101 episodes

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

Alopecia Life Host: Deeann Graham

    • Education
    • 4.9 • 36 Ratings

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

    S4E9 The Iron Protocol Part 2, with Caitlyn Hartigan

    S4E9 The Iron Protocol Part 2, with Caitlyn Hartigan

    Welcome to Alopecia Life and part 2 of the Iron Protocol interview with Caitlyn Hartigan. Many of you have already gone over to the FB page to read the protocols, check your symptoms, understand what lab work to ask for, and how to read that lab work. Others have started looking at the information, and even more have started to wonder what ferritin has to do with their fatigue and anxiety. Thank you for hanging tight as we waited to release this next episode. At the end of the last one, Caitlyn was telling us about the myriad of symptoms that come with an iron deficiency, and she continues with that right here.


    Thanks again for listening to the 2nd part of the series on Iron, and for asking questions and looking for answers. As many of us do, including myself, sometimes we wait until a crash happens to spur us into action. Keep this information and resource in your back pocket for future reference for yourself, a friend, or a family member. You never know when you might need it. Caitlyn and I discussed future episodes covering a specific topic around iron, and we would love to hear from you about what that might look like. Come on over to the FB Alopecia Life group or @alopecialifecoach on Instagram to ask any questions and share your iron story. The links to find out more are here in the show notes. 


    https://theironprotocol.com/
    https://www.facebook.com/groups/3412143085483810
    https://www.instagram.com/theironprotocol/
    Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    • 34 min
    S4E8 The Iron Protocol Part 1, with Caitlyn Hartigan

    S4E8 The Iron Protocol Part 1, with Caitlyn Hartigan

    Welcome to this 2 part series of Alopecia Life around the topic of iron deficiency. A couple years ago, living with "low iron" caught up with me. I found myself unable to do simple tasks like walk my dog, go up a flight of stairs without feeling like my heart was beating out of my chest, and I had an incessant cough that wouldn't go away. I soon discovered that my Iron had dipped to an alarmingly low level, but there was more to the story than I realized. I didn't fit the puzzle pieces together until April of this year when my symptoms resurfaced, with additional ones that were perplexing. 


    I had seen multiple general health care providers and a hematologist, and we still hadn't identified what the cause was. I'd been given a standard suggestion on how to take iron, every other day with some orange juice. It just wasn't cutting it. I soon found the Iron Protocol (for Iron Deficiency with or without anemia) on Facebook, and it was a total lightbulb moment. I had always wondered why I had low iron, and also why it didn't seem to ever bother my doctors over the years. I also wondered if it was deficient because I had two autoimmune conditions? Was it a factor in these conditions? 


    I'm pleased to have Caitlyn Hartigan here to share what the Iron Protocol is, what ferritin is, how to identify some of the signs of low ferritin, how iron moves through our body, and quite a bit more. We've broken it down into two separate episodes because it's a lot of information, and we wanted to have time for questions that may have come up between episodes.


    This is a reminder that neither me or Caitlyn are medical professionals. This podcast is for informational purposes only. Let's welcome Caitlyn Hartigan to Alopecia Life.


    Thank you for listening to this first episode talking about iron and ferritin. After our interview, I jumped on the support pages I run and am part of and asked questions of the group members living with alopecia or who have a child with alopecia. For the past decade I've heard a large percentage of folks living with alopecia areata saying they had low iron. So it didn't surprise me that the poll revealed over 42% mentioned they have "low iron", and that a good portion of the group didn't know what ferritin is, or even that some had high iron. I hope those of you with iron and ferritin issues have your wheels turning, know what questions to ask of your healthcare providers, and are feeling hopeful. 


    To find out more about Caitlyn and to check out the protocols on Facebook, the website, or to follow on Instagram, check out the links provided here in the show notes. 


    https://theironprotocol.com/
    https://www.facebook.com/groups/3412143085483810
    https://www.instagram.com/theironprotocol/
    Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    • 38 min
    S4E7 Wrestling, Acting & Alopecia - Discovering What Makes Him Who He Is, with Angel Rosario, Jr.

    S4E7 Wrestling, Acting & Alopecia - Discovering What Makes Him Who He Is, with Angel Rosario, Jr.

