Bridging the Gap

Elma Research

The Bridging the Gap podcast, sponsored by Elma Research, shares conversations with organisations representing patient needs and leading research into a wide range of diseases affecting people across the world. The aim of this podcast is to highlight some of the key challenges associated with living with various conditions and to explore opportunities to bridge the gap between today’s healthcare provision and the needs of different patient communities.

  1. Paradigm Shift: The New Era of IgA Nephropathy Treatment

    2025. 07. 14.

    Paradigm Shift: The New Era of IgA Nephropathy Treatment

    Bonnie Schneider leads the IGA Nephropathy Foundation and has been on a long journey advocating for this condition for 21 years since her 13-year-old son was diagnosed. Bonnie shares how she transformed a mother's determination into a global movement that's helped bring the first specific treatments for IGA nephropathy to market after decades of relying only on steroids. We explore the challenges patients face, the breakthrough treatments now available, and why this is such an exciting time for the IGA nephropathy community.

    28분
  2. The Silent Thief: A Paralympian's Journey with Glaucoma and Uveitis

    2025. 06. 25.

    The Silent Thief: A Paralympian's Journey with Glaucoma and Uveitis

    Amy Dixon is a remarkable patient advocate in ophthalmology and USA Paralympian. Amy shares her powerful journey living with glaucoma and uveitis, having undergone 42 surgeries to save her remaining 2% vision. She discusses the critical importance of early diagnosis, treatment compliance, and establishing a partnership with your healthcare providers. Amy also reveals her passion for patient advocacy and her mission to ensure better support for those diagnosed with eye conditions. Join us for this fascinating conversation about living with vision loss while maintaining an extraordinary life.

    37분
  3. Why We Say Disorder, Not Disease: Reframing Sickle Cell

    2025. 06. 09.

    Why We Say Disorder, Not Disease: Reframing Sickle Cell

    Stephanie George is a patient advocate and peer mentor for the Sickle Cell Society. Stephanie shares her powerful personal journey living with sickle cell disorder, from childhood experiences to her work supporting young people with the condition. She discusses the unpredictable nature of sickle cell pain, treatment challenges, healthcare disparities, and the importance of awareness and community support. Join us for this illuminating conversation about a condition that impacts thousands of lives worldwide.

    40분
  4. Tattoos, Ironmans, and Mountain Climbing: Redefining Life with Haemophilia

    2025. 05. 27.

    Tattoos, Ironmans, and Mountain Climbing: Redefining Life with Haemophilia

    In this episode Scott McLean from the Haemophilia Society shares his personal journey living with severe haemophilia A, from childhood challenges to the transformative treatments available today. We explore the evolution of care, the psychological impact of the condition, and how modern therapies are allowing people with haemophilia to live fuller lives than ever before.

    33분
  5. Lupus Warriors: Rewriting the Narrative of Chronic Illness

    2025. 05. 12.

    Lupus Warriors: Rewriting the Narrative of Chronic Illness

    Gabrielle Davis is a patient advocate living with and championing awareness about lupus. Gabrielle shares her deeply personal journey—how she turned a life-altering diagnosis into a mission to educate, inspire, and build community for others living with chronic illness. We talk in detail about experiences navigating the healthcare system, balancing mental health, and finding hope in the toughest moments.

    48분
  6. The Unseen Reality: Andy Collinson Reveals the Full Experience of Atopic Dermatitis

    2025. 04. 28.

    The Unseen Reality: Andy Collinson Reveals the Full Experience of Atopic Dermatitis

    This episode brings you a personal, unfiltered look at what it means to face a chronic condition head-on. Andy Collinson, isn’t just a patient—he’s a passionate advocate who’s transformed his lifelong battle with atopic dermatitis into a powerful mission for change. He shares the highs and lows of navigating a healthcare system that often underestimates the severity of skin conditions, and he reveals how emerging treatments are bringing hope to those in the thick of it. So, whether you’re living with a chronic condition, supporting someone who is, or simply curious about the human side of health innovation, this episode is packed with insights.

    32분
  7. More Than Meets the Eye: Understanding the Invisible Challenges of MS

    2025. 04. 15.

    More Than Meets the Eye: Understanding the Invisible Challenges of MS

    In this episode we speak with Heather Russell-Kay, a dedicated advocate for individuals living with multiple sclerosis. Heather shares her deeply personal journey—from navigating the complex path to diagnosis to advocating for better understanding and support for MS patients. This conversation highlights why patient voices must guide how we approach treatment, care, and research into new drugs.

    26분
  8. Fighting for Change: Breast Cancer Advocacy in Action

    2025. 03. 31.

    Fighting for Change: Breast Cancer Advocacy in Action

    This episode features Kirstin Spencer, a patient advocate with MetUp UK and a patient expert for NICE and SMC. After her own challenging journey with breast cancer, Kirstin has dedicated her life to closing the gaps in care between primary and secondary diagnoses. From raising awareness about metastatic breast cancer to addressing systemic challenges in treatment, Kirstin brings a wealth of knowledge and an unyielding commitment to empowering others.

    37분
모두 보기(19개)

소개

The Bridging the Gap podcast, sponsored by Elma Research, shares conversations with organisations representing patient needs and leading research into a wide range of diseases affecting people across the world. The aim of this podcast is to highlight some of the key challenges associated with living with various conditions and to explore opportunities to bridge the gap between today’s healthcare provision and the needs of different patient communities.

정보

  • 제작진
    Elma Research
  • 방송 연도
    2024년 - 2025년
  • 에피소드
    19
  • 등급
    전체 연령 사용가
  • 저작권
    © Copyright 2024 All rights reserved.
  • 웹사이트 보기
    Bridging the Gap