A Couple Takes on MS

Digmann/Evon

We literally and figuratively are A Couple Takes on MS. Yes, we both are living with completely different forms of Multiple Sclerosis (Dan’s has RRMS, Jennifer has SPMS), but we have been happily married for nearly 16 years. Married AND happy while we both live with the same chronic illness? Take it from us: It all IS possible. OK, so it’s not all sunshine and rainbows. Check in with us every other week as we have conversations about our experiences, insights and perspectives on pushing through the constant challenges and storms of daily life with (and without) MS.

Episodes

  1. 6D AGO

    Episode 96 – Taking on Pastor Dana Hendershot & why did God let MS happen to us?

    In this episode of A Couple Takes on MS, we sit down with our pastor, Pastor Dana Hendershot, to talk about one of the biggest questions that can rise up after a diagnosis like MS (or cancer): Why did God let this happen? Dan reflects on 26 years since his MS diagnosis and how faith can change over time, not always through easy answers, but through presence, perspective, and community. Pastor Dana shares the moment her theology of suffering shifted, what she learned during her own cancer journey, and why it’s okay to bring every emotion to God. Including anger. We talk about prayer as breath, the difference between “God caused this” and “God is with you in this,” why joy only exists in the present moment, and how hope sometimes looks like being carried by others when you can’t carry yourself. In this episode, we get real with Pastor Dana about: • Where God is in diagnosis and suffering • Why it’s OK to be angry with God (and why God can handle it) • Prayer as presence and the Spirit as the promise • Theology of the cross vs. theology of glory • Hope, community, and being carried when you’re worn down • Finding joy right now and why singing can help shift your mind An open invitation for you, our listeners Where have you felt God’s presence during a difficult season in your life? We’d love to hear from you at acoupletakesonms@gmail.com. About our guest: Pastor Dana Hendershot is an ordained pastor in the Evangelical Lutheran Church in America and has served as Senior Pastor of Immanuel Lutheran Church in Mount Pleasant, Michigan, since 2011. Dana holds a degree in psychology with a focus in neuropsychology and a Master of Divinity from the Lutheran School of Theology at Chicago, where her studies explored the intersection of science and faith. In addition to her congregational ministry, Dana serves as Chair of the Lutheran Alliance for Faith, Science, and Technology, helping lead national conversations about how theology, scientific discovery, and human curiosity connect. Her writing has appeared in Working Preacher, The Lutheran, and Lutheran Partners, where she brings thoughtful theology into everyday lived experience. In 2023, Dana was diagnosed with Large Cell B Non-Hodgkin’s Lymphoma and underwent extensive treatment. That experience deepened her understanding of the body, vulnerability, and what it means to show up for others with compassion and presence. Dana has also been deeply involved in community advocacy. She helped establish Mount Pleasant’s first rotating homeless shelter—Isabella County Restoration House—serves on Central Michigan University’s Institutional Review Board, and previously served on the Interfaith Action of Southwest Florida Board of Directors while advocating for farmworker justice alongside the Coalition of Immokalee Workers. *** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    54 min
  2. FEB 5

    Episode 95 – Taking on surgery, recovery & caregiving

    Recovery doesn’t happen in isolation, and when you live with Multiple Sclerosis, even a “routine” surgery can totally upend daily life. In this episode of A Couple Takes on MS, we get real and open up on the weeks following Dan’s hernia surgery and how recovery has affected our caregiving dynamic, routines and sense of normalcy. Just 11 days post-surgery, we share what we feared most, what surprised us, and how preparation, flexibility, and community support have helped us navigate this unfamiliar chapter together. This conversation is honest, practical, and deeply human as we get into everything that comes with having a routine (yet major surgery) when both people in a relationship are living with MS and serve as each other’s primary caregivers, including: Adjusting our caregiver schedules and transfer procedures Managing spasticity Altering sleep schedules Incorporating dignity-preserving tools Dealing with the emotional weight of temporarily giving up things we love It’s also a reminder that healing is more than physical. It’s also relational. Here are the links we referenced that offer depth and insights for our conversation: Dan’s healing: The night before – Link to check out Jennifer’s emotional essay written, well, the night before Dan’s surgery. Dan’s healing: The weeks after surgery – Link to check out Jennifer’s follow-up essay highlighting the realities we had to face. PureWick – Link to learn about the in-home urine collection system we discuss in the episode. An open invitation for you, our listeners Have you experienced surgery as a patient or caregiver? What helped you through recovery? We’d love to hear from you at acoupletakesonms@gmail.com. *** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    36 min
  3. JAN 27

