19 episodes

EULAR PARE Podcast, where we discuss topics of interest to the PARE community as well as to people living with rheumatic and musculoskeletal diseases.

EULAR PARE EULAR

    • Health & Fitness

EULAR PARE Podcast, where we discuss topics of interest to the PARE community as well as to people living with rheumatic and musculoskeletal diseases.

    Celebrating EULAR's 75th Anniversary!

    Celebrating EULAR's 75th Anniversary!

    EULAR Past-President, Iain McInnes, and EULAR PARE Vice President, Elsa Mateus, discuss EULAR's biggest achievements over the years, and what we can expect for the future of rheumatology and the organisation, in this very special episode celebrating a momentous occasion - EULAR's 75th Anniversary!

    • 33 min
    Patient representatives at the EULAR Congress: experiences and expectations

    Patient representatives at the EULAR Congress: experiences and expectations

    Simon Stones (patient advocate from the UK) and Alice Grosjean (Swiss League Against Rheumatism) discuss the meaning and importance of the EULAR Congress to the PARE member organisations but also to the patient representatives themselves.

    • 8 min
    Why and how to implement peer-mentoring programmes

    Why and how to implement peer-mentoring programmes

    Nele Caeyers and Diederik De Cock from Belgium's patient organisation ReumaNet talk about peer mentoring: what is it, how ReumaNet has implemented peer mentoring programmes in their country, as well as some lessons learned from this experience.

    • 12 min
    Meet our collaborators - EURORDIS

    Meet our collaborators - EURORDIS

    This episode initiates a new series within the EULAR PARE Podcast where we aim to get to know the European organisations that collaborate with EULAR PARE a little better. Simona Bellagambi and Ilaria Galetti from EURORDIS share its history, connection to EULAR PARE and the excellent work that they do for people with rare diseases in Europe, including people with RMDs.

    • 21 min
    Meet a PARE Best Practice Fair winner - NRAS

    Meet a PARE Best Practice Fair winner - NRAS

    Ailsa Bosworth from the UK’s National Rheumatoid Arthritis Society talks about SMILE-RA, a project on self-management e-learning for people with RA, which was also one of the winners of the Best Practice Fair at the EULAR PARE Conference. 

    • 19 min
    Meet a PARE Best Practice Fair winner - ASIF

    Meet a PARE Best Practice Fair winner - ASIF

    Jo Lowe and Jo Davies from the Axial Spondyloarthritis International Federation (ASIF) talk about their project on the delay to diagnosis that people with axial spondyloarthritis often face, which was also one of the winners of the Best Practice Fair at the EULAR PARE Conference.

    • 24 min

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