Lung Cancer Voices of Hope

LUNGevity Foundation

When you or someone you love is diagnosed with lung cancer, there’s a lot of uncertainty – and a lot of questions. Lung Cancer Voices of Hope is a podcast from LUNGevity Foundation, hosted by Ann Steagall, an oncology nurse and head of Patient Services at LUNGevity, and Dr. Misty Shields, a thoracic medical oncologist who lost her dad to lung cancer when she was just 15. Each episode brings together someone living with lung cancer and a leading expert in care to discuss a specific topic, from care options to managing side effects to understanding testing, offering both clinical insight and patient perspective. If you or a loved one is living with lung cancer, this show is here to help you make more informed decisions and feel less alone in the process. New episodes monthly.

Episodes

  1. Aug 20

    Managing the Emotional Rollercoaster of Lung Cancer

    Living with lung cancer can take more than just a physical toll – it comes with a myriad of feelings, like anxiety, fear, and grief. In this episode, non-small cell lung cancer survivor and advocate Nora Taylor shares her journey through diagnosis, clinical trials, and targeted therapy, along with the rollercoaster of emotions that go with it. Licensed clinical social worker Ashley Griffin joins Nora as well as hosts Ann Steagall and Dr. Misty Shields to explain why anxiety and depression are such a common and often unspoken part of the cancer experience. She offers practical, everyday strategies for coping with scanxiety, uncertainty, and the emotional weight that patients and caregivers both feel. Listen as the group discusses the importance of normalizing these emotions, building self-compassion, and finding support through community. “ Both the caregiver and the patient have emotions. If you think you can't share with your loved ones, then definitely groups like you can find at LUNGevity and other organizations have quite honestly changed my life with cancer.” - Nora Taylor, non-small cell lung cancer survivor Key Topics Discussed in This Episode: Nora's lung cancer storyWhy anxiety and depression are a normal part of the cancer journeyScanxiety and the emotional rollercoasterSelf-validation and self-compassionCoping ahead of scan resultsThe caregiver's emotional burdenHow you can be hopeful and honest at the same timeFinding community and purposeResources & Support: LUNGevity Virtual Meetups – connect with other lung cancer patients and survivorsLUNGevity Online Communities – online groups for patients and care partnersLUNGevity Peer-to-Peer Program – connecting people diagnosed with lung cancer to trained survivor mentorsLUNGevity Patient Gateways – information and resources specific to your lung cancer type, including HER2Biomarker Testing – what it is and why it matters for your treatmentRead more about managing your mental health after a cancer diagnosisFind LUNGevity's tips for managing scanxietySee all of LUNGevity Support Services

    Managing the Emotional Rollercoaster of Lung Cancer
  2. Jul 16

    Clinical Trials: Who's Eligible and How to Find One

    How do clinical trials work? What actually happens when you enroll in one? And how do you find a trial that's right for you? In this episode, small cell lung cancer survivor Wendy Brooks and thoracic oncologist Dr. Arthi Sridhar join hosts Ann Steagall and Dr. Misty Shields to break down the intricacies of clinical trials — the phases, the safeguards in place, and what it's like to be a part of one. Listen as Wendy shares her own experience moving through multiple trials after her cancer progressed on standard treatment. Dr. Sridhar walks through what a clinical trial actually involves, from the safety oversight behind every study to why a trial isn't just a last resort, but instead something patients can and should ask about at any point in their care. "By participating in these trials, I'm not just helping myself, but I'm helping those that are coming behind me." - Wendy Brooks, small cell lung cancer survivor Key Topics Discussed in This Episode: What clinical trials are and how the phases workWendy's experience moving through multiple trialsCommon misconceptions about clinical trial safetySafety oversight: IRBs and the role of the principal investigatorWhy trials aren't just a last resortHow to find a trial that's right for youResources & Support: LUNGevity Clinical Trials: What clinical trials are, how they work, and how to find oneClinical Trial Ambassadors: Connect one-on-one with someone who's been on a clinical trial before youClinicalTrials.gov: The U.S. government's full listing of open clinical trialsUT Southwestern Medical Center: Learn more about the academic medical center where Dr. Sridhar practices and conducts clinical trial research

    Clinical Trials: Who's Eligible and How to Find One
  3. Jun 18

    What are Biomarkers and Why Should You Get Tested?

