Caffeinated Caregivers

Erica Stearns & Alyssa Nutile
  • ٥٫٠ (١٦)
  • الصحة النفسية
  • يتم التحديث شهريًا

Welcome to Caffeinated Caregivers, with your hosts Erica Stearns and Alyssa Nutile, two caregivers and parents to medically complex children who are out here, ready to build a community of caregivers to empower each other and advocate for better support — for themselves and those they care for.Each month, we'll bringing you stories, research, resources, and hopefully a few laughs too as we chat with medical professionals, disabled adults, AND other caregivers who are laugh-crying their way through life.To stay up to date with episode releases and to join our community of caregivers, follow us on Instagram @caffeinated_caregivers or visit our website www.caffeinatedcaregivers.com. We're so glad you're here.

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    Ep 13: The Caregivers Are (Bleeping) Overwhelmed

    We’re back with coffee, chaos, and maybe a few choice words, and diving straight into what feels like the collective caregiver mood of 2025: utter overwhelm. Between policy threats, service cuts, and the general sense that the ground keeps shifting beneath us, it’s no wonder so many caregivers are running on fumes. In this episode, we unpack what that overwhelm actually feels like, share some of the most painfully relatable community responses, and talk about how we keep showing up when it feels like everything’s falling apart. From the constant fear of losing supports, to finding small acts of resistance through joy, to figuring out how to rest without checking out completely, this one’s for every caregiver who’s ever wondered how they are going to make it through, while knowing they can't give up either. In this episode: [00:00:00] A chaotic reunion (and a questionable tea choice) [00:04:00] The baseline overwhelm of medically complex caregiving [00:10:00] What 200+ caregivers told us about feeling uneasy in 2025 [00:12:00] The most painfully accurate metaphors for overwhelm (eggs, hailstorms, and dumpster fires) [00:18:00] How the math on policy “reforms” isn’t mathing, and why that matters [00:20:00] Joy and disengagement as small acts of resistance [00:27:00] Finding your people, protecting your energy, and knowing when to step back [00:33:00] Why re-emerging matters, and what it means to not let the overwhelm win For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers. Subscribe to our show in your favorite podcast app so you don't miss a single episode!  Thanks friends! Talk soon!

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    Ep 12: From Hospital to Home: What They Don't Tell You (and what we've been doing the last six months!)

    We’re back and ready to dive into the community complaint department! In this episode, we catch you up on our six-month hiatus (spoiler: it’s been a mix of zero-fun medical stuff and a few bright moments). Erica’s disappointed with Alyssa’s coffee fail, but we’re making up for it with real talk about the challenges caregivers face, from feeling unprepared when heading home to navigating medical machines and interventions. Plus, we’re sharing an exciting research opportunity for caregivers who want to make an impact. Tune in for relatable rants, practical tips, and a call to action for caregivers to support each other and help close the gaps! In this episode: [00:00:00] Intro [00:00:45] Erica expresses her disappointment with Alyssa (she didn't bring coffee) [00:02:30] Alyssa and Erica address the elephant in the room: where we've been for the last six months [00:09:45] How Alyssa found out that there's a complex care team available at her daughter's hospital [00:15:42] An exciting research opportunity for caregivers who have the bandwidth to share their experience [00:19:53] How shockingly unprepared most caregivers feel when going home for the first time and why we aren't given information we often need [00:27:57] When it's too much information and when it might not be enough [00:34:27] Why we need beeter conversations on medical machines and interventions before going home [00:40:58] Why you NEED to do that sleep study inpatient [00:47:45] How caregivers could support each other in these situations [00:51:00] What you can do to address some of these gaps! Apply for the SafeCare@Home4Kids research study: https://bit.ly/SafeCareStudy For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers. Subscribe to our show in your favorite podcast app so you don't miss a single episode!  Thanks friends! Talk soon!

