78 episodes

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

Alopecia Life Host: Deeann Graham

    • Education
    • 4.9 • 35 Ratings

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

    S3E7 Alopecia & Eye Health with Dr. Hale

    S3E7 Alopecia & Eye Health with Dr. Hale

    Today's guest is Dr. Britney Hale Koehler (known as Dr. Hale). She is a residency trained optometrist and fellow of the American Academy of Optometry. As the spouse of an Army optometrist, she has practiced in Florida, Texas, Washington state and Hawaii over the past 8 years. Her connection to the alopecia community began 6 years ago when she was diagnosed with alopecia areata, resulting in an ongoing and challenging journey of hair loss and regrowth. We are talking about eye health and alopecia today. The loss of our brows and lashes play an important role in eye health, and Dr. Hale is giving us ideas on how we can help improve our own eye health now and for the future. 


    Thank you for spending your time with Dr. Hale and me today. She has provided some great resources, and there are even more in the show notes. Please feel free to leave comments over on the Alopecia Life Facebook page or on Instagram. Dr. Hale is happy to answer any questions that come up after listening. 
    https://www.aoa.org/healthy-eyes/eye-and-vision-conditions/dry-eye?sso=y
    https://www.aad.org/public/diseases/hair-loss/types/alopecia/treatment
    https://www.aao.org/eye-health/tips-prevention/why-are-my-eyelashes-falling-out
    https://www.naaf.org
    https://www.webmd.com/skin-problems-and-treatments/hair-loss/ss/slideshow-alternative-treatments-for-hair-loss
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6388561/
    https://www.verywellhealth.com/alopecia-areata-remedies-88328
    Support the show (https://www.buymeacoffee.com/deeanngraham)

    • 19 min
    S3E6 My Two Brows with Jason Berndt

    S3E6 My Two Brows with Jason Berndt

    Today's guest is Jason Berndt, the founder and creator of My Two Brows. If you've lived with alopecia areata that has progressed to totalis or universalis, you have probably experienced the loss of your eyebrows. In past research I've done, it was discovered that the loss of eyebrows and lashes were almost more devastating than the loss of head hair. In today's episode, Jason and I talk about his company, My Two Brows, his own alopecia story, and how a deep dissatisfaction around what was being offered to people without eyebrows, especially people with alopecia, led him to start his own company.


    Thank you for sharing your time with us today. To find out more about Jason's story, take advantage of the discount ALOLIFE Jason has provided to Alopecia Life listeners, or to reach out and find more information about My Two Brows, check out the links in the show notes. If you have any questions, post them in the FB group or on Instagram for Jason to answer. He's very receptive to answering questions and finding answers for those who are asking. 
    https://mytwobrows.com/
    https://www.facebook.com/MyTwoBrows
    https://www.instagram.com/my_two_brows/
    Support the show (https://www.buymeacoffee.com/deeanngraham)

    • 35 min
    S3E5 Let's Talk Gut Makeovers & Autoimmunity! How Easy is it to Heal Your Gut?

    S3E5 Let's Talk Gut Makeovers & Autoimmunity! How Easy is it to Heal Your Gut?

    Welcome to this episode of Alopecia Life. Today's guest is Lisa Taylor. She is an Integrative Nutrition & Gut Health Coach, and the founder of Your Best Life with Lisa. Gut health has been gaining traction over the last few years as a possible trigger for autoimmunity. With a standard North American diet that lacks essential nutrients, and the introduction of toxins in our personal care products, pollution in the air and so much more - our gut is taking a beating. Lisa is here today to share about her personal transformation after leading a high-paced, high stress life that culminated in many diagnoses, one of which was alopecia areata. 
    More about Lisa: "Lisa's health journey began five years ago when she discovered a bald spot on her scalp the size of a loonie. After about a month, she'd lost most of her hair to a massive Autoimmune induced, Alopecia Areata flare.
    Fast forward to today and Lisa's living her best life - with hair! Something told her to reject the traditional "treatment" of steroid injections in the scalp and to see a Naturopathic Doctor instead. From there, Lisa healed her gut and made healthy changes to both her diet and lifestyle. The total health transformation that followed was incredible to Lisa. Chronic symptoms she'd been dealing with for years disappeared and she had regrowth across her entire scalp! Lisa's amazing health transformation inspired her to attend the Institute of Integrative Nutrition to become an Integrative Nutrition Health Coach so she can empower others to harness the power of food and lifestyle; in order to manage chronic disease, reclaim their health, and truly thrive. Lisa believes (and is living proof) that a healthy gut along with healthy diet and lifestyle habits are the foundation for good health. When used correctly, they have the power to heal the body and completely transform our health." 
    Thank you for joining us today on Alopecia Life. For more information about Lisa's group program and 1-on-1 coaching, please check out the show notes for those links.  
    More info on Your Best Life with Lisa: www.yourbestlifewithlisa.com
    Download Lisa's free guide to thriving with Alopecia: yourbestlifewithlisa.ck.page/podcast
    Download Lisa's healing guide to 4 critical changes you can make today: https://yourbestlifewithlisa.ck.page/alopeciacritical
    Follow Lisa on Instagram for lots of gut healthy, holistic Alopecia management content: https://www.instagram.com/yourbestlifewithlisa/
    Support the show (https://www.buymeacoffee.com/deeanngraham)

    • 28 min
    S3E4 Science, Story & the Need for an Equally Important Community Within Our Own

