Cholangio Heroes

Host Allison Deragon
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Cholangio Heroes is a podcast produced by the Cholangiocarcinoma Foundation that features a wide array of guests impacted by cholangiocarcinoma (bile duct cancer). Raising awareness and education about the complex disease is told through the stories of those it affects the most.

  1. 11/25/2022

    Cholangio Heroes- Ambuj Srivastava talks about caregving, care living and care loving

    In this episode, Ambuj Srivastava, a former caregiver, shares his experience as a caregiver and some essential tips for caregivers. He also talks about how he connected with a mentor that inspirited him to get involved with the Foundation and become a Research Advocate.

    19 min

  2. 11/18/2022

    Cholangio Heroes- Dr. Ryan Fields speaks about the ”Cancer Moonshot Program”

    In this episode, Dr. Ryan Fields talks about how he connected with the Foundation and how much-needed research is being completed through the Cancer Moonshot Program.This program provides an opportunity for cholangiocarcinoma patients, their caregivers, and advocates to participate in this research effort to better understand cholangiocarcinoma.

    16 min

  3. 11/11/2022

    Cholangio Heroes- Lourdes Rocha-Nussbaum on CCF’s Veteran Project

    In this episode, Lourdes Rocha-Nussbaum talks about the Cholangiocarcinoma Foundation's Veteran Project. Including risk factors that may have contributed to the diagnosis of cholangiocarcinoma. Learn more at https://cholangiocarcinoma.org/veterans-project/.

    10 min

  4. 11/07/2022

    Cholangio Heroes- Candace Tise, CCF community fundraisers

    In this episode, Candace Tise, CCF's Community Fundraising Specialist talks about the unique ways you can raise money for the Foundation.

    15 min

  5. 11/07/2022

    Cholangio Heroes- Hein My Pham, 20 year CCA survivor

    Cholangio Heroes

    13 min

  6. 10/21/2022

    Cholangio Heroes- Stacie Lindsey PRAX-222 EMBRAVE

    In this episode, Stacie Lindsey talks about the importance in understanding the recent FDA clearance of Praxis's Investigational New Drug (IND)  - PRAX-222 EMBRAVE - that used patient data from Invitae Ciitizen in its clinical trial. This opens the doors for advancing research using data from patient registries, like ICPR.

    15 min

  7. 10/14/2022

    Cholangio Heroes - Sarah Rypma chooses to thrive despite CCA

    Sarah Rypma is a survivor of cholangiocarcinoma still undergoing treatment yet she chooses to "thrive" despite the disease. She shares her story from diagnosis to today. More survivor stories: https://cholangiocarcinoma.org/newly-diagnosed/

    26 min

  8. 10/07/2022

    Cholangio Heroes - Jim Hoofnagle, CCA survivor

    Cholangiocarcinoma survivor Jim Hoofnagle shares his cancer journey and why he is helping others as a mentor in the CholangioConnect program.  Learn more at https://cholangiocarcinoma.org/cholangioconnect/

    17 min
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About

Cholangio Heroes is a podcast produced by the Cholangiocarcinoma Foundation that features a wide array of guests impacted by cholangiocarcinoma (bile duct cancer). Raising awareness and education about the complex disease is told through the stories of those it affects the most.

Information

  • Creator
    Host Allison Deragon
  • Years Active
    2K
  • Episodes
    33
  • Copyright
    © Cholangiocarcinoma Foundation
  • Show Website
    Cholangio Heroes