Today you'll meet Susan and her late wife, Barbara. Susan joined us all the way from Mexico, where we saw her beautiful Milagro wall as she spoke so vulnerably about her love story with Barbara. Susan has a way of telling her story with so much tenderness and adoration that we could feel the beauty of their relationship across the miles. This story also so delicately discusses genetic FTD, and the incredible dedication Barbara and Susan had to research and clinical trials.
Oh, and Ms. Susan has written a book about her experience and we HIGHLY recommend you sign up for her e-mail list + keep an eye out for the book in June here: https://www.susankoen.com
Thank you, Susan, for sharing your love story with all of us.
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A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to Psilera for supporting this season of Remember Me.
Ways to connect, get more resources + support RM:
Patreon: www.patreon.com/remembermecommunity
Instagram: www.instagram.com/remembermepodcast Website: www.remembermeftd.com
Our non-profit created to support caregivers before and after their journey: www.remembermefoundation.org
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
#spouse #dementia #grieving #grief #caregiving #frontotemporaldementia #ftd #podcast #marriage
Information
- Show
- FrequencyUpdated Weekly
- PublishedMarch 18, 2026 at 7:00 AM UTC
- Length54 min
- Season12
- Episode5
- RatingClean
