The Encephalitis Podcast

Encephalitis International
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The Encephalitis Podcast is brought to you by Encephalitis International and covers everything to do surrounding inflammation of the brain. Interviews with neurologists, psychiatrists, survivors and in-depth looks at different aspects of encephalitis. For more information about encephalitis, visit www.encephalitis.info

  1. 15 HR AGO

    Ep 67 - Could dexamethasone improve HSV encephalitis outcomes - with Professor Tom Solomon CBE

    Ep 67 - In this episode of the Encephalitis Podcast, Prav speaks with Professor Tom Solomon CBE, a leading neurologist and infectious disease expert, about the groundbreaking DexEnceph study - two decades in the making. Discover how this UK-wide clinical trial explored whether dexamethasone (a corticosteroid used to treat various inflammatory conditions) could improve outcomes in herpes simplex virus (HSV) encephalitis, the challenges of running long-term research, and the powerful role patients and families play in advancing medical science. Professor Solomon CBE shares insights from the study’s findings, including why early treatment may matter, how the results could influence future care, and what it truly takes to see a complex clinical trial through to completion. ------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety --------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

    25 min

  2. 2 APR

    Ep 66 - Global Encephalitis Training: Saving lives in low-resource settings with Dr. Aline Matos

    In this episode of the Encephalitis Podcast, Prav speaks with neurologist Dr. Aline Matos about the development of global training modules designed to help clinicians diagnose and treat encephalitis -especially in low-resource settings. They explore why encephalitis is often missed or misdiagnosed, the life-changing consequences of delayed diagnosis, and how these practical modules empower clinicians to act even with limited tools. Dr Matos says 'Encephalitis does not end when the acute phase ends. The long-term sequelae, cognitive behaviour, social are often invisible but deeply impactful. So improving and saving lives care is not only about saving lives, as we said earlier, it is about preserving lives.' The global training modules can be viewed on the BMJ website here https://new-learning.bmj.com/collection/30000415 ------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety --------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

    17 min

  3. 27 MAR

    Ep 65 - Understanding MOG Antibody-Associated Encephalitis with Dr. Matteo Gastaldi

    What is MOG antibody-associated encephalitis, and how does it differ from other types of autoimmune brain inflammation? In this episode of The Encephalitis Podcast, Prav speaks with Dr. Matteo Gastaldi, neurologist and Head of the Neuroimmunology Research Unit in Pavia, Italy. Together, they explore MOG antibody-associated disease (MOGAD), including how it presents in children and adults, symptoms to watch for, how it can mimic viral encephalitis, and current treatment approaches. Dr. Gastaldi also discusses relapse risk, long-term treatment decisions, the challenges of antibody testing, and exciting developments in ongoing clinical trials. This episode offers hope and clarity for patients, families, and clinicians navigating this complex and evolving condition. ----------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety ------------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

    10 min

  4. 14 MAR

    Ep 64 - Parenting after encephalitis with Dr Freddie Byrne

    The Encephalitis Podcast Ep 63 In this episode, Prav is joined by Dr. Freddie Byrne, clinical psychologist and Clinical Director of Living with ABI Limited.  Together they explore the realities of parenting after encephalitis and acquired brain injury (ABI), including changes in family roles, the impact on children’s well-being, trauma, and post-injury growth. Drawing on over a decade of experience, Dr. Byrne shares practical insights into supporting families, improving communication, and keeping children’s needs at the center of recovery.  An essential conversation for parents, families, and professionals affected by encephalitis and ABI. ----------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

    55 min

  5. 19 FEB

    Ep 63 - F.L.A.M.E.S. - The Life-Saving Encephalitis Acronym with Dr Nicholas Davies

    Encephalitis Podcast Ep 63  In this episode of The Encephalitis Podcast, Prav is joined by leading neurologist Dr Nicholas Davies to introduce F.L.A.M.E.S., a new life-saving acronym designed to help the public and healthcare professionals recognise the urgent symptoms of encephalitis. ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety ------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

    14 min

  6. 30 JAN

    Ep 62 - Contagion on Screen: Science, Storytelling, and Encephalitis with Scott Z. Burns

    Encephalitis Podcast Ep 62 In this episode of the Encephalitis Podcast, Prav is joined by award-winning screenwriter and director Scott Z. Burns to discuss the depiction of encephalitis in films and explore the science, humanity, and lasting impact of the 2011 film Contagion. Inspired by real-world viruses such as Nipah and SARS, the film gained renewed relevance during the COVID-19 pandemic for its portrayal of a global outbreak with neurological consequences. Nipah virus factsheet - https://www.encephalitis.info/types-of-encephalitis/infectious-encephalitis/nipah-virus-infection/ ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety ------------------------------------------------------------------------------------------ Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

    52 min

  7. 21 JAN

    Ep 61 - Emotions, pain and unspoken dreams - Denis' Encephalitis Story

    In this powerful and emotive podcast episode Denis shares his journey of living with viral encephalitis from his life as an aeronautical engineer through the sudden onset of illness, hospitalisation, and a long, complex recovery. He discusses memory loss, intense emotions, vivid and distressing 'encephalitis dreams'. Denis also explains the coping strategies, psychological support, and practical techniques that helped him regain stability, including working with a neuropsychologist and learning effective distraction tools. His story offers honesty, hope, and valuable insight for anyone affected by encephalitis or supporting a loved one through recovery. #ViralEncephalitis #EncephalitisAwareness #NeuroSymptoms #LifeAfterEncephalitis #EncephalitisSupport #UnderstandingEncephalitis #BrainHealthTips

    37 min

  8. 26/11/2025

    Ep 60 - Sleep and Encephalitis with Dr David Lee

    The Encephalitis Podcast Ep 60 This podcast episode is about sleep and encephalitis. Sleep difficulties can be a symptom of encephalitis as well as a potentially long-term after-effect.   Prav is joined by Dr. David Lee. Dr Lee is a chartered psychologist and chartered scientist who has been researching sleep and the psycho-behavioral treatment of insomnia for the last 20 years. He holds memberships with the World Sleep Society, the British Sleep Society, the Institute of Occupational Safety and Health, the British Association of Brain Injury Case Managers, the Vocational Rehabilitation Association, and the British Psychological Society, where he also holds an associate fellowship. ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support  If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch  Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------ Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational  📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational

    34 min
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About

The Encephalitis Podcast is brought to you by Encephalitis International and covers everything to do surrounding inflammation of the brain. Interviews with neurologists, psychiatrists, survivors and in-depth looks at different aspects of encephalitis. For more information about encephalitis, visit www.encephalitis.info

Information

  • Creator
    Encephalitis International
  • Years Active
    2020 - 2026
  • Episodes
    66
  • Rating
    Clean
  • Copyright
    © Copyright 2025 All rights reserved.
  • Show Website
    The Encephalitis Podcast

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