This podcast aims to capture the insiders view of the collaborative efforts to discover, develop, and deliver a CURE for single ventricle congenital heart disease such as HLHS. This journey is told with the patient’s perspective guiding the scientists, engineers, product development teams, and the physicians and surgeons that work daily to produce new solutions. Complex congenital heart disease (CHD) is going to be transformed by a team-of-teams collaborative approach that is centered on the unmet needs of the patient. Join the team!
Meagan Houpt Shares All Sides of Her HLHS Story
The rebel stage, anxiety, being comfortable with your cardiologist and the importance of finding your crew. Adult HLHSer, Meagan Houpt and I talk about these ups and downs + many more topics. Meagan is an honest and real role model in the CHD community. Connect with her and her crew on Faceboook/My HLHS Story-Meagan Houpt and Instagram/MeaganHoupt-HLHS. Text ‘Cause2Cure’ to 833.222.0186 to receive updates from the HLHS Consortium and C2C Podcast.
Daniel's 550-mile Hike with HLHS
My conversation with Daniel is filled with adventure and inspiration. Daniel describes his 550-mile walk through Spain and living in another country with HLHS.
We end today's episode with practical and powerful questions about genetics, research, and the future for adults with HLHS.
Share Daniel’s incredible story on social media
Learn more about our research at hlhsconsortium.org
Text 833.222.0186 for research and podcast updates
Kelly DiMaggio on Mental Health, Exercise and Finding Your Soulmate
Kelly is an adult with half a heart, living life to the fullest. On today's episode, Kelly shares her thoughts on the power of exercise, how adults with HLHS have pushed the comfort level of many physicians and what changes she wants to see in the CHD community. Kelly has not only cultivated these insights from her personal experiences with HLHS, but from her husband who recently learned that he also has CHD.
Visit https://www.lovinglately.com/ to read Kelly's blog.
Visit https://www.hlhsconsortium.org/ to learn more about the HLHS Consortium.
Jessica Lindberg: Give Yourself Grace
On today’s episode, I have a very authentic and transparent conversation with Jessica Lindberg. Jessica is an entrepreneur, a heart advocate, a writer/speaker and a proud mother of four boys. Her empowering message will leave you feeling HEART STRONG. To learn more about the Ethan M. Lindberg Foundation visit https://www.ethanlindberg.com/ To learn more about the HLHS Consortium visit https://www.hlhsconsortium.org/
Greg Olsen: Find Your Role
NFL tight end, Greg Olsen and his family have found their role in the CHD community. Today, we talk about the Olsen family’s heart journey, what Receptions for Research: The Greg Olsen Foundation has accomplished in Charlotte, NC and our collective mission to amplify local efforts and converge those efforts into a national platform for congenital heart disease.
Receptions for Research is an official member of the HLHS Consortium. The HLHS Consortium aims to accelerate the transformation of research and development into cell-based therapies that can benefit the lives of people living with CHD. Visit https://www.hlhsconsortium.org/ to learn more about our clinical trials. Visit https://receptionsforresearch.org/ to learn more about the Olsen family’s mission and purchase an awesome “Halve a Heart” T-shirt.
Bella and Erin Borkowski
I had so much fun recording today's episode with Bella and Erin. After the first couple minutes, you will understand why! Erin and I talk about how Bella has inspired the Borkowski family and their community. We are grateful to be connected with local platforms, like Beats for Bella, that truly drive change in the heart world. Visit https://beatsforbella.org/ to learn more about the family's organization.