    Welcome to this episode of Alopecia Life. Thank you for spending your time with me and our guest, Angel Rosario, Jr., today. Angel was born and raised in Chicago. Both of his parents were born and raised in Puerto Rico. He started acting back in 2015, and credits his distinct look and presence that have given him amazing opportunities to alopecia. This interview was filled with a lot of laughter, moments of seriousness, insights about coping mechanisms while living with alopecia, and so much more. Angel's dog, Icee and my dog, Noodle both did some voice work throughout the episode.
    There's a lot of work that goes into pre and post production of a podcast. There are times when I am listening to a guest where I have a burning follow-up question and the moment passes by. After the interview, I may ask them these questions. When he said, everybody told him he just needed to "ignore them," I wanted to know what he got from that experience, or what he wished he would have heard. He sent a message on to all of us toward the end credits.
    Thanks again for listening. To find Angel on social media, you can find those links in the show notes. Check out his previous roles in Chicago Med, Mayans MC, Law & Order SVU. You'll be seeing a lot more of him this year, with the recent release of Black Adam & Cobra Kai,  and a still yet to be known hush hush project. 
    Instagram: https://www.instagram.com/angelrosariojr/
    Facebook: https://www.facebook.com/AngelRosarioJr91
    IMDB: https://www.imdb.com/name/nm7639977/
    Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    • 37 min
    S4E6 How Nutrition, Cellular Health & Lifestyle Modifications Can Help Change our Autoimmunity Outcome, with Autoimmunity Nutritionist VJ Hamilton

    S4E6 How Nutrition, Cellular Health & Lifestyle Modifications Can Help Change our Autoimmunity Outcome, with Autoimmunity Nutritionist VJ Hamilton

     Today's guest, VJ Hamilton, shares about her journey with multiple autoimmune conditions, and how it led her to pursue a combined passion of science, nutrition, and helping others as an autoimmunity nutritionist. The conversation took a couple twists and turns around the gut, cellular health, and an online community where others with autoimmunity can share their tips, tricks and bounce ideas off of each other. 
    *More about VJ:  After 25 years of suffering from multiple autoimmune conditions that affected her energy, skin, hair and joints, VJ discovered after studying immunology, Functional Medicine and training as a Nutritionist that by uncovering the root cause of her issues, she was able to transform her health, and now lives free of symptoms.

    VJ now uses these same principles in her nutritional therapy clinic, The Autoimmunity Nutritionist, to help strong-willed women with autoimmune disease regain their strength and live a whole and symptom-free life. VJ is a keen health writer and has been featured in Cosmopolitan, The Telegraph, Glamour magazine, and many health magazines. VJ has also co-authored a book with other wellbeing therapists, called Empowerment in Health & Wellness, which provides practical wellness tips to thrive after a life challenge. In her free time, VJ seeks out culinary experience at home and away, and loves to recreate dishes at home with her friends and family. VJ is dedicated to her two twin pups and enjoys long walks in the country, Pilates practice, and singing with her local choir.
    Thank you for listening to today's episode. To learn more about VJ, join her online community, or be part of her self-paced online or LIVE Hair Growth Reviver Program which happens twice a year, check out the show notes for those links below. Feel free to ask any questions or comment in the Alopecia Life podcast FB group or on Instagram. VJ is tagged in those posts.
    Website: http://www.theautoimmunitynutritionist.com/
    Hair Growth Reviver Program: https://bit.ly/Hairgrowthreviver
    FB: https://www.facebook.com/groups/theautoimmunitycommunitie
    IG: https://www.instagram.com/theautoimmunitynutritionist/
    Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    • 25 min
    S4E5 (IM) PERFEKT with Jannica Olin

    S4E5 (IM) PERFEKT with Jannica Olin

    Today's guest is Jannica Olin. You may remember her from a bonus episode back in Season 1. I am so glad to have her back, talking about an exciting opportunity where she will perform her one-woman show, (IM) Perfekt next week in NY City. Jannica is a Swedish born actress and TEDx speaker, and is known as Hollywood's Bald Blonde. I'm super excited to share this interview with you, and to have you learn more about all Jannica is doing to encourage her audience to examine disempowering thoughts about identity, beauty and labels. 
    *More About Jannica - A graduate of The Neighborhood Playhouse in New York, Jannica has worked extensively in theatre, film, commercials and music videos in the US, UK, Australia and Sweden. In 2014, Jannica lost all her hair to Alopecia and went on an inward journey of finding her place in the world again, as a woman, and as an actor. What she uncovered through that journey, led to the TEDx Talk; Welcome To My New Normal, and centers around the idea: If I Am Not My Body, Who Am I? - when that which defines you is gone.
    Jannica’s journey with Alopecia also inspired the one-woman show; (IM)PERFEKT which had its world premiere at the Hollywood Fringe Festival in June 2019 to sold-out houses and took home the Producers’s Encore Award; the Critics' Choice Award and the Audience Choice Award, as well as a nomination for The Diverse Diva Award by The Los Angeles Women's Theatre Festival. (IM)PERFEKT has been invited to perform twice at Santa Monica Playhouse, and at the 28th annual Los Angeles Women’s Theatre Festival. Jannica received a BroadwayWorld Regional Theatre Award nomination in 2020 for Performer of The Decade and Production Of The Decade. In 2017, Jannica was nominated for the Los Angeles Business Journal’s Women’s Summit; an event that recognizes and honors outstanding professional women who have made significant contributions to their professions and the Los Angeles community.