    What are biomarkers, why do they matter, and what should every person living with lung cancer know about getting tested? Dr. Ross Camidge, a world-renowned thoracic oncologist and lung cancer researcher at the University of Colorado, joins Ann Steagall and Dr. Misty Shields to explain the ins and outs of biomarkers. Dr. Camidge helped pioneer biomarker testing as a standard of care, but he also brings the patient perspective as well - he was diagnosed with EGFR-mutant non-small cell lung cancer several years ago. They discuss what biomarkers are, how biomarker testing works, why you might need to repeat your testing over time, and why you should know your biomarker status before you begin treatment. “ If you don't have a specific biomarker identified, you've got to ask the question: was the testing complete?” – Dr. Ross Camidge, lung cancer world expert and survivor What You'll Hear: Biomarker testing in lung cancer from a patient and expert perspectiveWhat is biomarker testing and why does it matter for lung cancer treatmentThe evolution of lung cancer biomarker testingLiquid biopsy vs. tissue biopsy for lung cancerWho should get lung cancer biomarker testing and whenRepeat biomarker testing and treatment resistanceResources & Support: Biomarker Testing – What it is, why it matters, and how to ask your team about itLUNGevity’s No One Missed – Biomarker testing information for lung cancerWhat to Ask Your Doctor – Questions to guide your treatment conversations at every stepLUNGevity Patient Gateways – Information and resources specific to your lung cancer typeEGFR Resistors – Patient-led community for people living with EGFR-positive lung cancerALK Positive – Community for patients with ALK-positive lung cancerROS1ders – Community for patients with ROS1-positive lung cancerVirtual Meetups – Connect with other lung cancer patients and survivors, including LUNGevity's weekly Tuesday calls

    What are Biomarkers and Why Should You Get Tested?
  4. Apr 23

    Why Community Matters in Lung Cancer Care

    Why does finding community matter in lung cancer care? In this episode, lung cancer survivor and advocate Jill Feldman shares her experience, from losing multiple family members to lung cancer to her own diagnosis, as well as her work building patient communities around the world. Jill discusses how connecting with others has shaped her journey and why community is important for support, information, and advocacy. Hosts Ann Steagall and Dr. Misty Shields explore with Jill how patients and families can find community, the role of advocacy, and how care teams can support patients and families. " I always say that no amount of therapy could have ever helped me through my losses and then my own diagnosis, like my involvement with the lung cancer community." -Jill Feldman, lung cancer survivor and advocate What You'll Hear: Jill's experience and advocacy journeyThe role of community in navigating diagnosisHow patients can find support after diagnosisAddressing stigma in lung cancer Resources and Support: LUNGevity Virtual Meetups – Join a live video group to connect with others living with lung cancerLifeLine Peer-to-Peer Support – Get matched 1-to-1 with a survivor or caregiver mentor with a similar experience.LUNGevity Online Communities – Connect with other people who've been where you areEGFR Resistors – Join the patient-led community founded by Jill Feldman and dedicated to EGFR-positive lung cancerLUNGevity Patient Gateways – Find information and resources specific to your lung cancer type

    Why Community Matters in Lung Cancer Care
  5. Apr 23

    Lung Cancer Diagnosis: What Happens Next

    What happens after a lung cancer diagnosis? In this first episode of LUNGevity’s Lung Cancer Voices of Hope podcast, lung cancer survivor Lisa Bistline shares her experience, from initial scans and biopsies through multiple treatments, and the moment a later biopsy revealed a biomarker that led to a targeted therapy. Hosts Ann Steagall and Dr. Misty Shields then speak with Yale University thoracic oncologist Dr. Anne Chiang about what patients can expect at their first visit, including how doctors determine the type and stage of cancer, plan treatment, and approach care. Together, they discuss how lung cancer research and treatment options continue to evolve, and the pace of progress in recent years.  "I just gaped and said, 'I have lung cancer?' and I looked over at my husband and I said, ‘I have lung cancer?’” - Lisa Bistline, lung cancer survivor What You'll Hear: Lisa’s diagnosis and treatment journeyWhat happens at a first oncology visitHow biomarkers guide treatment decisionsThe role of support systems and community Resources and Support: The LUNGevity Foundation – Support programs, education, and patient resources.Patient Gateways – Resources specific to your lung cancer type.LifeLine Support Program – 1-on-1 peer mentorship for patients and survivors.Search Clinical Trials – Tool to find relevant trials and research.Small Cell SMASHERS – Learning series for small cell lung cancer (SCLC).Recently Diagnosed Guide – Providing the information you need right away

    Lung Cancer Diagnosis: What Happens Next

Ratings & Reviews

4.3
out of 5
6 Ratings

About

When you or someone you love is diagnosed with lung cancer, there’s a lot of uncertainty – and a lot of questions. Lung Cancer Voices of Hope is a podcast from LUNGevity Foundation, hosted by Ann Steagall, an oncology nurse and head of Patient Services at LUNGevity, and Dr. Misty Shields, a thoracic medical oncologist who lost her dad to lung cancer when she was just 15. Each episode brings together someone living with lung cancer and a leading expert in care to discuss a specific topic, from care options to managing side effects to understanding testing, offering both clinical insight and patient perspective. If you or a loved one is living with lung cancer, this show is here to help you make more informed decisions and feel less alone in the process. New episodes monthly.

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