Endo Battery

Alanna

Welcome to Endo Battery, the podcast that's here to journey with you through Endometriosis and Adenomyosis.  In a world where silence often shrouds these challenging conditions, Endo Battery stands as a beacon of hope and a source of strength. We believe in the power of knowledge, personal stories, and expert insights to illuminate the path forward. Our mission? To walk with you, hand in hand, through the often daunting landscape of Endometriosis and Adenomyosis. This podcast is like a warm hug for your ears, offering you a cozy space to connect, learn, and heal. Whether you're newly diagnosed, a seasoned warrior, or a curious supporter, Endo Battery is a resource for you. Here, you'll find a community that understands your struggles and a team dedicated to delivering good, accurate information you can trust. What to expect from Endo Battery:Personal Stories: We're all about real-life experiences – your stories, our stories – because we know that sometimes, the most profound insights come from personal journeys.  Leading Experts: Our podcast features interviews with top experts in the field. These are the individuals who light up the path with their knowledge, sharing their wisdom and expertise to empower you. Comfort and Solace: We understand that Endometriosis can be draining – physically, emotionally, and mentally. Endo Battery is your safe space, offering comfort and solace to help you recharge and regain your strength.  Life-Charging Insights: When Endometriosis tries to drain your life, Endo Battery is here to help you recharge. We're the energy boost you've been looking for, delivering insights and strategies to help you live your best life despite the challenges. Join us on this journey, and together, we'll light up the darkness that often surrounds Endometriosis and Adenomyosis. Your story, your strength, and your resilience are at the heart of Endo Battery. Tune in, listen, share, and lets charge forward together. 

  1. How Neurodivergence Shapes Chronic Pain And Medical Visits

    1D AGO

    How Neurodivergence Shapes Chronic Pain And Medical Visits

    Send us a text with a question or thought on this episode ( We cannot replay from this link) Fifteen minutes can decide whether you get help or get brushed off, and that reality hits even harder when your symptoms span multiple systems. We sit down with Dr. Sarah Cohen Solomon, a board-certified pediatrician who specializes in hypermobile Ehlers-Danlos syndrome, hypermobility spectrum disorders, POTS, MCAS, and dysautonomia, and who also knows chronic pain from the inside as a patient. Together, we talk about why endometriosis and connective tissue disorders so often get missed, why patients leave appointments feeling dismissed, and how we can start changing that story earlier, especially for kids and teens. We get practical about walking into a medical visit with a plan: how to prioritize what matters most, how to share a symptom list without setting off alarm bells, and how to protect your own boundaries when fear and time pressure make it hard to speak. We also dig into the “bendy brain” connection, including how neurodivergence like ADHD or autism can shape communication, sensory sensitivity, and even the pain experience, and what trauma-informed care can look like in a real exam room. School support is a major theme too. We break down 504 plans, what accommodations can look like for chronic pain, hypermobility, fatigue, and dysautonomia symptoms, and why you can often start the process based on function and symptoms rather than waiting years for a formal diagnosis. We wrap with a grounded conversation about pain management: reframing pain without minimizing it, medication options that may be considered with your clinician, and why individualized movement matters even when you are starting very slowly. Subscribe, share this with someone who feels overlooked, and leave a review if these conversations help. What question do you want us to ask Dr. Cohen Solomon next? Support the show Website endobattery.com Instagram: EndoBattery

    1h 9m
  2. Spotting Hypermobile EDS Early In Kids And Teens: With Dr. Sarah Cohen-Solomon

    APR 29

    Spotting Hypermobile EDS Early In Kids And Teens: With Dr. Sarah Cohen-Solomon

    Send us a text with a question or thought on this episode ( We cannot replay from this link) The “extra flexible” kid is often celebrated, not evaluated and that can be the start of a long road of unexplained injuries, chronic pain, and being told it’s “just growing pains.” I’m joined by Dr. Sarah Cohen Solomon, a pediatric specialist in hypermobile Ehlers-Danlos syndrome (hEDS) who brings something rare to the table: deep clinical expertise plus lived experience of hypermobility, pelvic pain, and years of dismissal. We get clear on what hypermobility is (and what it isn’t), why hEDS diagnosis is still heavily dependent on history and exam, and how treating it like a single sore joint misses the real problem. Dr. Solomon explains why management is the right framework, what safe physical therapy for hypermobility should prioritize, and how proprioception and body awareness can reduce injury cascades over time. We also talk mobility aids, why accessibility is not failure, and the one hands-on technique she strongly warns against: rapid high-velocity neck adjustment. From there, we shift to kids and teens. We walk through early signs parents and pediatricians may overlook, including persistent pain, fatigue after activity, GI issues like constipation or nausea, dizziness with standing, frequent ankle sprains, and recurrent nursemaid’s elbow. We also cover bruising, how it can be misunderstood in pediatrics, and why careful documentation protects families. Finally, we dig into advocacy and medical trauma: how to ask better questions, how to avoid the “doctor shopping” trap, and why being believed is a medical intervention all by itself. We close with emerging research on the overlap between endometriosis and EDS, including striking pelvic pain rates, plus a preview of part two on neurodivergence and practical support tools. If this hits home for you or your child, subscribe, share this with someone who needs it, and leave a review so more families can find the conversation. Support the show Website endobattery.com Instagram: EndoBattery

