Chronically Illing Out

Sick of this Shit Pub

Welcome to Ch-Illing Out with Nick Paro, Beth Cruz, Soso, and Steph Wilson where we take time to focus on living with chronic illnesses. This is a community where chronic conditions are seen, heard, and valued. sickofthis.substack.com

  1. Chronically Illing Out | E38 - Disability Inclusion, Accessibility, and Living With Our Disabilities

    -14 ч

    Chronically Illing Out | E38 - Disability Inclusion, Accessibility, and Living With Our Disabilities

    Ch-Illing In Review Today we welcome on Amelia Hall — creator of Trailblazing with CP and Accessibility Specialist — for a wonderful conversation into Amelia’s story and the role that CP (Cerebral Palsy) has played in her life, how it has helped to shape her views on accessibility and equity, and how she advocates for everyone’s rights. Take a moment to subscribe and follow Amelia Hall’s work — and help build this community where we focus on collaboration over competition. Disclaimer Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Actions You Can Take * Say NO to Crip Crow by contacting your Representative and Senators to help codify the 1999 Olmstead decision into the Americans with Disabilities Act. * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Nieta Greene, Farmers AGAINST trump., julie elder, Ms.Yuse, Cathy Stein, and many others for tuning into my live video with Stephanie G Wilson, PhD, Beth Cruz, and Amelia Hall! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    1 ч. 6 мин.
  2. Chronically Illing Out | E37 - Disability Rights, Freedoms, and Visibility Are Under Attack with Paige Beauchemin

    29 июн.

    Chronically Illing Out | E37 - Disability Rights, Freedoms, and Visibility Are Under Attack with Paige Beauchemin

    ChIlling In Review The day before Juneteenth, the DOJ quietly released a memo reinterpreting the 1999 Olmstead decision — the ruling that keeps disabled people in their communities instead of institutions. It's not a law, and that's the point. This week, NH state rep, psych nurse, and congressional candidate Paige Beauchemin joins Nieta Greene of Disability Community for Democracy, Nick, Beth, and Steph to explain why a memo can be more dangerous than a statute, and why they're calling it "Crip Crow." Our Call To Action Help us Say No to Crip Crow — and perform your daily call to action by calling and emailing your Senators and Representative. * Go to our new webpage to get involved and stay updated with latest resources: https://app.broadbanner.com/crip-crow * Read the DOJ memo: Application of the Rehabilitation Act and Americans with Disabilities Act to State Institutionalization of Patients with Severe Mental Illness or Disabilities Disclaimer Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Soso's World, LeftieProf, Dana Britt, Cathy Stein, KC, and many others for tuning into my live video with Stephanie G Wilson, PhD and Beth Cruz! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    1 ч. 19 мин.
  3. Chronically Illing Out | E36 - Building Visibility and Growing Our Communities

    22 июн.

    Chronically Illing Out | E36 - Building Visibility and Growing Our Communities

    Chronically Illing In Review Today was a hard and necessary conversation—the DOJ is openly coming after our right to visibly exist as a person with disabilities. Take a moment to read through Nieta Greene’s official statement on the DOJ Olmstead Memo and my article from this morning. We must all be loud and actioning on this — we will not be erased. Disclaimer Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Noble Blend, Ms.Yuse, Cathy Stein, Jack 🏳️‍⚧️🏳️‍🌈(he/him), Olivia Janis, and many others for tuning into my live video with Stephanie G Wilson, PhD and Beth Cruz! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    1 ч. 9 мин.
  4. Chronically Illing Out | E35 - Cross Border Community

    15 июн.

    Chronically Illing Out | E35 - Cross Border Community

    Meditation of the Day * link to follow for “Paws for a moment” by Beth Cruz — with pictures from Beth Cruz, Stephanie G Wilson, PhD, Soso's World, Casey is NeuroDivergent Hodgepodge, and Courtney M 🇨🇦🏳️‍🌈! Disclaimer Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Stephanie G Wilson, PhD, Ashleigh Alauren, LeftieProf, V for Violet 🆘, MLR, and many others for tuning into my live video with Beth Cruz, Soso's World, Stephanie G Wilson, PhD, and Jai C. Porter🇨🇦! Join us for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    1 ч. 14 мин.
  5. Chronically Illing Out | E33 - Bridging the Gaps, Unifying the Communities

    1 июн.

    Chronically Illing Out | E33 - Bridging the Gaps, Unifying the Communities

    Chronic Illness In Review This week’s Chronically Illing Out lands on an uncomfortable truth: the disability community is fracturing itself from the inside. Nick Paro opens by naming the divisions playing out on Substack right now — people attacking each other, misrepresenting each other — and frames the whole hour around a single question: how do we bridge the gaps within our own ranks before we lose the ability to fight anything else? Guest Nieta Greene, CEO and founder of Disability Community for Democracy, arrives with the credentials to push the conversation past venting and into accountability. What follows is less a debate than a shared diagnosis, delivered by a panel — Beth Cruz, Soso, and Doc Steph alongside Nick — who all live the conditions they discuss. Meditation of the Week Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off A special thank you to those who are a part of the Sickest of Them All ~ Soso | Millicent | Courtney 🇨🇦 | Eric Lullove | Terry mitchell | Carollynn | Julie Robuck | Mason/She/Her🩷💜💙 | Kimmy Win ~ For support, contact us at: info@sickofthisshitpublications.com Thank you Margaret Williams, MS, ACC, Dr. Eric Lullove, Michele Mashburn, Sarah, Skutt Hope, and many others for tuning into my live video with Beth Cruz and Soso's World! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    1 ч. 15 мин.
  6. Chronically Illing Out | E32 - Get Out The Guilt

