Bruised But Not Broken: Living with ITP

PDSA
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The diagnosis of immune thrombocytopenia may leave you wondering – how can I really live my life with ITP? PDSA’s podcast, “Bruised but not Broken: Living with ITP”, brings you empowering stories, lifestyle tips, and answers to the real-life questions the ITP community is asking.

  1. Family, Fundraising, and Awareness: Turning a Passion for Cars into Purpose

    10月15日 · 影片

    Family, Fundraising, and Awareness: Turning a Passion for Cars into Purpose

    In this inspiring episode of Bruised but Not Broken: Living with ITP, meet Wyatt Critchfield, a ninth-grade ITP warrior, and his mom, Brittany, as they share how a love for cars turned into a powerful fundraiser for the Platelet Disorder Support Association. From organizing their first car show and raising $1,000, to spreading awareness in their community and connecting with others living with blood disorders, Wyatt and Brittany open up about the challenges and triumphs of life with ITP. You’ll hear Wyatt's perspective on living with weekly treatments, Brittany's pride in seeing her son lead with courage, and their advice for families who want to start their own fundraisers. This heartfelt conversation shows how passion, creativity, and community can turn obstacles into opportunities.

    25 分鐘
  2. From Patient to Pediatric Immunologist: Dr. Kristin Hunt's Guide for Patients and Parents

    9月12日 · 影片

    From Patient to Pediatric Immunologist: Dr. Kristin Hunt's Guide for Patients and Parents

    In this inspiring episode of Bruised but Not Broken: Living with ITP, Dr. Kristin Hunt shares her journey from being diagnosed with ITP at just 12 years old to becoming a pediatric immunologist. She reflects on the challenges of growing up with a rare bleeding disorder, the role of PDSA in shaping her outlook, and how her experiences as a patient continue to influence the way she cares for children and families today. Listeners will hear about the turning points that led her to pursue medicine, what red flags patients and parents should watch for, and why community and advocacy matter so much. Whether you’re newly diagnosed, a long-time patient, or supporting a loved one, Kristin’s story offers both guidance and encouragement you won’t want to miss.

    44 分鐘
  3. ITP Awareness Month: Why September Matters and How to Get Involved

    8月30日 · 影片

    ITP Awareness Month: Why September Matters and How to Get Involved

    In this special episode of Bruised but Not Broken: Living with ITP, we celebrate ITP Awareness Month with PDSA President & CEO Caroline Kruse and Director of Outreach and Community Engagement Melissa Hilsabeck. They share why September is such an important time for the ITP community, from lighting monuments purple around the world to uniting patients and families through events, stories, and support. You’ll hear how awareness campaigns began, what’s planned globally this year, and simple ways anyone can get involved—from wearing purple to hosting creative fundraisers. This uplifting conversation highlights the power of awareness, community, and connection in turning a rare disease into a recognized cause.

    37 分鐘
  4. ITP and Aging: How Symptoms, Risks, and Care Change Over Time

    8月15日 · 影片

    ITP and Aging: How Symptoms, Risks, and Care Change Over Time

    In this episode of Bruised But Not Broken: Living with ITP, host Barbara Pruitt sits down with Dr. Craig Kessler, a leading hematology expert, to discuss how immune thrombocytopenia (ITP) affects patients as they age. From the unique challenges of diagnosing and treating older adults, to managing fatigue, preventing falls, maintaining cognitive health, and staying up to date on vaccines, Dr. Kessler offers practical advice for both patients and caregivers. Whether you’ve lived with ITP for decades or were diagnosed later in life, this conversation is filled with insights to help you navigate the physical, emotional, and medical realities of aging with ITP.

    38 分鐘
  5. Clearing the Confusion on ITP and Vaccines: Weighing the Risks and Understanding the Benefits

    7月31日 · 影片

    Clearing the Confusion on ITP and Vaccines: Weighing the Risks and Understanding the Benefits

    In this episode of Bruised but Not Broken: Living with ITP, Dr. James  Bussel, Professor Emeritus at Cornell and a leading expert in immune  thrombocytopenia (ITP), joins host Barbara Pruitt for a timely and  thoughtful conversation about vaccines and their relationship to ITP.  From breaking down how vaccines can affect platelet counts to addressing  concerns about relapses and immune response, Dr. Bussel offers  science-backed guidance and reassurance for patients navigating vaccine  decisions. Whether you're newly diagnosed or have lived with ITP for  decades, this episode is packed with clarity, compassion, and practical  advice.

    40 分鐘
  6. Advocating for Access: How Policy and Paperwork Shape ITP Treatment

    7月15日 · 影片

    Advocating for Access: How Policy and Paperwork Shape ITP Treatment

    U.S. insurance coverage can be just as challenging as the diagnosis itself. In this episode of Bruised but Not Broken: Living with ITP, we sit down with Becky Burns, Chief Operating Officer of the Bleeding and Clotting Disorders Institute, to unpack the complicated world of U.S. insurance and access to care. Becky shares real-life scenarios, breaks down confusing terms like prior authorizations and copay accumulators, and offers practical advice for navigating financial barriers to treatment. Whether you've struggled with high copays, coverage denials, or just understanding your plan, this episode offers clarity and hope.

    59 分鐘
  7. Aging with ITP: Wisdom, Worry and What Matters Most

    7月1日 · 影片

    Aging with ITP: Wisdom, Worry and What Matters Most

    What does it mean to grow older with ITP and how do you adapt when your body no longer bounces back like it used to? In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt is joined by fellow seniors Lib Elder and Rand Walker for an honest, insightful, and often humorous conversation about aging with immune thrombocytopenia. From treatment changes and brain bleeds to fall risks and advance planning, the trio shares real-life experiences, hard-earned wisdom, and practical advice for navigating ITP later in life. Whether you’ve lived with ITP for decades or are newly diagnosed in your senior years, this episode will leave you feeling informed, seen, and inspired.

    38 分鐘
  8. ITP and Pregnancy: What You Need to Know Before, During, and After

    6月15日 · 影片

    ITP and Pregnancy: What You Need to Know Before, During, and After

    Pregnancy with ITP can feel overwhelming—but it doesn’t have to be. In this episode of Bruised but Not Broken: Living with ITP, two leading experts—Dr. Terry Gernsheimer and Dr. Edith Cheng—share what women with ITP need to know before, during, and after pregnancy. From coordinating care between hematologists and obstetricians to understanding delivery options and postpartum concerns, this conversation is packed with reassurance, real-world examples, and actionable guidance. Whether you're planning a pregnancy or already expecting, this episode offers clarity, confidence, and hope. PDSA Resources: https://pdsa.org/pregnancy https://pdsa.org/images/stories/pdf/Women&GirlsWithITP.pdf

    1 小時
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簡介

The diagnosis of immune thrombocytopenia may leave you wondering – how can I really live my life with ITP? PDSA’s podcast, “Bruised but not Broken: Living with ITP”, brings you empowering stories, lifestyle tips, and answers to the real-life questions the ITP community is asking.

資訊