Chronically🥄

Roi Shternin
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Welcome to Chronically, the media outlet dedicated to the frontier of patient innovation. We believe that in a broken healthcare system, lived experience isn’t just a story—it is expertise. Hosted by patient innovation strategist Roi Shternin Martini, this podcast amplifies the voices of the chronically ill to challenge medical paternalism and demand a seat at the table. We are shifting the global conversation from "patient compliance" to "patient partnership."

  1. 11/24/2025

    Samah Atout on War Trauma (GMCS25) Special Episode)

    Trigger warning: Trauma, War themes. Surprise! We’ve got an extra episode for you! In this special episode, I am joined by Samah Atout, a Belgian Palestinian advocate and Managing Partner at BIB Partners, to reflect on the incredible insights and experiences shared during the Global Mental Health Community Summit (#GMCS25)!Together, we dive into how lived experiences can be a catalyst for meaningful policy change, and explore the practical steps advocates can take to turn global recommendations into local action. In this episode, Samah reflects on the impactful conversations from Day 3 of the summit, which spotlighted people-centered policy change – highlighting how patient participation can rebuild trust, shape better policies, and redefine mental healthcare systems.We also discuss what’s next—focusing on how to build on the summit’s key takeaways to create lasting, real-world change.For a deeper dive into the Summit’s insights, check out our blog: Driving mental health reform through collective action | Boehringer Ingelheim💬 Join the conversation and be part of the movement that’s putting patients at the heart of progress.🔔 Don’t forget to like, comment, and subscribe for more powerful conversations and inspiring stories!

    30 min

  2. 10/17/2025

    The Medical Anthropologist - Every Healthcare organizations needs an anthropologist in residence!

    In this episode, Roi Shternin and Dr. Margret Jaeger delve into the critical role of medical anthropology in addressing contemporary healthcare challenges. They explore the shortcomings of the modern healthcare system, including its lack of a holistic approach, overspecialization, and systemic failures. The discussion advocates for greater cultural sensitivity, long-term strategic planning, and improved patient journeys. Tune in as they propose solutions such as integrating nurse practitioners and medical anthropologists into primary care, enhancing professional training, and establishing community health centers to bolster prevention and patient advocacy.

    1h 17m

  3. 10/15/2025

    Why do we need patient voices when designing Digital Health products?

    taken from keynote at the Digital Health Ljubljana conference, we address the invisible crisis at the heart of the healthcare system. You are a reflective achiever, burdened by guilt for resting while navigating a health struggle or life transition. You are trapped between the person you were and the purposeful direction you can’t yet see. This keynote offers the ultimate permission you need to heal while pursuing your purpose: by shifting your perspective. Roi, The Human Advocate, challenges digital health leaders and listeners alike with one core question:  Are we truly building patient-centric care, or are we simply using it as a slogan?. more at: roishternin.com

    14 min

  4. 10/15/2025

    How public policy can change the mental health space with Aileen Rice Jones (Boehringer Ingelheim)

    In today’s episode, I’m joined by Aileen Rice Jones, Head of Public Affairs within Mental Health at Boehringer Ingelheim. This will be Aileen’s first time attending the Global Mental Health Community Summit! With deep expertise in corporate and public affairs, Aileen shares fresh insights into mental health innovation, policy, and advocacy—and how we can drive real-world change from high-level discussions. In this episode, we explore key outcomes from the UN High-Level Meeting on NCDs and Mental Health, how to move from global recommendations to local, actionable impact, and why collaboration, equity, and patient-centered approaches matter more than ever!  Tune in to our third and final episode of the mini-series to hear all about action and change! This may be the last episode of the series, but it’s only the beginning of what we can achieve together

    17 min

  5. 10/05/2025

    Falk Schuster on living with living with Major Depressive Disorder (MDD)

    This is a special series where I explore my journey as a co-host of Boehringer’s Global Mental Health Community Summit In Episode 2, I sat down with the incredible Falk Schuster, a dedicated advocate who brings a vital lived experience perspective as someone living with Major Depressive Disorder (MDD). He's also joining us as a speaker on Day 2 of Boehringer’s Global Mental Health Community Summit (GMCS25), where we are discussing #RedefiningMentalHealthcareTogether. And how do we redefine #mentalhealth care together? We start by listening to people’s lived experiences. So, join me in listening to Falk as he shares his personal journey and explains why centering people’s voices is non-negotiable for progress. Plus, Falk attended last year’s inaugural event, so we also catch up about the fun we had last year connecting with everyone! He's got some great stories to share about the experience. Tune in for an inspiring discussion! roishternin.com

    25 min
  6. Redefining mental health with Vanessa Pott, Global head of Patient engagement at Boehringer Ingelheim

