BRCA & Beyond

Marisa Stachelski
  • 5.0 (3)
  • MENTAL HEALTH
  • UPDATED WEEKLY

BRCA & Beyond is where real talk meets real life with a gene mutation. I’m Marisa, a BRCA2 previvor, colon cancer survivor, wife, and mom of two, and I know firsthand how overwhelming, emotional, and downright confusing this journey can be. But here’s the truth — your gene mutation does not define you. Your choices do. And there is a full, beautiful life waiting beyond this diagnosis. Here, we’ll talk about the decisions no one ever expects to face, the emotions that come with them, and the messy, beautiful, complicated life that happens in between. You’ll hear honest stories (mine and others’), practical tips, and guides that make the path a little clearer. We’ll welcome guests who share their own journeys and expertise, offering fresh perspectives, hope, and encouragement. We’ll laugh when we can, cry when we need to, and remind each other that joy still exists, even in the chaos. Whether you’re newly diagnosed, deep into decision-making, or simply searching for connection, this is a space to feel understood, supported, and never alone. Pull up a seat, friend. We’re in this together. Hosted on Acast. See acast.com/privacy for more information.

  1. 1D AGO

    Not Sick, Not Fine: Living With a Genetic Mutation

    What does it actually feel like to live with a genetic mutation like BRCA, Lynch syndrome, or other hereditary cancer risks? Not the medical side. Not the statistics. In this episode, I’m talking about the space in between — the place where you’re not sick, but you’re not untouched either. Living with a genetic mutation or high cancer risk changes how you think, how you make decisions, and how you move through your life… even when everything looks completely normal on the outside. We talk a lot about prevention and cancer. But we don’t talk enough about what it feels like to live in the middle of it. In this conversation, I’m opening up about: the feeling of not fitting anywhere — not in the cancer world, but not outside of it eitherthe internal “imposter” feeling of questioning whether your experience is validthe quiet, constant “what if” that lives in the backgroundhow this impacts your body, identity, relationships, and everyday lifethe weight of making preventative decisions that permanently change your bodyand why this experience can feel so isolating, even when you’re surrounded by support If you’ve ever felt like: “I’m not sick… but I’m not okay either” this episode will put words to that feeling. Whether you are BRCA positive, living with Lynch syndrome, CHEK2, ATM, or navigating any form of hereditary cancer risk — this conversation is for you. BRCAgenetic mutationhereditary cancer riskprevivorBRCA anxietyLynch syndromehigh cancer riskpreventative surgeryliving with BRCAcancer risk anxiety Hosted on Acast. See acast.com/privacy for more information.

    1h 13m

  2. MAR 12

    Will I Ever Feel Normal Again?

    Will I Ever Feel Normal Again? Healing and Finding a New Normal After a cancer diagnosis, genetic mutation discovery, or life-changing medical news, one question quietly sits in the back of so many minds: Will I ever feel normal again? In this episode of BRCA & Beyond, Marisa shares an honest conversation about the emotional reality that often follows a diagnosis. Beyond the appointments, decisions, surgeries, or surveillance plans, there is a deeper journey happening — one that involves identity shifts, grief, healing, and learning how to live in a body that suddenly feels different. After being diagnosed with Stage 1 colon cancer at 37 and discovering she carries the BRCA2 gene mutation, Marisa found herself asking the same question so many survivors and previvors ask: Will I ever feel normal again after diagnosis? This episode explores the emotional aftermath of diagnosis and what healing actually looks like in real life — not the clinical version, but the human one. In this conversation, Marisa talks about: • The emotional impact of a cancer or genetic mutation diagnosis • Why many survivors and previvors struggle with feeling “normal” again • Anxiety, intrusive thoughts, and health fears after diagnosis • The identity shift that can happen after major medical decisions • Learning how to trust your body again • Why healing is not linear • How to begin building a new normal after diagnosis Whether you are navigating cancer survivorship, living as a previvor with hereditary cancer risk, undergoing surveillance, or adjusting to life after preventative decisions, this episode is a reminder that you are not alone in these feelings. Healing does not mean returning to who you were before. Sometimes healing means slowly discovering who you are becoming — and finding a new normal along the way. If you have ever asked yourself “Will I ever feel normal again after diagnosis?”, this conversation is for you. 🎙 BRCA & Beyond is a podcast for previvors, survivors, and anyone navigating hereditary cancer risk, genetic mutations, preventative decisions, and life after diagnosis. Through real conversations, expert insights, and shared experiences, this space exists so no one has to walk this path alone. life after cancer diagnosis will I ever feel normal again healing after cancer diagnosis finding a new normal after diagnosis BRCA previvor hereditary cancer risk anxiety after cancer diagnosis life after preventative surgery cancer survivorship journey genetic mutation diagnosis Hosted on Acast. See acast.com/privacy for more information.

