Conversations with Lupus | Unscripted

Hetlena Johnson, The Lupus Liar
  • 4.7 (9)
  • SELF-IMPROVEMENT

Discover how you can redefine living with Lupus! Hetlena Johnson is a highly recognized author, speaker, and trainer devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life’s challenges with laughter and spirited resilience, she believes in living your best life while living with lupus.

Episodes

  1. 02/24/2022

    CWL09_My Lupus and My Hair

    CWL09_My Lupus and My Hair   I was asked about whether or not my hair came out while being diagnosed with lupus and how long my hair has been growing while locked. I'll be happy to answer your questions too! Feel free to leave me a voicemail here in Anchor or follow me on Instagram at @TheLupusLiar.

    7 min

  2. 05/13/2019

    TLL Moment_002 Get Through It

    Get through it. It’s not about getting past it, it’s about getting through it.

    2 min

  3. 03/19/2019

    TLL Moment_001 Admitting Defeat

    Every now and then you have a moment. Here’s thoughts from a moment of admitting defeat. It happens!

    2 min

  4. 01/19/2019

    CWL08_PeerApproachestoLupusSelfManagement

    Want to be contacted? Go to http://bit.ly/palsstudy to complete the interest form!  The Peer Approaches to Lupus Self-Management (PALS) Study Could Be Right For You!  This is a research study that connects women with lupus with a mentor who also has lupus. Your mentor will encourage you to learn how to manage your lupus better. Are you looking for guidance and support? Be a Mentee! Are you managing your lupus well and want to help other women do the same? Be a Mentor!   This study will investigate whether a peer mentoring program can help improve health-related quality of life, self-management, and disease activity in African American women with lupus. The study is sponsored by the Medical University of South Carolina (MUSC). The investigator in charge of this study is Dr. Edith Williams.  If interested and for more information Please Contact: Dr. Edith Williams at (843) 876-1519. Or via email at wiled@musc.edu.

    45 min

  5. 12/23/2018

    CWL07_A Lupus Holiday

    Give yourself a ‘Lupus Holiday!’ A short rant on reminding yourself to be present for your health this holiday season. Consider changing your mindset this season to self-care, smart decision making, and careful healthy planning.

    9 min
  6. CWL06_Interview Liz Morgan PatientsLikeMe

    05/01/2017

    CWL06_Interview Liz Morgan PatientsLikeMe

    Named one of Fast Company's 2017 Top 10 Most Innovative Companies in Biotech, PatientsLikeMe is on a mission to put patients first! Learn more about PatientsLikeMe from Liz Morgan, Director, Member Experiences. She answers questions on how the company is committed to helping patients live better. Then log onto PatientsLikeMe.com to join a network of over 500,000 people to share experiences, provide support, and track symptoms.Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited to skin, joints and/or life organs. According to the Lupus Foundation of America, Inc.* about 1.5 million people, worldwide, have a form of Lupus.-----Host Note: From the heart of experience, I am well aware of the related difficulties that come with living with Lupus. I was diagnosed with Lupus at the age of 16. At this time, Lupus was still a very curious disease. I was told that I would not live more than ten years after being diagnosed. Yet, life trials and errors prove that I am not dead yet! I am currently in the process of writing a memoir about combating Lupus. More research has enabled many Lupus patients to live fulfilling lives. ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: www.Twitter.com/TheLupusLiarFacebook: www.facebook.com/TheLupusLiarInstagram: www.Instagram/thelupusliarPinterest: www.Pinterest.com/thelupusliarWebsite: www.TheLupusLiar.com

    29 min
  7. CWL05_A Conversation with Tanisha Davis| Lupus Nephritis Patient and Advocate

    02/03/2017

    CWL05_A Conversation with Tanisha Davis| Lupus Nephritis Patient and Advocate

    Conversations with Lupus: An Interview with Lupus Patient Tanisha Davis-SmallsHow does a mother of three, diagnosed with lupus nephritis live a full life while living with lupus? Watch this interview with Tanisha as she describes how it feels to be fighting for life and happy at the same time. Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited to skin, joints and/or life organs. According to the Lupus Foundation of America, Inc.* about 1.5 million people, worldwide, have a form of Lupus.----Host Note: From the heart of experience, I am well aware of the related difficulties that come with living with Lupus. I was diagnosed with Lupus at the age of 16. At this time, Lupus was still a very curious disease. I was told that I would not live more than ten years after being diagnosed. Yet, life trials and errors prove that I am not dead yet! I am currently in the process of writing a memoir about combating Lupus. More research has enabled many Lupus patients to live fulfilling lives. ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com

    30 min
  8. CWL04_ Annetta Talks About Her Battle with Lupus

    12/15/2016

    CWL04_ Annetta Talks About Her Battle with Lupus

    Annetta's shares a little of her story. Annetta was diagnosed with Systemic Lupus on January 4, 2000. This day changed her life. As the old by Annetta, "I knew it was going to take a toll on me. It was a very cold sense in the room. I can even remember what I was wearing."Annetta's life has changed more than she could ever have imagined. Due to a blood infection and clots in her legs, she has them no more. After her rehabilitation, set to be scheduled soon, she wants to be able to go back to school. But she'll need the help of a vehicle that can be equipped to make her mobile. She only asks for a chance. A chance to live the life she has, the best way she can. https://www.gofundme.com/25fyhwqc========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/mxiv8m**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com

    29 min
  9. CWL03_Don't Cheat on Your Doctor with Your Lupus

    11/11/2016

    CWL03_Don't Cheat on Your Doctor with Your Lupus

    Don't cheat on your doctor when it comes to reporting your lupus related health concerns.========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com

    3 min
  10. CWL02_5 Points of Power for After the Lupus Diagnosis

    10/06/2016

    CWL02_5 Points of Power for After the Lupus Diagnosis

    5 Points of Power (POP) when it comes to being diagnosed with Lupus. Here are five things I wish I would have known when I was first diagnosed with lupus. How do you successfully coordinate care after being diagnosed with Lupus? ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com

    7 min
  11. CWL01_Am I Dead Yet - The Beginning of A Lupus Liar

    09/20/2016

    CWL01_Am I Dead Yet - The Beginning of A Lupus Liar

    Why live with Lupus? Lupus lives with you. Tell it where, what, and when. You are healthy, you are better, you can do everything. Because Lupus is a liar!Inspired and encouraged by those living with Lupus.Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited to skin, joints and/or life organs. According to the Lupus Foundation of America, Inc.* about 1.5 million people, worldwide, have a form of Lupus.----Host Note: From the heart of experience, I am well aware of the related difficulties that come with living with Lupus. I was diagnosed with Lupus at the age of 16. At this time, Lupus was still a very curious disease. I was told that I would not live more than ten years after being diagnosed. Yet, life trials and errors prove that I am not dead yet! I am currently in the process of writing a memoir about combating Lupus. More research has enabled many Lupus patients to live fulfilling lives. ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com

    7 min
  • 11 Episodes

4.7
out of 5
9 Ratings

About

Discover how you can redefine living with Lupus! Hetlena Johnson is a highly recognized author, speaker, and trainer devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life’s challenges with laughter and spirited resilience, she believes in living your best life while living with lupus.

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