    1h 2m
  3. APR 15

    QC: Finding Yourself With Chronic Illness

    Send us a text with a question or thought on this episode ( We cannot replay from this link) Life can move fast when your health changes, and the pressure to “figure it all out” can take over your days. We sit down with Kodi Adamson, a writer, advocate, wife, and mom who has spent the past decade learning how to live with chronic illness while protecting her marriage, her identity, and her joy. She shares what happened when her health shifted early in her relationship and how honesty and humor helped, but also why she needed something deeper to get through the hardest stretches.  Kodiopens up about a traumatic event around Christmas 2024 and the decision to take a step back in 2025. Instead of chasing every diagnosis and answer, she focuses on a practical, body-aware reset: a three-part list that helps her find what still feels like her. She revisits old interests, tests them in real life, and then makes a clear call on each one: keep it, adjust it, or drop it. The result is fewer distractions, less overwhelm, and more emotional clarity, especially when chronic pain, fatigue, and uncertainty make everything feel heavier.  We also talk about what happens after bad doctor news and how easy it is to slip into fight-or-flight choices that don’t actually help. Kodi shares the small set of “favorites” that reliably pulls her out of a spiral, like painting, puzzling, playing piano, and riding an e-bike, plus the permission to keep simple comforts that work. If you’re looking for chronic illness coping strategies, relationship resilience, and a realistic way to rebuild self-worth, this quick, focused conversation offers a tool you can try today. Subscribe, share with someone who needs it, and leave a review with the one activity that brings you back to yourself. Support the show Website endobattery.com Instagram: EndoBattery

    7 min
  4. EBFC: Endometriosis Research Explained: Organoids, EDS Link, Immune System & SIBO

    APR 8

    EBFC: Endometriosis Research Explained: Organoids, EDS Link, Immune System & SIBO

    Send us a text with a question or thought on this episode ( We cannot replay from this link) Reading endometriosis research while you’re exhausted and in pain can feel like being handed a textbook when you asked for a lifeline. So we did what we always do on Endo Battery Fast Charged: we translated the studies into clarity, kept the nuance, and skipped the false promises. You’ll hear why research is messy by nature, why correlation does not equal causation, and how to stay curious without spiraling. We start with a genuinely exciting tool for the future of personalized medicine: patient-derived endometriosis organoids. These tiny 3D tissues grown from real surgical samples can mimic key features of different endometriosis subtypes, reinforcing what patients have said for years: this disease is not one-size-fits-all. We also unpack what it means that tissue from patients using hormonal treatments may grow differently in the lab, plus the limits of organoids that don’t include your full immune system, nervous system, or real-world biology. Then we zoom out to the gut and the immune system. A large case-control study finds higher rates of small intestinal bacterial overgrowth (SIBO) and intestinal methanogen overgrowth (IMO) in endometriosis patients, and we talk about what that overlap can and can’t prove. From there, we dig into endometriosis and autoimmunity research, chronic inflammation, cytokines, impaired immune surveillance, and why symptoms can feel systemic. Single-cell sequencing adds another layer, linking abnormal gene expression to progesterone resistance and uneven treatment response. We close with a major association study connecting Ehlers-Danlos syndrome (EDS) to higher endometriosis and reproductive health risks, validating that overlapping conditions may change what good care looks like. If something clicks, use it as a conversation starter with a provider who actually listens. Subscribe, share this with someone who needs the validation, and leave a review so more people can find evidence-based endometriosis support. Patient-derived epithelial cell organoids mimic the phenotypic complexity of endometriosis subtypes High prevalence of small intestinal bacterial overgrowth and intestinal methanogen overgrowth in endometriosis patients: A case-control study Endometriosis and autoimmunity Gynecologic disorders in women with Ehlers-Danlos syndrome Endometriosis and adenomyosis unveiled through single-cell glasses Support the show Website endobattery.com Instagram: EndoBattery

