5일 전

E:9 Rare, But Not Invisible | Living with Myasthenia Gravis, Lupus & Sjögren’s

It’s Rare Disease Awareness Month, and most people don’t even know it. In this deeply personal episode of Chronically Able, Elisa records from a flare, laying in the dark, and shares what living with multiple rare autoimmune diseases actually looks like. She goes beyond just naming her diagnoses and explains what they do: •What Myasthenia Gravis is and how it affects muscle communication •How Systemic Lupus Erythematosus creates systemic inflammation and unpredictable flares •Why Sjögren’s Syndrome is more than “dry eyes” and how it impacts dental health and finances With clear percentages and real-life examples, Elisa sheds light on how rare these conditions truly are, and what it means to live in a statistically small, often misunderstood space. This episode also covers: • What autoimmune flares feel like • Why rare disease diagnosis can take years • How to advocate for testing and referrals • The invisible financial burden of chronic illness • Why visibility and education start with us If you’re living with a rare disease, still searching for answers, or supporting someone who is — this conversation is for you. Rare doesn’t mean dramatic. Rare doesn’t mean invisible. And if you want to share your rare disease story on Chronically Able, the guest interest form is linked in the show notes. You are not alone. You are seen. You are Chronically Able.

19분

2월 20일

E:8 Disablity Doesn’t Have a Look.

What does “disabled” look like? In this episode of Chronically Able, Elisa unpacks the reality of living with invisible illness and why disability doesn’t have a single aesthetic, uniform, or visible marker. From parking lot judgment to medical dismissal, we explore what it means to look “fine” while managing chronic illness internally. Elisa shares personal reflections on autoimmune fluctuation, credibility in doctor’s offices, and the emotional weight of constantly being evaluated in public spaces. This episode covers: Why invisible illness is still disability The history of disability exclusion and the Americans with Disabilities Act (ADA) How medical bias impacts women and Black women The impact of fluctuation in autoimmune and chronic conditions Know-your-rights guidance for workplace and school accommodations Advocacy tools for medical appointments Why media representation of disability needs to expand Disability does not require adaptive equipment to be legitimate. It does not require visible suffering to be real. Whether you live with chronic illness, autoimmune disease, or invisible disability or you’re learning how to better support someone who does — this episode invites you to rethink what disability looks like. You don’t owe anyone visible proof of your pain. You are Chronically Able. ⸻ 🎧 Want to join the conversation? If you live with invisible illness or you’re a caregiver, parent, partner, family member, or medical professional fill out the guest interest form: beacons.ai/chronicallyable Let’s expand what disability visibility looks like. Together.✨🫶🏼

20분

2월 13일

E7: Fighting Cancer While Raising Kids and Building Community

Some people don’t just shape your life, they shape the way you imagine your future. In this deeply personal episode of Chronically Able, Elisa sits down with her mentor Carrie: advocate, mother, Co-Founder of RISE, and one of the people who helped teach her how to dream beyond disability. Carrie once fought systems on behalf of others. Today, she is navigating stage 4 metastatic breast cancer while raising two autistic children, living on both sides of advocacy as both caregiver and patient. This conversation explores motherhood, illness, systemic barriers, grief, resilience, and the power of building community when institutions fall short. It’s about what happens when the strong one needs support - and how we keep dreaming anyway. If you or someone you love needs support, resources, or community, visit risereimagined.org Follow Chronically Able for more conversations on disability, chronic illness, and advocacy: 🎙 Instagram: @chronicallyable_ TikTok: @chronicallyable Please fill out the interest form if you areninterested in being on the podcast: beacons.ai/chronicallyable You are not alone. And you are still allowed to imagine a future.

1시간 52분

2월 6일

E:6 Gaslighting in the Exam Room: The Trauma No One Talks About

Medical gaslighting doesn’t end when the appointment ends. It follows you home. In this episode of Chronically Able, Elisa shares the lifetime pattern of being dismissed, undiagnosed, rediagnosed, and forced to deteriorate before being taken seriously, from waiting 8 months for a childhood Myasthenia Gravis diagnosis, to years of untreated lupus symptoms that affected her kidneys, to the quiet warning signs of Sjögren’s that medicine ignored until they couldn’t anymore. This is not just a story about one doctor. It’s about a system that trains providers to doubt complex bodies, an insurance structure that profits from delay, and the psychological trauma of having to repeatedly prove your suffering. We talk about: what medical gaslighting actually isthe nervous system impact of being dismissedthe fear of losing access to careinsurance barriers and step therapybeing “undiagnosed” after finally stabilizingwhy disability is missing from medical educationhow to rebuild trust in your bodytools to protect yourself in the exam room If you’ve ever left an appointment questioning your reality, this episode puts language to that experience — and reminds you that you are not difficult, dramatic, or imagining your pain. You are navigating a system that was never designed for you. And you are not alone here. — Guest sign-ups for upcoming episodes are open. If you’re a chronically able dreamer with a story to share, visit: https://forms.gle/L1yMFeMgphrfN5yS8 You are chronically able. 🧡

