100 episodes

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

BloodStrea‪m‬ BloodStream Media

    • Mental Health
    • 5.0 • 32 Ratings

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

    Progress for women, bullying, and My Beautiful Stutter director Ryan Gielen

    Progress for women, bullying, and My Beautiful Stutter director Ryan Gielen

    Amy and Patrick review MASAC’s new recommendations for women with bleeding disorders, provide an important update on a recent clinical trial investigation, and discuss bullying during COVID.  Then filmmaker Ryan Gielen joins to talk about his new documentary, My Beautiful Stutter, now streaming on discovery+.
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    MY BEAUTIFUL STUTTER: http://bit.ly/MBSLetMeSpeak
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    American Rescue Plan (ARP) info from NHF: http://bit.ly/NHFARP2021
    Gene Therapy Clinical Trial Investigation: http://bit.ly/GTinvestigation2021
    MASAC recommendations for women: http://bit.ly/MASACwomen
    Cyberbullying in India: http://bit.ly/CyberIndia2021

    • 42 min
    Patient advocates Delisa O’Brien & Laurence Woollard on curative therapies, COVID & patient education, and “the lost generation”

    Patient advocates Delisa O’Brien & Laurence Woollard on curative therapies, COVID & patient education, and “the lost generation”

    Lunula Nutrition’s Delisa O’Brien joins Amy and Patrick to discuss our relationship to exercise and curative therapies. Then, Laurence Woollard joins to discuss his recent articles, one on adolescent transitional healthcare, the other on COVID-19’s impacting patient education through social media.
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    Check out how to customize your exercise routine with Takeda at http://bit.ly/LivingHealthyBD



    Delisa O’Brien - Lunula Nutrition Consulting
    http://bit.ly/DelisaOnNutrition
    http://bit.ly/DelisaOnTwitter
     
    Laurence Woollard - On The Pulse Consultancy 
    http://bit.ly/LaurenceInPEN
    http://bit.ly/LaurenceInRareRev
    http://bit.ly/LaurenceOnTwitter
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
     
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

    • 1 hr 11 min
    Closing Word with NHF CEO, Dr. Len Valentino

    Closing Word with NHF CEO, Dr. Len Valentino

    Long-time physician and advocate of our community, NHF CEO, Dr. Len Valentino shares what this month of awareness means to him and what we can expect from the National Hemophilia Foundation in the months and years to come. We hope you felt celebrated and inspired during this month of awareness. From all of us at Bloodstream, we loved being with you during Bleeding Disorders Awareness Month!
     
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 
     

    • 4 min
    World Hemophilia Day and Global Health (Spanish Language Episode)

    World Hemophilia Day and Global Health (Spanish Language Episode)

    Today we are traveling to the Caribbean island of the Dominican Republic with our guest, Dr. Ana Yolanda Santos, to celebrate World Hemophilia Day. To honor the language of the people of the Dominican Republic, the conversation in this episode is completely in Spanish. Dr. Ana Yolanda shares her migration story to the United States, what life is like in the DR for people with bleeding disorders, and what we can learn from the Dominican people to enhance the quality of life for the bleeding disorders community in the United States. 
     
    To connect with Dr. Ana Yolanda Santos: dra.yolandasbj@gmail.com 
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

    • 10 min
    Spotlight on Puerto Rico

    Spotlight on Puerto Rico

    In 2017, Puerto Rico made international headlines as Hurricane Irma and Maria hit the island, leaving Puerto Ricans without running water, electricity, and even shelter. Bleeding disorder community members were not exempt from this reality and faced unprecedented barriers to treatment and care. While still recovering from natural disasters, the island also endures challenges from the global pandemic that has touched the world. Anthony Llanes, Executive Director of the Hemophilia Chapter of Puerto Rico, shares with us the challenges faced by the bleeding disorders community, the chapter’s commitment to providing for families in need, and the resilience of the people of Puerto Rico. 
     
    Find the chapter’s website here: https://hemofiliapr.org/english/what-we-do/initiatives-campaigns.html 
    To get in contact with Anthony: hemophilia.aph@gmail.com 
    To donate click here
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 
     

    • 13 min
    Patrick’s back + diet, pain, and our complex relationships to food

    Patrick’s back + diet, pain, and our complex relationships to food

    Back from paternity leave, Patrick rejoins Amy as co-host. They debrief last week’s emotional episode before welcoming social worker and regular contributor Alexa Abreu on to discuss how each of us relates to food and the idea of dieting. Then community member Kevin Leurquin joins to share his journey overcoming serious mobility challenges.
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
    Sponsored by Takeda. Learn how healthy eating can help your joints and how to better manage your bleeding disorder with Takeda at, www.bleedingdisorders.com/living-well.
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
     
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    FIND KEVIN on Instagram: http://bit.ly/KevinLIG

    • 53 min

Customer Reviews

5.0 out of 5
32 Ratings

32 Ratings

Anthony "The Puma" ,

Great Listen!

Excellent podcast, super informative, and bursting with personality!

Wahnaaaay ,

What this community needed!

So smart, informative and enjoyable!

MK959 ,

Informative

An excellent way to keep up with national news related to the bleeding disorders community. Super engaging and informative: not too long either!

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