    15 min
  5. Vascular Compression Syndromes Can Mimic Endometriosis Pain

    MAR 20

    Vascular Compression Syndromes Can Mimic Endometriosis Pain

    Send us a text with a question or thought on this episode ( We cannot replay from this link) Pelvic pain after endometriosis surgery can feel like the cruelest plot twist: you found the specialist, went through excision, did the recovery work, and you still do not feel right. When that happens, most of us get pushed toward the same conclusion: the endometriosis must be back. I sit down with my close friend Chelsea Taylor to explore a different possibility that too many endometriosis patients never hear about, vascular compression syndromes and how they can mimic, worsen, or even drive chronic pelvic pain. Chelsea shares her lived experience with May-Thurner syndrome, nutcracker syndrome, and the long road from years of gaslighting to the right imaging, the right referrals, and finally treatment that restored her day-to-day function. We get specific about what symptoms can overlap with endometriosis, including pelvic heaviness, leg pressure, fatigue, brain fog, pain with standing still, bladder sensitivity, and back or flank pain. We also talk through what a venogram is, why MRV and specialized evaluation matter, and what it is actually like to have venous stents and follow-up care. We zoom out to the bigger picture of pelvic pain generators: endometriosis, pelvic floor dysfunction, nerve issues, central sensitization, connective tissue disorders like EDS, and dysautonomia or POTS-like symptoms that can muddy the waters. You will leave with practical language to bring to your doctor, a few clues that may suggest a vascular component, and a reminder that better outcomes often come from asking better questions, not rushing into another surgery. If this helped you, subscribe, share it with someone stuck in the loop of “maybe it’s just endo again,” and leave a review so more people can find the conversation. What symptom are you rethinking after listening? Support the show Website endobattery.com Instagram: EndoBattery

    1h 7m
  6. Your Nervous System Called; It Wants A Chill Day With The Help of Somatic Healing

    MAR 4

    Your Nervous System Called; It Wants A Chill Day With The Help of Somatic Healing

    Send us a text with a question or thought on this episode ( We cannot replay from this link) Ever been told your labs look fine while your body is screaming for help? We sit down with Jenna Stewart—a former pro dancer turned fascia relief specialist, somatic practitioner, and chef—to explore how the body holds stress, how symptoms act as protective messages, and how regulation, not willpower, unlocks real healing for chronic pain and endometriosis. Jenna takes us inside somatic therapy in plain language: body scans that anchor attention, audible breath that changes nervous system state, and gentle fascia release that loosens guarded tissue. We talk about why emotions must move to be metabolized, what “safety” actually feels like in your body, and how to create space for tears, shaking, and yawning as healthy release—not setbacks. You’ll hear how anticipatory fear can magnify cyclical pain, why pre-regulating before your period changes the experience, and how simple tools like a soft ball for gut work can ease cramps by helping organs relax and fascia un-grip. We also dig into the real-life balance between medical care and somatic work. Rather than compete, they complement: a regulated system tolerates procedures better and recovers faster. Jenna offers micro-habits you can keep—60 seconds of shaking before bed, havening when anxiety spikes, hydration before coffee, and foot rolling while you watch TV—plus the surprising red flag high achievers miss: poor sleep. Finally, we map a practical life operating system across emotional, physical, and financial boundaries so your choices stop fueling fight or flight and start sending a steady message of safety. If you’re navigating endometriosis, IBS, or lingering trauma, this conversation reframes your symptoms from failure to guidance. You’ll leave with grounded, repeatable practices to reduce flare intensity, restore trust with your body, and build resilience one small choice at a time. If this resonated, follow the show, share with a friend who needs it, and leave a review to help others find these tools. Support the show Website endobattery.com Instagram: EndoBattery

    43 min
  7. QC: Understanding EDS And Hypermobility and The Biggest Misconceptions

    FEB 25

    QC: Understanding EDS And Hypermobility and The Biggest Misconceptions

    Send us a text with a question or thought on this episode ( We cannot replay from this link) Ever been told you’re “just bendy”? We sat down with Laura Bloom, president and CEO of The Ehlers-Danlos Society, to unpack what Ehlers-Danlos syndromes and hypermobility spectrum disorders really mean for everyday life and long-term health. In five focused minutes, we move past myths and into practical clarity: which EDS subtypes have known genetic variants, why hypermobile EDS still lacks a single marker, and how that uncertainty affects diagnosis, referrals, and care. Laura breaks down the 2017 criteria—13 recognized types—and explains why all but the hypermobile type are rare to ultra-rare with identifiable genetic causes. The conversation then zooms in on the hypermobile end of the spectrum, where research and clinical experience point to heritability and complex mechanisms even without a validated test. You’ll hear how a connective tissue condition can reach far beyond joints, showing up as gastrointestinal challenges, ENT issues, bladder and gynecologic symptoms, autonomic features, and possible mast cell involvement. That breadth helps explain why so many patients bounce between specialties without a unifying plan. The most compelling shift ahead is a diagnostic criteria update expected in December 2026, with early findings suggesting hEDS and HSD belong on a single spectrum. Unifying the framework could streamline evaluation, reduce confusion, and make it easier to access coordinated, multidisciplinary care. For patients and clinicians, that means better language, clearer expectations, and a stronger foundation for research and education. If you’ve struggled to be believed or to connect the dots across systems, this fast, expert-led guide offers a grounded way forward. Subscribe for more five-minute expert answers, share this with someone who needs clarity, and send us your top question so we can bring the right voices to the mic. Support the show Website endobattery.com Instagram: EndoBattery

