Chronic Conundrums

The Sydney Children’s Hospitals Network
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  • Mental Health

Created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services. Chronic Conundrums is endorsed by the Sydney Children’s Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice.

Episodes

  1. 11/17/2023

    The Final Summit with Jordan Lambropoulos

    The final summit! In the concluding episode of Chronic Conundrums, Joel and Lani are joined by special guest Jordan Darian Lambropoulos, Crohn's disease advocate, who uses her social media platform as a means for advocacy. Jordan shares her story to represent, educate and inspire a voice for the disability community and more broadly, young people everywhere. Chronic Conundrums has been created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services. The podcast invites audiences into the anchors’ imperfect humanities, challenging chronic illness and disability narratives. The team aspires to reach all members of the community, those with lived experience or without; to educate and engage a platform for youth health advocacy in the broader community. Chronic Conundrums is endorsed by the Sydney Children's Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice. Chronic Conundrums was funded by a Youth Grant from the NSW Department of Communities and Justice's Youth Opportunities program, with the support of Sydney Children's Hospitals Foundation. Thanks to Dr Adam Hulbert and The University of New South Wales for supporting recording and post-production work, to Ethan Puse for writing and producing the music for the podcast, and to Sweeney Interpreting for interpreting services supporting accessibility.

  2. 11/09/2023

    Tackling adulthood

    For young people living with a chronic health condition and/or disability, turning 18 not only represents a momentous leap into a new world of work, higher education and adult administration, but also tackling the adult healthcare system. Joel and Lani talk about tackling all things adulthood in part 1 of this conversation.  Chronic Conundrums has been created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services. The podcast invites audiences into the anchors’ imperfect humanities, challenging chronic illness and disability narratives. The team aspires to reach all members of the community, those with lived experience or without; to educate and engage a platform for youth health advocacy in the broader community. Chronic Conundrums is endorsed by the Sydney Children's Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice. Chronic Conundrums was funded by a Youth Grant from the NSW Department of Communities and Justice's Youth Opportunities program, with the support of Sydney Children's Hospitals Foundation. Thanks to Dr Adam Hulbert and The University of New South Wales for supporting recording and post-production work, to Ethan Puse for writing and producing the music for the podcast, and to Sweeney Interpreting for interpreting services supporting accessibility.

  3. 11/01/2023

    Treatment – Part two with Dr Jane Ho

    In this episode, Joel and Lani cover part two of treatment with the help of Dr Jano Ho, Paediatrician and Staff Specialist at Sydney Children's Hospitals Network (SCHN), working in the Trapeze service within the Youth & Transition Department, SCHN. They explain in more detail what it looks like to transition health care from paediatric to adult health care settings.  Chronic Conundrums has been created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services. The podcast invites audiences into the anchors’ imperfect humanities, challenging chronic illness and disability narratives. The team aspires to reach all members of the community, those with lived experience or without; to educate and engage a platform for youth health advocacy in the broader community. Chronic Conundrums is endorsed by the Sydney Children's Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice. Chronic Conundrums was funded by a Youth Grant from the NSW Department of Communities and Justice's Youth Opportunities program, with the support of Sydney Children's Hospitals Foundation. Thanks to Dr Adam Hulbert and The University of New South Wales for supporting recording and post-production work, to Ethan Puse for writing and producing the music for the podcast, and to Sweeney Interpreting for interpreting services supporting accessibility.

  4. 10/25/2023

    Treatment – Part one

    In this episode, Joel and Lani discuss chronic illness and/or disability treatment and diagnostic pathways. Chronic Conundrums has been created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services. The podcast invites audiences into the anchors’ imperfect humanities, challenging chronic illness and disability narratives. The team aspires to reach all members of the community, those with lived experience or without; to educate and engage a platform for youth health advocacy in the broader community. Chronic Conundrums is endorsed by the Sydney Children's Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice. Chronic Conundrums was funded by a Youth Grant from the NSW Department of Communities and Justice's Youth Opportunities program, with the support of Sydney Children's Hospitals Foundation. Thanks to Dr Adam Hulbert and The University of New South Wales for supporting recording and post-production work, to Ethan Puse for writing and producing the music for the podcast, and to Sweeney Interpreting for interpreting services supporting accessibility.

