About IBD

Amber J Tresca
  • 4.9(31개의 평가)
  • 의학
  • 격주 업데이트

Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

  1. 4일 전

    The Powerful Impact of the IBD Community Featuring Katie Neu

    Episode transcript and more information at: https://bit.ly/AIBD202 Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel Disease." A survey of more than 500 patients puts a spotlight on the ways IBD affects body image, relationships, intimacy, and mental health. Amber and Katie discuss masking symptoms, the difficulties of working a corporate job, and why having community is critical.   Chapters 00:05 — Host Amber Tresca introduces the podcast and her guest, Katie Neu, who lives with Crohn's disease. 01:25 — Amber and Katie discuss the IBD Social Circle, a community for patients, caregivers, and healthcare professionals. 04:25 — The conversation turns to the experience of "faking being well" to manage social and professional expectations with an invisible illness. 10:17 — Katie shares her experiences with the stigma surrounding IBD, from high school and college to the workplace. 13:59 — The discussion focuses on the significant barriers to maintaining a career while living with IBD, including needing accommodations. 23:20 — Amber and Katie discuss the impact of IBD on body image, dating, and intimate relationships. 31:26 — The hosts talk about why people hesitate to join support groups and the mental health benefits of finding community. 37:08 — Katie shares where listeners can find her online, including her Instagram and Substack, to connect and learn more. The IBD Social Circle White Paper: The power of community in inflammatory bowel disease Find Katie Neu of Badass With a Bad Ass at: Instagram: @badass.w.a.bad.ass LinkedIn: @badasswithabadass Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    42분

  2. 5월 5일

    Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

    After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five Layers of Being," the toxicity of "pushing through," and how she is building community for the next generation of IBD patients. Episode transcript and more information at: https://bit.ly/AIBD201 Key Chapters & Timestamps: [00:00:00] – Welcome to About IBD with Amber Tresca [00:04:40] – Diagnosis in the late 90s: Life as a teen with Crohn's [00:12:35] – The 2017 Crisis: Three surgeries and a temporary ostomy [00:19:40] – The Barn Door Moment: Finding safety in a yoga studio [00:23:00] – Healing the Next Generation: Camp Oasis and teen advocacy [00:30:30] – Intro to the Pancha Maya Kosha (The 5 Layers of Being) [00:32:15] – Layer 1: Annamaya Kosha (The Physical Body) [00:34:10] – Layer 2: Pranamaya Kosha (The Energy/Breath Body) [00:36:45] – Layer 3: Manomaya Kosha (The Mental/Emotional Body) [00:39:50] – Layer 4: Vijnanamaya Kosha (The Wisdom/Witness Body) [00:42:30] – Layer 5: Anandamaya Kosha (The Bliss/True Nature Body) [00:52:00] – Why "Pushing Through" is a toxic practice for chronic illness [01:03:00] – Girls with Guts and the "Om My Guts" community What you'll learn: Why the "pushing through" mentality can exacerbate IBD and how to shift toward acceptance. Bari's journey from a high-stress NYC marketing career to becoming a yoga instructor. The profound impact of the Pancha Maya Kosha (Five Layers of Being) on managing chronic pain and anxiety. How a devastating flare led Bari to overhaul her life and work towards remission. The unique benefits of clinical yoga therapy for those with IBD. The importance of community through organizations like Girls with Guts and the Crohn's & Colitis Foundation. Resources mentioned in this episode: Team Om My Guts Bari Gratton Take Steps Greater Los Angeles/Orange County Chapter of the Crohn's and Colitis Foundation Find Girls With Guts at: Facebook: @IBDgirls Web: https://girlswithguts.org/ LinkedIn: @ibdgirls Instagram: @ibdgirls Annual Retreat: October 23 - October 26 Find the Crohn's & Colitis Foundation Los Angeles/Orange County Chapter at: Web: Greater Los Angeles/Orange County Chapter of the Crohn's and Colitis Foundation Instagram: @crohnscolitisfoundationla_oc Facebook: @ccflaoc Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    1시간 19분

  3. 4월 21일

    Is Your Eye Pain Actually an IBD Flare?

    Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-intestinal manifestations (EIMs) of Crohn's disease and ulcerative colitis. Learn how to identify the warning signs of episcleritis, uveitis, and scleritis, and find out when you need to see an ophthalmologist right away to protect your eyesight. Episode transcript and more information at: https://bit.ly/AIBD200 Key Chapters & Timestamps 00:00 - Introduction: Protecting your vision with IBD 02:07 - What are Extra-Intestinal Manifestations (EIMs)? 04:21 - How common is eye disease in IBD patients? 05:43 - Condition 1: Episcleritis (Symptoms and treatments) 07:15 - Why episcleritis often tracks with IBD flares 10:14 - Condition 2: Uveitis (Red flags and risks of vision loss) 13:58 - Condition 3: Scleritis (Rare but severe complications) 16:51 - Condition 4: Dry Eyes 18:23 - Risk Factors: Who is most likely to develop IBD eye issues? 20:10 - When to call your doctor and why you need an ophthalmologist 23:25 - Practical tips: Keeping eye drops in the fridge Sources: Vavricka SR, Schoepfer A, Scharl M, Lakatos PL, Navarini A, Rogler G. Extraintestinal Manifestations of Inflammatory Bowel Disease. Inflamm Bowel Dis. 2015;21(8):1982-1992. doi:10.1097/MIB.0000000000000392 Mintz R, Feller ER, Bahr RL, Shah SA. Ocular manifestations of inflammatory bowel disease. Inflamm Bowel Dis. 2004;10(2):135-139. doi:10.1097/00054725-200403000-00012 Crohn's & Colitis Foundation. Eye complications in IBD. Rosenbaum JT, Bodaghi B, Couto C, et al. New observations and emerging ideas in diagnosis and management of non-infectious uveitis: A review. Semin Arthritis Rheum. 2019;49(3):438-445. doi:10.1016/j.semarthrit.2019.06.004 World Health Organization. Vitamin A deficiency and ocular health. Rufo PA, Denson LA, Sylvester FA, et al. Health supervision in the management of children and adolescents with IBD: NASPGHAN recommendations. J Pediatr Gastroenterol Nutr. 2012;55(1):93-108. doi:10.1097/MPG.0b013e31825959b8 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    17분

  4. 4월 7일

    How to Fuel Athletic Performance In Chronic Illness Featuring T.L. Wright (The IBD Athlete)

    T.L. Wright, known as The IBD Athlete and author of The SCD Athlete Cookbook, tells Amber about her frustrating decades-long journey to a Crohn's disease diagnosis. She explains the health reasons behind her pivot from triathlons and Ironman races to competitive bodybuilding. You'll leave this episode with a better understanding of how to fuel for your sport or workout while managing an immune-mediated condition. Episode transcript and more information at: https://bit.ly/AIBD199 The SCD Athlete Cookbook: Amazon and Bookshop.org Chapters: 00:00 - Introduction to the IBD Athlete 02:39 - A Lifetime of Unexplained Symptoms 04:18 - The "Go Hard" Endurance Sports Trap 08:09 - The Overlooked Connection Between IBD and Oral Health 11:04 - The 3-Year Promise 14:26 - Can IBD Patients Compete at an Elite Level? 21:21 - The Pivot to Natural Bodybuilding 26:54 - 5 Tips for Consistency on the SCD Diet 33:04 - The Dangers of AI Recipe Generation 35:29 - The Accidental Influencer 40:44 - Where to Find the IBD Athlete What You'll Learn: How upper GI Crohn's disease can be missed or misdiagnosed. Why the "tough it out" culture in endurance sports can be dangerous for athletes with chronic illnesses. How to transition athletic goals to better support a healing body. Practical tips for managing the Specific Carbohydrate Diet (SCD) as an active person. The importance of advocating for your health and understanding the connection between diet and IBD. More resources: Breaking the Vicious Cycle: Intestinal Health Through Diet Specific Carbohydrate Diet Association Special IBD diets via The Crohn's and Colitis Foundation Find T.L. Wright at: Web: The IBD Athlete Facebook: The IBD Athlete Threads: @theibdathlete Instagram: @theibdathlete Tik Tok: @TheIBDAthlete Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    54분

  5. 3월 24일

    Epidemiology, Big Data, and Biologics in Pregnancy

    Episode transcript and more information at: https://bit.ly/AIBD198 What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and Dr. Christina Longo talk to Amber Tresca about the BIONIC study, a groundbreaking project using decades of real-world data to understand how biologics affect a pregnant woman and her baby. The BIONIC study is designed to empower patients to make confident, evidence-based decisions about their own health and their children's future. Timestamps 00:00 – Introduction to Dr. Sonia Grandi and Dr. Christina Longo. 04:14 – What exactly is an Epidemiologist? 06:33 – Why childhood asthma research led to the BIONIC Study. 11:05 – Why children and pregnant women are historically excluded from trials. 13:00 – Defining "Remission" in children: Why it's more than just labs. 17:01 – The BIONIC Study explained: Safety and biologics in pregnancy. 22:04 – The Patient Advisory Committee: Why lived experience matters. 25:52 – The "Grind" of Research Funding: How projects actually get built. 32:21 – Fun & Hobbies: Puzzles, running, and the "BIONIC" spirit. Find Sonia Grandi, MSc, PhD at: The Hospital for Sick Children (SickKids): Sonia Grandi, MSc, PhD Dalla Lana School of Public Health: Sonia Grandi, MSc, PhD Lab: IMPOWER Lab at The Hospital for Sick Children (SickKids) LinkedIn: @sonia-grandi Find Cristina Longo , PhD at: Université de Montréal: Cristina Longo , PhD CHU Sainte-Justine: Cristina Longo , PhD LinkedIn: @cristina-longo-67656040 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    40분

