Broken But Still Breathing

Jen Weaver and Stasha Parker

Living with a chronic illness isn't always about "warrior" metaphors and "beating" the odds; sometimes, it’s just about figuring out how to exist when your body feels like a glitchy operating system. This podcast explores the messy middle ground of disability; the grief of the "former self," the absurdity of medical gaslighting, and the dark humor found in the waiting rheum.

Episodes

  1. Sep 14

    Biohazard At the Front Door

    Send us Fan Mail Surviving Back-to-School Germs Jen shares a practical, compassionate survival guide for parents facing the seasonal wave of school germs, especially when chronic illness makes every cold feel much bigger. This episode focuses on protecting your household without trying to create a bubble, and on letting go of guilt when sickness inevitably comes home.  In this episode:   Jen frames back-to-school season as the annual “petri dish” cycle that many families know too well, especially those managing chronic illness.  She explains why a standard school cold can become a major setback for a parent with a vulnerable immune system.  She recommends an entryway “decontamination zone” with shoes off at the door, immediate handwashing, and keeping school-touch surfaces from spreading germs through the house.  She suggests a clothing swap after school in high-flare or immune-compromised situations, with school clothes going straight into the hamper.  She emphasizes practical kid-friendly handwashing routines, including making it fun and aiming for a full 20 seconds.  She shares a “snugs over scrubs” approach when a child is sick—prioritize cuddles, hydration, and rest over household perfection.  She offers low-pressure ways to comfort a sick child while protecting yourself, including masks or a blanket barrier.  She encourages parents not to push themselves to 0% when caring for a sick kid, and to rest alongside them when possible.  She addresses the emotional side of illness at home, reminding listeners that getting sick is not a parenting failure.  She closes with preparedness advice: stock teas, emergency medications, disinfecting wipes, and freezer pops before illness starts.We are not doctors, just two chronic illness patients sharing our perspective, lived experience, and the ins and outs of navigating this journey. Connect with Jen: https://www.instagram.com/jenthegracefuladvocate/?__pwa=1 Connect with Stasha: https://www.instagram.com/tenaciousinme/?__pwa=1   Join the Rheumatoid Arthritis Connect Group: connectgroups.arthritis.org/groups/rheumatoid-arthritis Use code Gracefully_Jen for 20% off compression gloves with her affiliate link:  https://www.graceandable.com/GRACEFULLY_JEN

    Biohazard At the Front Door
  2. Aug 31

    Survival, Sanity, and Backpack Science

    Send us Fan Mail In this episode of Broken But Still Breathing, Jen dives into the chaos of back-to-school season through the lens of chronic illness parenting. With humor, honesty, and plenty of practical advice, she shares how to protect your energy, delegate what you can, and build a school-year survival plan that actually works when your body doesn’t cooperate. From setting radical priorities and creating a family “launch pad” by the door to stocking a flare-up survival kit and arranging a carpool tag team, this conversation is packed with realistic strategies for getting through the school year without burning out. Jenni also speaks directly to the quiet guilt many parents carry, offering a compassionate reminder that your kids don’t need perfection — they need you. If you’ve ever felt overwhelmed by the pressure to do it all while managing your health, this episode will leave you feeling understood, encouraged, and a little more prepared for the road ahead. Help support Stasha and Micah: https://gofund.me/4bb9665d7 We are not doctors, just two chronic illness patients sharing our perspective, lived experience, and the ins and outs of navigating this journey. Connect with Jen: https://www.instagram.com/jenthegracefuladvocate/?__pwa=1 Connect with Stasha: https://www.instagram.com/tenaciousinme/?__pwa=1   Join the Rheumatoid Arthritis Connect Group: connectgroups.arthritis.org/groups/rheumatoid-arthritis Use code Gracefully_Jen for 20% off compression gloves with her affiliate link:  https://www.graceandable.com/GRACEFULLY_JEN

    Survival, Sanity, and Backpack Science
  3. Aug 24

    "Warrior" Praise or Pressure?

