Alopecia Life

Host: Deeann Graham

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

  1. Aug 20

    S7E8Alopecia Inspiration Spotlight with Ella Kedilerli

    Today, we’re doing something a little different. We’re kicking off our very first Inspiration Spotlight -a series of shorter episodes designed to give you a moment of connection and perspective. Whether you're driving to work, running errands, or just need a gentle reminder that you’re not alone in this, these mini-episodes are here to give you that extra lift. And I’m so glad to have Ella Kedilerli joining me as our very first spotlight guest. Ella is actively using her stage to change the conversation around representation, confidence, and what it really means to show up as yourself with hair loss. *A Little more about Ella: Ella Kedilerli is the author of Presley the Peacock’s Adventure to Find Her Feathers, a children’s book inspired by her personal journey with alopecia areata. After experiencing hair loss as a child, she wanted to create a story that helps young readers build confidence, embrace their uniqueness, and know they are never alone. Ella is also the founder of Teens Pursuit of Excellence, a nonprofit organization dedicated to empowering teens through leadership, volunteerism, mentorship, and educational opportunities. She is currently pursuing a degree in nursing and is passionate about using her experiences to inspire and uplift others.  Thank you so much for joining us today. No matter where you're at on your path, hearing Ella's take is such a good reminder that we get to decide how we show up in the world. To connect with Ella, and to check out her new book, Presley the Peacock's Adventure to Find Her Feathers, check out the show notes for those links.  https://www.instagram.com/ella.ked/ https://www.facebook.com/profile.php?id=61560840361100 Presley the Peacock's Adventure to Find Her Feathers Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S7E8Alopecia Inspiration Spotlight with Ella Kedilerli
  2. Jul 30

    S7E8 The Alopecia Dating App, with Göran Persson

    Have you ever wondered what it would be like to scroll through a dating app where alopecia was simultaneously not a big deal... and yet the main thing everyone already understood? Our guest today is Göran Persson, and he wondered the exact same thing. Instead of just thinking about it, he decided to do something more. Today, we’re diving into love, connection, dating with hair loss, and the inspiration behind creating a space designed specifically with our community in mind. More about Göran: I live in a small town in northern Sweden with my two daughters. I work as a creative copywriter at a communications agency, but I’ve also spent many years building my own businesses and digital projects. "My journey with alopecia universalis began in the fall of 2016 during a very stressful period in my life, filled with major changes and uncertainty. First, I started losing the hair on my head, and eventually I lost my beard and the rest of my body hair as well. Mentally, it was a difficult experience. Losing my hair also meant losing a big part of my visual identity. Over time, though, it became easier to accept my new appearance. I began to realize that alopecia didn’t just change the way I looked. It also changed the way I viewed myself and life in general. What first felt overwhelming eventually became a natural part of who I am today. After a separation in 2024, I slowly started thinking about dating again. That’s when the thought hit me: how comforting would it be to meet someone who truly understands what it’s like to live with alopecia? Someone who has been through the same journey. I quickly realized I probably wasn’t alone in feeling that way. Since I’ve been building websites and digital projects for more than 20 years, I decided to create alopeciadating.com — a dating platform for people with alopecia from all over the world. The site launched in March, and my goal is to create a safe and welcoming space where people don’t have to worry about when or how to explain their alopecia. Here, it’s already understood from the very beginning. The project is still new and growing slowly, but the response so far has been incredibly positive. For me, this is about much more than dating — it’s about connection, understanding, and helping people feel a little less alone." If this resonated with you and you want to give it a try, head on over to to be one of the first 100 members!  Since Göran and I originally recorded this conversation, the number of members has already doubled - so the momentum is definitely building!  This platform is built as an accessible web app. No need to hunt through the App Store or Google Play. Just open your browser and head straight to https://alopeciadating.com/ to learn more. All of the links are located here in the show notes. Instagram: https://www.instagram.com/alopeciadating/ Facebook: AlopeciaDatingFacebook Website: https://alopeciadating.com/ Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S7E8 The Alopecia Dating App, with Göran Persson
  3. Jun 11