    09/12/2025

    Redefining mental health with Vanessa Pott, Global head of Patient engagement at Boehringer Ingelheim

    New podcast series alert. As you all know I’m co-hosting the Global Mental Health Community Summit (GMCS25) this year again, and I’m so excited about it. This year’s event is focused on #RedefiningMentalHealthcareTogether. Boehringer Ingelheim has invited 60 of the most inspiring and motivated #mentalhealth advocates for three-days of connection, idea-sharing, and action towards meaningful change. It’s exciting! But wait, there’s more! This year I’m bringing you all with me behind the scenes as we plan the #GMCS25. Introducing…. the “Road to the Global Mental Health Community Summit” podcast mini-series! Where you’ll get to see the “magic”, the good, the bad, the ugly. The laughter, the smiles and even sometimes the mistakes. Each episode will feature incredible guests involved in building this event. In this first episode, I sit down with @Vanessa Pott, Head of Global #PatientEngagement at @Boehringer Ingelheim, to reminisce about last year’s event, talk a little about #PatientPoweredProgress and about what makes this year’s event so special. It’s really just a chat with an old friend – tune in! More about me: roishternin.com

    21 min
  7. What Is patient experience Data? (PED).

    07/18/2025

    What Is patient experience Data? (PED).

    We often feel like subjects in our own lives—navigated, tested, and surveyed. We all know that email that arrives after a medical appointment: "How did we do?" We fill out the survey, wondering if our patient feedback truly matters. Today, let's reframe that question. Your feedback isn't just feedback; it's evidence. It's a crucial part of a growing field known as patient experience data, and it's the key to real patient empowerment. Beyond the 1-10 Scale: What is Patient Data? When we think of data, we think of lab results and pain scales. But the most vital patient-reported outcomes (PROs) go far beyond numbers. Real data is the full story of your quality of life. It’s the data point of a waiting room chair being too hard for your back pain. It's the data point of feeling rushed during a consultation. It's the data point of the relief you feel when a doctor finally validates your experience. This qualitative data paints a picture that numbers alone cannot. It measures dignity, feasibility, and compassion within the healthcare system. From Anecdote to Evidence: Driving Systemic Change Your individual story is powerful, but when combined with hundreds of others, it becomes undeniable proof. This collective patient voice is what drives systemic change. It’s how patient advocacy groups can demonstrate the need for better communication protocols, more accessible clinic layouts, or a re-evaluation of a treatment's real-world side effects. Your experience helps build the business case for more compassionate and effective care. Your Self-Advocacy Toolkit: Better Healthcare Communication Improving the quality of patient experience data begins with us. True patient engagement means actively participating in our own care. Here are two simple strategies for effective self-advocacy: * The 30-Second Debrief: After every appointment, take a moment to note one thing that went well and one thing that could have been better. This simple form of symptom tracking and experience logging builds a powerful evidence file over time, making your healthcare communication more precise. * Translate Symptoms into Impact: This is key for shared decision-making. Instead of just saying, "My fatigue is bad," translate it into a functional data point. Say, "My fatigue is so severe that I must choose between taking a shower or making breakfast." This transforms a subjective feeling into a concrete piece of evidence about your quality of life. Your journey with a chronic illness has made you an expert. By consciously documenting and communicating your experience, you shift from being a passive patient to an active research partner in your own care. Your experience is not a byproduct of your illness; it is the evidence that will build a better future for all of us. Learn more about it in my book “What do Patients Want”. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit roishternin.com This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit

    11 min
  8. We Need more Patient voices in MedTech

    07/10/2025

    We Need more Patient voices in MedTech

    We dive into the critical gap between medical device development and the lived experience of patients. We Need More Patient Voices in MedTech is the essential podcast for innovators, clinicians, patients, and advocates dedicated to ensuring that technology is truly patient-centric. Each week, we bring you unscripted conversations with patients sharing their stories, engineers discussing design flaws and breakthroughs, regulatory experts, and hospital administrators. We explore how integrating patient feedback—from initial concept to post-market surveillance—leads to better outcomes, compliance, and ultimately, more meaningful healthcare. It's time to shift the paradigm from for patients to with patients.

    5 min
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About

Welcome to Chronically, the media outlet dedicated to the frontier of patient innovation. We believe that in a broken healthcare system, lived experience isn’t just a story—it is expertise. Hosted by patient innovation strategist Roi Shternin Martini, this podcast amplifies the voices of the chronically ill to challenge medical paternalism and demand a seat at the table. We are shifting the global conversation from "patient compliance" to "patient partnership."

Information

  • Creator
    Roi Shternin
  • Years Active
    2K
  • Episodes
    50
  • Rating
    Explicit
  • Copyright
    © Roi Shternin
  • Show Website
    Chronically🥄