    S3E4 Science, Story & the Need for an Equally Important Community Within Our Own

    I'm excited to have today's guest with us for this episode. Anthony Gilding has an important role as the first director of science and research communication at the Canadian Alopecia Areata Foundation His experience in research along with his own alopecia diagnosis has put him in a unique position to help on both a personal and professional level. Today's episode covers a bit about research, his story of hair loss, and a population within our own alopecia community that hasn't yet connected.
    Thank you for sharing your time with Anthony and I today. I appreciate Anthony's honesty as we approach National Coming Out Day that is recognized on October 11th every year. Some may be asking if we need a day to celebrate coming out. Others may wonder if we need a day or month to celebrate alopecia areata. Anthony and I both agree that right now, a day, a week, a month - whatever it may be is necessary to say, "See me. This is who I am." But the hope for the future is that we don't need a special day to share who we are with the world. 
    To find out more about the research efforts and results Anthony is working on, or to reach out to him on social media, you can find those links in the show notes.
    https://www.canaaf.org/about-us/
    IG - @anthonygilding2
    Support the show (https://www.buymeacoffee.com/deeanngraham)

    • 24 min
    S3E3 Unlocking the Origin of "Puebes", with Nicolas Roman Srut

    S3E3 Unlocking the Origin of "Puebes", with Nicolas Roman Srut

    Thank you for sharing your time with today's guest Nicolas Roman Srut and me. I can't think of a better way to round out Alopecia Awareness Month than having Nicolas as our guest. Throughout the episode, we talk about how he became an internet personality with over 5 million followers, how building confidence in others has the effect of building our own, and more about his alopecia story. You may be wondering how the popularity of "Puebes" came to be, and you'll definitely hear more about this during the interview. 
    More about Nicolas - "After years of being insecure about his baldness in his early life, he has transformed the confidence he now has into the comedic and inspirational content that motivates millions of people all across the world today. He has an organization known as The Naked Confidence Campaign, where he personally coaches hundreds of people with Alopecia to grow in their confidence and self-love. So far, he has helped numerous people get rid of their wigs, shave their patchy heads, ditch their fake eyebrows, and truly walk with Naked Confidence. He will soon transform The Naked Confidence Campaign into a live event that will be available to anyone, not just people with Alopecia, to learn to grow in their self-confidence, take charge of their lives, and change the beauty standards of society forever."
    Thank you for listening today. Now that we all know about the origin of Puebes, we'd love to hear if something like this has happened to you, and how you chose to respond. I know how I've responded to super inappropriate questions in the past, usually with my eyes pretty squinty and a pregnant pause. Feel free to share your thoughts and experience in the comments on Instagram, or over at the Alopecia Life FB group. For those of you who aren't already following Nicolas on TikTok and Instagram and would like to, you can find him @xtheromanempire. To find out more about The Naked Confidence Campaign, check out the show notes for the link to his website.
    https://www.thenakedconfidencecampaign.com/  
    Support the show (https://www.buymeacoffee.com/deeanngraham)

    • 21 min
    S3E2 Raising Awareness with Barrels, a Horse, and a Whole Lot of Fun, with Hailey Portonova

    S3E2 Raising Awareness with Barrels, a Horse, and a Whole Lot of Fun, with Hailey Portonova

    Welcome to Season 3, Episode 2. September is Alopecia Awareness Month. That means lots of events to raise awareness for alopecia, and one of them is brought to you by Hailey Portonova, a competitive barrel racer and rodeo announcer & organizer. Every year, she has a race that focuses on alopecia & raises funds for the Children's Alopecia Project, bringing over 320 racers and their fans. This year is no different, and I'm super excited to have her here to talk about alopecia, growing up racing, and the event. 
    More about Hailey: Hailey is a native Arizonan who has called the desert her home for 22 years. She recently graduated from the GCU Honors College with her B.A. in English for Professional Writing and a minor in Literature.  When she’s not writing, Hailey competes in rodeos and jackpot barrel races.  Riding has given her the confidence and platform to spread awareness about alopecia. 

    This year’s race will be held on September 25 at the John Volken Academy Arena.  You can find more information about the race at QCBRA.com or on Facebook at Queen Creek Barrel Racing Association. In addition, you can find Hailey on Instagram @thehaileybop as well as on Facebook at Hailey Portonova.

    Thank you so much for sharing your time with us today. Hailey's event is coming up on September 25th. Definitely if you are local to Arizona, and want to go support her in person to be part of this - that would be super cool. For those of us who are many miles away and still want to contribute to the success of the event, raise awareness, and benefit the Children's Alopecia Project, contact her at the links in the show notes, or you can actually just send her any dollar amount straight to Venmo @Hailey-Portonova. I did that just seconds ago. Events like these are a way to raise awareness in a fun & casual way, but the impact is enormous. Thanks again Hailey, and the Queen Creek Barrel Racing Association.

    Venmo: @Hailey-Portonova
    http://www.qcbra.com/
    https://www.facebook.com/profile.php?id=100017828684641
    https://www.instagram.com/thehaileybop/
    Support the show (https://www.buymeacoffee.com/deeanngraham)

    • 20 min

Customer Reviews

4.9 out of 5
35 Ratings

35 Ratings

CMRK87 ,

Validating, Joyful

I have had alopecia over half of my life. I so wish I had this kind of resource as a teenager. It is so validating and normalizing. It beautifully covers a wide variety of topics and perspectives. Thank you and please keep up the great work!!

Susan Browne ,

Inspiring podcast

This podcast about Alopecia is informative and inspiring...I believe the wisdom and information shared here is terrifically helpful, especially for children. Deeann is a gracious host—and don’t miss the “Coming Up Rosies” episode, which is especially engaging and charming. Rosie shows how much strength, creativity and resilience kids are capable of. I plan to tune in regularly!

StephHatesOlives ,

Real Life Alopecia

I’ve loved listening to the first 4 episodes. Can’t wait for the next 100! The guests are so real and down to earth! Great job!!

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