The Bloodline with Blood Cancer United Podcast

Blood Cancer United
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A Podcast for Patients and Caregivers

  1. HÁ 1 DIA

    Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment

    Michell Fullmer, RDN, LDN, CSP, CNSC Nutrition plays a powerful role in supporting children through cancer treatment, but it’s not always easy for caregivers to know what’s best, especially when there are taste changes, appetite shifts, and treatment side effects. In this episode, we sit down with Michell Fullmer, a registered dietitian at Nemours Children’s Hospital, to share practical insights that simplify nutrition during cancer care, reduce mealtime stress, and empower caregivers to make choices that help their child feel better every day. Join us for myth-busting, actionable tips, and reassurance from an expert who has guided countless families through this important part of care. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Free Nutrition Consultations Nemours Children’s Health Blood Cancer United Dare To Dream Project Navigating Cancer for Children and Teens HealthyWeight.gov Additional Blood Cancer United Support Resources:  Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by Nemours Children’s Health. The post Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

    39min

  2. 26 DE NOV.

    After Diagnosis: Finding Hope with Myeloproliferative Neoplasms

    Abdulraheem Yacoub, MD In this episode, we are joined by Dr. Abdulraheem Yacoub of The University of Kansas Cancer Center to discuss myeloproliferative neoplasms (MPN), a group of rare blood cancers that affect how blood cells are produced. We explore what MPNs are, the most common types, and the signs and symptoms that lead to diagnosis. We also answer real questions from members of our MPN online chat community, covering topics like life expectancy, genetic mutations, and managing side effects. Finally, we discuss current treatment options, emerging therapies, and share a message of hope for patients and their loved ones. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloproliferative neoplasms (MPN) MPN Online Chat MPN-SAF Symptom Assessment Form MPN Research Consortium Tissue Bank Bispecific antibody/immunotherapy fact sheet CAR T-cell therapy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by PharmaEssentia USA Corporation. The post After Diagnosis: Finding Hope with Myeloproliferative Neoplasms first appeared on The Bloodline with Blood Cancer United Podcast.

    55min

  3. 4 DE NOV.

    Supporting the Supporter: Real Talk for Caregivers

    When cancer enters a family, it changes everything – routines, roles, and relationships. In this episode, we talk with Lindsey and Thomas Kealey about what it means to navigate cancer together as a care partner and patient. From unexpected diagnoses to months spent living in a hospital room, Lindsey shares how she balanced caregiving, work, and self-care while learning to hold space for difficult emotions. Together, they offer practical tips for caregivers, like creating healing spaces, communicating with care teams, and finding small moments of gratitude amid uncertainty. This heartfelt conversation is a reminder that behind every patient is someone quietly carrying so much and they deserve to be seen too. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Caregiver support  Caregiver Workbook Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Write it Out Journal Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Mental Health Resources The post Supporting the Supporter: Real Talk for Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.

    51min

  4. 28 DE OUT.

    MRD Explained: What it Means for You and Your Care

    John Burke, MD MRD (minimal/measurable residual disease) testing is changing the way doctors understand and monitor blood cancers.  In this episode, we talk with Dr. John Burke of the Rocky Mountain Cancer Center about how MRD testing works, what the results mean to patients and their care teams, and how ongoing clinical research is helping shape more personalized and hopeful approaches to treatment.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Minimal/Measurable Residual Disease (MRD) fact sheet Minimal/Measurable Residual Disease (MRD) chart CAR T-cell therapy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by Adaptive Biotechnologies Corporation and Allogene Therapeutics. The post MRD Explained: What it Means for You and Your Care first appeared on The Bloodline with Blood Cancer United Podcast.

    36min

  5. 29 DE SET.