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    Ep 11: Tricky Feelings Around Disability Pride and Where Caregivers Fit In

    It's the last day of Disability Pride Month, which is appropriate considering that we at Caffeinated Caregivers have been avoiding talking about this topic all month. To be honest, Disability Pride has got us up in our feels a little bit, because as disabled adults who are also caregivers to disabled kids, it brings up a lot of conflicting and confusing emotions as we try to figure out our place in all this. And as far as we can tell, we're not alone in feeling a little confused about how we're supposed to engage with Disability Pride. So today, we're digging into some history behind Disability Pride, what we're actually celebrating during Disability Pride (spoiler: it's not actually the pain or suffering that we or our kids endure), why it's valuable and important to celebrate (but why it's not more important than protecting your own energy), AND how caregivers fit into all of this. If you've been confused about what Disability Pride means for caregivers, this episode is for you. Let's get into it. In this episode: [00:00:00] Intro [00:00:35] Erica and Alyssa discuss the merits present (or not) in grapefruit [00:04:16] Why Erica and Alyssa have been avoiding this conversation topic [00:10:57]Alyssa's big and complicated feelings around Disability Pride (and why being a caregiver has changed how she would otherwise interact with Disability Pride) [00:16:19] A quick history of Disability Pride Month [00:22:53] What allyship looks like and how caregivers fit into Disability Pride [00:30:10] Why some caregivers don't feel like they relate to Disability Pride [00:30:38] The life and death ramifications of untreated mental health struggles (and it's not just about ideation around unaliving yourself) [00:35:37] Ways that caregivers can join in the celebration and why they can let go of guilt if they don't [00:41:18] What we're actually celebrating (and what we aren't) during Disability Pride For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ep11 Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers. Subscribe to our show in your favorite podcast app so you don't miss a single episode!  Thanks friends! Talk soon!

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    Ep 10: Mental Health Breaking Points & Overcoming Fear Around Asking for Support with Karley Henderson

    This week, we're not bringing you stats or data or research... we're just bringing ourselves and our friend Karley. Because the truth is, data can only tell you so much, but for the three of us, some of the most impactful information we've ever received about navigating this caregiving life is through other's individual experiences. So today, we're getting a little vulnerable in sharing the moments that convinced each of us that we needed mental health support, the fear and shame that kept us from accessing support earlier, and why we ALL deserve mental health support at any point on this journey, not just when we can't function anymore. Let's get into it. In this episode: [00:00:00] Intro [00:00:35] Erica, Alyssa, and Karley discuss what's fueling them, both existentially and caffeinated [00:06:54] Why caregiver mental health affects entire communities and why caregivers often put off addressing their mental health for so long [00:13:35] Our current mental health state, as of the time of this recording [00:20:32] The physical symptoms that spurred Karley into getting support for her mental health [00:21:55] Erica's mental health turning point [00:26:03] The dark side of dissociating and delayed processing that exacerbated Alyssa's mental health symptoms [00:30:38] The life and death ramifications of untreated mental health struggles (and it's not just about ideation around unaliving yourself) [00:33:06] How to overcome the fear many caregivers have around getting mental health support [00:41:18] Why you don't have to be completely "nonfunctional" before getting mental health support (don't let it get that bad, friends!!) [00:45:03] The type of therapy that helped Karley (it's not EMDR) and other solutions that Erica and Alyssa have found to be helpful [00:56:20] Why asking for mental health support is a sign of strength, not weakness For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ep10 Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers. Subscribe to our show in your favorite podcast app so you don't miss a single episode!  Thanks friends! Talk soon!

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    Ep 9: Mental Health Vibe Check: The State of Caregiver Mental Health & the Supports That Keep Us Going in 2024

