Young Lung Cancer Initiative Podcast

Young Lung Cancer Initiative
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The Young Lung Cancer Initiative Podcast brings together patient stories, expert insight, education, and real community resources for people impacted by lung cancer. You’ll hear honest conversations with patients living with this disease. You’ll hear researchers and oncologists break down evolving science. You’ll hear practical discussions about treatment decisions, side effects, insurance barriers, mental health, caregiving, and quality of life. We also share community based support resources designed specifically for young people and people without smoking history navigating lung cancer. This podcast centers the lived experience while staying grounded in evidence based medicine. If you are a patient, caregiver, advocate, or clinician who wants deeper understanding of what lung cancer actually looks like in real life, this is for you. New episodes released regularly.

  1. 12h ago

    When Progression Happens Earlier Than Expected | Mayya’s Lung Cancer Update

    Mayya also shares the reality of living with metastatic lung cancer while raising two young children. She discusses working with a child life specialist, explaining cancer to a preschooler in age-appropriate language, and why she chooses to let her children see some of the difficult emotions that come with cancer. Finally, Mayya and Leah discuss early progression and short responders, why patients who progress earlier than expected can feel isolated even within the lung cancer community, the need for greater research and attention to this population, and the many different ways patients and families can participate in lung cancer advocacy. CHAPTERS 00:00 Early Progression & Becoming a Short Responder 00:14 Mayya’s Lung Cancer Update 01:35 Finding Out Her Cancer Had Progressed 03:08 Second Opinions & Testing for Resistance 05:02 When Chemotherapy Became the Next Step 09:04 Living With Stage IV Lung Cancer & Uncertainty 10:55 Talking to Young Children About Cancer 17:34 Early Progression, Short Responders & Advocacy Mayya previously shared her lung cancer story with YLCI in a three-part series, including her diagnosis with stage IV ALK-positive lung cancer at age 39, starting targeted therapy, navigating treatment as a young adult and mother, and seeking expert care. Medical disclaimer: All content on this channel is for educational and informational purposes only and does not constitute medical advice. The stories and information shared reflect individual experiences; every diagnosis, treatment plan, and outcome is different, and what you see here may not apply to your situation. Nothing on this channel is a substitute for professional diagnosis, treatment, or advice from your own medical team. Never disregard or delay seeking medical advice because of something you watched here. Always consult your oncologist or another qualified healthcare provider with any questions about your health or treatment.

  2. Aug 7

    Menopause & Lung Cancer: Part of Your Care, Not an Afterthought | Dr. Narjust Florez

    Is it menopause... or the cancer treatment? Brain fog, hot flashes, vaginal dryness, joint pain, mood changes, sleep problems... many of these symptoms can be caused by menopause, lung cancer treatment, or both. So how can women tell the difference? Dr. Narjust Florez, thoracic oncologist and co-director of the Young Lung Cancer Program at Dana-Farber Cancer Institute, and Taryn join YLCI's Leah for an evidence-based conversation about navigating perimenopause and menopause during and after lung cancer treatment. This episode covers: ✔️ How to tell whether symptoms are menopause, cancer treatment, or both ✔️ Why young women with lung cancer can experience early menopause ✔️ Hormone testing and when it may be helpful ✔️ Is hormone replacement therapy safe after a lung cancer diagnosis? ✔️ Vaginal estrogen, hot flashes, and non-hormonal treatment options ✔️ Finding a menopause specialist who understands cancer care ✔️ Protecting bone health, heart health, skin, hair, and sexual health ✔️ Acupuncture, exercise, and other evidence-based supportive care ✔️ Why you don't have to suffer through menopause alone ⏱️ Chapters: 0:00 Introduction 0:36 Menopause or Cancer Treatment? 2:45 Hormone Replacement Therapy 6:03 Finding a Menopause Specialist 7:43 Feeling Like Yourself Again 11:58 Wellness Clinics & Hormones 14:01 Hormone Testing 15:03 Long-Term Health After Menopause 17:47 Final Advice 🔗 Young Lung Cancer Program at Dana-Farber: https://www.dana-farber.org/cancer-care/treatment/cancer-care-programs/young-lung-cancer-program 🔗 YLCI Resource Directory: https://ylci.org/resource-directory/ 🤍 Young Lung Cancer Initiative | https://ylci.org Medical disclaimer: All content on this channel is for educational and informational purposes only and does not constitute medical advice. Always consult your oncologist or another qualified healthcare provider with any questions about your health or treatment.

