EULAR PARE EULAR

This episode features the EULAR PARE Outstanding Achievement Award winner 2023. EULAR PARE meets with Dieter Wiek from Germany, who is the first person to be awarded with this important recognition for his outstanding work for EULAR and commitment as a volunteer for more than a decade. An inspiration to all volunteers. 

This episode features a brand new Young PARE Podcast series focusing on young people living with RMDs. Sophia Marantidou from Greece and Giovanni Mascarino from Italy, who both received the RMD diagnosis in their childhood, discuss with our host Tanita-Christina Wilhelmer growing up with an RMD. 

This episode features a new series within the EULAR PARE Podcast where EULAR PARE meets with representatives of RMD patient organisations outside of Europe. We start with South Africa and the African continent in general, where we will hear from Maranda van Dam, Chairperson of the Axial Spondyloarthritis Association of South Africa, what challenges people with RMDs are facing and what patient organisations are doing to improve their quality of life. Maranda`s initiative won the PARE Best Practice Award at the EULAR PARE Conference 2022.

Lene Mandrup Thomsen (Danish Rheumatism Association) and Jeanette Andersen (Lupus Denmark) discuss how their organisations have created a programme for patient education after diagnosis called “Know Your Lupus” and how this has helped patients manage their disease.

EULAR Past-President, Iain McInnes, and EULAR PARE Vice President, Elsa Mateus, discuss EULAR's biggest achievements over the years, and what we can expect for the future of rheumatology and the organisation, in this very special episode celebrating a momentous occasion - EULAR's 75th Anniversary!

Simon Stones (patient advocate from the UK) and Alice Grosjean (Swiss League Against Rheumatism) discuss the meaning and importance of the EULAR Congress to the PARE member organisations but also to the patient representatives themselves.