Like An Athlete, Not A Patient

Gaia Forlani

For people with Parkinson's who train like athletes, not like patients.

Episodes

  1. 2d ago

    How To Interview Your Parkinson's Care Team

    Haseel Bhatt has spent more than 16 years working at the intersection of neurological rehabilitation, research, and education. Early in his career, he began noticing a frustrating gap: research was showing what exercise and specialized rehabilitation could do for people with Parkinson’s, but those findings weren’t always making their way into everyday clinical care. That gap shaped Haseel’s work as a neurological physiotherapist and ultimately led him to found Neurology Rehab. In this episode, he joins Gaia to explore what Parkinson’s rehabilitation should actually look like, from understanding freezing of gait and finding alternative pathways to movement to asking better questions of the professionals responsible for your care. Haseel also challenges people with Parkinson’s to take a more active role in rehabilitation. Why are you doing this exercise? Why are you on the treadmill? How will this translate into your everyday life? His advice is simple: interview your healthcare team. Along the way, Gaia and Haseel explore caregivers, mental health, stigma, individualized rehabilitation, and why living with a neurodegenerative condition does not mean improvement is impossible. WHAT WE COVER: What actually happens when someone with Parkinson’s experiences freezing of gaitHaseel’s “blocked highway” analogy and how visual, auditory, and movement cues can help create another route to movementWhy Parkinson’s rehabilitation needs to be individualized rather than built around a one-size-fits-all approachWhy Haseel encourages people with Parkinson’s to interview their healthcare team and understand the purpose behind their rehabilitationHow exercise has evolved from an optional recommendation to a core part of Parkinson’s managementWhy confidence, mental health, and the right support system matter alongside physical rehabilitationThe often overlooked experience of spouses, family members, and caregivers, and why simply asking “How are you doing?” mattersHow education can help address misinformation and stigma surrounding neurological conditions, including FNDWhy Haseel questions whether Parkinson’s is best understood as one “disease” when every person can experience such a different combination of symptomsWhy things can improve with Parkinson’s, even in the presence of a neurodegenerative condition WHAT’S NEXT: 📧 Join our newsletter: Get Parkinson’s research, practical strategies, expert insights, and updates from Parkinson’s Performance Centre delivered straight to your inbox. 🏋️ Train Like An Athlete: Gaia’s work at Parkinson’s Performance Centre, and her belief that people with Parkinson’s can train like athletes, was the inspiration behind the Like An Athlete, Not A Patient podcast. If you’re interested in learning more about Gaia’s program and how PPC helps people with Parkinson’s train with purpose, explore the program HERE. STAY CONNECTED WITH US: Instagram: @gaia.forlani.ppcFacebook: Gaia Forlani SUBSCRIBE & REVIEW If this episode changed the way you think about Parkinson’s rehabilitation and the role you can play in your own care, subscribe to Like An Athlete, Not A Patient and leave a review. It helps more people with Parkinson’s, their families, caregivers, and the professionals supporting them discover these conversations.

  2. Aug 19

    What Parkinson's Care Gets Wrong About Capable People

    Dr. Sara Davies spent years working on the frontlines of neurological rehabilitation when she began noticing something: people with Parkinson’s were often treated differently. Care centered heavily on symptoms and impairments, while the bigger question of how do we help people keep doing the things that actually matter to them was getting lost. That question led Sara into research on metacognition, functional cognition, and cognitive strategy training for people with Parkinson’s. In this episode, she joins Gaia to explore what happens when Parkinson’s care shifts from simply managing symptoms to helping people see themselves as capable problem-solvers who can adapt, build new strategies, and stay engaged in their lives. From the practical Goal-Plan-Do-Check framework to the hidden impact of fatigue, anxiety, apathy, and sleep, Sara challenges the idea that a Parkinson’s diagnosis automatically means giving up the activities, roles, and goals that make you who you are. WHAT WE COVER: Why Sara believes Parkinson’s care needs to move beyond symptom managementHow metacognition can help people with Parkinson’s become better problem-solvers in daily lifeThe Goal-Plan-Do-Check strategy and how it works in real-world situationsWhy the environment, routines, reminders, and everyday strategies matter for cognitionThe gap between knowing exercise is important and actually being able to follow through consistentlyHow fatigue, sleep, anxiety, apathy, and other non-motor symptoms can affect everyday lifeWhy meaningful goals, from exercise to getting dressed the way you want, belong in Parkinson’s rehabilitationHow caregivers and families can support independence without taking away autonomyWhy neuroplasticity means the brain can continue to adapt throughout life WHAT’S NEXT: 📧 Join our newsletter: Get Parkinson’s research, practical strategies, expert insights, and updates from Parkinson’s Performance Centre delivered straight to your inbox. 🏋️ Train Like An Athlete: Gaia’s work at Parkinson’s Performance Centre—and her belief that people with Parkinson’s can train like athletes—was the inspiration behind the Like An Athlete, Not A Patient podcast. If you’re interested in learning more about Gaia’s program and how PPC helps people with Parkinson’s train with purpose, explore the program HERE. STAY CONNECTED WITH US: Instagram: @gaia.forlani.ppc Facebook: Gaia Forlani SUBSCRIBE & REVIEW If this episode changed the way you think about what’s possible while living with Parkinson’s, subscribe to Like An Athlete, Not A Patient and leave a review. It helps more people with Parkinson’s, their families, and the professionals supporting them discover these conversations.

