The Moxie Adaptive Podcast

Moxie Adaptive

Welcome to the Moxie Adaptive Podcast! :)

  1. 11/08/2025

    In Depth with Ashley Eakin: Physicians and patients working together // Health Care Series Pt. 2

    Thanks for coming back to the last episode in this health care series! And let me tell you: GET OUT YOUR NOTEBOOK. You'll want to take notes during this convo. Shout out to the 2nd Year Wayne State Med Students!!! This two-episode health care series is for you - or truly anyone in the health care industry listening to this - thanks for wanting to be curious and learn more about caring for patients with physical differences and disabilities. (And med students, we'd love to process this more with you! Send us a DM on IG at @moxieadaptive or email hello@moxieadaptive.org) Listeners with physical differences and disabilities: We hope you feel less alone and more seen by listening to this discussion on Ashley's experience in the health care system. Ashley was born with Maffucci's Syndrome, survived ovarian cancer twice, endured 30+ surgeries, experiences annual MRI's, participates in research with NIH, and recently diagnosed with CVID (immunodeficiency)... which means she has LOTS of experience with medical care.  Topics/quotes during our discussion:  "I feel safe in hospitals because I know that if something goes wrong, it's the safest place to be.""The nurses are your biggest allies. They're the ones that know the patients really well.""I love what they said after my scan: 'You need to see a specialist; we're not equipped to do this.' I really appreciated that and not having unnecessary speculation. I've had too many mis-diagnosis.""Saying you need more help and more resources is best case scenario. Please don't think you'll be the one to get it. Have humility for the patient's sake.""I'm a really, really complicated case. It's been my life mission to understand my own body."Avoiding getting steamrolled in medical care - and why bringing a plus one to appointments has helped"Google can be a doctor's nightmare, and also a patient's nightmare."Off-handed remarks and humor... is it beneficial?The impact of giving patients quality time when necessary - and using your resources (colleagues, research) to find new information and care"You need a doctor who is willing to learn and hungry to understand." (willing to look at research and believe the evidence)Physicians and patients are on the same team: We both want answers, both trying to get to solutions. Looking for more resources after this conversation? Demystifying Disability by Emily LadauEpisode 4 of "Growing Up" on Disney+Ashley's website: ashleyeakin.comFollow/DM Ashley on Instagram: @asheakinEmail us at hello@moxieadaptive.org to continue this conversation!

  2. 11/08/2025

    Panel: Being an adaptive health care provider // Health Care Series Pt. 1

    Shout out to the 2nd Year Wayne State Med Students!!! This two-episode health care series is for you - or truly anyone in the health care industry listening to this - thanks for wanting to be curious and learn more about caring for patients with physical differences and disabilities. (And med students, we'd love to process this more with you! Send us a DM on IG at @moxieadaptive or email hello@moxieadaptive.org) Listeners with physical differences and disabilities: We hope you feel less alone and more seen by listening to this discussion! In this panel discussion, you'll be hearing from: - Megan, who was born with amniotic bands in her hands - Christiana, who was born without a left hand and forearm - Lisa, who was born with arthrogryposis in upper extremities Some main topics/takeaways we discuss: - "I was always a medical auditee" - Asking permission to touch and assess our bodies - "I don't want to go to the doctor to explain myself, my body, or make someone else comfortable because they haven't educated themselves" - "As someone with a disability, we do the emotional labor of making people feel comfortable around us, and that's no different with medical practitioners." - "A doctor once asked me how my surgeries impacted me emotionally, and a doctor had never asked me that before." - the power and impact of asking really good questions (and avoiding sharing stories of other patients to deal with uncomfortability) - "When I go into a new doctor, I have to be the expert on my own body, because I go into that assuming that they don't know my diagnosis." - "I don't feel comfortable giving you a treatment plan, can you come back in a few days after I research this?".... so powerful and appreciated. The humility is appreciated. - Having humility, truly listening, and asking permission.   - "Human first, person first, and don't be surprised on what they're bringing to you or what their body looks like." - Making a permanent claim over someone's life - when you're not sure or it's temporary - can be harmful.  - Learn how your specialty interacts with disability - AND BE ADAPTIVE! We love you, health care providers!

  3. 08/30/2025

    Nicky: Besos & tu manita preciosa

    You are the luckiest person today because you get to meet Nicky! I am so incredibly proud of her growth over this past year. She has brought so much value to my life and I cannot wait for her to share her perspective and journey with you. I promise you, you will feel SO SEEN by her story and vulnerability. On this episode, we discuss: What it felt like to be in denial of her limb difference in childhood & adolescence Respecting and honoring each person’s journey, no matter what or how you view your differencesBeing around people with disabilities and differences, and the nuances that come along with thatBeing in a limb difference/disability community makes it feel more real Feeling alone & isolated, but putting on a brave & positive face The nuances of combining having a disability & in the ethnic minority… “I am the only one”Is disability a part of my identity? EXPOSURE THERAPY!!!! (Setting small challenges, such as going out without a sweater)How we all need a Martin in our lives :)(For us single ladies… wait for your Martin!!!)The mindset of simply existing and not worrying about what other people were thinking, or not giving them that powerWhat it looks like to try passing as someone without a disability (and the realization: just because it’s covered, doesn’t mean it’s invisible, I’m not a magician!”)What happened when Martin tried grabbing for her hand while slow dancing :)Something so powerful about feeling seen and understood and validated by people who just understand To connect with Nicky: IG: @nickydiazzz --- Follow us along on IG at @moxieadaptive or send us an email at hello@moxieadaptive.org. We'd love to connect you to a Moxie community in your local area!

    Nicky: Besos & tu manita preciosa

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Welcome to the Moxie Adaptive Podcast! :)