Brain Injury Bites

Brain Injury Bites

Brain Injury Bites is a brain injury podcast exploring the real-life challenges and triumphs of life after a brain injury. Through open conversations, expert interviews, and powerful lived experiences, it sheds light on what recovery and rehabilitation truly look like. Hosted by Brooke Trotter, a brain injury survivor, and Ashwini Kamath, a specialist solicitor and Headway Warrington trustee, each episode provides practical advice, emotional support, and expert guidance for anyone affected by brain injury, including survivors, family members, carers, and healthcare professionals. Topics include brain injury rehabilitation, fatigue and memory loss, nutrition and mental health, legal and financial support, and day-to-day coping strategies. Whether you're living with a traumatic brain injury (TBI), recovering from a concussion, or supporting someone on their journey, our Brain Injury Bites podcast is here to help you understand, manage, and live well after brain trauma.

  1. Parenting After Pediatric Brain Injury: Navigating Hydrocephalus – with Emma Pilling

    EPISODE 1

    Parenting After Pediatric Brain Injury: Navigating Hydrocephalus – with Emma Pilling

    In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath speak with Emma Pilling, a parent navigating the emotional and practical realities of raising a child with an acquired brain injury. Emma shares the story of her son Charlie, who developed hydrocephalus as a baby, and reflects on the impact this had on her family, career and identity. From the moment of diagnosis to advocating for her son’s education and wellbeing, Emma offers an unflinchingly honest account of the gaps in support, the grief of changed expectations, and the strength it takes to keep going. Now working for the Child Brain Injury Trust, she brings both lived and professional insight into how families can be better supported. They explore: What hydrocephalus is and how it can affect the developing brain The emotional impact of a sudden diagnosis and medical trauma Parenting through grief, guilt and uncertainty Being dismissed by professionals and fighting to be heard The importance of early intervention and trusting your instincts Finding support, connection and purpose through lived experience Whether you are a parent, professional or someone living with the effects of brain injury, this episode offers deep empathy, practical wisdom and a call to treat families with the compassion and clarity they deserve. For a transcript, follow the link below: Episode Transcript To keep up to date with our podcast, follow us on our social media accounts: Twitter Facebook Instagram Community Compass app! Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey. Google Play Apple App Store Notice: Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

    49 min
  2. Parenting After Pediatric Brain Injury: Life After Diagnosis – with Emma Pilling

    EPISODE 2

    Parenting After Pediatric Brain Injury: Life After Diagnosis – with Emma Pilling

    In this episode of Brain Injury Bites, Brooke Trotter and Ashwini Kamath continue their moving and honest conversation with Emma Pilling, whose son Charlie was diagnosed with hydrocephalus and an acquired brain injury as a baby. Now an advocate and fundraiser, Emma shares how diagnosis is only the beginning of a long journey, one shaped by learning, grief, advocacy and extraordinary resilience. Emma opens up about finding support through the Child Brain Injury Trust, building community through her blog, and the practical changes that make everyday life more accessible. She reflects on the emotional weight of parenting a child with complex needs, and the importance of acceptance, friendship and fighting for the support your child deserves. They explore: What real support from charities and professionals can look like How to advocate for your child in education, healthcare and public spaces The impact of invisible disability and why awareness still matters Parenting without comparisons — letting go of milestones and expectations Finding strength in shared experience and helping others through it Why peace comes not from giving up, but from being supported to carry on Whether you are a parent, a professional or simply someone seeking a better understanding of life after childhood brain injury, this episode offers honesty, compassion and the belief that every child deserves more than just a life; they deserve a full one. Helpful links: Emma's Blog Child Brain Injury Trust Shine Charity Harry’s Hydrocephalus Awareness Trust For a transcript, follow the link below: Episode Transcript To keep up to date with our podcast, follow us on our social media accounts: Twitter Facebook Instagram Community Compass app! Brain Injury Bites is now part of the Community Compass app! Download now and take the first step toward reclaiming your best life - because you’re not alone in this journey. Google Play Apple App Store Notice: Information and other content provided in this Podcast should not be taken as providing medical advice or recommendations. Please always consult your doctor or treating team for medical advice.

    33 min

Ratings & Reviews

5
out of 5
6 Ratings

About

Brain Injury Bites is a brain injury podcast exploring the real-life challenges and triumphs of life after a brain injury. Through open conversations, expert interviews, and powerful lived experiences, it sheds light on what recovery and rehabilitation truly look like. Hosted by Brooke Trotter, a brain injury survivor, and Ashwini Kamath, a specialist solicitor and Headway Warrington trustee, each episode provides practical advice, emotional support, and expert guidance for anyone affected by brain injury, including survivors, family members, carers, and healthcare professionals. Topics include brain injury rehabilitation, fatigue and memory loss, nutrition and mental health, legal and financial support, and day-to-day coping strategies. Whether you're living with a traumatic brain injury (TBI), recovering from a concussion, or supporting someone on their journey, our Brain Injury Bites podcast is here to help you understand, manage, and live well after brain trauma.