23 episodes

Welcome to Few & Far Between! Chris O'Brien, CEO of Biorasi, is your host for conversations on the cutting edge - from clinical research and policymakers to rare disease advocates and industry leaders.

Few & Far Between Chris O'Brien

    • Science
    • 5.0 • 5 Ratings

Welcome to Few & Far Between! Chris O'Brien, CEO of Biorasi, is your host for conversations on the cutting edge - from clinical research and policymakers to rare disease advocates and industry leaders.

    Episode 22: Dr. Jocelynn Pearl, Senior Scientist at Tune Therapeutics, Host of Lady Scientist Podcast

    Episode 22: Dr. Jocelynn Pearl, Senior Scientist at Tune Therapeutics, Host of Lady Scientist Podcast

    How can DAOs - Decentralized Autonomous Organizations - improve rare disease research? Biorasi's Few & Far Between Podcast welcomes Dr. Jocelynn Pearl, Senior Scientist at Tune Therapeutics and host of the Lady Scientist podcast, to discuss this new connection between clinical trials and cryptocurrency.

    • 23 min
    Episode 21: Jill Hawkins, Founder and President of the FAM177A1 Research Fund

    Episode 21: Jill Hawkins, Founder and President of the FAM177A1 Research Fund

    How do you start in building a rare disease foundation? Biorasi's Few & Far Between Podcast Welcomes Jill Hawkins, Founder and President of the FAM177A1 Research Fund, to discuss the impact of an ultrarare disease on her family and the importance of moving forward towards awareness, support, and treatment.

    • 36 min
    Episode 20: Professor Bertil E. Lindmark MD, PhD, Author and CMO at Galecto, Inc.

    Episode 20: Professor Bertil E. Lindmark MD, PhD, Author and CMO at Galecto, Inc.

    What do the next 100 years have in store for healthcare and clinical research? Biorasi's Few & Far Between podcast welcomes Professor Bertil E. Lindmark MD, PhD, author and CMO at Galecto, Inc., for an in-depth discussion on the biological revolution and trends in the life sciences.

    • 30 min
    Episode 19: Leslie Michelson, Founder and CEO, Private Health Management

    Episode 19: Leslie Michelson, Founder and CEO, Private Health Management

    How do you obtain the best possible patient care available? On this week's Few & Far Between podcast, host Chris O'Brien welcomes patient advocacy innovator Leslie Michelson for a conversation on the importance of patient support, guidance, and healthcare accessibility.

    • 36 min
    Episode 18: Karen Petrou and David Brint - BioBonds

    Episode 18: Karen Petrou and David Brint - BioBonds

    On this week’s Few & Far Between podcast episode, Biorasi’s CEO, Chris O'Brien, welcomes Karen Petrou and David Brint for an in-depth discussion on BioBonds and how they can jumpstart funding in clinical research for rare disease and other disorders.

    • 55 min
    Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)

    Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)

    Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s Becky Knockemus talks with Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA).

    • 39 min

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Diverse & interesting

Diverse and interesting interviews with people from across the rare disease drug development world.

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