Chronic Effects of Long COVID- Perspective from Patient and Nurse

Annalyssa
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"From Bedside to Bedridden: A Nurse's 18-Month Fight for a Diagnosis" As a nurse, I spent years catching what others missed in patients. Then long COVID left me with racing heart rates, falls, and fatigue no one could explain — and I became the patient no one believed. It took 18 months of pushing for answers to get diagnosed with dysautonomia. The diagnosis brought grief for the body I used to trust, but also clarity. If your body says something's wrong and the tests say "normal," don't stop pushing. Be your own advocate — no one knows you like you do.

Episodes

  1. Oct 3

    Episode 3: Two Months In-Symptoms Then vs. Now

    **** October Dysautonomia Awareness Month **** So what's changed two months into treatment? As a nurse and patient, I'm going head to toe through my body. I'll share the progress I'm proud of, the challenges I'm still facing, and the symptoms that come back just when I think they're gone. You'll also hear why I stopped asking "why?" and started asking "what helps?" Plus one simple tip for anyone living with an invisible illness.

  2. Sep 4

    Episode 2: Navigating Healthcare- The Stuff Nobody Tells You

    This episode describes my personal journey fighting to be taken seriously after being dismissed by healthcare providers. The persistent gaslighting takes an emotional toll on patients and the host gives personal takeaways she has learned along the way. Persistence and self advocacy is a reoccurring theme. The episode was created with the intention of finding connection with others navigating similar struggles.

  3. Aug 27

    Episode 1: When Nothing Added Up

    Episode 1: When Nothing Added Up A nurse of 15 years gets COVID — twice. The first time is manageable. The second time changes everything. In this debut episode, she walks through 18 months of unexplained symptoms, dismissed test results, and misdiagnoses (depression? a pituitary tumor?) — even after taking matters into her own hands with diet, exercise, and preventative health measures that should have helped but didn't. None of it added up to the diagnosis that was actually coming. It's a raw, honest look at what it's like to be the patient instead of the caregiver — and the first step in a series about grief, chronic illness, and learning to advocate for yourself when the system falls short.

  • 3 Episodes

About

"From Bedside to Bedridden: A Nurse's 18-Month Fight for a Diagnosis" As a nurse, I spent years catching what others missed in patients. Then long COVID left me with racing heart rates, falls, and fatigue no one could explain — and I became the patient no one believed. It took 18 months of pushing for answers to get diagnosed with dysautonomia. The diagnosis brought grief for the body I used to trust, but also clarity. If your body says something's wrong and the tests say "normal," don't stop pushing. Be your own advocate — no one knows you like you do.

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