr. Nameer Haider unveils a groundbreaking neuromodulation technology—Synerfuse—that combines mechanical spine correction with dorsal root ganglion stimulation. This innovative approach targets nerve pain at its root, offering a potential game-changer for chronic pain sufferers, especially those with arachnoiditis, who often face limited options after failed or incomplete interventions.In this episode, you'll discover how Synerfuse uniquely treats both the mechanical and neurological aspects of spinal pain in one procedure. Dr. Haider shares insights into the development of minimally invasive spine surgery, the future of neuromodulation, and how combining these advances can radically improve long-term outcomes. We break down the differences between traditional spinal cord stimulation and targeted nerve root neuromodulation, revealing why precision treatment could be the next frontier in chronic pain management.We also explore the untapped potential of AI in diagnostics—particularly its promise to detect rare conditions like arachnoiditis early, reducing years of suffering. Dr. Haider discusses ongoing clinical trials, the envisioned role of tissue banks for research, and the importance of personalized medicine beyond pharmaceuticals.This is essential listening for anyone battling persistent spinal pain or curious about the future of minimally invasive, AI-driven treatment. If you believe pain shouldn't be a life sentence and want to understand the revolutionary treatments on the horizon, this episode is your gateway to the next era of relief.Learn from a pioneer blending neuromodulation, surgical innovation, and AI—bringing hope to the millions.

    59 min

  2. 4d ago

    S2E19 New Normal With Chronic Illness Caregiver Vs. Care-receiver

    Most caregivers feel overwhelmed by the emotional and physical toll of supporting loved ones with chronic illnesses, but this episode flipping the script reveals a powerful truth: resilience and purpose can turn suffering into strength. Don St. Louis and his wife Zan Lyrae share their raw, inspiring journey navigating arachnoiditis, loss, and love—showing that even when life’s most difficult moments strike, hope and connection can redefine normalcy.You’ll discover: how to find normalcy amid a life-altering diagnosis, the importance of honest communication in caregiving, and the surprising role of purpose in overcoming despair. Don’s personal stories about singing through pain and embracing life’s small joys, like performing with his wife, challenge the notion that chronic illness must define us. Instead, they demonstrate how resilience, humor, and a mindset of growth can lead to moments of joy even on survival days.We break down: practical strategies for caregivers to cope with the emotional weight, including journaling and leveraging AI tools like ChatGPT for mental clarity. Don’s insights on recognizing triggers like weather and seeking purpose as a path back from despair provide a fresh perspective for anyone feeling lost in the chaos. This episode isn’t just about enduring—it’s about thriving by rewriting how we view our limitations and harnessing our inner power.Why it matters: ignoring the emotional aspects of caregiving leaves us vulnerable to burnout, but embracing a purposeful mindset unlocks a new level of strength. Whether you’re caring for a loved one or battling your own chronic condition, this conversation offers a blueprint for transforming pain into a path of resilience, community, and hope.Perfect for those facing similar struggles or supporting loved ones, this episode underscores that even within adversity, there’s an unstoppable force: the human spirit. If you believe life can still be joyful despite the challenges, you’ll want to hear this inspiring conversation. Guest Credibility: Don St. Louis is a dedicated caregiver, musician, and advocate living with arachnoiditis. His honest reflections and joyful approach to life serve as a beacon of hope for those navigating chronic illness and caregiving. Why this works: This episode hooks with the startling truth that resilience and purpose can convert suffering into strength. It appeals directly to caregivers and patients alike, providing concrete strategies and powerful stories that foster curiosity, hope, and a sense of community—all within a succinct, engaging narrative designed to maximize listen-through and impact.

    1h 3m

  3. May 25

    S2E17 How Resilience Turns Chronic Disease into a Source of Purpose and Strength w/ Emily Hertzberg

    Most people overlook how devastating autoimmune diseases like arthritis really are—until they’re living with them. In this eye-opening episode, we break down the raw realities of managing arthritis from diagnosis to daily resilience, revealing the surprisingly invisible battles millions face with humor, courage, and unfiltered honesty.Join us as we speak with advocates who turned their diagnoses into sources of strength. Emily Hertzberg shares her journey from feeling isolated at 22 to building a powerhouse of awareness, fighting stigma, and empowering others through social media and community. Jen Weaver highlights the importance of compassion in education, recounting her experiences teaching students with arthritis and how those lessons in resilience go beyond the classroom. Together, they reveal the often-unseen side of chronic illness—how weather impacts symptoms, the mental space of dependency, and the power of self-advocacy.You'll discover: How autoimmune conditions develop—and why early diagnosis can be a game-changerThe critical need for better access to specialists and timely care in today’s healthcare systemPractical strategies for tracking symptoms, managing flare-ups, and advocating effectively for your healthThe emotional toll of invisible illnesses and how community and support systems are vital for survivalWhy resilience and purpose are the strongest tools against mental health struggles tied to chronic painThis episode isn’t just about surviving arthritis—it’s about thriving despite it. Perfect for anyone living with autoimmune diseases, caregivers, or health advocates seeking fresh insights into breaking stigma and turning adversity into advocacy. If you’re ready to see your condition differently and unlock the strength within, this conversation will leave you inspired to take action and redefine what’s possible.Note: Emily Hertzberg is a dedicated patient advocate and founder of the “Arthritis Warriors” movement, known for her impactful social media presence and community-building efforts. Jen Weaver is an experienced educator and advocate who works with the Arthritis Foundation to foster understanding and compassion through her teaching and outreach.Get inspired, get involved, and discover how resilience turns pain into power. Join us—you won’t want to miss this empowering discussion.