    Hey caregiver. How are you doing? No, we mean, how are you *really* doing? Because according to the research (both our informal research and the many published academic studies), mental health for caregivers isn't great. The "why" probably isn't surprising: lack of support, stress, poor health for our children, lack of time, and a ton of other barriers that keep us from accessing the mental health support that we need. But what can help to improve our mental health might surprise you a little bit. In this episode, we're sharing lots of published research (because we seem to need that validation) and data collected from our caregiver community that shed light on the state of mental health for caregivers. We're sharing what impacts caregivers' mental health, what keeps caregivers from discussing mental health issues, and the barriers caregivers have to accessing mental health support. We're also sharing the best advice caregivers have received from mental health professionals and what both our community (and the published research!) say can have the biggest positive impact on caregiver mental health (spoiler alert: it's us! All of us together, supporting each other!) Let's dive in! In this episode: [00:00:00] Intro [00:01:00] Erica & Alyssa discuss the eclipse (they both live in the path of totality!) [00:06:48] The activities fueling our mental health this week [00:11:02]  Why caregiver mental health matters and why we need to talk about it [00:14:57] What stops caregivers from discussing their mental health [00:23:03] The published data that we found discussing caregiver mental health (shocker: we have higher rates of anxiety and depression) [00:27:01] The questions we asked our caregiver community about the state of their mental health and the somewhat surprising responses [00:34:00] Why caregivers are struggling with their mental health so much [00:43:00] The barriers that caregivers say prevent them from getting mental health support [00:46:43] The best advice caregivers have received from a mental health professional and why we have to prioritize our mental health eventually [00:53:01] A short discussion about the way medication can be a tool for caregivers to support their mental health [00:58:44] The ways professional therapy can support your mental health, and the considerations you may want to keep in mind as you look for a therapist [01:01:16] What our community (and the research!) says has the biggest positive effect on our mental health For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ep9 Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers. Subscribe to our show in your favorite podcast app so you don't miss a single episode!  Thanks friends! Talk soon!

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    Ep 8: Facing Uncertainty in Caregiving: IEPs, Social Security, and In-Home Nursing, Oh My!

    When it comes to being a caregiver to  a medically complex and/or disabled child especially in 2024, life can feel.... uncertain. Covid-era legislation that helped caregivers in many states is now being rolled back, support that our families and children need to thrive can be taken away at a moment's notice, and the threat of unexpected changes can make planning for our children's futures incredibly difficult. And these aren't just random examples. Erica and Alyssa are both navigating these uncomfortable waters right now. In this episode, Erica and Alyssa share what's been keeping them from the podcast the last couple of months, the difficult choices they've been making recently, the intricate governement systems they've been navigating, and the state of some caregiving programs across the country. The conversation gets a little heavy a times, but stick with it until the end! Turns out there is a bright spot in all of this, and that's our collective community of caregivers, and the way that we continue to rally and support each other to improve life for all of us. In this episode: [00:00] Intro [00:57] Why we're qualified to talk about caregiving [03:24] What's fueling Erica & Alyssa today (both liquid and existential) [09:59] Erica's unexpected and distressing situation with children's Social Security support [13:13] A very drawn out separation with Alyssa's family's favorite nurse and how that uncertainty affects decisions around her daughter's IEP transition [22:42] How sudden changes in personnel affect our kids, who thrive on routines and relationships [26:28] Erica's own experience navigating her children's IEP recently and the caregivers she relied on to guide her through  [29:42] Some of the changes happening to caregiver programs in multiple states and why the discourse around these changes is so disheartening [37:42] Why the collective uncertainty makes it harder to weather any change in our support [41:28] The Bright Spot: Us, as caregivers, continuing to bolster and support each other as we fight together to get the support we and our children need For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ep8 Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers. Subscribe to our show in your favorite podcast app so you don't miss a single episode!  Thanks friends! Talk soon!

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    Ep 7: The State of Caregivers and Careers & Why That Matters For Our Medically Complex Kids