23분

1월 29일

E:5 Loving Through the Unknown: Guilt, Space & Asking for Help

A raw conversation between me and my partner. Relationships get real when chronic illness is in the room. There’s guilt. Needing help. Canceling plans. Fear of being “too much.” And through it all there’s still love. In this episode, my girlfriend and I talk openly about what it’s like to love, support, and grow together while navigating chronic illness and the unknowns that come with it. We unpack the moments that don’t usually make it to Instagram: Asking for help when you’re scared to feel like a burdenHolding space for each other (even when you’re both overwhelmed)How we make room for joy, boundaries, and real communicationAnd the fears we rarely say out loud This one’s messy, honest, and full of heart. For anyone who’s ever wondered if they’re lovable in the middle of it all you are. You always have been.

37분

1월 23일

E: 4 We Exist. And the Systems Are Still Not Built for Us.

Disability isn’t rare - but our systems still aren’t built for it. In this episode of Chronically Able, Elisa breaks down the structural failures that continue to harm disabled and chronically ill communities — from the lack of disability education in colleges and professional training, to medical gaslighting, institutional trauma, and the reality of being forced to perform your disability just to be believed. This isn’t a personal story episode. It’s a systems episode. Because inclusion isn’t kindness - it’s infrastructure.

21분

1월 16일

E:3 Five Truths We Were Taught (and Why Disability Rights Prove Them Wrong)

What if the “truths” we were taught about disability were never true at all? In this episode of Chronically Able, Elisa unpacks five common beliefs many disabled and chronically ill people internalize about access, accommodations, worth, and voice and reframes them through the lens of disability rights and justice, inspired by the legacy of Judith Heumann. This conversation explores disability as a civil rights issue, not a personal failure, and offers empowering, practical ways to advocate for yourself without apology. You don’t have to wait to be healed to be powerful. You are Chronically Able. 🧡 Follow @chronicallyable on social media

27분

1월 8일

E: 2 Chronically Able & Why it Couldn’t Wait

Hosted by me (Elisa), interviewed by my partner (Lily) I wasn’t supposed to start this. Not while healing. Not while scared. Not while still figuring it all out. But I did. And in this episode, my partner flips the mic and asks me the questions I don’t always say out loud—like where Chronically Able came from, what it cost to get here, and why I almost didn’t do it. We talk about: What made me hit “record” in the first placeThe guilt, fear, and shame that came with being visibly chronically illWhat I wish someone told me when I felt like I was “too much”And what I hope this space becomes for all of us This one’s honest. Unfiltered. Personal. If you’ve ever felt like your body disqualified you from your own dreams, this is for you. Follow @chronicallyable_ on IG & @chronicallyable TikTok Share this with someone who needs it. And remember: you’re not too much. You’re not too broken. You’re Chronically Able.🧡

20분

시즌1 에피소드4 예고편

E:1 Becoming Chronically Able: An introduction

My name is Elisa I am a disability advocate, nonprofit leader, marketing strategist, and MBA candidate living with multiple chronic illnesses since childhood. Through lived experience and professional expertise, my goal is to create a space for conversations that are empowering, validating, and unapologetically real. Chronically Able is a podcast and platform exploring life, identity, work, relationships, ambition, and healing through the lived experience of disability and chronic illness. We will talk about access, ableism, self-advocacy, joy, grief, ambition, and what it really means to build a life on your own terms. This is my raw, unedited, intro, if I kept overthinking, Chronically Able wouldn't exist! Thanks for supporting! Follow us @ChronicallyAble on TikTok & @ChronicallyAble_ on IG. Website Loading....

10분

Chronically Able

에피소드

E:9 Rare, But Not Invisible | Living with Myasthenia Gravis, Lupus & Sjögren’s

E:8 Disablity Doesn’t Have a Look.

E7: Fighting Cancer While Raising Kids and Building Community

E:6 Gaslighting in the Exam Room: The Trauma No One Talks About

E:5 Loving Through the Unknown: Guilt, Space & Asking for Help

E: 4 We Exist. And the Systems Are Still Not Built for Us.

E:3 Five Truths We Were Taught (and Why Disability Rights Prove Them Wrong)

E: 2 Chronically Able & Why it Couldn’t Wait

E:1 Becoming Chronically Able: An introduction

예고편

E:1 Becoming Chronically Able: An introduction

평가 및 리뷰

소개

정보