  6. 3월 10일

    The Insidious Reasons Why IBD Destroys Sleep

    Everyone needs sleep, but so many of us struggle to get enough. People living with IBD know that a good night's sleep can feel like a distant dream, whether it's pain, urgent bathroom trips, or racing thoughts keeping you up. But why exactly does IBD disrupt our sleep even during remission? And what is your sleep telling you about the risks of a flare-up? Episode transcript and more information at: https://bit.ly/AIBD197 Chapters: 00:04 Introduction and Host Background 01:32 IBD and Sleep: The Problem 03:00 Why Sleep Matters for IBD 04:14 Defining Sleep Disturbance in IBD 05:23 Inflammation's Role in Sleep Disruption 07:08 Wearables and Sleep Research in IBD 08:29 Mental Health, Pain, and Medication Effects 11:06 Why Prioritizing Sleep is Crucial 12:30 Practical Tips for Better Sleep 14:57 Communicating Sleep Issues and Seeking Support 16:12 Episode Wrap-Up and Resources  16:20 Credits and Outro More Information on Sleep: Alien: How IBD Inspired an Iconic Movie: 10 Tips to Get More Sleep Talking to Your Doctor About Sleep I Am So Tired Have You Tried Yoga? – An IBD Community Poll A Meditation Journey – Week 1 Struggling to Sleep? These 11 Foods Could Help You Rest Better 13 Foods to Eat Instead of Taking Melatonin for Better Sleep The Best Time to Eat Dinner for Better Digestion and Sleep Sources: Su XY, Wang YN, Huang YH, Dai C. The sleep quality and its association with disease activity in patients with inflammatory bowel disease: a meta-analysis. Rev Esp Enferm Dig. doi:10.17235/reed.2025.11305/2025. Zhang JZ, Song XZ, Song XN, Shen YL, Tang H, Li H. Prevalence and risk factors of sleep disorders in inflammatory bowel disease: a cross-sectional study. Int J Colorectal Dis. 2024;39(1):140. doi:10.1007/s00384-024-04712-w. Chaemsupaphan T, Pimolsri C, Subdee N, et al. Poor sleep quality is common and independently associated with disease activity and poor quality of life in inflammatory bowel disease: a long-term follow-up study. Therap Adv Gastroenterol. 2025;18:17562848241311142. doi:10.1177/17562848241311142. Kuzoian S, Jerson B, Brimacombe M, Schneeberg L, Hyams JS. Sleep tracking and sleep hygiene counseling improve fatigue in pediatric patients with inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 2025;81(1):62-68. doi:10.1002/jpn3.70066. Xu TY, Zhang Y, Zhao SL. Association of Poor Sleep Quality With Adverse Outcomes in Patients With Inflammatory Bowel Disease: A Systematic Review and Meta-Analysis. J Dig Dis. 2024;25(11-12):664-673. doi:10.1111/1751-2980.13328. Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    17분

