Boundless B Podcast

The Coalition for Hemophilia B
  • 5.0 (1)
  • MEDICINE
  • UPDATED BIWEEKLY

Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio. Unlock the power of understanding hemophilia B. Your Journey, Your Strength.

  1. Holding Space: Grief, Resilience, and Mental Health in the Bleeding Disorders Community

    12/19/2025

    Holding Space: Grief, Resilience, and Mental Health in the Bleeding Disorders Community

    In this moving conversation, Dr. Mosi Williams shares his lived experience with Severe Hemophilia A and the mental health journey that shaped his path as a clinical social worker and community advocate. From navigating early trauma and grief during the HIV/AIDS crisis to helping others find strength in vulnerability, Mosi brings deep wisdom to the emotional side of living with a bleeding disorder. Listeners will walk away with a renewed understanding of resilience, connection, and the importance of asking for help.

    17 min
  2. Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman

    12/18/2025

    Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman

    What if the strongest form of advocacy wasn’t a protest—but a shared story around a table? In this special Boundless B conversation, we explore how showing up, connecting, and supporting one another can be the most powerful act of all. Dr. Whitley Grant-Goodman, licensed clinical mental health counselor and addiction specialist, joins us to reflect on her recent session at the Coalition for Hemophilia B’s Meetings on the Road event in Charlotte, NC. Together with host Kai M Sorensen, they explore how the power of shared experience, caregiver validation, and accessible advocacy can create life-changing community moments. Whether you’ve been managing Hemophilia B for decades or are new to the journey, this episode reminds you: You are not alone—and the community is waiting with open arms.

    17 min
  3. Finding Peace During the Holidays: Regulating the Nervous System with Dr. Shaleen Kendrick

    11/25/2025

    Finding Peace During the Holidays: Regulating the Nervous System with Dr. Shaleen Kendrick

    The holidays can be joyful, but for families living with Hemophilia B, they can also bring heightened stress—emotionally, physically, and logistically. In this powerful episode, Dr. Shaleen Kendrick, creator of the Neuro-Relational Integration™ model, joins Kai to offer science-backed tools to help regulate the nervous system during times of overwhelm. Whether it's managing expectations, sensory overload, or navigating emergency preparedness, this conversation offers actionable strategies to help families return to peace, presence, and hope.

    17 min
  4. From Tornado to Triumph: Mandy Aberegg on Raising Resilient Kids with Hemophilia B

    11/21/2025

    From Tornado to Triumph: Mandy Aberegg on Raising Resilient Kids with Hemophilia B

    What do you do when your baby is born covered in bruises, and no one has answers? In this episode, Mandy Aberegg shares her powerful journey as a mother of two children with Hemophilia B—and how she turned fear into fierce advocacy. Her story will leave you inspired, informed, and ready to take that next brave step forward.

    15 min
  5. Breaking the Barrier: Mental Health and Substance Use Access in the Bleeding Disorders Community

    10/27/2025

    Breaking the Barrier: Mental Health and Substance Use Access in the Bleeding Disorders Community

    When Kate Bazinsky received the call that a young man with Hemophilia had died by suicide after being denied by substance abuse and mental health treatment, she knew something had to change. In this powerful episode, Kate shares how that loss catalyzed the creation of the Bleeding Disorders Substance Use and Mental Health Access Coalition (BDSUMHAC). We explore the stigma, fear, and policy gaps that keep people with bleeding disorders from receiving the care they deserve—and the inspiring ways advocates are breaking down those barriers through data, tools, and hope.

    18 min
  6. 2025 World Mental Health Day Ep 3: Sustaining Wellbeing & When to Seek Support

    10/09/2025

    2025 World Mental Health Day Ep 3: Sustaining Wellbeing & When to Seek Support

    How do you recharge your mental battery before burnout hits? In the final episode of this three-part series, Latisha B. Russell focuses on sustainability—the small habits that keep us grounded and the courage it takes to reach out for help. Drawing parallels between phone batteries and mental health, Latisha reminds us that consistent care—not crisis response—is what keeps us strong.

    4 min
  7. 2025 World Mental Health Day Ep 2: Stronger Connections at Work & Beyond

    10/09/2025

    2025 World Mental Health Day Ep 2: Stronger Connections at Work & Beyond

    How can one small, genuine question change someone’s entire day? In part two, Latisha B. Russell explores the power of simple, culturally neutral connections—both at work and in our personal lives. From authentic check-ins to curiosity-driven listening, this episode highlights how compassion in action builds stronger communities, one small gesture at a time.

    5 min
  8. 2025 World Mental Health Day Ep 1: Pause & Reflect – Connecting with Yourself

    10/09/2025

    2025 World Mental Health Day Ep 1: Pause & Reflect – Connecting with Yourself

    What does it really mean to “put your own oxygen mask on first”? In this opening episode of the World Mental Health Day series, emotional well-being coach Latisha B. Russell invites us to slow down and reconnect—with ourselves. Through powerful analogies and simple daily practices, Latisha explains why self-connection isn’t selfish, it’s essential. When we pause with purpose, we create space for empathy, balance, and resilience—both in our personal lives and across our community.

    5 min
See All (28)

About

Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio. Unlock the power of understanding hemophilia B. Your Journey, Your Strength.

Information

  • Creator
    The Coalition for Hemophilia B
  • Years Active
    2024 - 2025
  • Episodes
    28
  • Rating
    Clean
  • Copyright
    © Copyright 2026 Boundless B Podcast
  • Show Website
    Boundless B Podcast