    S7E5 The Closer Look Project, with Caleb Runyon, MSN, APRN, FNP-C

    Welcome to this episode of Alopecia Life. I'm super excited to have our guest, Caleb Runyon, with us today. We talk about a variety of topics throughout our episode, and as you listen, I believe you'll fall in love with his energy and passion for the people he serves. Caleb is a board-certified dermatology nurse practitioner, speaker, and founder of the Closer Look Project, an initiative focused on advancing early skin cancer detection through community education and interdisciplinary collaboration. With a passion for preventive dermatology and public health outreach, Caleb works to bridge the gap between healthcare providers, beauty professionals, and underserved communities to improve recognition of suspicious skin lesions and increase awareness surrounding melanoma and other skin cancers. You may be wondering how relevant today's topic is for you as someone living with alopecia or have a loved one with it? When we talk about the skin, our exposure to the sun is sometimes a secondary thought. I know it is for me. We chat a little bit about that today, but the bigger discussion happens around healthcare accessibility, and working together with hair dressers and other professionals and clinicians to make the experience one that allows for better overall care, including those of us with alopecia areata. It's a big topic that I'm excited to be part of and to share with all of you.  As the founder of the Closer Look Project, Caleb has led educational programs and outreach efforts in partnership with salons, healthcare professionals, and advocacy organizations to promote skin health awareness and early detection initiatives. His work has gained recognition for its innovative approach to community-based dermatologic education and patient advocacy. Caleb has served as a speaker and collaborator with organizations including F**k Cancer, Less Cancer, Society of Dermatology Nurse Practitioners, and the Dermatology Nurses’ Association, where he has presented on topics related to skin cancer prevention, dermatologic education, and expanding access to dermatologic care. He has also collaborated with various healthcare, nonprofit, and community organizations to advance educational initiatives and foster interdisciplinary partnerships in dermatology and public health. Thank you so much for sharing your time with Caleb and me today. I look forward to the day when we are all working together to make this a successful model of person-centered healthcare. When you want to connect with Caleb and find out more about the Closer Look Project, you'll find all those links here in the show notes. When he encouraged questions at the end of the podcast, he really wants to hear from you. Feel free to leave those in the comments on social media, and/or to reach out to him at contactme@thecloserlookproject.com  Facebook: TheCloserLook Instagram: https://www.instagram.com/closerlookproject/ Website: https://www.closerlookproject.com/ Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S7E5 The Closer Look Project, with Caleb Runyon, MSN, APRN, FNP-C
  4. May 13

    S7E4 The Power of None, with Zara Nicholls

    Today's guest is Zara Nicholls, the founder of the Power of None, a campaign focused on increasing bald representation in media, fashion, advertising, and children’s books. After her own experience with alopecia, she wanted to turn something personal into something positive by helping others feel seen and included. She is passionate about challenging beauty standards, raising awareness, and creating a world where baldness is seen as normal. Thank you for sharing your time with Zara and me today to learn more about the Power of None campaign. It's empowering to see someone working to create such a difference in the world. For those who would like to sign the change.org petition, I've included that link along with ways to reach her on social media.Let's help her reach her goal of 1000 signatures. She is so close.  Petition Link - https://c.org/ySjrfxrbLQ Instagram - https://www.instagram.com/powerofnonecampaign/ Facebook - https://www.facebook.com/profile.php?id=61578128984775 -- Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S7E4 The Power of None, with Zara Nicholls
  5. Apr 16

    S7E3 Beneath the Surface - How to Listen to and Trust Your Nervous System to Feel Safe with Alopecia, with Dr. Keira Barr

    Welcome back to Alopecia Life. Today, we are joined by Dr. Keira Barr, a double board-certified dermatologist, somatic trauma practitioner, and founder of the Center for Mind-Skin Medicine. Dr. Barr is the creator of the Somatic Skincare™ method, which moves past the surface to ask a vital question: What is your skin trying to tell you? Today, we’re exploring the connection between your nervous system and your skin, and how to finally feel safe in both. Let’s dive in.   Thank you for joining us today. To continue exploring the connection between your nervous system and your skin, you can find Dr. Keira Barr at drkeirabarr.com. For more of her insights into somatic psycho-dermatology, listen to her Mind Skin Medicine™ Podcast or pick up a copy of her bestselling book, The Skin Whisperer. All of these links, along with ways to connect with Dr. Barr on Instagram and Facebook, are available in our show notes—including the link to sign up for the upcoming The Stress Your Skin Can’t Forget workshop on April 28th.  Link for Workshop Website: https://drkeirabarr.com/ IG: https://www.instagram.com/drkeirabarr Linkedin: https://www.linkedin.com/in/keirabarr/ Facebook:https://www.facebook.com/drkeirabarr Book: The Skin Whisperer Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S7E3 Beneath the Surface - How to Listen to and Trust Your Nervous System to Feel Safe with Alopecia, with Dr. Keira Barr
  6. 11/20/2025

    S7E2 Finding the Sweet Spot: Alopecia, Golf & Life's Lessons with Lauren Lee

    Today's guest is Lauren Lee. She is a student-athlete golfer at NCAA Divsion II, Western Washington University where she is a senior studying psychology with a minor in anthropology. She's lived with alopecia most of her life, and the journey of hair loss has shaped her resilience, confidence, and outlook on life. Balancing competitive golf and academics, Lauren has learned the importance of mental strength, self-acceptance, and finding joy in every challenge. Without sharing too much in the intro, I'll let Lauren introduce herself and share more of her story with you now.  Thank you for sharing your time with Lauren and me today. It's important to hear the low, lows to know the way alopecia can hit each of us. It's also important to hear the ways we can transition through the lows and challenges to come out the other side. Our stories make a difference. Lauren is passionate about using hers to inspire others to embrace who they are and to raise awareness about alopecia. Looking forward, she is excited to continue to grow on and off the course, hoping to inspire others to believe in themselves and embrace the beauty of individuality. If you would like to connect with Lauren, her Instagram link can be found here in the show notes. A quick shoutout to Abigail Tolman who helped Lauren and I connect. https://www.instagram.com/loreuhn.lley/ Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S7E2 Finding the Sweet Spot: Alopecia, Golf & Life's Lessons with Lauren Lee
4.9
out of 5
40 Ratings

About

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.