  5. 10/18/2023

    Reintegration

    Joel and Lani open up the next chapter of the journey with a chronic condition or disability - reintegration. Whether you're returning to school, studies or work, balancing chronic illness management with education or work requirements brings a unique set of challenges, which Joel and Lani tackle head-on in this episode. Chronic Conundrums has been created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services. The podcast invites audiences into the anchors’ imperfect humanities, challenging chronic illness and disability narratives. The team aspires to reach all members of the community, those with lived experience or without; to educate and engage a platform for youth health advocacy in the broader community. Chronic Conundrums is endorsed by the Sydney Children's Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice. Chronic Conundrums was funded by a Youth Grant from the NSW Department of Communities and Justice's Youth Opportunities program, with the support of Sydney Children's Hospitals Foundation. Thanks to Dr Adam Hulbert and The University of New South Wales for supporting recording and post-production work, to Ethan Puse for writing and producing the music for the podcast, and to Sweeney Interpreting for interpreting services supporting accessibility.

  6. 10/11/2023

    Siblings weigh in

    In this episode of Chronic Conundrums, Joel and Lani welcome you to their living rooms where they're joined by siblings Ethan, Kayla and Genevieve to talk about experiences of chronic health conditions and/or disability among family.  Chronic Conundrums has been created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services.  The podcast invites audiences into the anchors’ imperfect humanities, challenging chronic illness and disability narratives. The team aspires to reach all members of the community, those with lived experience or without; to educate and engage a platform for youth health advocacy in the broader community. Chronic Conundrums is endorsed by the Sydney Children's Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice. Chronic Conundrums was funded by a Youth Grant from the NSW Department of Communities and Justice's Youth Opportunities program, with the support of Sydney Children's Hospitals Foundation. Thanks to Dr Adam Hulbert and The University of New South Wales for supporting recording and post-production work, to Ethan Puse for writing and producing the music for the podcast, and to Sweeney Interpreting for interpreting services supporting accessibility.

  7. 10/04/2023

    Hospital Admissions

    Join anchors Joel and Lani as they dive into discussing all things hospital admissions. Chronic Conundrums has been created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services.  The podcast invites audiences into the anchors’ imperfect humanities, challenging chronic illness and disability narratives. The team aspires to reach all members of the community, those with lived experience or without; to educate and engage a platform for youth health advocacy in the broader community. Chronic Conundrums is endorsed by the Sydney Children's Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice. Chronic Conundrums was funded by a Youth Grant from the NSW Department of Communities and Justice's Youth Opportunities program, with the support of Sydney Children's Hospitals Foundation. Thanks to Dr Adam Hulbert and The University of New South Wales for supporting recording and post-production work, to Ethan Puse for writing and producing the music for the podcast, and to Sweeney Interpreting for interpreting services supporting accessibility.

  8. 09/27/2023

    An introduction to experiences of chronic health and disability

    Join anchors Joel and Lani as they provide an introduction to chronic health and disability experiences from the perspectives of young people. Chronic Conundrums has been created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services.  The podcast invites audiences into the anchors’ imperfect humanities, challenging chronic illness and disability narratives. The team aspires to reach all members of the community, those with lived experience or without; to educate and engage a platform for youth health advocacy in the broader community. Chronic Conundrums is endorsed by the Sydney Children's Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice. Chronic Conundrums was funded by a Youth Grant from the NSW Department of Communities and Justice's Youth Opportunities program, with the support of Sydney Children's Hospitals Foundation. Thanks to Dr Adam Hulbert and The University of New South Wales for supporting recording and post-production work, to Ethan Puse for writing and producing the music for the podcast, and to Sweeney Interpreting for interpreting services supporting accessibility.

  • 8 Episodes

About

Created by four young people living with chronic illness and/or disability to create a space for conversations about their realities. Hosted by Joel Brookes and Lani Puse, with writing and research by Charlotte Mckenzie and Charlie Moten, the podcast explores a range of experiences from diagnoses and hospitalisations to treatment and health care transition services. Chronic Conundrums is endorsed by the Sydney Children’s Hospitals Network. This podcast is not intended to be a substitute for professional mental health advice. If you find any topics explored potentially triggering, please seek help from a local mental health professional or contact Kids Helpline on 1800 55 1800 for 24-hour advice.

Information

  • Creator
    The Sydney Children’s Hospitals Network
  • Episodes
    8
  • Rating
    Clean
  • Copyright
    © Copyright 2021 The Sydney Children’s Hospitals Network. All rights reserved.
  • Show Website
    Chronic Conundrums