Young Lung Cancer Initiative Podcast

Young Lung Cancer Initiative
  • 5.0 (1)
  • Medicine

The Young Lung Cancer Initiative Podcast brings together patient stories, expert insight, education, and real community resources for people impacted by lung cancer. You’ll hear honest conversations with patients living with this disease. You’ll hear researchers and oncologists break down evolving science. You’ll hear practical discussions about treatment decisions, side effects, insurance barriers, mental health, caregiving, and quality of life. We also share community based support resources designed specifically for young people and people without smoking history navigating lung cancer. This podcast centers the lived experience while staying grounded in evidence based medicine. If you are a patient, caregiver, advocate, or clinician who wants deeper understanding of what lung cancer actually looks like in real life, this is for you. New episodes released regularly.

  1. 1d ago

    Lung Cancer: Treatment Decisions, Second Opinions & Side Effect | Mayya's Lung Cancer Story | Pt 3/3

    "We put out the fire. This is the last ember." In Part 3, Mayya Grinberg breaks down how she secured a second opinion with one of the world's leading ALK+ specialists before she needed one, how she navigated the radiation decision, and what no one prepared her for when the side effects hit eight weeks later. If you are navigating treatment decisions with a targetable mutation, this one is for you. Chapters: 0:00 — Introduction 0:18 — Getting a second opinion before you need one 1:00 — Finding Dr. Alice Shaw at Mass General 3:51 — What the second opinion confirmed 4:19 — Surgery vs. radiation: how she decided 7:21 — Radiation Side Effects 9:40 — Pulmonary PT and recovery ⚠️ Disclaimer This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition. 📢 Amplifying the Voices of Young-Onset Lung Cancer Lung cancer is often caught late in young adults because "they're too young." At the Young Lung Cancer Initiative (YLCI), we are changing that narrative. We are a 501(c)(3) nonprofit dedicated to providing support, research, and advocacy for the young-onset community.

    11 min

  2. 1d ago

    Lung Cancer at 39: "Is It Better If They Don't Remember Me?" | Mayya's Story | Pt 2/3

    I feel like I'm the tornado that happened to other people" A cancer diagnosis doesn't just change your health.. it changes everything. In Part 2 of 3, Mayya opens up about what it meant to lose her identity as the high-achieving professional, the mom who had it all together. She talks about having to stop breastfeeding because of cancer medication, her mother selling the house she'd lived in for 30 years to move in and help, and the thought no parent should ever be forced to sit with: is it better if my kids don't remember me? Chapters: 0:00 — Introduction 0:20 — The job opportunity of a lifetime, a new baby, and a diagnosis 1:44 — "I wasn't that corporate Barbie anymore" 3:24 — "I feel like I'm the tornado that happened to other people" 5:51 — The only time she felt human: breastfeeding her baby 6:41 — Having to stop breastfeeding because of cancer medication 9:35 — Family therapy and holding each other's hope ⚠️ Disclaimer This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition. 📢 Amplifying the Voices of Young-Onset Lung Cancer Lung cancer is often caught late in young adults because "they're too young." At the Young Lung Cancer Initiative (YLCI), we are changing that narrative. We are a 501(c)(3) nonprofit dedicated to providing support, research, and advocacy for the young-onset community.

    11 min

  3. 1d ago

    They Said 'It's Probably Nothing.' It Was Stage 4 Lung Cancer | Mayya's Lung Cancer Story | Pt 1/3

    Mayya went to the doctor with a dry cough, fatigue, and no appetite. She was sent home with an inhaler. She had stage 4 lung cancer. In this episode, she shares her path to a stage 4 lung diagnosis with host and lung cancer patient, Leah Philliups. Chapters: 0:00 — Introduction 0:23 — First signs: pregnancy, appetite loss, and a cough that wouldn't quit 1:44 — Going to the doctor and not being believed 2:30 — "You don't need an x-ray" — and what she did next 3:10 — Urgent care, a chest x-ray, and a pneumonia misdiagnosis 4:37 — Mother's Day: the moment she knew she had to go back 6:35 — The doctor who actually listened: shoutout to Dr. Davidson 7:30 — PET scan results: lighting up like a Christmas tree 8:45 — Biopsy results and ALK fusion diagnosis 9:38 — Mayya's advice: you are not your doctor's pet 📢 Amplifying the Voices of Young-Onset Lung Cancer YLCI is a 501(c)(3) nonprofit dedicated to providing support, research, and advocacy for the young-onset community. New here? Hit SUBSCRIBE to help us share these stories and ensure no young person faces this diagnosis alone. 💙 Learn More 🌐 Visit Our Website: https://ylci.org ⚠️ Disclaimer This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

    10 min

  4. May 31

    They Told Me "No" (How I got Surgery Anyway) : Jessie's EGFR Lung Cancer Story | Pt 3/3

    "I completely deflated." When Jessie was told she was "not a candidate" for surgery to remove her primary lung tumor (the "mothership"), she didn't just accept the answer. As a professional producer, she did what she does best: she assembled an "A-Team" of the world’s leading experts to find a path forward. In this powerful conclusion to our three-part series, Jessie shares the "sobering conversations," the medical disagreements, and the path that eventually led her to a successful surgery. ⚠️ Disclaimer This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition. Chapters 00:00 Introduction 00:23 Assembling a Care Team 01:40 Navigating Treatment Options 05:17 The Role of Advocacy in Care 06:53 Hope for the Future of Lung Cancer Treatment Thank you to Johnson & Johnson for supporting this series. 📢 Amplifying the Voices of Young-Onset Lung Cancer Lung cancer is often caught late in young adults because "they're too young." At the Young Lung Cancer Initiative (YLCI), we are changing that narrative. We are a 501(c)(3) nonprofit dedicated to providing support, research, and advocacy for the young-onset community. New here? Hit SUBSCRIBE to help us share these stories and ensure no young person faces this diagnosis alone. 💙 Learn More 🌐 Visit Our Website: https://ylci.org/ 📱 Connect With Us Instagram— @younglungcancer