    1h 12m

  3. MAR 5

    Colon Cancer at 37: Symptoms I Didn’t Ignore & Why Early Detection Saves Lives

    March is Colorectal Cancer Awareness Month, and in this episode I’m sharing the story that started everything. At 37 years old, I was diagnosed with stage 1 colon cancer after experiencing symptoms that many people dismiss — bloating, cramping, and blood in my stool. A colonoscopy not only found the cancer, it removed it before it had the chance to spread. In this episode, I talk about: • The colon cancer symptoms that led me to seek answers • Why colorectal cancer rates are rising in younger adults • The powerful role of screening and colonoscopy in early detection • The genetic testing that later revealed my BRCA2 mutation • How early detection can truly save lives Colorectal cancer is now one of the leading causes of cancer death in adults under 50 — but it is also one of the most preventable and treatable cancers when caught early. If you’re 45 or older, have symptoms that feel unusual, or have a family history of cancer, this conversation could change the way you think about screening. This episode is both my story and an important reminder: listen to your body, advocate for yourself, and never ignore symptoms. colon cancer Topics Covered in This Episode • colon cancer symptoms • colorectal cancer screening • colonoscopy and early detection • colon cancer in younger adults • genetic testing and BRCA2 mutations Hosted on Acast. See acast.com/privacy for more information.

    53 min

  4. FEB 19

    Preparing for a Mastectomy

    If you’re preparing for a mastectomy—whether it’s a preventative mastectomy because of a BRCA gene mutation or a mastectomy as part of breast cancer treatment—this episode is for you. I recorded this one because I have quite a few women in my own circle heading into mastectomies this month, and this has been an ongoing conversation between me and these women for weeks now. Real texts, real voice notes, real "What do I even do with all of this?” moments—sharing tips we’ve learned the hard way and the little things that end up making a huge difference. At some point I just thought… this shouldn’t stay private. So I’m bringing it here to all of our friends at BRCA & Beyond. This isn’t a “do it perfectly” guide, and it’s not meant to replace your medical team. It’s a supportive walk-through of how to prepare for a mastectomy mentally, emotionally, physically, and practically—in a way that feels human and doable, especially if you’re trying to hold life together while a surgery date is sitting on your calendar. We talk honestly about anticipatory anxiety in the days and weeks leading up to surgery...how that date can start to feel like doomsday and how complicated it is to be saying goodbye to a part of your body that’s tied to identity, femininity, motherhood, and sexuality…while also being the very thing you’re being told could someday harm you. If you’ve had the sobbing fests, the random waves of panic, the “I’m fine—wait, I’m not fine” moments… you’re not alone. I also share what helped me most: therapy early on, having a safe place to let the emotions out, and finding support that doesn’t require you to explain every single detail. From there, we get into physical preparation for mastectomy recovery: what the movement restrictions can look like, how long drains might be in, why muscle loss happens, and how gentle movement, walking, stretching, hydration, and prioritizing protein before and after surgery can truly support healing. I also share what I wish I did more of before my surgeries and why your body will thank you later for even small efforts now. And then we slow down and get very practical, because the practical prep matters. We talk about meal prepping and freezing food, setting up a meal train, and stocking easy high-protein snacks for the low-energy days. I walk through a real-life “recovery nesting” plan—including things like a recliner or lift chair (a total game-changer), what to wear after surgery (button-down pajamas, zip hoodies, elastic sweatpants), surgical bras and drain management, slippers or slides (because bending down is a whole situation), bath wipes and shower routines when you’re scared to get incisions wet, mastectomy pillows for comfort and protecting your chest (especially around kids), and a seat belt cushion for rides to follow-ups. We also talk about the first mirror moment — the “oh… this is real” moment — and the emotional side of adjusting afterward: body image, grief, relief, frustration, and how healing is not linear. I share why lining up support before surgery matters so much, including community resources like FORCE, and how giving your loved ones practical “jobs” ahead of time can make recovery feel less overwhelming. If this episode gives you even one thing that helps you feel steadier going into surgery and recovery, I’m so glad you’re here. This is a big surgery and a big season—and none of us were ever prepared to have to prepare for something like this in the first place… but you’re doing the right thing by gathering support and making it easier where you can. You’ve got this—and I promise you’re going to be okay. Hosted on Acast. See acast.com/privacy for more information.