    5 min
  8. Bananas Won’t Fix This, But Jokes Help

    FEB 11

    Bananas Won’t Fix This, But Jokes Help

    Send us a text with a question or thought on this episode ( We cannot replay from this link) What if chronic illness showed up two months into your relationship and never left? We sit down with Kodi—writer, advocate, wife, and mom—to unpack what love, parenting, and identity look like when your body keeps rewriting the plan. It’s a raw, often funny conversation that moves from ER dismissals and misdiagnosis to the small, practical rituals that make each day livable. Kodi breaks down the diagnoses behind her symptoms—hypermobile EDS, dysautonomia, and dystonia—and the eight-year gap before anyone named her dystonic storms. We talk about the reality of short appointments, medical bias, sensory overload in waiting rooms, and why telehealth can be a lifeline. If you’ve ever left a clinic feeling invisible, you’ll find language, validation, and next steps here: how to prioritize your top concerns, ask for concrete follow‑ups, and build a care plan that respects your limits. We dive into identity after illness with Kodi’s deceptively simple keep–adjust–drop method. She revisits old passions, tracks how they feel now, and either keeps them, adapts them, or lets them go. Open mics became too loud; bluegrass jams with earplugs worked. Painting, puzzling, piano, and e‑biking now steady her nervous system. Think of it as a six‑inch plate—choose what truly nourishes you, and stop pretending you can carry everything. Alongside grief, humor plays a real role. Dark jokes don’t erase pain; they loosen its grip long enough to breathe, connect, and try again tomorrow. Marriage and parenting evolve under the weight of symptoms, so we share tools that build closeness without burning out. A “transparency journal” helps trade hard truths with time to process. Bed snuggles, Lego show‑and‑tells, and couch movies turn flare days into gentle connection. Intimacy adapts by season—sometimes it’s deep talk while tag‑teaming dishes, sometimes it’s quiet presence. We also name the tradeoffs of cash‑pay therapies and frequent scans, and how choosing small, lasting joys—like watching snowfall—can change the texture of a week. If you’re navigating endometriosis, EDS, dysautonomia, dystonia, or any chronic condition, this conversation offers honest companionship, practical advocacy tips, and a reminder that your story has value. Listen, share with someone who needs it, and leave a review so more people can find this space. Support the show Website endobattery.com Instagram: EndoBattery

    1h 14m

Trailers

4.8
out of 5
12 Ratings

About

Welcome to Endo Battery, the podcast that's here to journey with you through Endometriosis and Adenomyosis.  In a world where silence often shrouds these challenging conditions, Endo Battery stands as a beacon of hope and a source of strength. We believe in the power of knowledge, personal stories, and expert insights to illuminate the path forward. Our mission? To walk with you, hand in hand, through the often daunting landscape of Endometriosis and Adenomyosis. This podcast is like a warm hug for your ears, offering you a cozy space to connect, learn, and heal. Whether you're newly diagnosed, a seasoned warrior, or a curious supporter, Endo Battery is a resource for you. Here, you'll find a community that understands your struggles and a team dedicated to delivering good, accurate information you can trust. What to expect from Endo Battery:Personal Stories: We're all about real-life experiences – your stories, our stories – because we know that sometimes, the most profound insights come from personal journeys.  Leading Experts: Our podcast features interviews with top experts in the field. These are the individuals who light up the path with their knowledge, sharing their wisdom and expertise to empower you. Comfort and Solace: We understand that Endometriosis can be draining – physically, emotionally, and mentally. Endo Battery is your safe space, offering comfort and solace to help you recharge and regain your strength.  Life-Charging Insights: When Endometriosis tries to drain your life, Endo Battery is here to help you recharge. We're the energy boost you've been looking for, delivering insights and strategies to help you live your best life despite the challenges. Join us on this journey, and together, we'll light up the darkness that often surrounds Endometriosis and Adenomyosis. Your story, your strength, and your resilience are at the heart of Endo Battery. Tune in, listen, share, and lets charge forward together. 

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