    9 min

  5. May 31

    "Less cancer today than yesterday" - Jessie's Parenting Approach with EGFR Lung Cancer| Pt 2/3

    "My five-year-old asked if he could watch a show now. My middle daughter wanted to know how this cancer was different from everyone else's." In Part 2 of this 3-part series, Jessie and Leah go deeper into what it actually looks like to live with Stage 4 EGFR mutant non-small cell lung cancer. Jessie walks through how she told her three kids about her diagnosis. She and Leah discuss the caregiving burden that nobody talks about. Chapters: 00:00 Introduction 00:47 Telling the Kids 02:30 Three Kids, Three Completely Different Reactions 04:15 Following Each Other's Lead: The Caregiver Experience 06:45 "A Picture of My Brain, Just to Make Sure It's Still Smiling" 07:30 Keeping the Conversation Evolving as Kids Get Older Thank you to Johnson & Johnson for supporting this series. ⚠️ Disclaimer This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition. #lungcancer #patient #egfr 📢 Amplifying the Voices of Young-Onset Lung Cancer Lung cancer is often caught late in young adults because "they're too young." At the Young Lung Cancer Initiative (YLCI), we are changing that narrative. We are a 501(c)(3) nonprofit dedicated to providing support, research, and advocacy for the young-onset community. New here? Hit SUBSCRIBE to help us share these stories and ensure no young person faces this diagnosis alone. 💙 Learn More 🌐 Visit Our Website: https://ylci.org/ 📱 Connect With Us Instagram— @younglungcancer

    8 min

  6. May 25

    From Panic Attacks to Stage IV: Jessie's EGFR lung cancer story | Pt 1/3

    Jessie was 42 when she was diagnosed with stage IV EGFR non-small cell lung cancer but her symptoms had been dismissed for nearly a year. Night sweats, panic attacks, a pneumonia that never fully resolved, and a cough that just wouldn't quit. It wasn't until November that a pulmonologist finally told her, "We should have given you a bronchoscopy yesterday." What followed was five days that changed everything. In this first episode, Jessie talks about the year of symptoms that almost got written off, the week of her diagnosis, what it felt like to collapse on the sidewalk not knowing if she'd see her kids grow up, and what happened when she finally found out her cancer was targetable. This series is sponsored by Johnson & Johnson. About Young Lung Cancer Initiative (YLCI). YLCI is a 501(c)(3) nonprofit dedicated to the young-onset community. We provide support, research, and advocacy to ensure that no young person faces a lung cancer diagnosis alone. Disclaimer: This podcast is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

    11 min

  7. May 22

    KRAS Lung Cancer- Hope & The Future of Treatments with Dr Fawzi Abu Rous | Pt 3/3

    he future of KRAS lung cancer treatment is moving fast ..here is what patients need to know about resistance, clinical trials, and emerging therapies, with thoracic oncologist Dr. Fawzi Abu Rous In the final part of the Young Lung Cancer Initiative KRAS Lung Cancer Biomarker Education Series, Dr. Fawzi Abu Rous of Henry Ford Cancer Institute walks us through the KRAS pipeline beyond G12C, how resistance develops on targeted therapy, and how patients can find clinical trials and stay informed over time. If you or a loved one is living with KRASnon-small cell lung cancer (NSCLC), this conversation is packed with practical next steps and a big dose of hope. KRAS is no longer undruggable. This episode is proudly sponsored by Revolution Medicines. About Young Lung Cancer Initiative (YLCI) The YLCI is a 501(c)(3) nonprofit dedicated to the young-onset community. We provide support, research, and advocacy to ensure that no young person faces a lung cancer diagnosis alone. Disclaimer: This podcast is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

    10 min

  8. May 22

    KRAS Lung Cancer Treatment & Monitoring with Dr Fawzi Abu Rous | Pt 2/3

    In this episode, Dr. Fawzi Abu Rous provides a comprehensive overview of the treatment, monitoring, and progression of KRAS-driven lung cancer. The discussion covers the use of immunotherapy, targeted therapies, and the importance of clinical trials. Additionally, the role of monitoring and the emergence of new therapies are explored in detail. Takeaways KRAS Treatment OverviewMonitoring and Progression in KRAS-Positive Lung Cancer Chapters 00:00 Treatment for KRAS-Driven Lung Cancer05:49 Early Stage Treatment and Monitoring15:37 Monitoring and Clinical TrialsThis episode is proudly sponsored by Revolution Medicines. About Young Lung Cancer Initiative (YLCI) The YLCI is a 501(c)(3) nonprofit dedicated to the young-onset community. We provide support, research, and advocacy to ensure that no young person faces a lung cancer diagnosis alone. Disclaimer: This podcast is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

    19 min
See All (21)

About

The Young Lung Cancer Initiative Podcast brings together patient stories, expert insight, education, and real community resources for people impacted by lung cancer. You’ll hear honest conversations with patients living with this disease. You’ll hear researchers and oncologists break down evolving science. You’ll hear practical discussions about treatment decisions, side effects, insurance barriers, mental health, caregiving, and quality of life. We also share community based support resources designed specifically for young people and people without smoking history navigating lung cancer. This podcast centers the lived experience while staying grounded in evidence based medicine. If you are a patient, caregiver, advocate, or clinician who wants deeper understanding of what lung cancer actually looks like in real life, this is for you. New episodes released regularly.

Information