  3. Aug 3

    Sex, Intimacy & Lung Cancer: Part of Your Care, Not an Afterthought | Dr. Narjust Florez

    Is it safe to have sex during lung cancer treatment? How do you handle body image after surgery, scars, or hair loss?? Dr. Narjust Florez and Taryn, who lead the Young Lung Cancer Program at Dana-Farber Cancer Institute, join YLCI's Leah for an open, judgment-free conversation covering sex, intimacy, body image, and contraception after a lung cancer diagnosis. This episode covers: ✔️ Why sexual health gets overlooked in oncology visits ✔️ What "sexual health" actually includes (it's not just intercourse) ✔️ Is it safe to have sex during chemo, immunotherapy, or targeted therapy? ✔️ Loving your body after surgery, scars, and treatment side effects ✔️ Performance anxiety and body image — for men too ✔️ Safest birth control & contraception options during cancer treatment ✔️ How to normalize these conversations with your care team ⏱️ Chapters: 0:00 Sexual Health & Cancer Care 1:23 Redefining Sexual Health 4:01 Safety During Treatment 5:50 Loving Your New Body 8:21 Body Image & Performance Pressure 11:47 Contraception & Birth Control Options 18:34 Normalizing the Conversation 🔗 Young Lung Cancer Program at Dana-Farber: https://www.dana-farber.org/cancer-ca... 🔗 YLCI Resource Directory: https://ylci.org/resource-directory/ 🔗 https://www.dana-farber.org/newsroom/news-releases/2022/sexual-dysfunction-high-among-women-with-lung-cancer 🤍 Young Lung Cancer Initiative | https://ylci.org Add your photo to the Faces of YLC gallery: https://ylci.org/faces-of-ylc/ Instagram: https://instagram.com/younglungcancer TikTok: https://tiktok.com/@younglungcancerisathing Facebook: https://facebook.com/younglungcancer LinkedIn: https://linkedin.com/company/young-lung-cancer-initiative Donate: https://ylci.org/donate/ Young Lung Cancer Initiative's work is made possible by the support of our Mission Support Partners: Johnson & Johnson, Nuvation Bio, and Boehringer Ingelheim. YLCI retains full editorial control over all content, which is produced independently of our partners. Medical disclaimer: All content on this channel is for educational and informational purposes only and does not constitute medical advice. The stories and information shared reflect individual experiences; every diagnosis, treatment plan, and outcome is different, and what you see here may not apply to your situation. Nothing on this channel is a substitute for professional diagnosis, treatment, or advice from your own medical team. Never disregard or delay seeking medical advice because of something you watched here. Always consult your oncologist or another qualified healthcare provider with any questions about your health or treatment.

  4. Jul 23

    Fertility Preservation & Lung Cancer: Part of Your Care, Not an Afterthought | Dr. Narjust Florez

    A lung cancer diagnosis raises urgent questions about treatment. For young adults, it also raises ones that too often go unspoken: Can I still have children? Is it too late once treatment starts? And whose job is it to bring this up? Host Leah Phillips sits down with Dr. Narjust Florez, thoracic oncologist and co-founder & co-director of the Young Lung Cancer Program at Dana-Farber Cancer Institute, and Taryn Lipner, program administrator, for an honest conversation about fertility preservation and family building after a lung cancer diagnosis. The core message: fertility is health care, and raising it is the oncology team's responsibility, not one more thing patients should have to remember. Dr. Florez breaks down why the belief that "if you didn't do it at the beginning, you can't do it later" is "very 2003," walks through the real options for men and women, and explains what's possible even when treatment can't wait. In this episode: Why fertility is part of cancer care, not an afterthoughtWhy starting the conversation is the care team's job, not the patient'sFertility preservation options for men and womenWhat to do when treatment can't waitHow chemo, radiation, and immunotherapy affect fertilityBuilding a family beyond biology: adoption, surrogacy, donationNavigating costs, insurance, and financial supportChapters (verify against final edit): 00:00 Introduction 00:54 Whose responsibility it is to start the conversation 02:39 Fertility preservation options 05:54 Does fertility recover after treatment? 06:32 When treatment has to start right away 08:19 Advice for the newly diagnosed 10:14 Informational visits and the financial side 11:32 Family building beyond pregnancy 12:43 How treatments affect fertility 14:48 One message every young patient should hear Follow Young Lung Cancer Initiative for more on fertility, intimacy, relationships, and life with lung cancer. Subscribe on YouTube, Spotify, and Apple Podcasts. Disclaimer: This conversation is for educational purposes only. Always talk to a healthcare professional about your individual situation.