    56 min

  5. FEB 12

    What Happens After Genetic Testing?

    What really happens after you get your genetic test results? In this episode of BRCA & Beyond, Marisa sits down with genetic counselor Sharon Pollack from JScreen to walk through what genetic testing can reveal—and what those results can mean for you and the people you love. Sharon has a strong background in both cancer and reproductive genetics. She earned her master’s degree in human genetics from Sarah Lawrence College and holds a master’s in bioethics from the Albert Einstein College of Medicine. She now works in an outreach and education role at JScreen, where she focuses on increasing awareness, empowering individuals with knowledge, and making genetic screening more accessible and understandable. Together, Marisa and Sharon talk about • What genetic counselors actually do • The emotional and family impact of genetic results • The difference between positive, negative, and VUS results • How genetic mutations are passed through families • Why cascade testing matters • What to expect after a genetic test If you’ve ever wondered whether genetic testing is right for you or what your results could mean...this conversation will help you feel more informed, supported, and prepared. JScreen is a national nonprofit genetic testing and education program that offers clinical-grade at-home saliva testing for hereditary cancer risk. Their tests are processed through Myriad Genetics, a leading laboratory in genetic testing, and include access to licensed genetic counselors to guide you through the process and your results. You can order a kit directly to your home and complete the process with professional support every step of the way. Learn more or order a test: Visit JScreen.org Use promo code BRCAandBeyond10 for $10 off your test. Hosted on Acast. See acast.com/privacy for more information.

    1h 7m

  6. FEB 5

    Cancer Prevention Month… For Us, It’s Every Day With a Genetic Mutation

    Cancer Prevention Month… For Us, It’s Every Day With a Genetic Mutation February is Cancer Prevention Month. But for those of us living with a genetic mutation like BRCA, prevention isn’t something we think about once a year—it’s part of everyday life. In this episode of BRCA & Beyond, Marisa shares an honest, real conversation about what cancer prevention actually looks like when your risk is hereditary. From daily lifestyle choices to medical surveillance and preventative surgeries, this episode breaks down the difference between general wellness advice and true hereditary cancer risk management. Marisa opens up about her own experience—how she exercised, ate well, and still faced a stage 1 colon cancer diagnosis—and why that doesn’t make healthy habits pointless. Instead, she explains how movement, nutrition, hormone balance, inflammation reduction, and metabolic health all play an important role in supporting the body, even when your DNA can’t be changed. This episode is for anyone: Living with a BRCA or other genetic mutationNavigating hereditary cancer riskConsidering preventative surgeryFeeling overwhelmed by prevention decisionsWondering what prevention really looks like beyond lifestyle adviceIf you’ve ever felt like the typical “just be healthy” message doesn’t fully apply to you, this conversation will help you feel more informed, more grounded, and less alone. Because when your risk is genetic, prevention isn’t a month. It’s a way of life. Hosted on Acast. See acast.com/privacy for more information.

