Dr. Peter Crane, wearing both physician and metastatic cancer patient hats, hosts Steve McBee and Michael Weishuhn to discuss bridging the information gap in rare disease care. Steve shares two decades of experience with solitary fibrous tumor, highlighting the challenges of overwhelming question lists, time-constrained visits, and the value of focused, relevant preparation. Michael explains how Inciteful Med anchors large language models in peer-reviewed medical literature (primarily PubMed) to deliver cited, verifiable insights, reducing hallucinations common in general AI tools. The conversation covers the shift from adversarial or generic AI use to collaborative preparation: uploading medical records (in a secure, non-HIPAA-certified patient-focused system), generating prioritized questions, translating complex notes into patient-friendly language, and supporting personalized decision-making. Topics include limitations of population-level guidelines, the power of integrating personal records with research, and real-world examples like advocating for liquid biopsies. The episode emphasizes humility, agenda-setting, and using tools to make limited appointment time highly productive for both patients and clinicians. Episode Highlights: Introduction to the LMC Series and the need for credible, cited information resources for rare diseases Steve McBee’s 20-year journey with metastatic solitary fibrous tumor and lessons from searching for knowledge Michael Weishuhn’s background: founding a tutoring marketplace, then developing an academic literature search engine now used by ~40,000 academics monthly, evolving into Inciteful Med Dr. Crane’s perspective as both physician and patient: welcoming well-prepared patients while cautioning against adversarial or hallucinated AI outputs (e.g., inappropriate ER visits driven by generic ChatGPT) Challenges of traditional visits: long question lists, 15-20 minute slots, competing demands on physicians, and biased patient research How Inciteful Med differs from general LLMs: anchors every factual statement to cited medical literature with paragraph-level references for verification; focuses on preparation rather than diagnosis or replacement of clinical judgment Patient preparation strategies: using the tool to generate overviews, suggested questions, and prioritized lists tailored to personal circumstances Steve’s “playbook” approach: one-page summary of expectations, communication style, quality-of-life goals, and reprioritized questions New features: secure upload of EHR exports (notes, labs, pathology interpretations) to contextualize answers and translate medical language into understandable terms Real-world impact: helping patients advocate for tests like liquid biopsies (ctDNA) by drafting informed letters to doctors and insurers Limitations acknowledged: not HIPAA-certified (patient-focused with strong security practices), systemic issues in medical literature (e.g., reproducibility crises), and the value of physician clinical experience Future vision: more personalized medicine, moving beyond population guidelines to individual-tailored plans using genetics, history, and evidence Top 3 Takeaways: Prepare collaboratively, not adversarially: Use cited, literature-anchored tools like Inciteful Med to bring focused, verifiable questions and context to visits, making the most of limited time. Anchor AI in truth: General large language models can hallucinate or reinforce biases; tools grounded in PubMed with direct citations allow patients and physicians to verify information together. Shift to personalized, informed conversations: Combine patient research, medical records, and clinical expertise to move beyond basic education into tailored decision-making that respects both evidence and individual circumstances. About Steve McBee and Michael Weishuhn Steve McBee is a 20-year survivor of metastatic solitary fibrous tumor (SFT). He has extensive experience navigating rare disease care, from initial diagnosis after a car accident to multiple surgeries, treatments, and ongoing management. Steve shares his institutional knowledge through a Substack newsletter focused on helping other SFT patients and emphasizes practical preparation for doctor visits. Michael Weishuhn has a background in technology and education. He previously founded and sold a tutoring marketplace (Wyant). He later developed an academic literature search engine used by approximately 40,000 academics monthly. This foundation led to Inciteful Med, which combines literature search with large language models to provide patients and physicians with cited, evidence-based medical insights. Website: https://incitefulmed.com SFT Patient Guide: https://incitefulmed.com/resources/sft-patient-guide About the Host: Dr. Peter Crane is a board-certified physician, educator, and storyteller with a heart for service and a calling to spotlight doctors who make a difference—in their communities, in medicine, and in the lives they touch. Through Doctors Making a Difference, he brings you into intimate conversations with physicians who have overcome challenges, redefined success, and found purpose in and beyond the clinic. His goal is simple: to help more doctors stay in medicine by showing them what's possible. About the Show: Doctors Making a Difference is more than a podcast—it’s a movement to highlight the good, the gritty, and the deeply human side of medicine. In every episode, Dr. Peter Crane interviews physicians whose stories defy the script. From burnout recovery to bold career pivots, health challenges to quiet leadership, this show honors the truth that healing begins with connection—and doctors, too, deserve to be whole. Visit: doctorsmakingadifference.com LMC Series Note: Living with Metastatic Cancer (LMC) explores the science, decisions, and day-to-day realities of life with advanced disease—through candid physician–patient conversations. The Doctors Making a Difference Podcast is for informational purposes only and does not substitute for medical, legal, or professional advice. Always consult appropriate experts regarding your unique circumstances. Hosted by Simplecast, an AdsWizz company. 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