    Episode 94: Taking on Sarah Locke & Locke’s Promise

    In this episode of A Couple Takes on MS, we’re honored to welcome Sarah Locke, founder of Locke’s Promise, a New Hampshire–based nonprofit born from her own lived experience with Multiple Sclerosis. Sarah shares how Locke’s Promise came to life, from the six-week paperwork marathon it took to get started to the community momentum that followed. Through events like Climb the Peak, Rides & Wranglers for MS, and other grassroots efforts, the organization has raised more than $100,000 over four years and, in 2025 alone, has already donated over $42,000 to directly support six individuals living with MS. In this episode, we talk about: • Turning an MS diagnosis into a mission grounded in community • What it really takes to start a nonprofit from scratch • How grassroots fundraising creates direct, local impact • Living authentically—and honestly—after diagnosis • Why no one facing MS should ever feel invisible or alone We also talk with Sarah about her memoir, Living Out Loud, where she reflects on coming out later in life, navigating an MS diagnosis, and learning how honesty, humor, and vulnerability can coexist, even in the hardest moments. Throughout our conversation, Sarah reminds us that advocacy doesn’t have to be loud to make an impact, and that real community built on connection and compassion can make all the difference. Here are the links we referenced that offer depth and insights for our conversation: Locke’s Promise – Link to check out Sarah’s “… compassionate nonprofit organization dedicated to raising awareness about Multiple Sclerosis (MS) while directly supporting local community members affected by this challenging condition.” Living Out Loud – Link to order Sarah’s honest, personal, and inspiring memoir. *** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    59 min
  4. JAN 13

    Episode 93 – Taking on ‘Patches’ and Bike MS

    What does it look like to keep showing up year after year and mile after mile for the people you love and the cause you believe in? In this episode of A Couple Takes on MS Podcast, we’re joined by Doug Binkley, known throughout the Bike MS community as “Patches” for his ever-growing collection of event patches earned nationwide. His connection to MS is deeply personal. Patches rides in honor of his wife, Diane, who was diagnosed with MS at 26 years old, and his mother, who also lived with the disease. Patches has completed more than 37 Bike MS rides and 40+ century rides over the past 16 years, traveling from state to state to support the MS community in a big way. He has also become a Bike MS volunteer and a passionate fundraiser, reaching the Passport level by raising thousands of dollars to support research, programs and hope. In our conversation, Patches shares what first inspired him to get on the bike, how faith and resilience shape his outlook, and why the camaraderie of the Bike MS community keeps him coming back. We chat about honoring loved ones through action, the motivation that comes from riding alongside others who “get it,” and what it means to commit to something bigger than yourself. As we kick off 2026, Patches reminds us that progress happens through consistency, community and purpose and that every mile, every patch, and every rider truly matters. Listen now to hear his inspiring story and why he’s already gearing up for multiple Bike MS rides in 2026, starting in Louisiana this March. Here are the links we referenced that offer depth and insights for our conversation: Bike MS – Link to learn more about and to register to ride or volunteer at an event in your area Bike MS: Bluegrass Bourbon Ride 2026 – Link to donate and support Patches in one of the several Bike MS events he’ll ride in this year *** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    38 min
  5. 12/30/2025

    Episode 92 — Taking on moving forward by looking back

    As we closed out 2025, we found ourselves reflecting on what it really means to keep showing up while living with Multiple Sclerosis and how, sometimes, the best way to move forward is to look back. In this episode of A Couple Takes on MS Podcast, we talk honestly about the opportunities, challenges, adaptations and lessons that shaped our year. We explore how living with MS has taught us to think a few steps ahead, adjust expectations, and stay engaged in the life we want to live, even when it doesn’t look the way we originally imagined. This includes sharing stories about travel, graduations, concerts, sporting events and everyday moments with friends; all through the lens of one guiding question: Is the juice worth the squeeze? That question helps us decide when to push forward, when to pause, and how to reframe what “showing up” really looks like. This conversation also touches on: Adapting plans when MS or caregiving realities change suddenly Accepting help and recognizing that doing so is a strength, not a weakness Planning proactively instead of reacting in the moment Letting go of comparisons and focusing on your own personal best Finding joy by staying flexible and open to new possibilities Most of all, this episode is about partnership. This includes showing up for each other, making thoughtful choices together, and continuing to move forward in ways that honor our health, energy and shared goals. To catch some of our best images from this past year, check out Jennifer's blog post How I remember 2025 (without overdoing it). As we look ahead to 2026, we’re reminded that showing up doesn’t have to mean doing everything or doing it perfectly. Sometimes it simply means doing what you can, with what you have, right where you are. Thank you for being part of our community and for continuing to walk and roll alongside us. *** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    37 min
  6. 12/16/2025