    55 min

  4. May 14

    Sara's Shorts: Sara Explains The Importance of Protein for Chronic Illness

    The conversation explores the critical role of protein in managing chronic illness, emphasizing its importance in healing, recovery, and overall well-being. It also highlights the impact of protein deficiency on the body and provides strategies for increasing protein intake to improve quality of life. Additionally, the importance of physical activity in conjunction with protein consumption is emphasized. Takeaways Protein plays a crucial role in managing chronic illness and promoting healing.Increasing protein intake and engaging in physical activity can improve quality of life for individuals with chronic illness. Chapters 00:00 The Role of Protein in Chronic Illness

    6 min

  5. May 14

    S2E16 How Finding Purpose Transformed Hadley Ott & Reversed His Crohn's

    Most people with chronic inflammation or autoimmune conditions like Crohn's are told medication is their only option—and yet, the story you’re about to hear will challenge everything you think you know about healing. Hadley Ott, a former Crohn's patient who healed himself naturally, shares his transformative journey from years of conventional treatment to a life free of drugs, driven by diet, mindset, and faith. His story isn’t just inspiring—it’s proof that you can take control of your health and rewrite your future. In this episode, we break down the powerful, evidence-based strategies Hadley used to reverse inflammation and Crohn's symptoms without medication. You'll discover: The impact of reducing added sugars and seed oils—simple changes that lowered his inflammation markers and energized his body. The critical role diet plays in autoimmune health, including the low FODMAP and elimination diets, and why traditional approaches often overlook these solutions. The importance of mental fortitude, positive mindset, and trusting your gut—what Hadley refers to as "faith in your body"—for sustainable healing. How independent blood testing and listening to your body can keep your health goals on track, even without invasive procedures like colonoscopies. Practical advice for young adults and those feeling hopeless, empowering them to challenge the narrative that chronic illness is a life sentence. This episode isn't just about one man’s journey—it's a call to action for anyone tired of the allopathic approach that often misses the root cause. Hadley’s story underscores that healing begins with self-advocacy, lifestyle changes, and belief in your body’s innate ability to recover. If you're searching for hope, proven techniques, or a new perspective on chronic illness, this episode is essential listening. Hadley Ott is an author and health advocate who overcame Crohn's disease through diet, exercise, and faith. His mission: inspire others to reclaim their health naturally and challenge the broken system. Whether you're a patient, caregiver, or healthcare professional seeking alternative insights, this conversation will shift your paradigm and empower you to take actionable steps toward healing. The power to change your health story is in your hands—are you ready to start?

    51 min

  6. Apr 29

    S2E15 Relearning Life After Tragedy

    Most people with arachnoiditis wake up with the condition, never knowing exactly how it happened—and often without memory of the accident itself. Enoch Carter's story cuts through that darkness. After a devastating ATV collision shattered his lower spine and broke his face, he not only faced the physical trauma but also a profound loss of memory—feeling like a stranger in his own body. His journey from catastrophic injury, through amnesia, to relearning his identity and skills as a software engineer offers rare insight into resilience and recovery in the face of life-altering trauma. In this episode, you'll discover: How traumatic injuries can swiftly lead to diagnoses like arachnoiditis, and the surprising speed of nerve damage post-accident.The unexpected ways the brain heals—nerves grow at only one millimeter per day—and why healing truly is a long-term process.Practical insights on managing chronic pain with medications, supplements like kratom, and the power of endorphin release through gentle movement.The emotional toll of losing memories, the strain on relationships, and how a resilient spirit can endure, adapt, and thrive.Technical adaptations for spinal injuries: from special chairs and car controls to riding equipment, highlighting innovations that enable independence.Why does this matter? Because living with arachnoiditis isn’t just about managing pain—it's about reclaiming agency, forging new routines, and breaking stereotypes that limit possibilities. If you’re navigating a chronic illness, recovering from trauma, or passionate about human resilience, Enoch’s story is a masterclass in doing more with less—and finding hope amid hardship.Perfect for patients, caregivers, and health professionals seeking to understand the real, unfiltered experience behind life with arachnoiditis. This is a story of perseverance, innovation, and the relentless pursuit of normalcy—despite the odds.

