5 episodes

Talks from a dedicated day for those affected by hereditary forms of motor neuron disease

Families for the Treatment of Hereditary Motor Neuron Disease Oxford University

    • Education

Talks from a dedicated day for those affected by hereditary forms of motor neuron disease

    • video
    What are the Issues in Familial MND?

    What are the Issues in Familial MND?

    Professor Martin Turner, University of Oxford, gives an introduction to the conference, and outlines some of the research his group has been doing on understanding familial MND and how they can treat it.

    • 23 min
    • video
    Getting Tested: Experience from the Genetic Clinic

    Getting Tested: Experience from the Genetic Clinic

    Professor Anneke Lucassen, University of Southampton, gives the second talk fo the day, looking at her research and experience from studying the genetics related to MND

    • 48 min
    • video
    The Value of Online Shared Experiences

    The Value of Online Shared Experiences

    Professor Louise Locock and Jade Howard, Univesity of Aberdeen, give the third talk in the day's event, looking at patient's experiences of motor neuron disease and how patients and families share their experiences online

    • 27 min
    • video
    Early Genetic Trials in MND: The Sheffield SOD1 Experience

    Early Genetic Trials in MND: The Sheffield SOD1 Experience

    Professor Christopher McDermott, University of Sheffield, gives the fourth talk in the day's event, and, along with Dani Baird, a person living with MND and a participant in the SOD1 trial, discuss her experieces in the trial.

    • 45 min
    • video
    The Future of Treating Genetic MND

    The Future of Treating Genetic MND

    Professor Kevin Talbot, University of Oxford, gives the fifth and final talk in the day's event, looking at the future of genetic MND and what the future holds for it.

    • 33 min

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