  3. Aug 18

    The Second the Tremor Stopped, Neurosurgeon Explains

    What if treating Parkinson’s isn’t simply about targeting one area of the brain, but understanding the complex network of connections behind each person’s symptoms? In this episode, Gaia Forlani sits down with Dr. Harith Akram, consultant neurosurgeon at the National Hospital for Neurology and Neurosurgery, to explore the rapidly evolving world of functional neurosurgery. From connectomics and brain mapping to AI, advanced imaging, and precision medicine, Dr. Akram explains how researchers are working to better understand the circuits driving Parkinson’s and translate that science into better care for the person sitting in front of them. WHAT WE COVER: How scientists are mapping the brain’s connectionsWhy Parkinson’s treatment is moving toward precision medicineThe challenge of treating non-motor symptomsHow AI could change neuroscience and neurosurgeryMapping dysfunctional brain circuits and “traffic jams”What brain connectivity can teach us about Parkinson’sThe story behind Dr. Akram’s custom supercomputer, “Gilgamesh”New imaging technology designed to improve surgical precisionWhy challenging surgical dogma can lead to better patient careThe importance of honest expectations and collaborative care WHAT’S NEXT: 📧 Join our newsletter: Get Parkinson’s research, practical strategies, expert insights, and updates from Parkinson’s Performance Centre delivered straight to your inbox.Join our newsletter 🏋️ Train Like An Athlete: Gaia’s work at Parkinson’s Performance Centre (and her belief that people with Parkinson’s can train like athletes) was the inspiration behind the Like An Athlete, Not A Patient podcast. If you’re interested in learning more about Gaia’s program and how PPC helps people with Parkinson’s train with purpose, explore the program here:Learn more about the program STAY CONNECTED WITH US: Instagram: @gaia.forlani.ppcFacebook: Gaia Forlani SUBSCRIBE & REVIEW If this episode gave you a new perspective on how the brain is mapped and where precision Parkinson’s treatment could be headed, subscribe to Like An Athlete, Not A Patient and leave a review. It helps more people with Parkinson’s, their families, and the professionals supporting them discover these conversations.

  4. Aug 18

    Why Women with Parkinson's Are Left Behind

    For decades, Parkinson’s research has been built largely around men, leaving major questions about women unanswered. Dr. Roberta Marongiu is working to change that. Her research focuses on biological sex, ovarian hormones, menopause, and what these differences could mean for how women experience and are treated for Parkinson’s.  In this episode, Roberta joins Gaia to explore what women with Parkinson’s need to know about hormonal changes, medication response, perimenopause, menopause, and HRT. They also discuss why listening to people with Parkinson’s transformed Roberta’s work and inspired her to take science beyond the lab through exercise, arts, and other programs designed to improve life with Parkinson’s today.  WHAT WE COVER: Why Parkinson’s research has historically left women behindHow hormones can influence symptoms and medication responseWhat happens to the brain during perimenopause and menopauseEstrogen, neuroplasticity, and Parkinson’sWhat we know and still don’t know about HRTWhy menopause symptoms can sometimes overlap with Parkinson’sThe unanswered questions around levodopa dosing for womenWhy women should speak up when something in their body changesHow exercise and complementary therapies can support quality of life WHAT’S NEXT: 📧 Join our newsletter: Get Parkinson’s research, practical strategies, expert insights, and updates from Parkinson’s Performance Centre delivered straight to your inbox.Join our newsletter 🏋️ Train Like An Athlete: Gaia’s work at Parkinson’s Performance Centre (and her belief that people with Parkinson’s can train like athletes) was the inspiration behind the Like An Athlete, Not A Patient podcast. If you’re interested in learning more about Gaia’s program and how PPC helps people with Parkinson’s train with purpose, explore the program here:Learn more about the program STAY CONNECTED WITH US: Instagram: @gaia.forlani.ppcFacebook: Gaia Forlani SUBSCRIBE & REVIEW If this episode gave you a new perspective on women, hormones, and Parkinson’s or helped you realize how many important questions still need answers, subscribe to Like An Athlete, Not A Patient and leave a review. It helps more people with Parkinson’s, their families, and the professionals supporting them discover these conversations.