    19 мая

    Chronically Illing Out | E32 - Get Out The Guilt

    Chronic Illness In Review Dr. Greeley Miklashek is 80, recovering from long COVID and a second round of prostate-cancer radiation, and unwilling to apologize for any of it. He’s also a retired neuropsychiatrist who treated 25,000 people, wrote Stress R Us, and spent a career arguing that what most of his colleagues called “disease” was, more often than not, a body trying to survive chronic stress. In a wandering, generous hour, he gives Soso, Beth, and Nick a working definition of guilt — self-punishment for breaking the rules of a group — and then complicates it by pointing out that most of us no longer live in the group those rules were written for. The result is one of the more useful episodes the show has done on a topic that usually gets reduced to a slogan: stop feeling guilty for being sick. Meditation of the Week Disclaimer Disclaimer: Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Thank you Soso's World, Jason Gael, Gina Stefanowicz, 🌺KimberZ🌺, DebbieLama, and many others for tuning into my live video with Stephanie G Wilson, PhD and Beth Cruz! Join me for my next live video in the app. Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off A special thank you to those who are a part of the Sickest of Them All ~ Soso | Millicent | Courtney 🇨🇦 | Eric Lullove | Terry mitchell | Carollynn | Julie Robuck | Mason/She/Her🩷💜💙 | Kimmy Win ~ For support, contact us at: info@sickofthisshitpublications.com This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    1 ч.
  7. Chronically Illing Out | E31 - Mother's Day Monday

    15 мая

    Chronically Illing Out | E31 - Mother's Day Monday

    Chronic Illness In Review The Monday after Mother’s Day begins with a head cold, a missing co-host, and a discussion on grief. Beth is out sick — appropriately, on a show about chronic illness — so Nick Paro, Soso, and Stephanie Wilson, PhD, hold the morning between them. The heart of today’s show is all about the chronically ill body keeping track of loss whether the dishes are done or not, and it’s important to say that out loud. Mother’s Day gives us the conversation opener into some unexpected tangents where we talk surveillance capitalism, isolation within the disibility community, and a case for community-owned infrastructure — all of it tracked back, eventually, to who gets counted as fully human. Meditation * Reset Refresh Disclaimer Disclaimer: Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Thank you Ashleigh Alauren, Jai C. Porter🇨🇦, Jami, Ann Kramer, Being Human, and many others for tuning into my live video with Stephanie G Wilson, PhD, Beth Cruz, and Soso's World! Join me for my next live video in the app. Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off A special thank you to those who are a part of the Sickest of Them All ~ Soso | Millicent | Courtney 🇨🇦 | Eric Lullove | Terry mitchell | Carollynn | Julie Robuck | Mason/She/Her🩷💜💙 | Kimmy Win ~ For support, contact us at: info@sickofthisshitpublications.com This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    1 ч. 11 мин.
  8. Chronically Illing Out | E30 - Functioning With Compounding Conditions

    5 мая

    Chronically Illing Out | E30 - Functioning With Compounding Conditions

    Chronic Illness In Review This week’s discussion pulls a single thread — what does it actually take to function when your diagnoses keep stacking? Mack Devlin, a former journalist now medically retired, joins Nick, Beth, Soso, and Stephanie with one of the most compounding stacks the show has hosted: Becker’s muscular dystrophy, rheumatoid arthritis, type 1 LADA diabetes, hypertension, depression, AFib, and chimerism — the rare condition where Mack absorbed his twin in utero and inherited a second set of genes. The conversation traces how someone twice told he should already be dead arrives at 46 with a non-profit in the works, a podcast, and a working impression of Kermit the Frog. It is the show’s thesis distilled: compounding conditions don’t add up to a sentence — they add up to a life that demands creative engineering. Today’s Meditation * Reset Refresh Disclaimer: Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Thank you imi, Nieta Greene, Robin Elizabeth Simpson Scott, Niki~Niki ©️®️™️🖤🇨🇱, Heather Wynne-Phillips, and many others for tuning into my live video with Stephanie G Wilson, PhD, Beth Cruz, and Soso's World! Join me for my next live video in the app. Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off A special thank you to those who are a part of the Sickest of Them All ~ Soso | Millicent | Courtney 🇨🇦 | Eric Lullove | Terry mitchell | Carollynn | Julie Robuck | Mason/She/Her🩷💜💙 | Kimmy Win ~ For support, contact us at: info@sickofthisshitpublications.com This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    1 ч. 7 мин.
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Об этом подкасте

Welcome to Ch-Illing Out with Nick Paro, Beth Cruz, Soso, and Steph Wilson where we take time to focus on living with chronic illnesses. This is a community where chronic conditions are seen, heard, and valued. sickofthis.substack.com

Информация

  • Канал
    Sick of this Shit Pub
  • Автор
    Nick Paro, Beth Cruz, Soso, and Steph Wilson
  • Годы выхода
    2 тыс.
  • Выпуски
    36
  • Ограничения
    С ненормативной лексикой
  • Авторские права
    © Nicholas Paro
  • Сайт подкаста
    Chronically Illing Out

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