    58 min

  7. Apr 23

    S2E14 Aphasia Relearned with Kent & Leah

    Benefit concert to support Aphasia Unlearned, June 5th 2026 at The Grand Theater in Salem Oregon. Watch to the end to see the the special guest performer, unveiling an original song, just for this event donating his time, musical talents and love for a brother and his cause! Most stroke survivors believe recovery is limited to the first few months, but what if that’s fundamentally wrong? In this eye-opening episode, we delve into a groundbreaking perspective on neuroplasticity that challenges conventional wisdom, showing it’s never too late to regain speech, mobility, and independence. If you or a loved one face chronic neurological challenges, this episode will reshape your understanding of healing and inspire new hope. Meet Kent and Leah Emery, advocates on a mission to redefine post-stroke recovery. Kent’s story is extraordinary, after a devastating stroke caused by a motorcycle crash, he was told his speech wouldn’t return. Yet, thanks to rigorous, science-backed therapies rooted in neuroplasticity, Kent’s journey proves the brain’s potential to rewire itself can extend years beyond the initial injury. We explore how neuroplasticity is not just a science but a lifeline for those who fear their best days are behind them. You’ll discover: Why the traditional “three to six months” window for therapy might be a myth, and what a more accurate timeline looks like. The critical role of intensive, personalized programs like ICAPS and how they can produce measurable improvements even years after stroke. Surprising insights into how treatments like ketamine and innovative therapies are unlocking new pathways for brain rewiring. Why advocacy and community support are vital in bridging the financial and emotional gaps in recovery. The importance of mindset, grit, and motivation in transforming chronic conditions into stories of resilience and hope. This episode is essential listening if you or someone you care about is living with the chronic effects of a stroke, traumatic brain injury, or neurological disorder. Kent’s inspiring journey, from devastation to determination—highlights that recovery isn’t linear, nor does it end at the conventional treatment window. It’s about understanding the science, challenging old assumptions, and tapping into the brain’s incredible capacity to heal at any age. Join us as we share transformative stories, cutting-edge research, and practical strategies for turning hope into action. Whether you're a patient, caregiver, or healthcare professional, this episode will help you see the potential of neuroplasticity, and your own resilience, in a whole new light.

    59 min

  8. Apr 15

    S2E13 Arachnoiditis & Dysautonomia, The Hidden Connection | Arachnoiditis Unfiltered

    Unlock the hidden connections between dysautonomia, POTS, and arachnoiditis in this eye-opening conversation that could transform how you understand chronic illness. If you or someone you love struggles with mysterious symptoms like dizziness, heart irregularities, or gut issues, particularly after a spinal injury or infection, this episode is your essential guide to navigating diagnosis, treatment, and hope.Join experts Cheryl Faber of the Dysautonomia Project and Dr. June Bryant, pediatric nurse practitioner, as they break down complex autonomic nervous system disorders into clear, actionable insights. You’ll discover a step-by-step approach to identifying dysautonomia through history, orthostatic vitals, and accessible tools like their symptom assessment. Learn how viral illnesses, including COVID, can trigger long-term autonomic dysfunction, and what that means for diagnosis and management.This episode dives deep into practical treatment ideas, emphasizing personalized care: from electrolyte strategies and safe exercise to emerging therapies like IV ketamine, and the critical importance of connecting with knowledgeable providers. You’ll hear stories of how misdiagnosis leads to years of suffering, and how education and awareness can shorten that journey, saving lives and sparing pain.Why does this matter? Because understanding the root causes and recognizing early symptoms can prevent injury, improve quality of life, and open doors to targeted treatments. Whether you’re a patient, caregiver, or healthcare provider, this conversation arms you with the knowledge to advocate effectively—demystifying complex conditions that often go overlooked.Perfect for those diagnosed with dysautonomia, POTS, arachnoiditis, or long COVID, and anyone eager to grasp the interplay of nerve damage, inflammation, and systemic symptoms. This isn’t just information; it’s a power shift, giving you clarity, validation, and hope in the face of chronic chaos. If you’re ready to see your symptoms in a new light and learn how education and early intervention can make all the difference, hit play now. Your journey toward understanding and managing autonomic dysfunction starts here.

    49 min
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About

Arachnoiditis Unfiltered, founded by Steve Lovelace, xray tech & sports pioneer in triathlon & paratriathlon, and Sara Lewis, RN paralegal and patient advocate. Two medically retired/disabled professionals who have become powerful patient advocates with a shared mission to transform awareness, education, & care for those living with chronic pain and chronic disease. Sara Lewis, RN, Paralegal, brings a rare perspective at the intersection of medicine, law, and patient advocacy. A graduate of Kent State University, using her clinical knowledge & lived experience to educate, challenge & drive meaningful change within the healthcare system. Steve Lovelace is a pioneer in triathlon & paratriathlon who, after surviving a catastrophic accident that left him temporarily paralyzed, refused to let his injuries define his future, pushing the boundaries of endurance sport for athletes with disabilities & a grad of The Oklahoma University as a BSRT Radiological Technologist.  Together, they bridge clinical expertise, legal insight, & lived experiences to amplify patient voices & fight for meaningful change. This isn’t just a podcast, it’s a movement!

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