  5. Aug 18

    How To Actually Get the Most From Your Neurologist

    Parkinson’s is often described as simply “low dopamine”—but the reality is far more complex. In this episode, Gaia Forlani sits down with Professor Francesca Morgante, Professor of Neurology and Edmond J. Safra Chair for the Study of Ageing at St George’s University of London, honorary consultant neurologist, and a leading voice in movement disorders and neuromodulation. Together, they unpack what’s actually happening in the Parkinson’s brain, why no two people experience the condition in exactly the same way, and how better understanding your symptoms can change the way you approach treatment. From medication and exercise to Deep Brain Stimulation and the patient-neurologist relationship, this conversation brings complex science back to the person living with Parkinson’s. WHAT WE COVER: Why Parkinson’s may actually be several different diseasesWhat’s happening in the brain beyond dopamine lossDyskinesia vs. dystonia—and why they happenExercise, mood, symptoms, and medication managementDeep Brain Stimulation (DBS) and who it may helpThe latest advances in adaptive and sensing DBSHow to build a better relationship with your neurologistThe biggest gaps in Parkinson’s care todayWhere current Parkinson’s research is giving hope WHAT’S NEXT: 📧 Join our newsletter: Get Parkinson’s research, practical strategies, expert insights, and updates from Parkinson’s Performance Centre delivered straight to your inbox. 🏋️ Train Like An Athlete: Gaia’s work at Parkinson’s Performance Centre—and her belief that people with Parkinson’s can train like athletes—was the inspiration behind the Like An Athlete, Not A Patient podcast. If you’re interested in learning more about Gaia’s program and how PPC helps people with Parkinson’s train with purpose, explore the program here:Learn more about the program STAY CONNECTED WITH US: Instagram: @gaia.forlani.ppcFacebook: Gaia Forlani SUBSCRIBE & REVIEW If this episode helped you better understand Parkinson’s—or gave you more confidence to ask questions and take an active role in your care—subscribe to Like An Athlete, Not A Patient and leave a review. It helps more people with Parkinson’s, their families, and the professionals supporting them discover these conversations.

  6. Aug 17

    Dietitian With Parkinson's Reveals What Doctors Won't Tell You

    Richelle Flanagan spent more than 20 years working in nutrition and dietetics before Parkinson’s became personal. She first noticed symptoms of young-onset Parkinson’s while pregnant with her daughter—and kept her diagnosis private for two years because of the stigma, fear, and embarrassment surrounding the disease. Today, she has turned that experience into advocacy, particularly around nutrition and the unmet needs of women with Parkinson’s.  In this episode, Richelle joins Gaia to unpack what nutrition for Parkinson’s actually looks like—from protein and levodopa to fiber, gut health, constipation, and supplements. They also dive into an often-overlooked conversation: how Parkinson’s can affect women differently, including the role of hormones, menstrual cycles, menopause, medication response, and why women-specific research matters.  WHAT WE COVER: What Richelle learned when Parkinson’s made nutrition personalWhy the basics may matter more than trendy diets and supplementsProtein, levodopa, and why timing can get complicatedFiber, constipation, and the gut-brain connectionWhy supplements can’t replace the foundation of a healthy dietHow to make eating well with Parkinson’s realistic and sustainableWhy women can experience Parkinson’s differentlyHormones, menstrual cycles, menopause, and Parkinson’s symptomsWhy nutrition deserves a bigger role on the Parkinson’s care team WHAT’S NEXT: 📧 ⁠Join our newsletter⁠: Get Parkinson’s research, practical strategies, expert insights, and updates from Parkinson’s Performance Centre delivered straight to your inbox. 🏋️ Train Like An Athlete: Gaia’s work at Parkinson’s Performance Centre (and her belief that people with Parkinson’s can train like athletes) was the inspiration behind the Like An Athlete, Not A Patient podcast. If you’re interested in learning more about Gaia’s program and how PPC helps people with Parkinson’s train with purpose, explore the program ⁠HERE⁠. STAY CONNECTED WITH US: Instagram: ⁠@gaia.forlani.ppc⁠  Facebook: ⁠Gaia Forlani⁠ SUBSCRIBE & REVIEW If this episode changed the way you think about what’s possible while living with Parkinson’s, subscribe to Like An Athlete, Not A Patient and leave a review. It helps more people with Parkinson’s, their families, and the professionals supporting them discover these conversations.

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For people with Parkinson's who train like athletes, not like patients.