  7. 2월 24일

    How to Harness AI for Good Featuring Michael Tresca

    Artificial intelligence (AI) is being utilized in healthcare for many purposes. Patients are wondering how they can safely and effectively use AI tools to educate themselves and to manage their health. Amber and guest Michael Tresca discuss what AI is, how it works, and why skepticism and source verification are essential. They highlight practical, lower-risk ways patients might use AI, such as organizing personal health data, drafting appointment questions, and explaining medical terms. The emphasis is on ongoing education, privacy concerns, responsible use, and the importance of "trust but verify" when using AI for critical health decisions without professional input. Episode transcript and more information at: https://bit.ly/AIBD196 Sign up for Mike's AI newsletter: AI Unplugged on LinkedIn Timestamps: 00:05 — Introduction and Guest Welcome 01:20 — Recap of Previous Episode and Relationship Disclosure 02:16 — Defining AI and Common Misconceptions 04:14 — AI in Clinical and Patient Use 05:11 — AI in Everyday Search and Unintentional Use 06:39 — AI Hallucinations: What They Are and Why They Happen 10:13 — Importance of AI Showing Its Work and Sources 10:58 — Challenges in Understanding AI's Reasoning 14:33 — AI Training Data and Source Reliability 15:31 — Risks of Outdated or Inaccurate Health Information 21:35 — AI's Responsibility in Providing Answers 23:13 — Tolerance for Error and Regulation in AI 24:02 — Transition to Patient Use Cases 24:19 — Using AI to Organize Medical Information 26:23 — Drafting Questions for Appointments with AI 27:19 — Tracking Symptoms or Diet with AI 28:22 — AI for Coping with Brain Fog or Fatigue 31:10 — Listener Feedback: Avoiding AI 32:31 — Listener Feedback: Privacy, Data Breaches, and Environmental Concerns 34:45 — Listener Feedback: Worry About Errors 36:29 — Listener Feedback: Using AI for Definitions and Basic Research 37:24 — Listener Feedback: Using AI to Explain Test Results 40:31 — Listener Feedback: Healthcare Providers Using AI for Notetaking 43:30 — Ethics of Recording Medical Visits 44:42 — Conclusion and Final Thoughts 46:25 — Outro and Credits Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstar Instagram: @world_of_welstar Facebook: @worldofwelstar MeWe: http://tinyurl.com/MeWeTRPG Threads: http://tinyurl.com/threadsWOW Bluesky: https://blskyl.ink/worldofwelstar Amazon: http://amzn.to/41jMn5h EN World: http://tinyurl.com/ENWRPG Drive Through RPG: http://tinyurl.com/DTRPGMNT Patreon: https://www.patreon.com/talien Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    47분

  8. 2월 13일

    How You Can Improve Intimacy When Living With IBD Featuring Dr Stacy Friedman

    The bedroom can be a place of anxiety for people of all genders living with inflammatory bowel disease (IBD). How can you boost your confidence and deepen your connection with your partner while living with IBD? Dr. Stacy Friedman is a clinical sexologist and intimacy coach living with ulcerative colitis. She explains how IBD affects intimacy, body image, dating, and relationships. Dr. Stacy shares her personal experiences and professional advice, with a focus on communication, trust, and how to know if a partner will be supportive. In this episode, we talk about why intimacy is more than sex and give tips about how to manage challenges. Dr. Stacy also encourages listeners to seek out support and embrace connection in the ways that work for them.   Transcript and more at: https://bit.ly/AIBD195   Get Dr Stacy's book "Confessions & Lessons of a Sexpert: The Ultimate Guide to Intimacy and Better Sex"   Timestamps 00:00 — Introduction and Episode Overview 03:10 — Dr. Stacy's IBD Journey 05:30 — Sex and Intimacy Coaching Explained 07:44 — Body Image and IBD 09:59 — Fear, Embarrassment, and Communication 12:26 — Intimacy Beyond Sex 14:32 — Communication and Relationship Dynamics 17:18 — Trust and Emotional Safety in Relationships 17:49 — Embracing Unpredictability 20:38 — Disclosing IBD or Ostomy to Partners 22:53 — Personal Stories of Disclosure 25:12 — Sex Coach vs. Sex Therapist 27:09 — Who Benefits from Sex Coaching 28:51 — Getting Started with Sex Coaching 30:43 — Changing Mindsets About Intimacy 31:32 — What to Expect from Coaching Sessions 33:37 — Resources and The Purple Passion Project 35:13 — Pelvic Floor Therapy and Additional Support 36:54 — Closing Remarks and Appreciation 38:01 — Outro and Credits   Key Topics Impact of inflammatory bowel disease (IBD) on intimacy and relationships Personal experiences of living with ulcerative colitis Effects of IBD on mental health and body image Communication and trust in relationships for individuals with IBD Navigating dating and intimacy challenges related to IBD Importance of open discussions about medical conditions with partners Strategies for building supportive and understanding relationships Redefining intimacy beyond sexual intercourse Role of sex coaching versus sex therapy in addressing intimacy issues Resources and support available for individuals seeking to improve intimacy and relationships while managing IBD Find Dr Stacy Friedman on: Web: DrStacyFriedman.com Apple Podcasts: Purple Passion Project Spotify: Purple Passion Project YouTube: @DrStacyFriedman TikTok: @drstacyfriedman Facebook: @drstacyfriedman Instagram: @drstacyfriedman LinkedIn: @drstacyfriedman Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer  Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

    39분
모두 보기(200개)

예고편

4.9
최고 5점
31개의 평가

소개

Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

정보

  • 제작진
    Amber J Tresca
  • 방송 연도
    2017년 - 2026년
  • 에피소드
    200
  • 등급
    무삭제판
  • 저작권
    ©2025 Mal and Tal Enterprises; ©2025 Cooney Studio
  • 웹사이트 보기
    About IBD

좋아할 만한 다른 항목