Epilepsy Voices

Epilepsy Voices
  • 5.0 (16)
  • HEALTH & FITNESS

Epilepsy Voices is a podcast community that welcomes anyone affected by epilepsy. Through the stories we share, we aim to empower listeners to overcome obstacles, find hope, and thrive. Join us for season 2 where we dive deeper into the epilepsy community.

  1. 08/10/2021

    Wave of Life

    For our season finale, Derrick shares his inspiring and magnificent story as a person living with epilepsy riding the Wave of Life. We are incredibly thankful to Derrick and all of our guests who beautifully shared their stories, and so grateful to our podcast community for building this important platform. Thank you, as always, for listening and igniting hope for all people affected by epilepsy.

    21 min
  2. Because Of Not In Spite Of

    04/07/2021

    Because Of Not In Spite Of

    Emily shares her inspiring and moving journey of lifelong learning as a person living with epilepsy. She guides us through her story of being diagnosed with epilepsy at 16 and how it has informed her passion for public health and research. Hear about how Emily’s own experiences inspire her to be a leader and advocate for other youth living with epilepsy, providing critical and support care to teens in transition. In this journey, she recognizes that it is because of, not in spite of, her epilepsy that she is an accomplished researcher and public health expert, and that her experiences critically drive her work to ensure that high-quality care and support networks are accessible and equitable to all. EFNE Programming Segment: Massachusetts Walk to Make Epilepsy History, May 1, 2021 (https://epilepsynewengland.org/events/2021-ma-walk) MA Resource Share: Fenway Health (fenwayhealth.org) NH Resource Share: Dartmouth-Hitchcock Educational Conference, April 10, 2021 (http://go.d-h.org/EpilepsyEducation)

    40 min
  3. There iZ Hope (Part 2)

    03/26/2021

    There iZ Hope (Part 2)

    (Part 2)This is the story of an incredible life, magnificent love, loss, and hope. Zsatara Savard was just 31 years old when she passed away due to Sudden Unexpected Death in Epilepsy (SUDEP.) In this two-part series, we celebrate and honor the life of Zsatara, as told by her fiancé, Geoff. Geoff shares with us Zsatara’s incredible gifts and passions in life, from hairstyling to motherhood, and the life that he and Zsatara built together. In the aftermath of her passing, he shares with us how he and their 4 year old son Nathanael coped with the loss, how Geoff honors Zsatara by being an advocate for epilepsy, how he keeps her memory thriving, and finally, how their story reminds us all, ‘There iZ Hope’. This series is dedicated to the life and legacy of Zsatara Savard.

    1h 12m
  4. There iZ Hope (Part 1)

    03/22/2021

    There iZ Hope (Part 1)

    This is the story of an incredible life, magnificent love, loss, and hope. Zsatara Savard was just 31 years old when she passed away due to Sudden Unexpected Death in Epilepsy (SUDEP.) In this two-part series, we celebrate and honor the life of Zsatara, as told by her fiancé, Geoff. Geoff shares with us Zsatara’s incredible gifts and passions in life, from hairstyling to motherhood, and the life that he and Zsatara built together. In the aftermath of her passing, he shares with us how he and their 4 year old son Nathanael coped with the loss, how Geoff honors Zsatara by being an advocate for epilepsy, how he keeps her memory thriving, and finally, how their story reminds us all, ‘There iZ Hope’. This series is dedicated to the life and legacy of Zsatara Savard.

    42 min
  5. Never Give Up

    03/15/2021

    Never Give Up

    Nazeeh is a young man from Niha, Lebanon living with epilepsy, and an inspirational advocate to many. A talented writer, orator, life coach, and leader, Nazeeh titled this episode, “Never Give Up”, as a testament to his resiliency as he faced the obstacles of stigma and discrimination that many living with epilepsy experience. Nazeeh wants to share the message to people living with epilepsy that they can accomplish their dreams, and have important and valuable gifts and talents that leave indelible impacts on the world. Segment Timestamps: Epilepsy Foundation New England Programming Segment (25:33-26:05): Hope the Lion New Hampshire Resource Share (26:15-28:00): Little Angels Service Dogs (littleangelsservicedogs.org) Massachusetts Resource Share (28:12-29:42): Diggity Dogs Service Dogs (indogswetrust.org) Positive News (29:53-30:29): Nazeeh’s Positive News

    31 min
  6. My Fight Song

    02/22/2021

    My Fight Song

    Veronica is a young woman living with Epilepsy and visual impairment. She has chosen to share her experiences with others to give them hope and remind them to never give up. She explains that music has helped her through dark times and has inspired her to keep fighting. Listen now to hear her story. Segment Timestamps Epilepsy Foundation New England Programming Segment (18:15 – 18:45): Kids Connect Program Massachusetts Resource Share (19:01 – 19:54): Be My Eyes (bemyeyes.com) New Hampshire Resource Share (20:08 – 21:57): 211 New Hampshire (211nh.org) Positive News (22:14-22:34): Veronica’s Positive News

    23 min
  7. Epilepsy & the Beasts

    02/08/2021

    Epilepsy & the Beasts

    Meg is a young adult living with epilepsy. Listen to her story.

    21 min
  8. Here I Am: The Story of Shane

    01/25/2021

    Here I Am: The Story of Shane

    Meet Shane. Listen to his journey of living with epilepsy while navigating school and life. Please note this episode contains information pertaining to bullying, alcohol usage, and suicidal thoughts. Follow the time-stamp below to skip these parts: • 10:25 – 12:30 (bullying) • 15:15 – 16:50 (use of alcohol as a coping mechanism, anxiety attack, suicidal thoughts, inpatient hospitalization for anxiety, depression & suicidality)

    31 min
See All (22)

5
out of 5
16 Ratings

About

Epilepsy Voices is a podcast community that welcomes anyone affected by epilepsy. Through the stories we share, we aim to empower listeners to overcome obstacles, find hope, and thrive. Join us for season 2 where we dive deeper into the epilepsy community.

Information

  • Creator
    Epilepsy Voices
  • Years Active
    2019 - 2021
  • Episodes
    22
  • Rating
    Clean
  • Copyright
    © Copyright 2023 Epilepsy Voices
  • Show Website
    Epilepsy Voices