EAHAD

EAHAD - European Association for Haemophilia and Allied Disorders
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Welcome to the official podcast of the European Association for Haemophilia and Allied Disorders (EAHAD). EAHAD is a multidisciplinary organization committed to improving the lives of people living with bleeding disorders in Europe. Our podcast is dedicated to providing valuable insights, discussions and updates on the latest developments in the field of haemophilia and allied disorders. Join us as we explore a wide range of topics including treatment, research, and patient care.

  1. E-Learning Ep. 14: Heavy Menstrual Bleeding in Women with Very Rare Coagulation Factor Deficiencies

    1월 21일

    E-Learning Ep. 14: Heavy Menstrual Bleeding in Women with Very Rare Coagulation Factor Deficiencies

    Heavy menstrual bleeding (HMB) can have a profound impact on the quality of life of women and girls with very rare coagulation factor deficiencies (VRCFDs). Understanding its underlying mechanisms, clinical manifestations, and management strategies requires a multidisciplinary approach. In this episode, you will explore HMB in the context of VRCFDs from multiple perspectives and with a multidisciplinary approach.🎥 The full module is available on the EAHAD Academy: https://academy.eahad.org/eahad/2025/e-learning-modules-2025/4190161

    13분
  2. Meet the Author Ep. 9: The Developing Role of Occupational Therapy within Haemophilia Services

    1월 7일

    Meet the Author Ep. 9: The Developing Role of Occupational Therapy within Haemophilia Services

    In this episode, Paul McLaughlin talks to Claire Forde, a specialist Occupational Therapist working in bleeding disorders. Listen to them discuss Claire's unique job role and how the occupational therapist service started in the Belfast Comprehensive Care Centre.Learn more about the service review (presented at EAHAD 2025) that Claire undertook, and how the findings of that review identify who may benefit from occupational therapy input and what care provision may look like in the future.Download the poster: https://www.eahad.org/wp-content/uploads/2026/01/EAHAD25-OT-Haemophilia-Poster-V5.pdf

    17분
  3. Meet the Author Ep. 8: A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children

    2025. 09. 01.

    Meet the Author Ep. 8: A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children

    In this episode, Maj Friberg Birkedal, Chair of the EAHAD Nurses Committee and Paediatric Nurse in Thrombosis and Haemostasis, discusses how the Neria™ Guard infusion set may help reduce pain and distress for children receiving emicizumab. Drawing on real-world experience, she highlights why even small innovations can make a big difference in paediatric care. 📰 ​ Read the article: ⁠⁠⁠https://sciendo.com/article/10.2478/jhp-2024-0019

    32분
  4. Meet the Author Ep.7: Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults with severe haemophilia: a pilot study

    2025. 06. 16.

    Meet the Author Ep.7: Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults with severe haemophilia: a pilot study

    In this episode of "Meet the Author", Daniel C. Ogrezeanu discusses his recent paper on "Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults with severe haemophilia: a pilot study". Learn more about the safety and effects of blood flow restriction exercise in people with severe haemophilia. Read the full article: https://onlinelibrary.wiley.com/doi/10.1111/hae.15084 Contact the author: daniel.ogrezeanu@uv.es

    17분
  5. Meet the Author Ep. 6: Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study

    2025. 03. 10.

    Meet the Author Ep. 6: Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study

    This episode features Paul Mclaughlin and Paula Loughnane interviewing him about his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study".📰 ​ Read the article: ⁠⁠https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-024-01550-z

    24분
  6. Meet the Author Ep. 5: A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with Haemophilia

    2024. 12. 02.

    Meet the Author Ep. 5: A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with Haemophilia

    This episode features Johan Blokzijl and Paula Loughnane interviewing him about his recent paper "A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with Haemophilia". 📰 ​ Read the article on the EAHAD Website: ⁠https://www.eahad.org/eahad-projects/physiotherapists-committee-projects/ 🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2024/meet-the-author-series-johan-blokzijl/4150266

    12분
  7. E-Learning Ep. 13: Surgery in patients with haemophilia with inhibitors

    2024. 10. 17.

    E-Learning Ep. 13: Surgery in patients with haemophilia with inhibitors

    Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud, head of the Clinical Haemostasis Unit at Lyon University Hospitals and the coordinator of the French reference centre for haemophilia to discuss the critical topic of managing surgery in haemophilia patients with inhibitors. Major surgeries for this unique patient population demand specialized expertise, a coordinated multidisciplinary team, and cutting-edge therapeutic strategies. 🎥 The full module is available on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-132-surgery-in-patients-with-haemophilia/4147547

    25분
  8. E-Learning Ep. 12: Surgery in patients with haemophilia

    2024. 09. 02.

    E-Learning Ep. 12: Surgery in patients with haemophilia

    Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud, head of the Clinical Haemostasis Unit at Lyon University Hospitals and the coordinator of the French reference centre for haemophilia to discuss the best practices for managing surgery in patients with haemophilia. 🎥 The full module is available on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-131-surgery-in-patients-with-haemophilia/4145760

    16분
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소개

Welcome to the official podcast of the European Association for Haemophilia and Allied Disorders (EAHAD). EAHAD is a multidisciplinary organization committed to improving the lives of people living with bleeding disorders in Europe. Our podcast is dedicated to providing valuable insights, discussions and updates on the latest developments in the field of haemophilia and allied disorders. Join us as we explore a wide range of topics including treatment, research, and patient care.

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  • 제작진
    EAHAD - European Association for Haemophilia and Allied Disorders
  • 방송 연도
    2023년 - 2026년
  • 에피소드
    24
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    © EAHAD - European Association for Haemophilia and Allied Disorders
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