100 episodes

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

BloodStream BloodStream Media

    • Mental Health
    • 5.0 • 30 Ratings

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

    Hematologists on Twitter and Irish Haemophilia Society CEO Brian O’Mahony

    Hematologists on Twitter and Irish Haemophilia Society CEO Brian O’Mahony

    Patrick and Amy discuss a recently published article by clinicians urging colleagues to educate their patients via social media. Then, our hosts bring on Brian O’Mahony to discuss his gene therapy clinical trial experience, his take on recent community news, and how the Irish Haemophilia Society has fared through COVID19.
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    BRIAN on Twitter: http://bit.ly/BOMtwitter
    TWITTER changing hematology: http://bit.ly/TwitterASH21
    MEN born w hemophilia on gene therapy: http://bit.ly/RobustInquiry
    GENE therapy trial placed on hold: http://bit.ly/GTtrialHold
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    LIKE BloodStream on Facebook - bit.ly/BSFB20
    WATCH BloodStream on YouTube - bit.ly/BSPYT20

    • 47 min
    Von Willebrand Disease finally has some “guidelines” + The Color of Autism’s Camille Proctor

    Von Willebrand Disease finally has some “guidelines” + The Color of Autism’s Camille Proctor

    Patrick and Amy discuss the long-awaited Von Willebrand Disease (vWD) guidelines published in the medical journal, Blood; provide an exciting update on a recent “Believe 19” guest, and speak to Camille Proctor, founder of The Color Of Autism Foundation.
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    vWD Clinical Guidelines: http://bit.ly/vWDguidelines
    FLOW podcast: http://bit.ly/FLOWBSM
    PHILLY Famous podcast: http://bit.ly/PhillyFamousPodcast
    COLOR of Autism Foundation: http://bit.ly/ColorOfAutism
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    LIKE BloodStream on Facebook - bit.ly/BSFB20
    WATCH BloodStream on YouTube - bit.ly/BSPYT20
     
    #hemophilia #vonwillebranddisease #vwd #autism #podcast

    • 32 min
    Vaccine Q&A, FLOW hosts, a BIG WIN for healthcare, & remembering Max Goddard

    Vaccine Q&A, FLOW hosts, a BIG WIN for healthcare, & remembering Max Goddard

    Patrick and Amy review NHF’s FAQs regarding the COVID-19 vaccine’s safety for people with bleeding disorders, discuss recent healthcare legislative victories, and welcome Christie VanHorne and Jessica Richmond, hosts of BloodStream Media’s newest show full of straight talk about extreme bleeding: FLOW.
     
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
    FLOW podcast: http://bit.ly/FLOWBSM
    CHRISTINE VanHorne on LinkedIn: http://bit.ly/CVHonLI
    JESSICA Richmond on LinkedIn: http://bit.ly/JLRonLI
    NEHA Fund for Max: http://bit.ly/nehamemorial 
    WASHINGTON Days registration: http://bit.ly/DCDays2021
    COVID-19 Vaccine FAQs from NHF: http://bit.ly/COVIDvaccineNHF
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    LIKE BloodStream on Facebook - bit.ly/BSFB20
    WATCH BloodStream on YouTube - bit.ly/BSPYT20

    • 49 min
    Diversity and inclusion with Alexa Abreu

    Diversity and inclusion with Alexa Abreu

    Patrick and Amy kick off the new year with health equity specialist and community member Alexa Abreu to discuss the role diversity and inclusion plays in achieving health equity. 
     
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    ALEX on LinkedIn: http://bit.ly/AlexaOnLI
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    LIKE BloodStream on Facebook - bit.ly/BSFB20
    WATCH BloodStream on YouTube - bit.ly/BSPYT20

    • 52 min
    Dr. Robert Sidonio on vWD, WWBD, and the hemophilia pipeline headed into 2021!

    Dr. Robert Sidonio on vWD, WWBD, and the hemophilia pipeline headed into 2021!

    Patrick and Amy are joined by acclaimed pediatric hematologist and researcher Dr. Robert Sidonio for his take on the state of bleeding disorders as we close out this most unusual year.  Happy Holidays!
     
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    FLOW, a BloodStream show for women - http://bit.ly/BSMFlow
    DHAMMA (Vipassana) - http://bit.ly/DhammaBSM
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    LIKE BloodStream on Facebook - bit.ly/BSFB20
    WATCH BloodStream on YouTube - bit.ly/BSPYT20

    • 51 min
    State-based advocacy with NHF’s Bill Robie and Nathan Schaefer

    State-based advocacy with NHF’s Bill Robie and Nathan Schaefer

    Patrick and Amy are joined by National Hemophilia Foundation’s (NHF) VP of Public Policy Nathan Schaefer and Senior Manager of Government Relations Bill Robie to discuss key differences between state and federal advocacy, unique challenges to state-level advocacy, and how NHF’s State Based Advocacy Coalitions (SBAC) program assists chapters with state advocacy.
     
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    NHF’s State Based Advocacy Coalitions (SBAC) Program: bit.ly/NHFSBAC
     
    HERTZ on Cheat Codes: bit.ly/cheatcodespod
    PRESTON on Journeys: bit.ly/BloodStreamJourneys
    GENE THERAPY article: bit.ly/GTfactor
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    LIKE BloodStream on Facebook - bit.ly/BSFB20
    WATCH BloodStream on YouTube - bit.ly/BSPYT20
     
     

    • 1 hr 14 min

Customer Reviews

5.0 out of 5
30 Ratings

30 Ratings

Anthony "The Puma" ,

Great Listen!

Excellent podcast, super informative, and bursting with personality!

Wahnaaaay ,

What this community needed!

So smart, informative and enjoyable!

MK959 ,

Informative

An excellent way to keep up with national news related to the bleeding disorders community. Super engaging and informative: not too long either!

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