Down Syndrome Center Podcast

Kishore Vellody, MD
  • 4.9 (69)
  • MEDICINE
  • UPDATED SEMIMONTHLY

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

  1. DEC 18

    #215 - Speech Clarity

    Jennifer Gray is a speech language pathologist (SLP) who works at Gray Speak Therapy (http://grayspeaktherapy.com).  She joined the podcast to talk about the importance of speech clarity and techniques to improve it for people with Down syndrome.

    34 min

  2. DEC 4

    #214 - Hip Issues in Down syndrome (with Dr. Ricki Koehler)

    Dr. Ricki Koehler was the lead author on a recent article looking at Down syndrome and hip dysplasia and dislocations.  Dr. Koehler joined the podcast to answer a listener question on the topic. To read the article: https://pubmed.ncbi.nlm.nih.gov/40433006/   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    20 min

  3. NOV 20

    #213 - REACH - Serving Children with Hirschsprung Disease

    Isabelles Schnadig and Ashley Matthews from REACH (Research, Education, Advocacy for Children with Hirschsprung disease) joined the podcast to talk about the supports they can offer for children with Down syndrome and Hirschsprung Disease.  For more information about REACH, visit https://www.reachhd.org For more supports for Down syndrome and Hirschsprung disease, visit https://www.reachhd.org/down-syndrome-hirschsprung-disease My Little Brother Is A Trooper: The Story of a Child With a Dual Diagnosis: Down Syndrome and Hirschsprung Disease by Isabelle Schnadig can be found at https://sdppublishingsolutions.com/product/my-little-brother-is-a-trooper/ Ashley's rash tips can be found at https://somaticmagicmama.com/2025/05/27/rash-tips-for-hirschsprungs-disease/   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    28 min

  4. NOV 6

    #212 - Cholesterol in Down syndrome - Should we worry about it?

    Dr. Brian Chicoine from the Adult Down Syndrome Center in Chicago joined the podcast again today, this time to discuss a listener question on cholesterol.  There's data that people with Down syndrome do not seem to get cholesterol related plaques on the arteries around the heart.  Knowing this, should we be checking cholesterol levels?  Is there an association between cholesterol and Alzheimer disease?  Listen to find out more! NDSS Care Down Syndrome https://careds.org Adult Down Syndrome Healthcare Guidelines https://pubmed.ncbi.nlm.nih.gov/33079159/   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    19 min

  5. OCT 23

    #211 - What To Know If Your Child Is Admitted To A Hospital

    Dr. Kristie Marble is a pediatric hospital medicine physician at Children's Mercy Hospital in Kansas City, MO.  She joined the podcast to discuss reasons why a child with Down syndrome might be admitted to a hospital and ways to advocate for them to bring them back to health before discharge.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    15 min

  6. OCT 9

    #210 - Hey "Device," Do You Understand Me?

    Laura Mattie and Alex Barkhimer from the school of Speech and Hearing Science at the University of Illinois joined the podcast to talk about the exciting Speech Accessibility Project to help Big Tech companies create devices that can understand people with speech differences.  To find more about the project, go to https://speechaccessibilityproject.beckman.illinois.edu.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    26 min

  7. SEP 25

    #209 - Parent Education & Advocacy Leadership (PEAL) Center

    Meredith Peterson joined the podcast to talk about the Parent Education & Advocacy Leadership (PEAL) Center.  Since 2005, the PEAL Center has been committed to serving families and professionals across Pennsylvania. Today PEAL works with families, youth and young adults with disabilities and special health care needs to help them understand their rights and advocate for themselves. Through our unwavering commitment to inclusion and our guiding values, we empower families and individuals to be included in their home schools and access high quality, coordinated physical and behavioral health care. PEAL's services are provided at no charge to families as they are funded by private donations and federal, state, and private grants. For more information: PEAL Center: https://www.pealcenter.org/ CIPIR (Center for Parent Information and Resources) https://www.parentcenterhub.org/ - where to find your state's PTI Upcoming Wrights Law Training on 9/18/25: https://www.tfaforms.com/5171156?tfa_2400=PEAL   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    13 min

  8. SEP 11

    #208 - Advocacy Alert! (Part 2) - Medicaid Changes

    It's tough to keep up with all the changes going on at the Federal level or understand how that might impact people with Down syndrome in our local areas.  We were joined on the podcast by two experts in policy and advocacy from the National Down Syndrome Congress (NDSC).  Heather Sachs is the Policy & Advocacy Co-Director for the NDSC and Jawanda Mast is the Grassroots Advocacy Manager for the NDSC.  On the podcast, we discuss how the Medicaid changes at the federal level will impact those with disabilities at the state and local level.  This is Part 2 of a two part series looking at Policy and Advocacy at the Federal level. For more information: National Down Syndrome Congress (https://www.ndsccenter.org) Information and application for NDSC's  National Down Syndrome Advocacy Coalition https://ndsccenter.org/policy/national-down-syndrome-advocacy-coalition-ndac/about-ndac.html  Advocacy Training and Resources. Templates, one-pagers, toolkit and presentations.  https://ndsccenter.org/policy/training-resources.html -Changes to Medicaid, Medicare, and Affordable Care Act: https://publichealth.jhu.edu/2025/the-changes-coming-to-the-aca-medicaid-and-medicare   -Closer look at work requirements in HR1: https://www.kff.org/medicaid/a-closer-look-at-the-work-requirement-provisions-in-the-2025-federal-budget-reconciliation-law   -Impact of Medicaid cuts on Home and Community Based waiver Services: https://www.healthaffairs.org/content/forefront/history-repeats-faced-medicaid-cuts-states-reduced-support-older-adults-and-disabled   -Impact of Medicaid cuts on students and schools: https://healthyschoolscampaign.org/dev/wp-content/uploads/2025/03/How-Medicaid-Cuts-Will-Harm-Students-Schools.pdf     If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    29 min
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About

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

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