    1h 9m

  7. JAN 29

    From Prehab to Rehab for Previvors & Survivors

    In this episode of BRCA & Beyond, Marisa sits down with Rori Zura—breast cancer survivor, certified Cancer Exercise Specialist, and founder of Foobs & Fitness to talk about what recovery really looks like for previvors and survivors, before, during, and after surgery and treatment. After navigating years of breast health concerns and a strong family history of cancer, Rori was diagnosed with triple-negative breast cancer at just 33 years old during the COVID-19 pandemic. During treatment, fitness became her anchor—not to “fix” her body, but to stay connected to it and reclaim a sense of control. That experience reshaped her life and led her to become a certified Cancer Exercise Specialist and ultimately create Foobs & Fitness. From prehab to rehab, this conversation dives into the often-overlooked side of healing: rebuilding strength, protecting range of motion, navigating muscle loss, and learning how to move safely after mastectomy, reconstruction, hysterectomy, chemotherapy, and radiation. Rori shares expert insight on the rehab gap many people face after being discharged, the physical and emotional impact of recovery, and why individualized, cancer-informed movement is essential for long-term healing. Whether you’re preparing for preventative surgery, actively in treatment, or navigating life after cancer, this episode offers practical guidance, reassurance, and real-world strategies to help you reconnect with your body in a way that feels safe, supported, and empowering. Today, through Foobs & Fitness, Rori supports both previvors and survivors with in-person and virtual programs designed specifically for every stage of the journey, helping people use movement as a lifeline to rebuild strength, confidence, and trust in their bodies during survivorship and beyond. Connect with Rori & explore Foobs & Fitness: Website: https://foobsandfitness.com/ Instagram: @foobsandfitness If you or someone you love is facing preventative surgery, cancer treatment, or survivorship, this episode is a must-listen for anyone looking for compassionate, informed, and realistic guidance on rebuilding after it all. Hosted on Acast. See acast.com/privacy for more information.

    57 min

  8. JAN 22

    When Survival Eases, and Deeper Healing Begins

    In this episode of BRCA & Beyond, Marisa talks about what healing can look like after preventative surgery, when survival mode eases, but your nervous system and emotions are still catching up. This conversation covers scanxiety, fight-or-flight responses, and the emotional side of recovery that can show up long after surgeries are done. From nervous system regulation to unexpected body image struggles, Marisa shares how the body continues to process medical stress even when life looks “back to normal” on the outside. If you’ve experienced preventative surgery, mastectomy recovery, reconstruction, hereditary cancer risk, or life after cancer, this episode offers connection and validation around the emotional layers of healing that often come next. It’s for anyone learning how to feel safe in their body again while navigating life after BRCA, colon cancer recovery, or major health decisions. Founding PartnerThis episode is brought to you by our founding partner, Auntie Tats’s Candle Shoppe. Each candle is hand-poured in small batches using clean, thoughtful ingredients like beeswax and coconut wax. No harsh chemicals, just soft, calming scents that help you slow down, breathe a little deeper, and feel more grounded in your space. And if you’ve been walking through recovery, grief, health anxiety, or big life transitions, you already know how important those quiet moments are. Find them at www.auntietatsscandleshoppe.com and on Instagram @auntietatsscandles—woman-owned and proudly supporting this community. Hosted on Acast. See acast.com/privacy for more information.

    40 min
See All (23)

Ratings & Reviews

5
out of 5
3 Ratings

About

BRCA & Beyond is where real talk meets real life with a gene mutation. I’m Marisa, a BRCA2 previvor, colon cancer survivor, wife, and mom of two, and I know firsthand how overwhelming, emotional, and downright confusing this journey can be. But here’s the truth — your gene mutation does not define you. Your choices do. And there is a full, beautiful life waiting beyond this diagnosis. Here, we’ll talk about the decisions no one ever expects to face, the emotions that come with them, and the messy, beautiful, complicated life that happens in between. You’ll hear honest stories (mine and others’), practical tips, and guides that make the path a little clearer. We’ll welcome guests who share their own journeys and expertise, offering fresh perspectives, hope, and encouragement. We’ll laugh when we can, cry when we need to, and remind each other that joy still exists, even in the chaos. Whether you’re newly diagnosed, deep into decision-making, or simply searching for connection, this is a space to feel understood, supported, and never alone. Pull up a seat, friend. We’re in this together. Hosted on Acast. See acast.com/privacy for more information.

Information

  • Creator
    Marisa Stachelski
  • Years Active
    2025 - 2026
  • Episodes
    23
  • Rating
    Clean
  • Copyright
    © Marisa Stachelski
  • Show Website
    BRCA & Beyond