35 episodes
HAE Speaks US HAEA
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5.0 • 2 Ratings
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HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.
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Episode 34: A Newly Diagnosed Perspective
Kayla, an individual with HAE, shares her perspective on being recently diagnosed with HAE, advocating for herself, and her journey to a diagnosis.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
BioCryst Pharmaceuticals
Kalvista Pharmaceuticals
Takeda -
Episode 32: HAEA year in review
In this episode of the HAE Speaks podcast, the HAEA staff talks about their accomplishments in 2022. Listen now to hear what resources are available!
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
BioCryst Pharmaceuticals
BioMarin
CSL Behring
Takeda -
Episode 31- Jess shares the importance of Advocating for HAE
In this episode of the HAE Speaks podcast, Jess talks about the importance of advocacy and how you can get involved.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
BioCryst Pharmaceuticals
BioMarin
CSL Behring
Takeda -
Episode 30- Adina's HAE journey
In this episode of the HAE Speaks podcast we hear from HAEA staff member Adina. Adina shares her HAE journey from diagnosis to today.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
BioCryst Pharmaceuticals
BioMarin
CSL Behring
Takeda -
Episode 29- Bobbi shares her journey with HAE
In this episode Bobbi shares her journey with HAE as a person diagnosed with HAE, turning into also a caregiver, and how her and her girls are living a great life with HAE.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
BioCryst Pharmaceuticals
BioMarin
CSL Behring
Takeda -
Orladeyo: Red shares his HAE journey
A message from our Sponsor: BioCryst Pharmaceuticals:
In this episode of the HAE Speaks podcast, we listen to Red share his experience with HAE and preventing attacks with ORLADEYO® (berotralstat), the once daily oral treatment.
For more information on ORLADEYO, including the full prescribing and important safety information, visit www.ORLADEYO.com.
For more information about Hereditary Angioedema please visit HAEA.org