Digital Activism

Caden Nelms

Hello beautiful people! Digital Activism is hosted by Caden Nelms! Caden has Spinal Muscular Atrophy and uses a wheelchair full-time. Each episode, Caden discuss disabilities, chronic illnesses, advocating on social media, and more!

  1. May 29

    Daniel Hodges: Systemic Risks, Disability Discrimination, & Changing Environments | Digital Activism

    In this episode, Daniel Hodges, co-founder of Peaces of Me Foundation, shares his powerful journey navigating the healthcare system, disability discrimination, and advocacy for inclusive communities. Daniel has great insights as someone who was born with multiple disabilities, father of three (two of which survived childhood cancer), holds multiple degrees, and cofounded a non-profit to help people with disabilities, Peaces of Me Foundation! Everyone, please go support Daniel and Peaces of Me! Thanks again to Daniel for joining me for this discussion! I hope you enjoy this episode!  Resources: Peaces of Me: https://www.peacesofme.org/  Bilateral retina blastoma: https://www.childrenshospital.org/conditions-treatments/retinoblastoma Adenoid cystic carcinoma: https://my.clevelandclinic.org/health/diseases/22212-adenoid-cystic-carcinoma  Ehlors danlos: https://www.ehlers-danlos.com/what-is-eds/  Episode show notes & transcripts can be found here: ⁠⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠⁠ ⁠⁠  Connect with Daniel Hodges!: Daniel LinkedIn: https://www.linkedin.com/in/daniel-hodges-jd/ Peaces of Me Foundation: https://www.peacesofme.org/  Follow Caden!: Caden IG:⁠⁠ ⁠⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠⁠ Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠⁠ Caden Threads⁠:⁠ ⁠⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠⁠ Email Caden: ⁠cadennelmsofficial@gmail.com⁠ Follow the Pod!: YouTube:⁠⁠⁠ ⁠⁠⁠⁠⁠   / @digitalactivismproject  ⁠ Pod IG: ⁠⁠⁠instagram.com/digitalactivismpod/ Love y’all3 Want to be a guest on Digital Activism? Send Caden Nelms a message on PodMatch, here: https://www.podmatch.com/hostdetailpreview/1777852969056733ae9bff9bd

    55 min
  2. May 22

    The Shocking Truth About Social Security That Could Destroy Your Benefits | Digital Activism

    Hello beautiful people! The last few days have been filled with phone calls, appointments, research, confusion, and anger at the government…. shocker! In today’s episode, I share my recent experiences with the Social Security Administration, the challenges and frustrations of navigating disability benefits, and provide insights into the process and implications for others in similar situations. Resources: Social Security Administration - https://www.ssa.gov/ Understanding Social Security Disability Benefits - https://www.ssa.gov/benefits/disability/ Episode show notes & transcripts can be found here: ⁠⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠⁠ ⁠⁠  Follow Caden!: Caden IG:⁠⁠ ⁠⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠⁠ Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠⁠ Caden Threads⁠:⁠ ⁠⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠⁠ Email Caden: ⁠cadennelmsofficial@gmail.com⁠   Follow the Pod!: YouTube:⁠⁠⁠ ⁠⁠⁠⁠⁠   / @digitalactivismproject  ⁠ Pod IG: ⁠⁠⁠instagram.com/digitalactivismpod/ Love y’all! 3 Want to be a guest on Digital Activism? Send Caden Nelms a message on PodMatch, here: https://www.podmatch.com/hostdetailpreview/1777852969056733ae9bff9bd Keywords: Social Security, disability benefits, government bureaucracy, personal story, social security process, disability insurance, financial management, government assistance, social security review, disability advocacy Key Topics: Social Security process and challenges Impact of income reporting on disability benefits Navigating government bureaucracy and communication issues

    13 min
  3. May 1

    I’m Tired of the Backstabbing! | Changing SMA Treatment | Digital Activism

    Caden Nelms recently switched medications for Spinal Muscular Atrophy. He took a lot of information into consideration and realized that he could no longer handle the injection. Caden shares his personal journey switching from Spinraza to Evrysdi for treatment for Spinal Muscular Atrophy, including the medical processes, challenges, and benefits of each medication.  Chapters 00:00 Understanding Spinal Muscular Atrophy (SMA) 00:43 The Transition from Spinraza to Everesty 05:52 Challenges Faced with Spinraza 12:07 The Benefits of Evrysdi and Future Outlook Resources Spinraza (Nusinersen) - https://www.spinraza.com/ Evrysdi (Risdiplam) - https://www.evrysdi.com/ Spinal Muscular Atrophy (SMA) - NIH - https://www.ninds.nih.gov/health-information/disorders/spinal-muscular-atrophy Episode show notes & transcripts can be found here: ⁠⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠⁠ ⁠⁠ Follow Caden!: Caden IG:⁠⁠ ⁠⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠⁠ Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠⁠ Caden Threads⁠:⁠ ⁠⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠⁠ Email Caden: ⁠cadennelmsofficial@gmail.com⁠ Follow the Pod!: YouTube:⁠⁠⁠ ⁠⁠⁠⁠⁠   / @digitalactivismproject  ⁠ Pod IG: ⁠⁠⁠instagram.com/digitalactivismpod/ keywords SMA, Spinraza, Evrysdi, medication switch, spinal muscular atrophy, medical treatment, insurance approval, nerve pain, medication side effects, patient experience

    19 min
  4. 09/15/2025

    Mikey Stone: ALS Diagnosis at 25, Finding Community on Social Media, & New Music!

    Hello beautiful people! For this episode, I talked with Mikey Stone, a social media advocate for ALS awareness and disabilities. Mikey shares his journey from a casual social media user to a prominent figure raising awareness for ALS after his own diagnosis in February 2025. We chat about the therapeutic role of music in our lives and Mikey producing his first project post-diagnosis. Mikey emphasizes the need for community support across social media! We discuss the challenges and triumphs of living with disabilities, the importance of raising awareness for ALS, and the significance of collaboration in creative projects. Mikey shares his excitement about his upcoming music release and a recent song he created and debuted alongside Frankie Torres at this year's ALS Conference! Mikey Stone’s Links!: IG: www.instagram.com/mikeystonemusic/  TikTok: www.tiktok.com/@mikeystonemusic People Exclusive Article: people.com/26-year-old-goes-viral-sharing-als-diagnosis-exclusive-11790769  “Mikey’s House” Podcast: bio.link/mikeyshouse  “The Midnight Report” Podcast: bio.link/themidnightreport  Losing to the Letters: www.als.org/losing-letters  Patreon: patreon.com/rarewithmikey?utm_medium=clipboard_copy&utm_source=copyLink&utm_campaign=creatorshare_fan&utm_content=join_link  Website: /www.rarewithmikey.com/  ALL THE LINKS: YouTube:⁠⁠ ⁠www.youtube.com/@digitalactivismproject⁠⁠⁠  Caden IG:⁠⁠ ⁠www.instagram.com/obviously_its_caden/⁠⁠⁠  Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠www.tiktok.com/@wheelchair_king ⁠⁠⁠Caden Bluesky:⁠ ⁠bsky.app/profile/cadennelms.bsky.social⁠⁠ Please go support Mikey & show him some love! Love you all! 3

    1h 32m
5
out of 5
9 Ratings

About

Hello beautiful people! Digital Activism is hosted by Caden Nelms! Caden has Spinal Muscular Atrophy and uses a wheelchair full-time. Each episode, Caden discuss disabilities, chronic illnesses, advocating on social media, and more!