    Thank you for listening to today's episode. If you happen to be in NY city or the surrounding areas, and want to go see Jannica's show next week on Friday, October 14th - the United Solo ticket sale link is here in the show notes for your convenience. To learn more about Jannica, watch her Tedx Talk, or read her interview with the Hollywood Reporter, check out the show notes below for all those links. I've also attached a link for Andy Grammar's music video, "Damn It Feels Good to be Me" where Jannica is featured being all she's worked to become. What a fun video to watch.

    Tickets to (IM)PERFEKT in United Solo: https://unitedsolo.org/imperfekt/
    Instagram: @jannica.olin
    website: www.jannicaolin.com
    TEDx talk: https://youtu.be/rbyzkul4JIk
    Interview with the Hollywood Reporter: "Actress Jannica Olin Shares Her Personal Journey Living With Alopecia: “How Can This Become My Superpower?”
    https://www.hollywoodreporter.com/lifestyle/lifestyle-news/actress-jannica-olin-alopecia-imperfekt-1235127608/
    Watch Jannica’s TEDx talk here:
    Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    • 21 min
    S4SE1 What is the Alopecia Roadmap Course

    S4SE1 What is the Alopecia Roadmap Course

    Many of you have been listening to Alopecia Life since the beginning, and others have just started sharing time with us. Thank you so much for being here. Each guest that comes onto the show is meant to give you, as a listener, some insight into their alopecia experience, and to let you know you're not alone. 
    I love hearing back from those of you who have mentioned how helpful a certain conversation with a podcast guest has been, or that hearing about a product we mentioned has been a game-changer for you.

    Some of you know about my own alopecia areata experience, especially if you've already read my story in a book I published called, "Head-On, Stories of Alopecia." In the publishing world, it's now an ancient book after being out for over 7 years. But I think it's timeless in the world of alopecia. Shared stories and photos of people from all over the world living with autoimmune hair loss. Another way to connect when we feel so alone, want to learn more, and are looking  to have a helpful resource that is both educational and healing.

    As I hear about challenges people with alopecia or their loved ones are experiencing, I try to help resolve deep-rooted problems that are contributing to those experiences.

    Finding solutions for kids and parents who are experiencing problems on the playground or in school, allows for significant systemic change to happen within the educational system while working with families, teachers, and school adminstration. Calling and speaking to the senior policy advisor for TSA to find out what the process is for removing hats, or wigs at airports was highly enlightening, and I enjoyed hearing that this medical condition liason was interested in helping those in the alopecia community who fear not only the security line at the airport, but traveling all together.

    When a student soccer player is asked by a referee to remove their scarf in front of their teammates, a stadium full of people, and their opponents because it is a "rule". A rule that doesn't exist in the rule books or has been enforced for over a decade of playing for this child gets me...fired...up. This type of experience where someone is made to feel embarassed moves me, to where the only thing I can do is make a change so others don't have to deal with ignorant and blatant made up "rules."  That's what I'm working on this week, and the types of important issues I will continue to work on to serve the alopecia community and their support systems.

    I tend to be very quiet in what I'm doing. Writing a book, starting a podcast. I've even recently launched a course for parents and caregivers called the Alopecia Roadmap. Did any of you guys know that? I'm super proud to have a resource that can be accessed online, at any time to parents as they are seeking ways to navigate autoimmune hair loss with their child. It's a how-to guide to do alopecia. Not my way, but your way by accessing all the pieces of you and your child that make it possible to have alopecia be the best it can be. I cover a multitude of topics throughout the course. Things like how to talk about alopecia with family and friends; tried and true methods on how to decide on treatments, wigs, and alopecia-related decision making; how to create a comfortable school experience; and how to let your child l
    Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, ...

    • 5 min

Customer Reviews

4.9 out of 5
36 Ratings

36 Ratings

CMRK87 ,

Validating, Joyful

I have had alopecia over half of my life. I so wish I had this kind of resource as a teenager. It is so validating and normalizing. It beautifully covers a wide variety of topics and perspectives. Thank you and please keep up the great work!!

Susan Browne ,

Inspiring podcast

This podcast about Alopecia is informative and inspiring...I believe the wisdom and information shared here is terrifically helpful, especially for children. Deeann is a gracious host—and don’t miss the “Coming Up Rosies” episode, which is especially engaging and charming. Rosie shows how much strength, creativity and resilience kids are capable of. I plan to tune in regularly!

StephHatesOlives ,

Real Life Alopecia

I’ve loved listening to the first 4 episodes. Can’t wait for the next 100! The guests are so real and down to earth! Great job!!

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