    When it comes to the careers of caregivers… things are complicated. While some caregivers are able to maintain a wide variety of careers with the help of flexible work, home health nursing, understanding employers, and other supports, it’s not like that for every caregiver, including those who need income desperately. And on the other hand, the systemic supports in place to support caregivers and their families, whether they wish to continue their careers or devote all of their time to caring for their child, vary widely by state and are often inadequate to cover all of a family’s basic needs. And that’s the real kicker: When caregivers lose their livelihood or a significant portion of their income and when there are few systemic solutions to offer support instead… it impacts the medically complex and disabled kids too.  Today we’re digging into this phenomenon: what’s going on with caregivers and careers, how broad the impacts are, how caregivers manage careers and caregiving, what systemic and governmental support we need, AND how we can advocate for these supports, including a big situation happening in Indiana right now! It’s a big topic, so let’s dive right in! In this episode: [02:00] The different types of water fueling Erica and Alyssa today [11:05] How we discovered that the intersection of caregiving and careers was such a big topic [15:21] Why the career impact of being a caregiver is so important and who it affects (spoiler alert: it’s not just the caregivers) [20:08] The data and polls that we have available currently, illustrating the state of careigiving and careers [25:55] The hardships that caregivers and their families face due to potential career impacts [36:52] A potential upside to career changes caregivers experience [40:17] How caregivers who currently have a career balance work with the duties of caregiving and daily living, etc [46:06] Systemic solutions that would improve the lives of caregivers and their medically complex and disabled children [55:00] How caregivers can advocate and create the change they need for themselves and their families [59:53] The state of paid-caregiving in Indiana and why it might be time for some Capital-A advocacy if you have the time and energy! For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ep7 Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers. Subscribe to our show in your favorite podcast app so you don't miss a single episode!  Thanks friends! Talk soon!

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    Ep 6: The Caregiver Continuum: This Is Why We’re Always Tired

    The Caregiver Continuum. The continuum on which we as caregivers find ourselves looping around and around… and around again. We’ve gone through it. We’ve watched our fellow caregivers go through it. And today, we’re giving it a name. On this episode of Caffeinated Caregivers, we’re explaining what the Caregiver Continuum is, why it’s such a powerful tool for understanding both your journey and your capacity at any given time in your life as a caregiver, and how you can use it to give yourself —and your fellow caregivers— the grace and space we all deserve. Aaaaaand, also why the constant worry about restarting the Caregiver Continuum is exhausting. You know, just typical caregiver stuff. In this episode: [00:00] Gemma refuses to be left out of the conversation [00:37] Alyssa waxes poetic about eyebrow waxing [03:50] Erica & Alyssa get down to business, introduce the Caregiver Continuum and why it’s so important [10:28] Erica & Alyssa describe why it’s useful to understand the Caregiver Continuum [13:23] Alyssa’s Caregiver Continuum HOT TAKE [18:20] Erica introduces the three stages of the Caregiver Continuum (and how they constantly loop back to each other) [19:31] Alyssa describes stage number one, The Just Surviving Stage, and how you might constantly find yourself returning to this stage as a caregiver [24:49] Erica & Alyssa share some of the rougher mistakes and pitfalls associated with the Just Surviving stage [28:29] Alyssa describes the second stage, The Burnout Stage, and the crash that often accompanies it [35:30] Erica & Alyssa share their own stories of experiencing the Burnout stage [41:37] Erica coins the name for stage three, The Eff Around and Find Out Stage, and why not everyone may spend a lot of time in this stage [47:53] Alyssa & Erica wrap-up and give a little glimpse at the next episode For the transcript, our blog, links, and more, visit our website: https://www.caffeinatedcaregivers.com/podcast/ep6 Follow us on Instagram for research, validation, and a lot of memes @caffeinated_caregivers. Subscribe to our show in your favorite podcast app so you don't miss a single episode!  Thanks friends! Talk soon!

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Welcome to Caffeinated Caregivers, with your hosts Erica Stearns and Alyssa Nutile, two caregivers and parents to medically complex children who are out here, ready to build a community of caregivers to empower each other and advocate for better support — for themselves and those they care for.Each month, we'll bringing you stories, research, resources, and hopefully a few laughs too as we chat with medical professionals, disabled adults, AND other caregivers who are laugh-crying their way through life.To stay up to date with episode releases and to join our community of caregivers, follow us on Instagram @caffeinated_caregivers or visit our website www.caffeinatedcaregivers.com. We're so glad you're here.

المعلومات

  • صناع العمل
    Erica Stearns & Alyssa Nutile
  • سنوات النشاط
    ٢٠٢٣ - ٢٠٢٥
  • الحلقات
    ١٤
  • التقييم
    فاضح
  • حقوق النشر
    © 2026 Caffeinated Caregivers
  • موقع البرنامج على الويب
    Caffeinated Caregivers