Bleeding Disorders and Beyond

Haemophilia Foundation Australia

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Hello and welcome to Bleeding Disorders and Beyond, a podcast by Haemophilia Foundation Australia. In this series we speak to community members and health prtofessionals about living with a bleeding disorder and what’s around the corner. To learn more about HFA, head to our website: haemophilia.org.au

22 thg 6

Dom on having Gene Therapy for Haemophilia A

Dom shares his experience of receiving gene therapy treatment for haemophilia A. He talks about his life with haemophilia, before and after gene therapy. For Dom, the gene therapy wasn't a success, however he is still very positive about his experience. As of May 2026, gene therapy for haemophilia is currently only available in Australia through clinical trials. Gene therapy for haemophilia B is in the process of being evaluated by the Australian Government for funding to become available for Australians and we look forward to the outcome. Dom is Australian and received gene therapy as part of a clinical trial.

16 phút
11 thg 5

Gene Therapy: 'Ask me Anything' with Dr Michiel Coppens

Chaired by Dr Stephanie P’ng and led by questions from the community, Dr Michiel Coppens explains what gene therapy is, how it works, and how it can be used to treat people with haemophilia. Dr Coppens draws on his extensive knowledge of haemophilia and experience in gene therapy – he dosed the first Dutch patient with gene therapy back in 2015 – to provide answers that are both thorough and easy to understand. This interview was recorded on 14 May 2024.

49 phút
11 thg 5

Steve on having gene therapy for haemophilia A

Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life. As of May 2026, gene therapy for haemophilia is currently only available in Australia through clinical trials. Gene therapy for haemophilia B is in the process of being evaluated by the Australian Government for funding to become available for Australians and we look forward to the outcome.

14 phút
11 thg 5

Prof Cedric Hermans on new haemophilia treatments and more

HFA met with Prof Cedric Hermans during the Australian Bleeding Disorders Conference 2025. Prof Cedric is from Saint-Luc University Hospital, Belgium, and spoke with us on a variety of topics, including: The changing landscape of treatment options for haemophilia and other bleeding disordersWomen and girls with bleeding disordersThe importance of diagnosis

7 phút

4 tập

Hello and welcome to Bleeding Disorders and Beyond, a podcast by Haemophilia Foundation Australia. In this series we speak to community members and health prtofessionals about living with a bleeding disorder and what’s around the corner. To learn more about HFA, head to our website: haemophilia.org.au

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Haemophilia Foundation Australia
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Bleeding Disorders and Beyond

Bleeding Disorders and Beyond

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Dom on having Gene Therapy for Haemophilia A

Gene Therapy: 'Ask me Anything' with Dr Michiel Coppens

Steve on having gene therapy for haemophilia A

Prof Cedric Hermans on new haemophilia treatments and more

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