Broken But Still Breathing

Jen Weaver and Stasha Parker

Living with a chronic illness isn't always about "warrior" metaphors and "beating" the odds; sometimes, it’s just about figuring out how to exist when your body feels like a glitchy operating system. This podcast explores the messy middle ground of disability; the grief of the "former self," the absurdity of medical gaslighting, and the dark humor found in the waiting rheum.

Episodes

  1. 1d ago

    The Waiting Rheum

    Chronic illness doesn’t always look like a comeback story. Sometimes it looks like trying to get through the day with a body that feels glitchy, a calendar full of appointments, and a brain that’s doing math on symptoms you can’t fully explain. We’re Jen and Stasha, and we’re inviting you into our waiting room where the humor is dark, the stories are real, and the goal is simple: feel less alone in the messy middle of disability and chronic disease. We start by introducing ourselves and pulling back the curtain on our medical charts. We talk about the “uninvited guests” that have shaped our lives, including anxiety and panic, rheumatoid arthritis, Hashimoto’s thyroiditis, PCOS, Sjogren’s, endometriosis, inflammatory neuropathy, familial hypercholesterolemia, alopecia areata, osteopenia, psoriasis, and osteoarthritis. We also name a feeling many listeners will recognize: getting a diagnosis can be both relieving and infuriating, because answers bring validation, but they also bring a new kind of grief and a long list of “what now.” From there, we dig into the bigger picture of women’s health. Why does autoimmune disease so often pile up? How much does stress and the pressure to “do it all” affect our bodies? And what happens when we’re taught to treat discomfort as private, especially when period pain gets dismissed as normal even when it’s a sign of something bigger like PCOS or endometriosis? If you’ve ever felt minimized, gaslit, or just exhausted by the whole system, you’ll hear yourself in this conversation. Subscribe, share this with someone who needs it, and leave a review so more people can find the waiting room. What’s one symptom you wish someone had taken seriously sooner? We are not doctors, just two chronic illness patients sharing our perspective, lived experience, and the ins and outs of navigating this journey. Connect with Jen: https://www.instagram.com/jenthegracefuladvocate/?__pwa=1 Connect with Stasha: https://www.instagram.com/tenaciousinme/?__pwa=1   Join the Rheumatoid Arthritis Connect Group: connectgroups.arthritis.org/groups/rheumatoid-arthritis Use code Gracefully_Jen for 20% off compression gloves with her affiliate link:  https://www.graceandable.com/GRACEFULLY_JEN

About

Living with a chronic illness isn't always about "warrior" metaphors and "beating" the odds; sometimes, it’s just about figuring out how to exist when your body feels like a glitchy operating system. This podcast explores the messy middle ground of disability; the grief of the "former self," the absurdity of medical gaslighting, and the dark humor found in the waiting rheum.