    Health Coverage for 2026 and Protecting Yourself from Medical Debt

    Bethany Lilly Choosing the right health insurance plan can make all the difference in protecting your health and finances. In this episode, Bethany Lilly, Executive Director of Public Policy at Blood Cancer United, discusses important updates to healthcare insurance enrollment for 2026. Bethany explains what patients and caregivers need to know about changes to the Healthcare Marketplace and Medicare, how to avoid falling into medical debt, and the resources available to help you make informed decisions. Whether you’re reviewing employer coverage, Marketplace plans, or Medicare options, this episode will help you prepare with confidence. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Medical Debt Case Management (help choosing the right plan) How Do I? Insurance video series Healthcare.gov (Marketplace open enrollment) Medicare.gov (Medicare open enrollment) SHIP (State Health Insurance Plan) Get Involved: Renewing Enhanced Premium Tax Credits Advocacy and Public Policy State Marketplaces Open Enrollment Information Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver WorkbookMental Health Resources The post Health Coverage for 2026 and Protecting Yourself from Medical Debt first appeared on The Bloodline with Blood Cancer United Podcast.

    35min

  6. 22 DE SET.

    Acute Promyelocytic Leukemia (APL): Advances, Hope, and Healing

    Anand Jillella, MD In this episode of The Bloodline with Blood Cancer United, Elissa and guest co-host, Kristen Parker, speak with Dr. Anand Jillella, of Georgia Cancer Center. Together, they explore acute promyelocytic leukemia (APL)—a rare but highly curable subtype of acute myeloid leukemia. Dr. Jillella explains the rapid onset of APL, its hallmark signs and symptoms, and how targeted treatments have transformed outcomes for patients. Kristen, an APL survivor and Blood Cancer United Patient & Community Outreach Manager, also shares her personal perspective. Listeners will gain valuable insight into why APL stands apart as one of the most treatable forms of leukemia today. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute promyelocytic leukemia (APL) Differentiation syndrome SEER (Surveillance, Epidemiology and End Results Program) database Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources The post Acute Promyelocytic Leukemia (APL): Advances, Hope, and Healing first appeared on The Bloodline with Blood Cancer United Podcast.

    28min

  7. 10 DE SET.

    We are Blood Cancer United: a new name, an unstoppable community

    Andy Kolb, MD Eric Cooks, PhD Bryon Daily In this special episode of The Bloodline, we introduce our new name and what it means for blood cancer patients, caregivers, and the wider community. Joining us from Blood Cancer United are Dr. Andy Kolb, President & CEO; Dr. Eric Cooks, Senior Director of the Equity & Access Research Program; and Bryon Daily, myeloma survivor and Senior Manager of National Community Outreach. Together, they share why inclusivity and unity are at the heart of Blood Cancer United and how this evolution strengthens our mission to support every person impacted by blood cancer. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Blood Cancer United Patient-Doctor Perspectives: Hope for Myeloma Patients Community Outreach In The Field: Blood and Chess Atlanta Clinical Trial Support Center Advocacy and Public Policy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources The post We are Blood Cancer United: a new name, an unstoppable community first appeared on The Bloodline with Blood Cancer United Podcast.

    21min

  8. 26 DE AGO.

    Siblings, Stem Cells, and Second Chances

    What happens when a sibling match becomes the key to survival? In this heartfelt episode, we speak with Peter and Susan Feinberg, a brother-sister duo connected by both family and a lifesaving stem cell transplant. Peter, an acute lymphoblastic leukemia (ALL) survivor, shares his experience from diagnosis to remission, while Susan offers a rare and intimate view into what it means to be a stem cell donor. Together, they reflect on the emotional and logistical challenges of transplant, the determination to succeed when miles apart, and the hope it represents. Their story sheds light on the real impact of donation—and why joining the registry can mean everything to someone waiting. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Stem cell transplantation Allogeneic stem cell transplantation animated video Acute lymphoblastic leukemia (ALL) Patient-Doctor Perspectives: Acute Lymphoblastic Leukemia (ALL) NMDP (formerly Be The Match) BMT Infonet PubMed Caregiver support  Caregiver Workbook Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Free booklets  LLS Clinical Trial Support Center Financial support Young Adult Resources Support groups  Survivorship Workbook Advocacy and Public Policy LLS Community Mental Health Resources The post Siblings, Stem Cells, and Second Chances first appeared on The Bloodline with Blood Cancer United Podcast.

    54min
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A Podcast for Patients and Caregivers

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