Living My Best Liver Life with Livie Wells

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Join me, Livie Wells, as I share real life stories of people living with a rare chronic autoimmune disease of the liver called PBC - Primary Biliary Cholangitis. I will have interviews with researchers of the disease as well as treatments and pharmaceutical companies. We will hear from doctors, nurses, specialist, patients, caregivers, friends and family of patients with PBC. Additionally we will share information on support groups, national organizations, and experts to guide us in managing our wellness.  If you or someone you know would like to be on the “Living My Best Liver Life with Livie Wells” podcast, please email - livwells.livingmybestliverlife@gmail.com please send us a brief story of your journey and why you would like to be on the podcast. I look forward to hearing from you!  I am not a doctor and the information shared on this podcast is not meant to replace medical treatment or advice from your medical doctor. The information shared is from real life experiences and mean...

Episodes

  1. Aug 15

    From Ventilators to Viral Awareness: A Respiratory Therapist, PBC Journey

    Season one, episode three, features Danielle a Respiratory Therapist and PBC patient who shares her diagnosis journey, challenges, managing multiple autoimmune conditions, (including Sjogrens and MCAS), the impact of working through COVID pandemic she discusses treatment, symptoms, management and lifestyle adjustments and the emotional effects of chronic illness. Danielle also highlights her advocacy work as president of Friends of the PBC Foundation - in the US, the importance of patient communities and practical strategies for navigating care and preserving mental health while living with PBC. *I would like to make a correction, please note that Danielle has one very sweet, smart and talented cat named Juniper Peaches.  YES,  I did say that Juniper Peaches plays video games!

    From Ventilators to Viral Awareness: A Respiratory Therapist, PBC Journey

  2. Aug 6

    From Misdiagnosis to Strength: Jackie’s Story of Living with PBC and Fibromyalgia- Audio only

    In this episode of Living My Best Liver Life, host and guest Jackie discuss her diagnosis with primary biliary cholangitis (PBC), the long road to correct diagnosis, and the added challenge of fibromyalgia. Jackie shares how she manages fatigue, treatment struggles, lifestyle changes, and caring for her family— including her daughter’s recent health issues and gluten sensitivity. The conversation focuses on resilience, practical strategies, and the importance of support and self-compassion.   I am not a medical doctor. My guest is not a medical doctor. We are sharing our stories, experiences and advice. Please seek medical advice, testing and treatments from your medical doctor or specialist. If you are experiencing a medical emergency please dial 911 on your phone. 
If you are experiencing a mental health emergency please dial 988 on your phone. You can also text HOME to 741741 for the crisis text line in the US which is a free confidential service. 

 Please know you are loved,  you are not alone,  and I am here with you. 
Xo Livie

  3. Jul 31

    Advocacy for PBC - Autoimmune Liver Disease - Audio only

    I’m excited and a little nervous to share this episode one of “Living My Best Liver Life”. In this first episode, I share the story behind the podcast, my journey through chronic illness and liver disease. I also share why advocacy matters so much to me. My hope is that this podcast becomes a supportive space for patients, caregivers,  advocates, anyone looking for encouragement. I’d love for you to listen, subscribe and send me your “Itch or Bliss” for future episodes. What’s a “Itch or Bliss” you say? Tune in now and you’ll find out!

  • 3 Episodes

About

Join me, Livie Wells, as I share real life stories of people living with a rare chronic autoimmune disease of the liver called PBC - Primary Biliary Cholangitis. I will have interviews with researchers of the disease as well as treatments and pharmaceutical companies. We will hear from doctors, nurses, specialist, patients, caregivers, friends and family of patients with PBC. Additionally we will share information on support groups, national organizations, and experts to guide us in managing our wellness.  If you or someone you know would like to be on the “Living My Best Liver Life with Livie Wells” podcast, please email - livwells.livingmybestliverlife@gmail.com please send us a brief story of your journey and why you would like to be on the podcast. I look forward to hearing from you!  I am not a doctor and the information shared on this podcast is not meant to replace medical treatment or advice from your medical doctor. The information shared is from real life experiences and mean...

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