AcroTales is a series of interviews with people living with Acromegaly - a rare condition caused by a benign tumour growth in the pituitary gland.If often takes 6-10 years for Acromegaly to be diagnosed and patients usually have a complicated journey to diagnosis. Acromegaly causes an excessive release of growth hormones which results in enlarged facial features, growth of hands and feet, changes in jaw and bone structures, loss of libido, visual problems and more. In each AcroTale, patient and advocate Dan Jeffries talks to acromegalics from around the world, discussing diagnosis, treatment and the effects on social and personal life.
Episode 14 - Phil
In Episode 14 of AcroTales we speak to Phil from Southampton in the UK. Phil was diagnosed on April 1st 2010 (no joke!) and tells the story of his long road to diagnosis, the impact it has had on his life but also how it was motivated him to help others who have recently been diagnosed with Acromegaly.
Episode 13 - Spencer
In Episode 13 of AcroTales, we speak to Spencer in the UK. Spencer was diagnosed by a chance encounter, and talks about his experiences of diagnosis and how the condition impacted on his life.
Episode 12 - Natalia
In Episode 12 of AcroTales we speak to Natalia from Columbia. Natalia was only diagnosed in 2019 and so she paints a vivid yet insightful picture of her diagnosis, the impact it has had on her life plus how - just one year on - she is already supporting others diagnosed with Acromegaly.
Episode 11 - Dee
In Episode 11 of AcroTales we speak to Dee from Colorado. With her background in nursing, Dee paints an honest yet insightful outlook on her Acromegaly, the journey she underwent to get there and the shocking discovery she made all by herself, all told with a great sense of humour.
Episode 10 - Richard
In this episode of AcroTales, we hear from Richard in the UK. Richard was diagnosed in his mid-60s and talks about the diagnostic journey he underwent to reach his diagnosis and the impact it's had on his life, all told with great humour.
Episode 9 - Larry
In Episode 9 of AcroTales we speak to Larry from Nebraska. Larry paints an insightful picture of the difficulties faced when you're diagnosed with Acromegaly and - whilst life was tough - he was able to use his positivity and spirituality to get him through.
Hugely helpful and informative
Thank you so much Dan and all your contributors for making this podcast . It’s made such a difference to my life and experience of Acro to hear other people’s stories