    Send us Fan Mail Broken But Still Breathing with Liv Loo Jen Weaver sits down with Liv Loo, owner of MoveToLiv, for a candid conversation about chronic illness, movement, burnout, and the pressure that comes with being seen as a “warrior.” Liv shares how growing up with rheumatoid arthritis and uveitis shaped her approach to adaptable movement, while Jen opens up about medication changes, self-advocacy, and the realities of living with an unpredictable body. We discuss what it really means to support disabled and chronically ill people well, why asking what someone needs matters more than labeling them, and how both women protect their energy while still showing up for their communities. Key topics Liv Loo shares her background as the founder of MoveToLiv and explains how she creates adaptable movement for people with chronic illness, autoimmune conditions, and mental health challenges.Liv talks about being diagnosed with rheumatoid arthritis at age 4 and uveitis at age 8, and how those experiences shaped her empathy and relationship with movement.Jen shares her own recent weight loss journey, including losing 68 pounds, and the tradeoff of losing strength and muscle in the process.The conversation explores the “warrior” label, including why it can feel affirming to some people and deeply pressuring or toxic to others.Liv explains how being viewed as a warrior can create an expectation to keep showing up, helping others, and staying inspirational even when she is exhausted or flaring.Both women talk about the importance of asking people how they want support rather than assuming that encouragement, advice, or labels will help.Jen shares her experience with medication changes, including pausing methotrexate around her grandson’s visit to reduce infection risk, and Liv discusses being on the same biologic for 19 years.Liv describes how she has decentered her rheumatoid arthritis from the center of her identity, keeping it as one part of who she is rather than the whole story.The episode gets practical about burnout, saying no, asking for more time, and recognizing when a project, partnership, or responsibility no longer fits your body or capacity.The conversation closes on “broken but still breathing” as a lens for grief, healing, resilience, and trusting that being in the middle of the mess still counts as survival.https://www.instagram.com/movetoliv?igsi=MTdkZGU3aHhsYXZ1ag== We are not doctors, just two chronic illness patients sharing our perspective, lived experience, and the ins and outs of navigating this journey. Connect with Jen: https://www.instagram.com/jenthegracefuladvocate/?__pwa=1 Connect with Stasha: https://www.instagram.com/tenaciousinme/?__pwa=1   Join the Rheumatoid Arthritis Connect Group: connectgroups.arthritis.org/groups/rheumatoid-arthritis Use code Gracefully_Jen for 20% off compression gloves with her affiliate link:  https://www.graceandable.com/GRACEFULLY_JEN

  4. Jul 27

    The Waiting Rheum

    Send us Fan Mail Chronic illness doesn’t always look like a comeback story. Sometimes it looks like trying to get through the day with a body that feels glitchy, a calendar full of appointments, and a brain that’s doing math on symptoms you can’t fully explain. We’re Jen and Stasha, and we’re inviting you into our waiting room where the humor is dark, the stories are real, and the goal is simple: feel less alone in the messy middle of disability and chronic disease. We start by introducing ourselves and pulling back the curtain on our medical charts. We talk about the “uninvited guests” that have shaped our lives, including anxiety and panic, rheumatoid arthritis, Hashimoto’s thyroiditis, PCOS, Sjogren’s, endometriosis, inflammatory neuropathy, familial hypercholesterolemia, alopecia areata, osteopenia, psoriasis, and osteoarthritis. We also name a feeling many listeners will recognize: getting a diagnosis can be both relieving and infuriating, because answers bring validation, but they also bring a new kind of grief and a long list of “what now.” From there, we dig into the bigger picture of women’s health. Why does autoimmune disease so often pile up? How much does stress and the pressure to “do it all” affect our bodies? And what happens when we’re taught to treat discomfort as private, especially when period pain gets dismissed as normal even when it’s a sign of something bigger like PCOS or endometriosis? If you’ve ever felt minimized, gaslit, or just exhausted by the whole system, you’ll hear yourself in this conversation. Subscribe, share this with someone who needs it, and leave a review so more people can find the waiting room. What’s one symptom you wish someone had taken seriously sooner? We are not doctors, just two chronic illness patients sharing our perspective, lived experience, and the ins and outs of navigating this journey. Connect with Jen: https://www.instagram.com/jenthegracefuladvocate/?__pwa=1 Connect with Stasha: https://www.instagram.com/tenaciousinme/?__pwa=1   Join the Rheumatoid Arthritis Connect Group: connectgroups.arthritis.org/groups/rheumatoid-arthritis Use code Gracefully_Jen for 20% off compression gloves with her affiliate link:  https://www.graceandable.com/GRACEFULLY_JEN

About

Living with a chronic illness isn't always about "warrior" metaphors and "beating" the odds; sometimes, it’s just about figuring out how to exist when your body feels like a glitchy operating system. This podcast explores the messy middle ground of disability; the grief of the "former self," the absurdity of medical gaslighting, and the dark humor found in the waiting rheum.