Down Syndrome Center Podcast

Kishore Vellody, MD
  • 4.9 (69)
  • MEDICINE
  • UPDATED MONTHLY

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

  1. 6D AGO

    #217 - Vision Concerns (with Dr. Michael Puente)

    Dr. Michael Puente is a pediatric ophthalmologist at Children's Hospital Colorado.  He works with young children, teens, and adults with Down syndrome in his practice.  He joined the podcast to discuss common vision issues in people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    24 min

  2. JAN 8

    #216 - Neuropsychological and IQ testing (with Dr. Rosemarie Manfredi)

    Dr. Rosemarie Manfredi is a licensed psychologist at Neurodevelopmental Assessment and Consulting, LLC.   You can find more information about Dr. Manfredi's practice here: https://www.neuroassessconsult.com AAIDD definition of intellectual disability, which emphasizes comprehensive evaluations to determine treatment and educational planning: https://www.aaidd.org/intellectual-disability/definition   Wrightslaw website to help parents understand their rights in the special education process: https://www.wrightslaw.com   Wrightslaw also has a specific page on Assessment and Testing, which includes information on some commonly-used tests and other testing information of interest to parents: https://www.wrightslaw.com/info/test.index.htm     If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    22 min

  3. 12/18/2025

    #215 - Speech Clarity

    Jennifer Gray is a speech language pathologist (SLP) who works at Gray Speak Therapy (http://grayspeaktherapy.com).  She joined the podcast to talk about the importance of speech clarity and techniques to improve it for people with Down syndrome.

    34 min

  4. 12/04/2025

    #214 - Hip Issues in Down syndrome (with Dr. Ricki Koehler)

    Dr. Ricki Koehler was the lead author on a recent article looking at Down syndrome and hip dysplasia and dislocations.  Dr. Koehler joined the podcast to answer a listener question on the topic. To read the article: https://pubmed.ncbi.nlm.nih.gov/40433006/   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    20 min

  5. 11/20/2025

    #213 - REACH - Serving Children with Hirschsprung Disease

    Isabelles Schnadig and Ashley Matthews from REACH (Research, Education, Advocacy for Children with Hirschsprung disease) joined the podcast to talk about the supports they can offer for children with Down syndrome and Hirschsprung Disease.  For more information about REACH, visit https://www.reachhd.org For more supports for Down syndrome and Hirschsprung disease, visit https://www.reachhd.org/down-syndrome-hirschsprung-disease My Little Brother Is A Trooper: The Story of a Child With a Dual Diagnosis: Down Syndrome and Hirschsprung Disease by Isabelle Schnadig can be found at https://sdppublishingsolutions.com/product/my-little-brother-is-a-trooper/ Ashley's rash tips can be found at https://somaticmagicmama.com/2025/05/27/rash-tips-for-hirschsprungs-disease/   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    28 min

  6. 11/06/2025

    #212 - Cholesterol in Down syndrome - Should we worry about it?

    Dr. Brian Chicoine from the Adult Down Syndrome Center in Chicago joined the podcast again today, this time to discuss a listener question on cholesterol.  There's data that people with Down syndrome do not seem to get cholesterol related plaques on the arteries around the heart.  Knowing this, should we be checking cholesterol levels?  Is there an association between cholesterol and Alzheimer disease?  Listen to find out more! NDSS Care Down Syndrome https://careds.org Adult Down Syndrome Healthcare Guidelines https://pubmed.ncbi.nlm.nih.gov/33079159/   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    19 min

  7. 10/23/2025

    #211 - What To Know If Your Child Is Admitted To A Hospital

    Dr. Kristie Marble is a pediatric hospital medicine physician at Children's Mercy Hospital in Kansas City, MO.  She joined the podcast to discuss reasons why a child with Down syndrome might be admitted to a hospital and ways to advocate for them to bring them back to health before discharge.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    15 min

  8. 10/09/2025

    #210 - Hey "Device," Do You Understand Me?

    Laura Mattie and Alex Barkhimer from the school of Speech and Hearing Science at the University of Illinois joined the podcast to talk about the exciting Speech Accessibility Project to help Big Tech companies create devices that can understand people with speech differences.  To find more about the project, go to https://speechaccessibilityproject.beckman.illinois.edu.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

    26 min
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4.9
out of 5
69 Ratings

About

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

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