  5. Jul 13

    HER2 Lung Cancer Is Isolating. Until You Find Your People | Ep 3 of 3

    When you're diagnosed with HER2 lung cancer, most people around you have never heard of it. In this final episode, Samantha and Loryn talk about what it meant to find each other and a community that actually understands. They cover where to find other HER2 patients, how social media opened doors that didn't exist before, what YLCI has meant to both of them, and why connection changes how you navigate this disease. This is Part 3 of a 3-part conversation. Watch Parts 1 and 2 on our channel. Thanks to Boehringer Ingelheim for sponsoring this series. YLCI retains full editorial control. Chapters: 00:00 The Importance of Community in Cancer Journeys 02:17 Finding HER2 Positive Lung Cancer Patients 04:11 The Role of Social Media in Advocacy 06:46 The Impact of Young Lung Cancer Initiative 08:58 Navigating Support Systems 11:44 Building Connections and Future Initiatives This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

  6. Jul 13

    Two Women With HER2 Lung Cancer Share What No One Sees | Ep 2 of 3

    Two women with HER2 driven lung cancer open up about what treatment, grief, and living with stage 4 really looks like from the inside. This is what people don't see. Samantha and Loryn were both diagnosed with HER2 lung cancer in their 30s. In this episode they share what their treatment journeys actually looked like, why second opinions changed everything, how a stage 4 lung cancer diagnosis reshapes your identity and relationships, and what they're still grieving that the people around them never see. HER2 mutated ung cancer affects roughly 2 to 4 percent of lung cancer patients. But the medical side is only part of the story. This conversation goes deeper into what it means to live with this diagnosis as a young person, a parent, a partner, and a patient who is still figuring out how to plan for a future that feels uncertain. Topics covered in this episode: What HER2 lung cancer treatment actually looks like, including traditional chemotherapy, targeted therapy, and when to consider switching Why both Samantha and Loryn sought multiple opinions and how that shaped their care How lung cancer changes your sense of identity when the things that defined you start to shift The impact on careers, relationships, and the caregiver-patient dynamic What it feels like to grieve your future while still being here How to balance planning ahead with living in the present when you scan every few months Thanks to Boehringer Ingelheim for sponsoring this series. YLCI retains full editorial control. Chapters: 00:00 Navigating the Journey of HER2 Lung Cancer 01:37 Treatment Experiences and Decisions 03:27 The Importance of Second Opinions 04:48 Advocating for Yourself in Treatment 06:41 Impact on Personal Identity 09:16 Changes in Relationships and Daily Life 12:22 Emotional Challenges of Cancer 16:22 Balancing Future Planning with Present Living ⚠️ Disclaimer This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

  7. Jul 9

    Two Women Thought They COULDN'T Get Lung Cancer. They Both Did| Ep 1 of 3

    "I Googled it. It says poor prognosis. It put me in a really dark place." -Samantha Samantha Murrell and Loryn Fadus are two young women living with HER2 mutated ung cancer. In this first conversation, they sit down with YLCI co-founder Leah Phillips to talk about the road to diagnosis- the missed windows, the misdiagnoses, the shock of hearing "stage four," and what they wish they had known from the start. This is Part 1 of a three-part conversation. Parts 2 and 3 cover treatment decisions, living with HER2 lung cancer, and what community has meant to both of them. Chapters 00:00 Introduction 00:53 Samantha's first symptoms 02:32 Hearing the diagnosis 03:42 Stage four and an initial prognosis 04:30 Discovering HER2 Exon 20 Mutation through biomarker testing 05:23 "I thought lung cancer was the one I couldn't get" 07:14 Loryn's symptoms and the path to diagnosis 13:44 Learning about HER2 and finding hope 15:02 What to tell your newly diagnosed self 16:02 Misunderstandings about oncogene driven lung cancer 18:32 What's coming in Part 2 This series is proudly sponsored by Boehringer Ingelheim. YLCI retains full editorial control of all content. ⚠️ Disclaimer This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

  8. Jun 25

    HER2 Lung Cancer Resistance and Emerging Research With Dr. Kyle Concannon | Ep. 3 of 3

    In Part 3 of our HER2-driven lung cancer series, Leah Phillips and thoracic medical oncologist Dr. Kyle Concannon (UC Health, University of Colorado) tackle the harder questions. They get into what resistance actually means, the difference between on-target and off-target resistance, why a cancer can sometimes transform into a different type entirely, and the emerging research and combination approaches being studied for HER2 lung cancer patients. This is a conversation many patients will eventually need to have. The research is moving fast and there is real reason for hope. Thanks to Boehringer Ingelheim for supporting this series. YLCI retains full editorial control. This content is for informational purposes only and is not medical advice. Always seek the advice of your physician or other qualified health provider with any questions regarding a medical condition.

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The Young Lung Cancer Initiative Podcast brings together patient stories, expert insight, education, and real community resources for people impacted by lung cancer. You’ll hear honest conversations with patients living with this disease. You’ll hear researchers and oncologists break down evolving science. You’ll hear practical discussions about treatment decisions, side effects, insurance barriers, mental health, caregiving, and quality of life. We also share community based support resources designed specifically for young people and people without smoking history navigating lung cancer. This podcast centers the lived experience while staying grounded in evidence based medicine. If you are a patient, caregiver, advocate, or clinician who wants deeper understanding of what lung cancer actually looks like in real life, this is for you. New episodes released regularly.

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