    Episode 91 – Taking on caregiver self-care with Susanne White

    Caregiving is an act of love, but it can also be exhausting, overwhelming, and emotionally heavy. That’s why self-care for caregivers isn’t selfish. It’s essential. In this episode of A Couple Takes on MS, we’re joined by Susanne White, a best-selling author and passionate voice in the caregiver advocacy community. Susanne shares how stepping into a caregiving role for her parents changed her life and ultimately led her to dedicate her work to supporting caregivers everywhere. Together, we talk honestly about the realities caregivers face, including: What caregiver burnout looks like and why it’s often hard to recognize Why guilt so often comes with the caregiving role How the pressure to be perfect and to do everything alone can take a real toll Throughout the conversation, Susanne offers powerful insights about reframing success, accepting imperfection, and learning to be kind to yourself while caring for someone else. Susanne reminds us that caregivers were never meant to do this work in isolation. Community, communication, and self-awareness aren’t optional. They’re essential to sustaining care over time. We also talk about her book, Self-Care for Caregivers, a practical and accessible resource made for caregivers who are short on time but still need support. Here are the links we referenced that offer depth and insights for our conversation: • caregiverwarrior.com – Official website for you to access Susanne’s perspectives and insights on living as a caregiver and getting the support you need. • Self-Care for Caregivers: A Practical Guide to Caring for You While You Care for Your Loved One – Learn more about and order your copy of Susanne’s book that’s described as, “The ultimate caregivers’ guide to resilience, strength, and balance.”  *** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    41 min
  7. 11/06/2025

    Episode 89 – Taking on exercise & MS with Professor Rob Motl

    In this episode, we’re honored to welcome Professor Robert Motl, a leading researcher whose work has revolutionized the understanding of how exercise and physical activity help manage Multiple Sclerosis. As a professor at the University of Illinois Chicago, Rob (as he prefers to be called) has dedicated his career to studying how movement, fitness and behavior change can improve mobility, cognition, fatigue, and overall quality of life for people living with MS. He’s published hundreds of studies and is recognized worldwide as one of the leading voices in the neuroscience of exercise and MS. In this episode, Rob shares how and why movement truly matters at every stage of the MS journey. We discuss: The proven impact of exercise on symptom management and brain health Why starting small and staying consistent can make a lasting difference How research continues to reveal new ways to support strength, function, and hope Tune in to hear Rob’s insights and discover why movement might be one of the most powerful tools we have for living well with MS. Here are the links that offer depth and insights for our conversation: UIC Exercise Neuroscience Research Lab Research Projects – Current projects recruiting participants with MS. Research Publications – Links to various scholarly journals featuring ENRL published research. To get involved in Rob and his team’s research or to learn more about their work, email the research lab at ENRL@uic.edu or Rob at ROBMOTL@uic.edu *** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    38 min
  8. 10/25/2025

    Episode 88 – Taking on Allié McGuire & Because I Can

    When Allié McGuire was 41 years old and learned the reason behind years of unexplained symptoms was Multiple Sclerosis, that moment didn’t silence her. It sparked a mission. Today, Allié uses storytelling to elevate voices and causes that often go unseen. She is an award-winning speaker, media producer, and co-founder of AwareNow Media, which is home to AwareNow Magazine – a global platform that reaches more than 8 million readers each month with stories that create awareness and inspire action. In this episode, we chat with Allié about how MS changed the way she sees the world and how it changed the world she sees. Her message is powerful: when life hands you limits, you can still move forward with impact. This belief led her to launch the “Because I Can” Virtual 5K, with a bold goal of becoming the world’s largest virtual 5K for MS. Anyone, anywhere, can take part – walking, rolling, running, biking, swimming – whatever movement looks like for you. It’s a way to raise visibility for MS and support others living with this unpredictable disease. We also explore with Allié: The moment storytelling became advocacy How she balances vulnerability and strength as an MS advocate Why forward movement matters Allié’s journey is a reminder that every step, both literal and metaphorical, can help someone else see what’s possible. ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    43 min
  9. 09/27/2025

    Episode 87 – Taking on taste, Tigers & 20 years of teamwork

    It’s been a busy (and meaningful) stretch for us these past few weeks! In this episode, we take you behind the scenes of our latest adventures across Michigan — from savoring local flavors at the Taste of Generosity event in Royal Oak to celebrating our 20th wedding anniversary (20 years!) at a Detroit Tigers game, complete with accessibility wins at Comerica Park. But our travels didn’t stop there. We also traveled to Lansing for MS State Action Day, where we met with lawmakers to advocate for solutions to medical debt, a critical issue for many in the MS community. Additionally, we share updates from our recent neurology appointment in Ann Arbor, including how a small medication adjustment made a significant difference in Dan’s sleep and daily life. Join us as we reflect on the power of self-care, the importance of caregiver support, and how embracing each moment keeps us moving forward together. Here are the links we referenced that offer depth and insights for our conversation: • Epic in-state journeys from baseball @ Comerica to lawmakers @ the Capitol – Our blog photo essay that highlights the moments we discuss in this episode. • Episode 84 – Taking on MSd with the Wrong MFR – Link to the podcast episode featuring our conversation with Adam Powell, one of the many friends we a chance meeting with at Taste of Generosity. ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

    38 min

Ratings & Reviews

5
out of 5
4 Ratings

About

We literally and figuratively are A Couple Takes on MS. Yes, we both are living with completely different forms of Multiple Sclerosis (Dan’s has RRMS, Jennifer has SPMS), but we have been happily married for nearly 16 years. Married AND happy while we both live with the same chronic illness? Take it from us: It all IS possible. OK, so it’s not all sunshine and rainbows. Check in with us every other week as we have conversations about our experiences, insights and perspectives on pushing through the constant challenges and storms of daily life with (and without) MS.