Amplifying the Patient Journey

Practical Neurology
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The heart of clinical practice is the patient. In this series, we speak with both providers and patients about the clinical journey with a neurologic condition, and what recent advances mean for patients, their providers, and caregivers.

  1. MAY 7

    Mastering Migraine

    Melody Barthelemy, a human resources specialist, details her experiences living with migraine, including strategies for tracking episodes and thriving with a busy career. She is joined by Dawn C. Buse, PhD, Clinical Professor, Albert Einstein College of Medicine, New York, NY, who discusses recent research in the field.

    25 min

  2. JAN 22

    The Importance of Early Diagnosis and Treatment of Alzheimer Disease

    Linda Shows, a semi-retired nurse who lives with mild cognitive impairment, and her physician, Wendell Helveston, MD, Hattiesburg Clinic, Hattiesburg, MS, discuss the importance of early diagnosis and treatment in Alzheimer disease, including other factors that can help patients thrive when living with this condition.

    21 min

  3. 12/19/2024

    Rehabilitation after Traumatic Brain Injury (TBI)

    After an attack leading to multiple surgeries and a traumatic brain injury, survivor Kel Mabatah developed a rehabilitation scholarship that enables TBI patients to continue therapy after insurance runs out. Kel is joined by Alfreida Melvin, mother of Dontel, who is a recipient of the scholarship from the “Kel Strong” Mabatah Foundation. https://www.kelstrongfoundation.com/

    24 min

  4. 11/20/2024

    Redefining Life with Friedreich Ataxia

    We speak with neuromuscular disease expert David Lynch, MD, PhD, attending neurologist in the Division of Neurology at Children's Hospital of Philadelphia and director of the Friedreich Ataxia Program, about the emerging treatment landscape for Friedeich Ataxia as well as Kiersten Riggs, who discusses the events leading to her Friedrich Ataxia diagnosis and how she has adapted to life with Friedrich ataxia.

    12 min

  5. 11/08/2024

    Young-Onset ALS: Diagnosis and Research

    In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial participation. We are also joined by Merit Cudkowicz, MD, MSc, Head of the Department of Neurology, Chief of Neurology, and Director of the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in Boston, MA who discusses the PLATFORM-ALS trial and the drugs currently in the clinical research and development pipeline.

    20 min

  6. 10/31/2024

    Rett Syndrome: Magnolia and Her Family's Experience.

    AJ Tesler shares the story of his daughter, Magnolia, who is living with Rett syndrome. As a parent and caregiver, AJ provides his perspective throughout the diagnostic and therapeutic journey for Rett syndrome and is joined by Rett syndrome expert Carey Fu, MD, Pediatric Neurologist at Vanderbilt University Medical Center in Nashville, TN.

    23 min

  7. 08/23/2024

    PD GENEration and Barriers to Parkinson Diagnosis - Part 2

    Richard Huckabee is a patient living with Parkinson disease and a Parkinson’s Foundation "Aware in Care" ambassador and research advocate. Mr. Huckabee is enrolled in the PD GENEration study, a national initiative offering no-cost genetic testing and counseling for people with Parkinson disease, and he discusses some of the barriers he faced in receiving a diagnosis of Parkinson disease.

    18 min

  8. 08/13/2024

    PD GENEration and Barriers to Parkinson Diagnosis - Part 1

    Chantale Branson, MD, Associate Professor of Neurology at Morehouse School of Medicine, Atlanta, GA, is a researcher working on the pivotal PD GENEration study, which aims to improve treatment options through the identification of clinically relevant genes linked to Parkinson disease. In this episode, Dr. Branson provides context for the social barriers faced by people of color who have Parkinson disease.

    19 min
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About

The heart of clinical practice is the patient. In this series, we speak with both providers and patients about the clinical journey with a neurologic condition, and what recent advances mean for patients, their providers, and caregivers.

Information

  • Creator
    Practical Neurology
  • Years Active
    2023 - 2025
  • Episodes
    15
  • Rating
    Clean
  • Copyright
    © 2024 Bryn Mawr Communications LLC