B's in a Pod

Pfizer Hemophilia

5.0 (13)
HEALTH & FITNESS
SERIES

A podcast series sponsored by Pfizer Hemophilia where host Becky VanSant (whose daughter has hemophilia B) speaks with patients, caregivers, and friends in the hemophilia community to talk about a range of important issues.

EPISODE 1

Advocacy Groups and Hemophilia B

Host Becky chats with Wayne and Paul, members of the hemophilia B community, about the different advocacy groups in existence and how they can help people and families with hemophilia B. They discuss the benefits of keeping current with patient organizations and how to tap into valuable resources. The trio also recounts how each got involved in patient advocacy and what they enjoy most about being active participants in the patient community.

30 min
EPISODE 2

Hemophilia in Sibling Relationships

Host Becky talks with Paul, a person with hemophilia B, about what it was like growing up with his brother, who does not have hemophilia, and his two sisters, who are symptomatic carriers. Paul chats about how his parents helped manage hemophilia as part of their family and worked to keep balance in their lives. He also reflects on how hemophilia B impacted his relationships with his siblings, ultimately helping to shape him as a parent.

28 min
EPISODE 3

Hemophilia Education for People Outside the Family

Host Becky talks with Paul, a person with hemophilia B, and Matt, who has a son with hemophilia B, about sharing a hemophilia diagnosis with new people at school, in social situations, in professional settings, and more. They talk about ways they have found success in discussing hemophilia with others.

31 min
EPISODE 4

Self-infusion and Camp

Host Becky talks with Matt and Melissa, both of whom have a son with hemophilia B who has learned to self-infuse. The trio talk about their experiences teaching self-infusion, how camp can play a part in that, and what it means to transition control to their children when their children begin to care for hemophilia on their own.

42 min
EPISODE 5

Hemophilia Caregiver 101

Host Becky talks with Melissa; both women have a child with hemophilia, and in this episode they share their experiences. They talk about some of their most important lessons from having raised children with hemophilia and how they learned to help advocate for, and teach advocacy to, their kids.

34 min
EPISODE 6

ER Visits and Hemophilia

Host Becky talks with Matt, the father of a son with hemophilia B, about his family's experiences with the emergency room. Matt talks about the importance of being prepared to deal with unexpected emergencies and gives insight on what has helped his family to have more successful ER visits. Becky and Matt also discuss traveling as it relates to hemophilia and what they do to prepare in the event of out-of-town hospital visits.

29 min
EPISODE 7

Making the Most out of HTC Visits

Host Becky talks with Melissa, the mother of a son with hemophilia B, about how to optimize time spent during an HTC visit. Melissa details the different specialists who are often available for consultation, how her son's visits are structured, and how she participates with his care team. Melissa also talks about mentally preparing for a long day of appointments at the HTC.

39 min
EPISODE 8

Dating and Marriage With Hemophilia B

Host Becky chats with Wayne, a 56-year-old man with hemophilia, about his experiences with dating and marriage as they relate to his condition. Wayne discusses his first marriage and how he and his wife learned about his hemophilia together. Wayne discusses his experiences in his second marriage and how he had to educate his wife about hemophilia. Becky and Wayne talk about bringing up hemophilia in a romantic relationship and the role that partners of people with hemophilia have in the community.

24 min
EPISODE 9

Managing Emotions

Host Becky talks with Wayne, who has hemophilia, about some of the emotions he experiences as a result of his condition. Wayne chats about his journey and successes he has experienced in managing his emotions. He also discusses how feeling validated by others in the community can be meaningful.

27 min
EPISODE 10

The B2B Advisory Board

Host Becky recounts the history of the Pfizer Hemophilia B2B Advisory Board with its chair, Wayne, and Bridget, who helps to develop the programs. They discuss the resources that the B2B Advisory Board has developed, how the board evolves to address changes, and how the B2B Advisory Board is working to create connections in the hemophilia B community.

28 min

See All Season 1 (10)

5

out of 5

13 Ratings

A podcast series sponsored by Pfizer Hemophilia where host Becky VanSant (whose daughter has hemophilia B) speaks with patients, caregivers, and friends in the hemophilia community to talk about a range of important issues.

Creator

Pfizer Hemophilia
Episodes

27
Seasons

1
Rating

Clean
Copyright

© 2018 Pfizer
Show Website

B's in a Pod